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Topic: Bone Loss Reversed 16 Months After Finishing AIs!

Forum: Bone Health and Bone Loss —

Talk with others about bone density, osteopenia and osteoporosis, and ways to keep your bones strong

Posted on: Nov 3, 2014 02:54PM

NatsFan wrote:

A ray of hope - I finished my 5 years of letrozole sixteen months ago. I had plus T values prior to dx, but after chemo and 2 years on letrozole I had mild osteopenia, and two years later it had gotten worse - still osteopenia, but heading towards osteoporosis. I had another DEXA scan last week. I was hoping, since I was off letrozole now, that things hadn't gotten worse, or at best, maybe had even improved just a bit. But I was astounded when I got my results this weekend and they showed that my bone density is now NORMAL!!! No more osteopenia!!! Woohoo!!!!!

My MO has me on calcium and Vit D, and I exercise an average of 6 days a week, including weight training, yoga, pilates, and running, so I think those things helped as well.  

This was such unexpected good news - not something that happens often with anything b/c related.  I'll be 60 next year, and I'd just figured that at my age my osteopenia was permanent and the best I could do was try to stave off osteoporosis.  I never dreamed it was possible to achieve normal density again!  Happy

Mary Dx 12/31/2007, IDC, 2cm, Stage IIB, Grade 3, 1/15 nodes, ER+/PR+, HER2-
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Nov 3, 2014 03:00PM lbrewer wrote:

thats awesome! I never remember to take my calcium.  Maybe now I will!

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Nov 3, 2014 03:14PM MsPharoah wrote:

This is so encouraging!  Thanks for sharing.

MsP

Oncotype 24 Dx 12/4/2012, ILC, Right, 1cm, Grade 1, 0/1 nodes, ER+/PR-, HER2- (FISH) Surgery 2/18/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 4/9/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 8/21/2013 Femara (letrozole) Radiation Therapy 9/4/2013 Breast
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Nov 3, 2014 04:12PM farmerlucy wrote:

That is fantastic news! Thanks for sharing!

Dx at 51 after a preventive mx that wasn't. Oncotype dx 3. 3D tattoos from Vinnie! PTSD?? You are not alone! Surgery 2/21/2012 Prophylactic mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 2/24/2012, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 3/11/2012 Lymph node removal: Sentinel Surgery 7/22/2012 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 4/10/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/14/2015 Prophylactic ovary removal
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Nov 3, 2014 04:23PM WinningSoFar wrote:

Wow, I'm impressed. 

Surgery 6/30/1999 Lumpectomy: Right Dx 7/1999, ILC/IDC, Right, 2cm, Stage IIB, Grade 1, 0/4 nodes, ER+/PR+, HER2- Radiation Therapy 7/29/1999 Whole-breast: Breast Surgery 6/30/2000 Prophylactic ovary removal Dx 9/26/2011, IBC, Right, 4cm, Stage IV, metastasized to bone, Grade 3, 0/5 nodes, ER-/PR-, HER2- Targeted Therapy 10/30/2011 Avastin (bevacizumab) Chemotherapy 11/3/2011 Abraxane (albumin-bound or nab-paclitaxel) Surgery 5/4/2012 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right Radiation Therapy 4/14/2013 External: Bone Chemotherapy 2/28/2014 Abraxane (albumin-bound or nab-paclitaxel) Surgery 12/10/2014 Reconstruction (left); Reconstruction (right) Dx 3/2019, ILC/IDC, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2- (FISH) Targeted Therapy 3/14/2019 Verzenio Hormonal Therapy Femara (letrozole)
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Nov 3, 2014 09:18PM ruthbru wrote:

Hooray! My bone density, which had stayed in the normal range but had been dropping, went back up too after I was done with Arimidex. I think it is really important to keep up with the exercise, calicium, vitamin D etc. to minimize the damage while on anti-hormonals , and that you a better chance to rebound once you are done!

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Nov 3, 2014 11:14PM cider8 wrote:

nice!  So good to hear.

~Paula~ [R] Pure Mucinous, DCIS, & IDC. BMX w/DIEP in NOLA 5/11; 12/11; 9/12. DD AC/T end 9/11. Tamox. 2mm IDC found 9/12 = 33 rads end 01/13, Oncotype 34. [L] IBC = TCx6 end 7/13, MX (remove flap), 44 rads (2x/day) end 10/13. Zoladex & Arimidex. Dx 2/25/2011, IDC, 1cm, Stage IIA, Grade 2, 1/21 nodes, ER+/PR-, HER2- Dx 4/5/2013, IBC, Stage IIIB, ER+/PR+, HER2- Dx 8/22/2013, IBC, Stage IIIC, Grade 3, 10/28 nodes, ER+/PR+, HER2-
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Nov 4, 2014 02:02AM Heidihill wrote:

YAY!!!

Dx 8/2007, IDC, Left, 2cm, Stage IV, metastasized to bone, Grade 2, 2/19 nodes, mets, ER+/PR+, HER2- (FISH) Hormonal Therapy 3/24/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 4, 2014 02:30AM Meow13 wrote:

Fantastic news. So happy you are doing so well. I have 2 years to go.

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Nov 4, 2014 05:25AM Moderators wrote:

We are delighted to hear the good news Natsfan! 

You're giving hope to others who are in similar situations, so thank you for sharing it!

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Nov 4, 2014 09:22AM dltnhm wrote:

Hurrah! That's fantastic news!

Age 48 @ diag. Left SS NS UMX, Sent.Node Biopsy & part. Axillary (Node) Ex., & DIEP recon. on 1/10/12; AC DD Chemo began 2/22/12 ended 4/4/12; Taxol 12x: infusions began 4/26/12 ended 7/11/12! Rads x28: 8/06/12 - 9/13/12; Tamoxifen began 10/01/12 Dx 11/23/2011, IDC, 2cm, Stage IIIA, Grade 2, 7/19 nodes, ER+/PR+, HER2-
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Nov 4, 2014 10:22AM Momine wrote:

Excellent!

Dx 6/1/2011, ILC, 5cm, Stage IIIB, Grade 2, 7/23 nodes, ER+/PR+, HER2- Chemotherapy 6/20/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 9/13/2011 Mastectomy: Left, Right Radiation Therapy 1/9/2012 Surgery 3/8/2012 Prophylactic ovary removal Hormonal Therapy 4/1/2012 Femara (letrozole)
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Nov 4, 2014 11:08AM ruthbru wrote:

Nats, I just copied your whole post on to the Arimidex thread. I was pretty sure you'd be okay with that, & it was nice to be able to pass some encouraging news along!

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Nov 4, 2014 12:22PM NatsFan wrote:

Thanks Ruth.  I remember how upset I was when each DEXA scan showed the osteopenia getting worse.  I wanted to give others who are facing this issue a concrete example that it's possible for bone loss to be reversed.   

Mary Dx 12/31/2007, IDC, 2cm, Stage IIB, Grade 3, 1/15 nodes, ER+/PR+, HER2-
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Nov 4, 2014 12:53PM Blessings2011 wrote:

Yay, NatsFan!!!!! ThumbsUp

Dx 9/15/2011, IDC, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 12/4/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/21/2012 Reconstruction (left); Reconstruction (right) Hormonal Therapy 9/4/2012 Arimidex (anastrozole) Hormonal Therapy 10/21/2013 Femara (letrozole)
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Nov 8, 2014 07:23PM proudtospin wrote:

Nats, my congrats to you!  I have had a similar experience and do confess that I too am diligent with my calcium, Vit D and the dang gym! 

iris Dx 6/2008, DCIS, Stage 0, ER+ Dx 2/2017, Left, Stage IV, metastasized to bone/liver, Grade 3, 1/1 nodes, ER+, HER2+
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Nov 9, 2014 10:46AM badger wrote:

Thanks, Mary, and congrats!  I finish year five of tamox next June and per onc will likely go on an AI.  Good to read a positive note.  Will get a baseline DEXA and keep on walking. ♥

Find your calm. Move forward from this place. Dx 12/22/2009, IDC, 2cm, Stage IIB, Grade 1, 1/4 nodes, ER+/PR+, HER2-
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Feb 21, 2021 10:08AM B00kworm wrote:

Thanks for posting, Mary. This is good news! I am 57 and 2 years into my 5 years on letrozole. Scan done right before treatment started showed good strong bones with all 3 readings well within the normal range. Eighteen months later, all 3 readings have shifted to the left on the scale, and 2 out of 3 showed a "significant reduction in bone density". All 3 readings are still considered "normal", but one of them is now right on the bubble between normal and osteopenia.

My MO said my BMD could get worse with time, so it's good to hear that re-establishing bone density is possible. I take my calcium and vitamin D and get my daily weight-bearing exercise in, so I am doing what I can on the front end to mitigate the damage. Hopefully I will see good results too once I come off letrozole.

Dx 7/10/2018, IDC, Right, 3cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR-, HER2- (FISH) Chemotherapy 10/22/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/15/2019 Femara (letrozole) Radiation Therapy 2/25/2019 Whole-breast: Breast
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Feb 21, 2021 10:35PM MinusTwo wrote:

Bookworm - there have been no posts to this thread since 2014 so it's definitely inactive. Sounds like you're doing good things but you may not get a response.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Feb 22, 2021 01:46PM B00kworm wrote:

Thanks, MinusTwo. Yes, the moderators got in touch with me to point that out and suggested I start my own thread. I'll get the hang of this thing eventually. :)

Dx 7/10/2018, IDC, Right, 3cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR-, HER2- (FISH) Chemotherapy 10/22/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/15/2019 Femara (letrozole) Radiation Therapy 2/25/2019 Whole-breast: Breast

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