A place for members, in similar geographic areas, to connect for support, local resources and referrals as well a place to meet up within the community virtually.
Posted on: Nov 2, 2016 08:28AM
I am for a support group in Maryland. I am in my 40s.
Page 1 of 1 (19 results)
Posts 1 - 19 (19 total)
Apr 12, 2020 06:04PM Brokenatmgene17 wrote:
I'm another Marylander, diagnosed during corona 2020.
Apr 13, 2020 12:32AM Jettie wrote:
same here brokenatmegene17 :) maybe we can liven up this thread a little :D
Apr 13, 2020 10:53AM Firecracker73 wrote:
Another Maryland girl here! I am in the tiny town of Thurmont- in Frederick County. Originally diagnosed in 2017, had a recurrence to the lymph nodes in 2018. Hope we can get this thread up and running! Nice to meet everyone. What parts of Maryland are you from?
Apr 13, 2020 11:23AM Jettie wrote:
Nice to meet you, I'm in Silver Spring, MD. Currently listening to all the birds chirping as its so quiet outside with the current stay at home orders, now if only the wood pecker would stay at home and stop banging on my trees so early in the morning all would be good.
Apr 23, 2020 10:37PM KeepingCalm wrote:
I’m also in Maryland and dealing with all of this during Covid. Starting chemo at the beginning of May. Can be lonely dealing with this during social distancing
Apr 24, 2020 11:22AM Jettie wrote:
I know how you feel :( I am midway through my chemo at the moment and only go out to the MO office for my appointments and infusions. I got furloughed last week so don't have work to distract me now, and i really wish the weather would warm up a little, so i could spend more time outside.
How's your recovery going?
Apr 24, 2020 01:36PM KeepingCalm wrote:
Great to hear from you! I'm sorry to hear about your furlough but as you said, perhaps it gives you a bit of space to just breathe amidst everything going on. Are you being treated at an area hospital?
I have recovered very very well from my surgery and was so lucky to get it done when I did (end of March). My quick and dare I say easy surgical recovery definitely influenced my disappointment at chemo being recommended but I feel confident in my doctor's recommendation so that's what I'll be doing starting in May (They wanted to push it a bit to avoid having me in the hospital at peak Covid time but I'm not even really clear on whether or not peak Covid time has occurred here!).
Hope you're weathering chemo okay. Are you anticipating having surgery?
Apr 24, 2020 03:54PM Jettie wrote:
I am having my chemo at my MO's office as they have an infusion area, not very impressed with it as its not set up for friends/family to attend with you, they do a lot of blood treatments there too (which take less than an hour) so there was high number of people coming and going when i went for my 1st infusion, but with covid, its calmed down a lot and a lot less people having treatment, which for me is a lot nicer, seeing I have 2 sessions every 3 weeks, 1 for about 5 hours, and again the following day for about an hour and half.
With regards to surgery, yep am expecting that and radiation therapy, reconstruction etc etc so a longish road ahead.
I am glad your recovering well from surgery, did they say what regime of chemo there planning?
On a fun note, https://lookgoodfeelbetter.org/programs/program-fi... have some sessions in June (all being well) so signed up for the Holy Cross one as that's close to where I am
Apr 24, 2020 04:43PM - edited Apr 24, 2020 04:44PM by Lexica
Hi, all - Jettie, I love your avatar :)
I am in Western Howard County (Woodbine/Glenwood area). Nice to see a Maryland thread :) Firecracker - I have friends in Thurmont area - so nice up there!
Apr 24, 2020 05:05PM - edited Apr 24, 2020 05:05PM by HOPE012119
Hi All!! This is so exciting to see some ladies from Maryland here!
I'm in Silver Spring too, Jettie! And we lived in Hoco before moving to Moco, Lexica.
I finished active treatment at the end of September. Currently doing OS + AI and targeted therapy.
My heart goes out to all of you in the thick of treatment 💕
May 9, 2020 01:45PM KeepingCalm wrote:
How’s everyone doing? I just started chemo on May 7th (1st of 4 cycles). I am definitely dragging today - think that’s probably the result of the Neulasta. Curious to see how I’ll do over the next few days.
May 9, 2020 03:56PM Jettie wrote:
Am not too bad today, although my sleep schedule is shot to hell. I have my 4th of 6 infusion on Monday. The Neulesta, I had the other version udencya which gave me really bad bone ache the 1st time and seemed to get somewhat better after that, my MO said the side effects last 72 hours but was more like 96, but it did pass :D
Wishing we will have some nice weather after this cold spell passes so i can sit in the shade in the garden :) cause i am sick of rain, rain and more rain, but its good for the garden so there is that!
Take care of yourself, take it easy and listen to your body and i hope the side effects don't last too long and are minimal
May 28, 2020 03:50PM KeepingCalm wrote:
How is everyone doing? Figured I'd post a brief update. Felt well going into my 2nd of 4 chemos and perhaps as a result of the pre med steroid didn't sleep much so actually rallied to do a little hike on our treadmill this morning before the appointment. I feel fortunate to be able to be halfway and realize that others have a longer course. All went smoothly and I managed to ice my hands and feet successfully.
The doctor decided from my bloodwork that we could try this cycle without Neulasta. I'll be very interested to see how that affects how I feel over the next several days. Of course, it does make me a little nervous about being potentially immunocompromised be we continue to pretty much stay home and certainly our kids aren't going anywhere so I think my exposure is far less than if they were in school. Fingers crossed!
I hope everyone is doing well.
May 28, 2020 04:48PM Jettie wrote:
hiya keeping calm,
Am glad your 2nd infusion went well, dont forget the dark nail polish as well as the icing, that seems to have kept my nails in check and only my cuticles grumbling with a little redness :) I am off for my 5th on Monday.
Hopefully it goes well without the Neulasta, I am having a bio similar udenyca and whist it makes me ache, it has been keeping my wbc count nice and high :D
My daughter started back at work this week so hopefully everyone is being safe there, i know she is, but wonder about everyone else o.0, I am still on furlough so thats kinda worked out for the best
I am glad the weather has picked up, we had a nice bbq on memorial day and it was awesome to eat outside.
Big hugs and stay safe :D
Jun 2, 2020 11:30PM KeepingCalm wrote:
How’s everyone doing? I’m on day 5 of 2nd TC infusion and doing pretty well. I’m definitely noticing more fatigue this time though. There is little room for fatigue here with my 3 kids but we are making the best of it.
Hope everyone is doing okay
Jan 26, 2021 01:09PM HOPE012119 wrote:
Hi, I'm a Moco resident. I think I'm in the 1C, tier 2 group for the vaccine distribution: https://montgomerycountymd.gov/covid19/vaccine/priority.html
How's everyone doing? Anyone else *think* they're 1C too?
How did it go with your infusions, Keepingcalm? Hope you’re doing well
Jan 26, 2021 01:26PM BevJen wrote:
This thread has been inactive for many months. I just saw it because I am also a Maryland/MoCo resident. Perhaps some folks will chime in -- but there hasn't been much going on.
As for the vaccine, I was lucky enough to get my first shot last Friday night through one of the Adventist clinics. You should look at all of the hospitals and Giant Foods -- they have separate registrations and it would give you more options. From what I've read (and experienced) the private clinics (as opposed to the county clinics) can go with the broader outlines of vaccine administration -- meaning, MoCo is only on 1B now, but some of the clinics are moving to 1C. You just have to jump on the notifications when they say they are opening up for appointments. Another interesting thing: when we went for our shots, there was a "standby" line near the end of the day of people hoping they could maybe get vaccinated with any extra dosages. We know that at least some of them did, because we saw them waiting and then saw them after they got their shots. Risky, but perhaps worth it?
Jan 26, 2021 01:46PM HOPE012119 wrote:
Hi Bevjen! This is such helpful information, thanks! I will take a look at those websites. I have been in touch with Sibley (DC) and Mercy (Baltimore) where I get treatments. It’s all so confusing to me. I’m under 65 but I’m on targeted cancer therapy and immune-suppressed. I’m willing to let the distroprocess work but I’m not sure where I fall in the system, if that makes sense. Thank you so much for sharing your experience!
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