Topic: How has the Pandemic affected you as a cancer patient/survivor

Forum: All things COVID-19 or coronavirus — A place to discuss the impact of COVID-19 (Coronavirus) on you and the ones you love.

Posted on: Sep 8, 2021 07:58PM

Posted on: Sep 8, 2021 07:58PM

trishyla wrote:

Has the Pandemic substantially impacted your life as a current or former cancer patient? Please post your stories; heartbreaking, frustrating, even uplifting.

If you post anything about treatments, cures, vaccinations, hospitalizations or deaths, please back it up with research from accepted, credible sources. Your Uncle's neighbor's third wife who posted a crazy conspiracy theory on Facebook is not a credible source.

Angry, passionate, sad are all acceptable, disrespectful is not.


Dx 8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Chemotherapy 9/28/2016 AC + T (Taxol) Surgery 4/4/2017 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap Chemotherapy 8/5/2017 Xeloda (capecitabine)
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Jan 31, 2022 08:50PM jelson wrote:

I don't know if there is a paywall, but John M Barry's essay in the NYT on what we can learn from the 1918 Influenza's fourth wave - in 1920 is quite enlightening as we seem to be tripping down the same path in 2022. . https://www.nytimes.com/2022/01/31/opinion/covid-pandemic-end.html

Dx 4/17/2009, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+
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Jan 31, 2022 09:16PM kathindc wrote:

And history repeats itself! Very interesting article.

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Feb 1, 2022 12:46PM serenitystat wrote:

The trucker protest in Ottawa is out of control. My daughter has a friend whoโ€™s driving people so they can stay off public transit to avoid getting threatened for wearing a mask. These protesters have the support of the police. ๐Ÿ˜ก


๐ŸŒป ๐Ÿ‡บ๐Ÿ‡ฆ BCO leaked our private data. ๐Ÿคฆ๐Ÿปโ€โ™€๏ธ๐Ÿคท๐Ÿปโ€โ™€๏ธ . . . . . "Do not overlook the little joys!" (Hesse, 1905) ๐ŸถDx.11/2015.IDC.L.IIIC.10/11nodes.++- โ˜•๏ธ12/2015.L.Mast ๐Ÿ›€2/2016.4AC.12Taxol.fasted ๐Ÿ–ผ9/2016.Rads.Nodes.ChestWall.15+4boosts ๐Ÿฅ10/2016.Tamox(2.5y) ๐ŸŒฒ4/2019.Exemestane ๐ŸŽญ12/2019.Ibrance/Xgeva ๐Ÿ•Š
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Feb 1, 2022 11:25PM - edited Feb 1, 2022 11:26PM by serenitystat

Wish we had these kits (with N95 masks) distributed everywhere, but we completely missed highlighting the message that โ€œinformation and instructions WILL change during the pandemic."


๐ŸŒป ๐Ÿ‡บ๐Ÿ‡ฆ BCO leaked our private data. ๐Ÿคฆ๐Ÿปโ€โ™€๏ธ๐Ÿคท๐Ÿปโ€โ™€๏ธ . . . . . "Do not overlook the little joys!" (Hesse, 1905) ๐ŸถDx.11/2015.IDC.L.IIIC.10/11nodes.++- โ˜•๏ธ12/2015.L.Mast ๐Ÿ›€2/2016.4AC.12Taxol.fasted ๐Ÿ–ผ9/2016.Rads.Nodes.ChestWall.15+4boosts ๐Ÿฅ10/2016.Tamox(2.5y) ๐ŸŒฒ4/2019.Exemestane ๐ŸŽญ12/2019.Ibrance/Xgeva ๐Ÿ•Š
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Feb 2, 2022 02:46PM serenitystat wrote:

How about some sort of positive news?

An epidemiologist caught COVID. He and his wife have had 2 doses and not yet eligible for booster. Their infant child protected from momโ€™s vaccination while pregnant and nursing. With addition of other NPIs (constant N95 use, extra ventilation/filtration, and rapid testing), the wife and child are still negative. ๐Ÿ‘

https://twitter.com/michaelmina_lab/status/1488758090300338176?s=21



๐ŸŒป ๐Ÿ‡บ๐Ÿ‡ฆ BCO leaked our private data. ๐Ÿคฆ๐Ÿปโ€โ™€๏ธ๐Ÿคท๐Ÿปโ€โ™€๏ธ . . . . . "Do not overlook the little joys!" (Hesse, 1905) ๐ŸถDx.11/2015.IDC.L.IIIC.10/11nodes.++- โ˜•๏ธ12/2015.L.Mast ๐Ÿ›€2/2016.4AC.12Taxol.fasted ๐Ÿ–ผ9/2016.Rads.Nodes.ChestWall.15+4boosts ๐Ÿฅ10/2016.Tamox(2.5y) ๐ŸŒฒ4/2019.Exemestane ๐ŸŽญ12/2019.Ibrance/Xgeva ๐Ÿ•Š
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Feb 3, 2022 12:19AM bitchonwheels wrote:

I woke up with a sore throat on Sunday and tested positive for Covid on Monday. Itโ€™s a breakthrough case - I had my first 2 Pfizer vaccines last March and was boosted in November. The good news is that itโ€™s presenting as a head cold with sore throat. No fever and lungs are clear so far. I started feeling a little better this afternoon so hoping that continues. I know some people who will spin it as proof that vaccination doesnโ€™t work but I feel the opposite is true. It appears to be a milder case that is not requiring medical intervention or hospitalization - just OTC medication and rest. I am also older (63) and have high blood pressure so while not considered โ€œhigh riskโ€ for complications from Covid I donโ€™t think Iโ€™m in a low risk group either. Stay safe out there all

Surgery 9/1/2019 Radiation Therapy 11/4/2019 Hormonal Therapy 1/1/2020 Arimidex (anastrozole)
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Feb 3, 2022 12:58AM sbelizabeth wrote:

Me too, Bitchonwheels. Both my husband and I tested positive a couple of weeks ago. We're vaccinated and got our boosters the end of August. I had fever and a slight cough, headache, along with symptoms of a head cold, for a couple of days. He had no fever but had the same head cold symptoms for about a week. Did our vaccinations protect us? YES. We were mildly ill. We had stuffy noses, not pneumonia. We took solitary walks outside for a few days, not weeks alone on a ventilator in the ICU. The biggest downside, by far, was our 10-day isolation. There are just so many episodes of Longmire and Downton Abbey you can watch.

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC/IBC, Left, 1cm, Stage IIIB, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy; Mastectomy (Left) Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap
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Feb 3, 2022 08:31AM dancemom wrote:

I know of dozens of mild breakthrough cases. I also know of 2 breakthrough (fully vaxxed and boosted) cases in healthy adults (mid 50s) which required hospitalization. Short stays, no ventilation. People need to understand that the medical definition of "mild" is often still no walk in the park. Both those patients are grateful to have not had "serious " cases.

I am increasingly disappointed in the men (predominantly) who willingly risk their lives for the rest of us daily. I wish police and fire would see that the simple act of wearing a mask in the subway is as lifesaving as their heroics. And also that as enforcers, they should be models.

I just wish people would understand. This is not about YOU. it is about everyone. Sorry your parents were bossy so you won't take directions. It's not a choice about YOUR body if you plan on breathing near another human. Just get vaccinated already!!! Look at history! I know I am preaching to the choir here. Just venting.

Dx 3/16/2021, IDC, Right, 3cm, Stage IV, metastasized to other, Grade 2, ER+/PR+, HER2- Hormonal Therapy 3/29/2021 Femara (letrozole) Targeted Therapy 4/26/2021 Ibrance (palbociclib) Surgery 1/3/2022 Lymph node removal (Right): Sentinel; Mastectomy (Right): Skin Sparing Surgery 1/3/2022 Lymph node removal (Right): Sentinel; Mastectomy (Right): Skin Sparing Radiation Therapy 3/14/2022 Whole breast, Radiation boost: Right breast, Chest wall, Lymph nodes, Other part
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Feb 3, 2022 03:06PM serenitystat wrote:

Hope those with COVID fully recover soon. The vaccinations are working.

Dancemom - The vaccine/mask resistance from essential workers is frustrating. You would think the increased deaths from COVID among their coworkers would change their minds.

The trucker protest in Ottawa is infuriating. The police are letting it continue. The โ€œprotesters" are terrorizing Ottawa residents. I cannot imagine being subjected to 5+ days of incessant honking, diesel fumes, and threats. While a student I woke up to car honking on an early Sunday morning. I was so mad I went out barefoot in the cold to yell at the woman to stop. ๐Ÿคฌ

๐ŸŒป ๐Ÿ‡บ๐Ÿ‡ฆ BCO leaked our private data. ๐Ÿคฆ๐Ÿปโ€โ™€๏ธ๐Ÿคท๐Ÿปโ€โ™€๏ธ . . . . . "Do not overlook the little joys!" (Hesse, 1905) ๐ŸถDx.11/2015.IDC.L.IIIC.10/11nodes.++- โ˜•๏ธ12/2015.L.Mast ๐Ÿ›€2/2016.4AC.12Taxol.fasted ๐Ÿ–ผ9/2016.Rads.Nodes.ChestWall.15+4boosts ๐Ÿฅ10/2016.Tamox(2.5y) ๐ŸŒฒ4/2019.Exemestane ๐ŸŽญ12/2019.Ibrance/Xgeva ๐Ÿ•Š
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Feb 4, 2022 01:05PM princessbuttercup wrote:

We have not had covid yet in our house, but we live like it's 2020 still. I can wfh and my husband is on chemotherapy and retired. He's had the vaccines plus a booster but still has very low immunity. Hoping for a fourth shot for him this spring.

Dx 11/15/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 12/5/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Chemotherapy 1/21/2018 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 5/1/2018 Whole breast: Breast Hormonal Therapy 6/11/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 11/1/2021 Aromasin (exemestane) Hormonal Therapy Femara (letrozole)

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