Topic: How has the Pandemic affected you as a cancer patient/survivor

Forum: All things COVID-19 or coronavirus — A place to discuss the impact of COVID-19 (Coronavirus) on you and the ones you love.

Posted on: Sep 8, 2021 03:58PM

Posted on: Sep 8, 2021 03:58PM

trishyla wrote:

Has the Pandemic substantially impacted your life as a current or former cancer patient? Please post your stories; heartbreaking, frustrating, even uplifting.

If you post anything about treatments, cures, vaccinations, hospitalizations or deaths, please back it up with research from accepted, credible sources. Your Uncle's neighbor's third wife who posted a crazy conspiracy theory on Facebook is not a credible source.

Angry, passionate, sad are all acceptable, disrespectful is not.


Dx 8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Chemotherapy 9/28/2016 AC + T (Taxol) Surgery 4/4/2017 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap Chemotherapy 8/4/2017 Xeloda (capecitabine)
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Sep 23, 2021 03:41PM minustwo wrote:

Simone - You are lucky & fortunate. I live in Texas. My community has NOT embraced any protections. My statei is fighting for the right not to have vaccine or masks. A parent ripped the mask off a teacher right in the school room. Another person who wanted priority service made a point of coughing & spitting at someone & laughing. LOTS of unkindness, It's great that you have such a neat community - but the rest of us occasionally need to RANT about the insensitive assholes that surround us. While I wish we lived in a nicer, kinder world - it just ain't so right now - no matter what we do.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Sep 23, 2021 04:05PM serenitystat wrote:

I don't know how this is real, but if it gets vaccines in arms...


πŸ€¦πŸ»β€β™€οΈπŸ€·πŸ»β€β™€οΈ . . . . . "Do not overlook the little joys!" (Hesse, 1905) πŸΆβ˜•οΈπŸ›€πŸ–ΌπŸ₯πŸŒ²πŸŽ­ Dx-11/2015-IDC.L.IIIC.10/11-nodes.++- 12/2015-L.Mast 2/2016-4AC+12Taxol fasted 9/2016-Rads.Nodes.Chest-wall.15+4boosts 10/2016-Tamox(2.5y) 4/2019-Exemestane 12/2019-Ibrance/Xgeva
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Sep 23, 2021 04:13PM betrayal wrote:

Meanwhile if you look closely, the venom extractor is being demonstrated on the inner aspect of the forearm. Don't know any nurse worth her salt that would identify this as an intramuscular injection site (not used for subcutaneous sites either). However, most venomous snakes probably wouldn't bite your deltoid. I wish the morons luck with that product. Why is it people will spend more time plotting a work around then it would take to just do it correctly? Cheaters abound.

Surgery 1/31/2016 Lumpectomy; Lumpectomy (Left) Surgery 1/31/2016 Lymph node removal Surgery 3/3/2016 Lumpectomy; Lumpectomy (Left) Radiation Therapy 3/30/2016 Whole breast: Breast Hormonal Therapy 6/24/2016 Arimidex (anastrozole) Hormonal Therapy 5/18/2017 Femara (letrozole) Hormonal Therapy 6/15/2020 Aromasin (exemestane)
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Sep 23, 2021 04:20PM serenitystat wrote:

I wish it said they had 20 minutes. That way they can wait the required 15 minutes and then leave the facility to do this nonsense.

πŸ€¦πŸ»β€β™€οΈπŸ€·πŸ»β€β™€οΈ . . . . . "Do not overlook the little joys!" (Hesse, 1905) πŸΆβ˜•οΈπŸ›€πŸ–ΌπŸ₯πŸŒ²πŸŽ­ Dx-11/2015-IDC.L.IIIC.10/11-nodes.++- 12/2015-L.Mast 2/2016-4AC+12Taxol fasted 9/2016-Rads.Nodes.Chest-wall.15+4boosts 10/2016-Tamox(2.5y) 4/2019-Exemestane 12/2019-Ibrance/Xgeva
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Sep 23, 2021 04:27PM exbrnxgrl wrote:

minus two,

I live in CA and most folks are supporting masking and vaccinating. My county, Santa Clara, is doing well with controlling disease spread. Maybe that’s why I can still be civil about non-vaxxers, but certainly not in my head! Seriously, I think I would be more outraged if I didn’t live in a community* that was trying so hard to put the brakes on this nightmare.


* Please do not use this post to β€œdeduce” that I do not care about other people, communities, countries etc.

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Sep 23, 2021 04:31PM simonerc wrote:

Hi Serenity,

Thank you for posting the article from Science. Good summary review. What I did see in the summary article you posted was that vaccination of previously infected and recovered individuals boosted their immune B and T cell activation levels. This is completely unsurprising since every re-exposure to viral antigens whether natural or in the form of a vaccine produces such a boosting effect. There is however no suggestion that vaccine boosting of previously infected persons is necessary for those individuals to be protected against recurrence of the disease. In general natural immunity against infections is more widely distributed against a broader range of viral antigens than vaccine induced immunity and is highly efficacious in protecting against re-infection. There’s no reason to think that this coronavirus behaves differently from the thousands of others viruses with which we have extensive experience and the article you posted makes no such suggestion.

On a strictly personal level, my husband and I both donated Convalescent Plasma for almost one year after we recovered from Covid. Our antibodies were tested at each donation and we both retained more than sufficient levels of antibodies to be Convalescent Plasma donors for that entire time. We only stopped making donations as the science moved away from Convalescent Plasma to monoclonal antibodies.

Thank you again for posting the summary!


ATM Gene Mutation, Deletion. IDC w/Lobular Features and Focal Mucinous Features. Pre Pectoral Reconstruction. Hysterectomy
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Sep 23, 2021 04:47PM minustwo wrote:

exbrn - Ah ha.... I grew up in Palo Alto - MANY years ago when there was no Silicone Valley and lots of green hills (or brown as the season would dictate.)

No - I won't mis-interpret that you don't care. I too care. I was active in a number of things before COVID and expect I will be again when I feel comfortable in groups again. But considering where I live - not now.

BTW - does your name indicate Brown? My DIL graduated from Brown.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Sep 23, 2021 05:02PM serenitystat wrote:

Simone - I have not read that prior COVID infection works against variants as well as vaccination. Please provide links? I did read that convalescent plasma did not work well as a treatment, but I appreciate the time and effort it took to donate.

πŸ€¦πŸ»β€β™€οΈπŸ€·πŸ»β€β™€οΈ . . . . . "Do not overlook the little joys!" (Hesse, 1905) πŸΆβ˜•οΈπŸ›€πŸ–ΌπŸ₯πŸŒ²πŸŽ­ Dx-11/2015-IDC.L.IIIC.10/11-nodes.++- 12/2015-L.Mast 2/2016-4AC+12Taxol fasted 9/2016-Rads.Nodes.Chest-wall.15+4boosts 10/2016-Tamox(2.5y) 4/2019-Exemestane 12/2019-Ibrance/Xgeva
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Sep 23, 2021 05:07PM exbrnxgrl wrote:

Nope, it’s exbrnxgrl, brnx as in the Bronx. Born and raised there though I have not lived there since my twenties. Despite time in TX and over 30 years in CA, I’m still a gal from the Bronx.

I think I’ve mentioned this before but I lived in Houston for almost 9 years. I lived mostly in the Heights and then bought a home in the Woodlands. My older dd was born at Spring Branch Memorial Hospital but that was 37 years ago so it might not even exist.

Yes the Santa Clara Valley was once the valley of the hearts delights, i.e. acres of fruit trees in bloom. One of the last remaining orchards in Los Gatos is blooming with new homes and fruit production is no longer profitable here. Change, whether we like it or not, is inevitable.

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Sep 23, 2021 05:39PM serenitystat wrote:

Even with prior COVID infection, vaccination is warranted against variants.

https://directorsblog.nih.gov/2021/06/22/how-immunity-generated-from-covid-19-vaccines-differs-from-an-infection/

πŸ€¦πŸ»β€β™€οΈπŸ€·πŸ»β€β™€οΈ . . . . . "Do not overlook the little joys!" (Hesse, 1905) πŸΆβ˜•οΈπŸ›€πŸ–ΌπŸ₯πŸŒ²πŸŽ­ Dx-11/2015-IDC.L.IIIC.10/11-nodes.++- 12/2015-L.Mast 2/2016-4AC+12Taxol fasted 9/2016-Rads.Nodes.Chest-wall.15+4boosts 10/2016-Tamox(2.5y) 4/2019-Exemestane 12/2019-Ibrance/Xgeva

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