Topic: How has the Pandemic affected you as a cancer patient/survivor

Forum: All things COVID-19 or coronavirus — A place to discuss the impact of COVID-19 (Coronavirus) on you and the ones you love.

Posted on: Sep 8, 2021 06:58PM

Posted on: Sep 8, 2021 06:58PM

trishyla wrote:

Has the Pandemic substantially impacted your life as a current or former cancer patient? Please post your stories; heartbreaking, frustrating, even uplifting.

If you post anything about treatments, cures, vaccinations, hospitalizations or deaths, please back it up with research from accepted, credible sources. Your Uncle's neighbor's third wife who posted a crazy conspiracy theory on Facebook is not a credible source.

Angry, passionate, sad are all acceptable, disrespectful is not.


Dx 8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Chemotherapy 9/28/2016 AC + T (Taxol) Surgery 4/4/2017 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap Chemotherapy 8/5/2017 Xeloda (capecitabine)
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Sep 24, 2021 04:57PM alicebastable wrote:

exbrnxgrl, I find it hard to refrain from flipping them off. It's become an almost automatic reaction.

Ignore treatment info (below) which is a BCO glitch. Do not enter personal information on this site since they grossly mishandled a data breach. Surgery 7/11/2018 Lumpectomy; Lumpectomy (Left); Lymph node removal Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole breast: Breast, Lymph nodes
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Sep 24, 2021 05:28PM illimae wrote:

Exbrnxgl, I might have done the same without regrets.

While I’m ultimately against mandates in most situations, I find it disturbing and unacceptable that people put so much effort into trying to force their beliefs on others. It’s a real shame the way some people are behaving.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ Radiation Therapy 10/20/2017 External Local Metastases 10/20/2017 Brain Radiation Therapy 4/18/2018 External Local Metastases 4/18/2018 Brain Radiation Therapy 5/23/2019 External Local Metastases 5/23/2019 Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External Local Metastases 2/17/2020 Brain Radiation Therapy 7/20/2020 External Local Metastases 7/20/2020 Radiation therapy: Bone Radiation Therapy 12/4/2020 External Local Metastases 12/4/2020 Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 24, 2021 06:25PM exbrnxgrl wrote:

In theory I am against mandates. I always hope people will think of others and do the right thing. The truth is that people don’t always do the right thing and that is why mandates are sometimes necessary. I wish they weren’t but they are.

The demonstration was not large at all, possibly less than 100 people. It did comfort me to know that these folks are a small minority in my county.

Dx IDC, Left, 4cm, Stage IV, Grade 1, ER+/PR+, HER2-
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Sep 24, 2021 06:32PM wrenn wrote:

It's pitiful that any government is forced to make people protect themselves and others. Once people knew smoking was dangerous you would think it would be common sense to isolate yourself when doing it. Or if you found out you could save your life or your child's life or someone else's simply by using a seat belt or car seat then of course they would do it. My son was sick from his mandated malaria shot when he travelled in Thailand and Nepal and expected it but he didn't want malaria. duh.

Seems like there are a lot of either really stupid or really unkind people out there.

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Sep 24, 2021 06:38PM sbelizabeth wrote:

As a former ED and prehospital nurse, I've seen plenty of approaches to snakebite treatment. The vacuum extractor is a complete bust. No better than the really old-fashioned approach of cutting incisions and sucking out the venom.

https://www.snakebitefoundation.org/blog/2019/1/20...

https://pubmed.ncbi.nlm.nih.gov/14747805/

https://litfl.com/venom-extraction-kits-seriously-...

Seriously, how could a thinking individual possibly believe venom (you can substitute "vaccine" almost throughout the articles) could be sucked out after it's been injected at least an inch deep into a muscle? Once it's in, it's in. No amount of suction applied to the skin will remove even a drop of it.

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC/IBC, Left, 1cm, Stage IIIB, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy; Mastectomy (Left) Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap
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Sep 24, 2021 06:38PM minustwo wrote:

Based on the time of the day & the fact that I've just consumed a lovely gin & tonic - wrenn's comment makes me want to cry. Oh, I do agree - but how very sad....

Maybe I should start smoking again & go to "their" protest and blow smoke in their faces? How juvenile is that?

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Sep 24, 2021 06:54PM serenitystat wrote:

wrenn - 👍 Mandates are getting the stragglers on the far left of the Bell Curve.

sbelizabeth - Ah, but they aren't thinking, so easily conned.

Minus - G&T yum.

I read there are new outbreaks in a local hospital and a retirement home. The vaccine mandates will help prevent those. They're necessary.

BCO leaked our private data. 🤦🏻‍♀️🤷🏻‍♀️ . . . . . "Do not overlook the little joys!" (Hesse, 1905) 🐶Dx.11/2015.IDC.L.IIIC.10/11nodes.++- ☕️12/2015.L.Mast 🛀2/2016.4AC.12Taxol.fasted 🖼9/2016.Rads.Nodes.ChestWall.15+4boosts 🥐10/2016.Tamox(2.5y) 🌲4/2019.Exemestane 🎭12/2019.Ibrance/Xgeva 🕊
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Sep 24, 2021 07:42PM exbrnxgrl wrote:

minustwo,

Another gin and tonic fan! ruthbru and I enjoyed one together in person several years ago. Every now and then we raise a virtual glass too! Enjoy it

Dx IDC, Left, 4cm, Stage IV, Grade 1, ER+/PR+, HER2-
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Sep 24, 2021 08:01PM traveltext wrote:

MinusTwo. Rather than providing questions, I was going to summarise the sentiments and posts here. Any quotes will be attributed to forum names. Nothing would be published before approvals for any quotes are obtained.


NED breast and prostate cancer. Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin. Chemotherapy 3/6/2014 Other Chemotherapy 3/6/2014 AC + T (Taxotere) Chemotherapy 3/10/2014 FAC Hormonal Therapy 4/16/2014 Surgery 7/1/2014 Lymph node removal (Left); Mastectomy (Left) Surgery 7/23/2014 Lymph node removal (Left); Mastectomy (Left) Radiation Therapy 8/8/2014 Whole breast: Left breast, Lymph nodes Radiation Therapy 8/22/2014 Whole breast: Left breast, Chest wall, Lymph nodes Hormonal Therapy 10/24/2014 Liquid tamoxifen (Soltamox) Hormonal Therapy 10/30/2014 Hormonal Therapy 11/1/2014 Surgery 5/8/2022 Radiation Therapy Surgery Surgery Surgery Hormonal Therapy Surgery Hormonal Therapy Surgery Surgery Surgery Surgery
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Sep 24, 2021 10:33PM trishyla wrote:

I don't know about anyone else, but it works for me, Traveltext. Please make sure to post a link so we can read your article. They're always informative and well written.

Trish

Dx 8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Chemotherapy 9/28/2016 AC + T (Taxol) Surgery 4/4/2017 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap Chemotherapy 8/5/2017 Xeloda (capecitabine)

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