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May 18, 2021 08:09PM
Hi guys I am 2 years in!I am a Mplastic BC patient. I have MpBC. Well, I had it. And I guess I may still. But so could anyone really. Anyway, I'm not quite out of the woods yet. I am two years in. So three to go. Although if I recall correctly, there is a significant amount of evidence that suggests 18 months as the peak reoccurrence time and a total reoccurrence window closer to 3 years, rather than 5 for MpBC specifically.
I'm in the right place, right? Is anyone keeping up on the research? I went deep into it 2 years and 2 months ago, but then I had to get back to my physics. I am a physicist. An astrophysicist actually, an astronomer. In general, I post in the TN thread when I post because well I am triple negative too of course and that thread has more people!
Well here I am, it is summer and Universities are on break for a few weeks and I want to throw my hat in the ring, so you have more people. I don't do Facebook. But I respect everyone's right to do so.
Ever vigilant. Anyone keeping up on things? Because there's so little to do for Plastic and so little news about it I tend to not keep up. I should try and get a news alert or something. Then they'd probably just change the name, which they should actually, with all the metastatic confusion. My surgeon has been my rockstar. She's awesome! A surgeon is a mPlastic patient's best friend! Right? She pushes through all the scans, shortens wait times, reviews all surveillance scans herself. She knows about the subtype and she stays informed.
My MO was pretty pointless. All of them were actually. I had maybe 5. I liked one of them but then she retired! The survivor-ship lady was uninformed too!
The radiation guy was at a different hospital and was just so happy with himself. Kept calling himself the guy with the gun, and basically just always running late for appointments. He liked to draw pictures and he was of the mind that each breast was a separate organ and any reoccurrence in Breast number two would be metastatic. I informed him that no that's not the case. Tried to use the unibrow analogy and of course, just telling him he was wrong, but he was the guy with the gun he said so I just gave up. Why we were arguing about this as I only ever had the one breast affected I don't actually know!
The best was the UCSF specialist I went to for their 2nd opinion tumor clinic and my Surgeon!
Anyway. Hi guys! Just wanted to post because well I hadn't yet! The emotion meter in the lower right corner looks like the guy from Edvard Munch's "the scream". Let me see if I can cheer him up! Happy happy! .
Unicorns! Rainbows! Well, he's still really upset down there in the corner. ❤️❤️❤️❤️❤️ Ok, I figured out how to turn that emotion meter off! I think it was Grammarly or something. Ah well!
It said it thought I sounded worried or stressed. I am neither! Thanks again. Thanks for the work it takes to maintain this thread, which seems underpopulated indeed! Although I wouldn't wish admission to this club on anyone!
Anyway, it's another day in paradise for me! I mean there's nothing good about cancer or poor health in general, but I guess I can say that at the very least glad to have been reminded I am mortal after all! I try to find silver linings in everything. It's my superpower. So to close, live on and strong, stay vigilant, and keep the faith!😌
Dx 2/19: Plastic TN (MpBC) | 3.9 cm | Neg Nodes | BRCA Neg | Stage 2 | Grade 3 | 16 days Dx to LUMP | ACT halted | LUMP | Reconstruct/Dent Repair was Fat Graft | RADS | living well & vigilant | Definite Chemo Brain 🔭🌋👑.