Topic: Any high Ki67 survivor stories out there?

Forum: Who or What Inspires You? — Share your personal story, diagnosis, and treatment path, and stories of survival, hope, and success to encourage and inspire others!

Posted on: Mar 2, 2012 12:43PM - edited Mar 2, 2012 12:44PM by jenlee

Posted on: Mar 2, 2012 12:43PM - edited Mar 2, 2012 12:44PM by jenlee

jenlee wrote:

I would LOVE to hear from ANY survivors who had high Ki67 !!!!  (Also hormone positive with high Ki67).  My Ki67 is 75%, which feels like a death sentence, even though half way through chemo, the tumor has shrunk by about 80%.  It has been an emotionally challenging week and I could use some positive (really positive) stories.
Jenifer, completed TAC x 8 on 4/24/2012. Lumpectomy on 5/23/2012. BMX & immediate DIEH stage 1 on 6/5/2012 NOLA; stage 2 surgery 10/4/12 NOLA. Tamoxifen since 6/2012. Switched to Arimidex 9/2013. Dx 10/20/2011, IDC, 4cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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Mar 5, 2012 11:17AM jenlee wrote:

bump

Jenifer, completed TAC x 8 on 4/24/2012. Lumpectomy on 5/23/2012. BMX & immediate DIEH stage 1 on 6/5/2012 NOLA; stage 2 surgery 10/4/12 NOLA. Tamoxifen since 6/2012. Switched to Arimidex 9/2013. Dx 10/20/2011, IDC, 4cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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Mar 5, 2012 03:23PM jdeking wrote:

I had Ki67 of 61% and am 3 years out from diagnosis and doing well.

Hang in there! Things will get better.

Dx 1/6/2009, IDC, 1cm, Stage IIA, Grade 2, 2/10 nodes, ER+/PR+, HER2-
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Mar 6, 2012 09:17AM jenlee wrote:

bump - still hoping for more encouraging true stories!

Jenifer, completed TAC x 8 on 4/24/2012. Lumpectomy on 5/23/2012. BMX & immediate DIEH stage 1 on 6/5/2012 NOLA; stage 2 surgery 10/4/12 NOLA. Tamoxifen since 6/2012. Switched to Arimidex 9/2013. Dx 10/20/2011, IDC, 4cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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Mar 6, 2012 09:30AM SusansGarden wrote:

Jenlee ~ I also wanted to add that the majority of people that are doing really well and far out don't hang out here much...they are busy living life. :) ... so don't be too discouraged if you don't see a ton of long term survivors responding. 

"If you want to forget all your other troubles, wear too tight shoes." Dx 10/6/2010, IDC, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 11/30/2010 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 2/1/2011 Surgery 7/10/2013 Prophylactic ovary removal
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Mar 6, 2012 09:56AM jenlee wrote:

SusansGarden, thanks so much for reminding me of that!

Jenifer, completed TAC x 8 on 4/24/2012. Lumpectomy on 5/23/2012. BMX & immediate DIEH stage 1 on 6/5/2012 NOLA; stage 2 surgery 10/4/12 NOLA. Tamoxifen since 6/2012. Switched to Arimidex 9/2013. Dx 10/20/2011, IDC, 4cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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Mar 6, 2012 10:01AM SusansGarden wrote:

You're welcome. :) .... also, another thing... this site is fairly "new" ...so since most people usually don't seek out this type of forum unless they are newly diagnosed and/or in active treatment....you aren't going to see many people past 5 years as active members on here.

Hope you are having a great day. 

"If you want to forget all your other troubles, wear too tight shoes." Dx 10/6/2010, IDC, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 11/30/2010 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 2/1/2011 Surgery 7/10/2013 Prophylactic ovary removal
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Apr 17, 2012 03:48PM Josiekat wrote:

Hi-
My ki67 was 98%. I was freaked out. My Onc told me that most young women have high ki67, that made me feel a bit better. And my chemo is working quite well, as they predicted.
Cheers.

Dx 12/6/2011, IDC, 2cm, Stage IIIC, Grade 3, ER+/PR+, HER2-
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Apr 18, 2012 02:04PM sflow wrote:

I don't remember having a ki67 number on my path report.  Should it be there?

Dx 11/15/2006, IDC, Right, <1cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR+, HER2-,
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Apr 21, 2012 05:41PM - edited Apr 21, 2012 05:48PM by lisaellen

This Post was deleted by lisaellen.
Dx 3-18-07,2.2cm tumor,stageII,grade3,8 rounds ACT,no rads,Infiltrating ductal,0nodes, bi-latmast.10-07,expanders2-27-08, implants with tattoo nipples
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Apr 21, 2012 09:43PM jenlee wrote:

sflow, I think that one of the surgeons we consulted with told us that some labs/doctors use Ki67 and some don't.  

Jenifer, completed TAC x 8 on 4/24/2012. Lumpectomy on 5/23/2012. BMX & immediate DIEH stage 1 on 6/5/2012 NOLA; stage 2 surgery 10/4/12 NOLA. Tamoxifen since 6/2012. Switched to Arimidex 9/2013. Dx 10/20/2011, IDC, 4cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2-

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