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Dec 16, 2020 04:20PM
I am 8 days post my 2nd of 4 rounds of TC and wanted to thank everyone for this forum to vent, gets tips and just to get the feeling we are all in this together.
I am 37 and without family history, known as the health freak so it’s been crazy this has happened but thank the Lord for all the advances and being half way done with chemo and post mastectomy still feeling really good.
I am doing to penguin cold caps the first treatment I paid for the trainer and the facility was so kind they allowed them to train my husband who has taken over. My expire eve with cold cap has been great, I was told last hair wash day is 2 days prior to chemo and then wait 72 hrs after and now I wash 2 x per wk. pain is very minimal lasts for 2 min and I take 1000mg of Tylenol 30 min prior as advised. No hair loss noticed until day 20 for me and is like a overall thinning unnoticeable to anyone else but I see thinning in the sides near my ears but seemed to come and go. I find it’s easier to do a very lose braid or or bun because if it’s down it’s more noticeable.
My tips for chemo is not to eat fatty foods 3 days prior and at least 3 days after although I am only doing 2 cheats a month, juicing/ home made fruit veggie smoothies, exercise and hydrating. I drink at least 100 ounces of water per day and especially 2 days before and 3 days after chemo and make sure to avoid dairy and red meats if possible. I walk everyday even during the chemo days I would say try to walk for 15 min 4 times per day and stretch, it’s crazy how my weird bone and pelvic/ neck pain would go away with this. Now I walk 3 miles 3-4 x per wk with strength training 3x per wk. I use my ninja to blend few cubes of ice, unsweetened organic coconut milk(2tbsp), 1/2 cup strawberries, 1/3 of large organic cucumber, celery, 1/2 green apple and 1 cup of spinach/kale/chard mix daily which has helped keep me regular. Try to intake at least 8-9 servings of fresh fruits and veggies.
Side effects- 1st round it started 3 days after my infusion which was the day I started my period (even though I got a lupron injection) but I was told by my oncologist to rest and don’t try to do much so I felt tired, nausea and with little appetite I ate only small amount of fruits, breads, potatoes etc. also major headache and then started the bone pains from zarxio inj. Scalp irritation, weird acne rash on my chest/back, hot flashes, dizziness. They lasted for like 3 days. My second round was amazing maybe little bit of fatigue and headache the 2 days after chemo but I think the addition of forcing myself to exercise and not lay down all day, dexamethasone 24 hrs prior to chemo and 2 days after and adding way more fruits and veggies via juicing really helped.
Sorry it’s a novel but I hope to try to help anyone the way you all have helped me:)
Also for those of you doing the cold cap, do you guys use a shower cap to protect your hair the non washing days and best shampoo you all like to help with the scalp irritation (dry, flaky) that’s still ok to use while using cold caps
7/2020, DCIS/IDC: Mucinous, Left, 1cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR+
11/16/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
Lumpectomy: Left; Lymph node removal: Sentinel