Topic: Anyone stop chemo due to ongoing and progressing side effects?

Forum: Chemotherapy - Before, During, and After — Regimens, side effects, and support from others going through chemo.

Posted on: May 11, 2022 12:34AM

Posted on: May 11, 2022 12:34AM

bonniebleu wrote:

Hi,

I finished 8 out of 12 Taxol and the first 4 A/C. At first the treatments were not awful, I have to say. Actually, I felt A/C was easier than the Taxol.

But things have been getting progressively worse. GI, severe bone/muscle/joint pain, neuropathy in hands and feet, my legs felt like I could hardly stand sometimes and big time chemo fog. I’m just not bouncing back from the treatments like I used to.

I recently saw my surgeon and she said that I didn’t need to complete all 12 treatments. ????? I haven’t talked with my onco about this yet, see her on Friday. While I know my body feels like I can’t take anymore, I’m worried. And I feel like a chemo flunky.

Anybody go through this? Many Thanks😊

Dx 3/31/16. Age 47, IDC right, 2cm, ER+95%, PR+95%, HER2-, oncotype 13, ki67 30%, Dx 3/31/2016, IDC, Right, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/11/2016 Mastectomy
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May 11, 2022 09:45PM nns121317 wrote:

I completed 4 AC and 12 Taxol, but Taxol 3-12 were only 80%. I struggled with Taxol far more than AC - neuropathy, GI issues, chest pains, brain fog and fatigue. The MO kept telling me everything would get better. Instead, things have gotten worse - almost four weeks after my final infusion, and I'm getting blood transfusions and being evaluated for lupus and other unpleasant things. While nobody has a crystal ball, it's very discouraging to not be bouncing back at all from chemo, and then I started radiation on Monday so I feel like treatment is just a lot right now.

I don't have any real advice, but I hope they figure out a good path forward for you. 🤗

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May 11, 2022 10:00PM bonniebleu wrote:

Oh my word I am so sorry! And now you’ve started radiation as well…you’re a strong person! Please update here how you’re doing. Thank You for taking the time to respond…it helps so much to hear from others going through it.

Sending healing thoughts to you

Dx 3/31/16. Age 47, IDC right, 2cm, ER+95%, PR+95%, HER2-, oncotype 13, ki67 30%, Dx 3/31/2016, IDC, Right, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/11/2016 Mastectomy
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May 11, 2022 10:23PM dee-12345 wrote:

74 yrs. Stage 3 N 20 out 21 pos. Node in collarbone and mediasternum enlarged. Had bi lateral mast Nov 21. Pain and burning for 4 months. I found AC awful. Pain...bone pain. joint pain ankles, knee.shoulder arms. wrisf, hands. HX of fibro for at lease 20 yrs. I did not want to cont. with taxol after my 2nd does. Dr. finally gave me Hydocodone for 3 days. Still struggling very much.

Chemotherapy 12/1/2021 AC + T (Taxol)
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May 11, 2022 10:46PM upstatenyer wrote:

Hi Bonniebleu,

I only did 4 T/C, but wanted to quit after the second round. Migraines, Body ached from head to toe, nausea, chemo fog, could not get off the couch. I spoke to MO, and she cut back on dose by 10 percent for last 2 txts, Also gave me larger amounts of fluids during infusion . It made a world of difference, at least made chemo tolerable Everyone's tolerance is different. I wish the best for you.

Into every life a little rain must fall Dx 2/6/2019, DCIS/IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2- Dx 2/8/2019, IDC, Right, <1cm, Stage IA, Grade 3, ER+/PR-, HER2- Surgery 3/20/2019 Lumpectomy; Lumpectomy (Right) Surgery 4/3/2019 Lumpectomy; Lumpectomy (Right) Chemotherapy 5/8/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 8/7/2019 Lumpectomy Hormonal Therapy 9/5/2019 Arimidex (anastrozole) Radiation Therapy 9/11/2019
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May 12, 2022 01:01PM chuckee1104 wrote:

I didn't get my last dose of chemo due to the accumulating side effects from Taxer and Carboplatin. After my oncologist suggested discontinuing, I spoke with an oncologist at work and they both agreed that the best chemo effects are early on. The tumor clearly shrunk after my first dose, so I was fine with discontinuing. I'm still getting the antibodies (Perjeta and Herceptin) for another 7 months. MRI on Saturday. Also double mastectomy coming up in July, 2022, so I am pretty secure that I'm doing everything that I can to fight this. I will fight this with all that I have after having this the second time in 17 years.

Immunotherapy 1/25/2022 Chemotherapy 1/25/2022

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