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May 11, 2019 01:20PM
May 11, 2019 01:22PM
Hi all, so good to hear from you and to hear the mostly things are healing and getting better. Encouraging.
Just wanted to say that for me, even though RADs ended on Halloween, and it's what now, 7 months later, I still have quite a bit of SEs.
The "tan" is still there, but thankfully it's no longer red, peely, and painful to touch. Took about two months for the red to fade to the tan. The tan is fading though. My surgeon said it should probably be gone next year.
For the longest time afterwards my nipple was a mess. When it finally started healing, it went through this weird "am I oily? am I sticky? am I dry?" stage. My PT said that's to be expected. It still has days when it's oily/sticky but it's getting better.
I put on my lotion 2 x day but my skin is still very dry. Also to be expected.
The Breast Lymphedema continues and my PT says likely I will it for the rest of my life worst case, best case maybe a few years from now it will be better. Meaning I wear compression bras, Comprex prosthesis, and do daily PT to manage it the best I can. I still can't wear a normal bra and according to my team, I'm likely not going to be able to for quite awhile. It's too painful and uncomfortable, plus leads to build up of edema in my breast.
The Fibrosis damage/scar tissue is pretty awful. Appearance wise you'd never know anything is there, but it is. It's all lumpy, bumpy, grainy underneath the skin. Extending from an inch or two under my treated breast, to the inner edges of the unaffected L breast and sternum, up into my neck/clavicle, and over to my ribs and armpit....I alomst forget about it until I go to do my daily LMD massage therapy and have to feel all of it and the accompanying pain/tenderness.I can't lay on my stomach as it puts pressure on my breast, and well that pain is no fun. I'm hopeful that in a year that will be a bit better. My PT says that's possible. Let's hope.
So yeah, RADs was not kind to me. I wish I could've had a better outcome but what matters is that it hopefully zapped all the random cancer cells to kingdom come. At least I still don't have to shave my armpit! LOL.
Anyway for anyone that's still healing, progressing, and struggling just know we are all different and even though the RADs may be similar, our bodies sure process it differently. Hang in there.
Gentle hugs to all.
"Spoonie" who entered BC World @ 41. DXd w/MS & Thyroid Cancer @42. Treatment: LX/SLNB/RADs. Plan A: 5mg Tamox = 0 QOL. Plan B: OS/AI = Rare allergy to OS meds. Plan C: Only option left, Diet & Exercise. PS: Not a dr, just a Googler.
7/20/2018, IDC, Left, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH)
8/29/2018 Lumpectomy: Left; Lymph node removal: Left, Sentinel
8/30/2018, DCIS, Left, 1cm, Stage 0, Grade 2
9/30/2018 Whole-breast: Breast, Lymph nodes, Chest wall
3/29/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
7/1/2019 Zoladex (goserelin)