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Topic: No more Treatment? What if I let Nature take it's course?

Forum: Palliative Therapy/Hospice Care — A unique forum ONLY for those trying to live well and/or trying to die well.

Posted on: Dec 9, 2017 10:38AM

GraceDD wrote:

Hi to all of us,

In 2012, Cindy Rose started this a thread like this, may she rest in peace (2013). The topic thread seems to have "faded away"... But I remain curious and interested. Do others have thoughts about "What if I quit treatment, and let Nature take it's course"? I would love to hear about others' courage to face the inevitable. I'm bothered by drug company's draining our retirement savings to pay for medical care which cannot save us.

I too am not depressed. I spend all day on alternative medical protocols, like "Ground Hogs Day" movie, without spontaneous time for quality of life. Why?

May our every day be meaningful and filled with truth, love and light!

Below is what I posted to Cindy Rose, before being informed that she passed:

Jul 21, 2017 02:33PM GraceDD wrote:

Cindy, you're my hero and I'm right in your camp! Planning to do the same thing. Not enough time right now to elaborate, but I will later... As a meditator, I am "observing" the changing reality of this path, as my plan. Others I have known have used this technique for peaceful, happy, pain-free passings, smilingly... Such ancient wisdom, so well documented in many books. 25-years ago, I quit chemo half-way through (It was the thing killing me!) and I refused Radiation from the beginning. Yes, surgery twice. Just finishing 8-months of vegan juicing and enema therapy, a few months shy of "1-year Dx anniversary". Hoping I will stick with basically drug-free plan, as time unfolds. Last year, with bone-shatter, a pain med, Gabapentin, eased the pain, without numbing my mind, or being narcotic. I still have a nice supply, just incase. (PS, I'm not in hospice yet, but accept the inevitable trajectory, and am getting my ducks in a row, again..). Tons of love and cheering for you!

Cheering for all of us, Diane

Dx 1/1992, DCIS, Right, 1cm, Stage 0, metastasized to bone/other, Grade 2, 2/11 nodes, ER+/PR+, HER2- Surgery 7/30/2006 Mastectomy: Right Dx 8/2006, DCIS, Right, Stage 0, Grade 3, ER+/PR+, HER2- Dx 9/2016, Right, 1cm, Stage IV, metastasized to bone/lungs/other, ER+/PR+, HER2- Hormonal Therapy 7/8/2017 Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy CMF Surgery Lumpectomy: Right; Lymph node removal: Underarm/Axillary
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Dec 21, 2017 06:17AM SavedbyGrace1972 wrote:

I've thought about that although I'm in the beginning stages of this journey. But before I was ever diagnosed, I've always read stories of those fighting. They were so courageous and did everything they could to stay here with their families. They were not living trying to live if that makes any sense. Instead of making previous memories with their loved ones, some were paralyzed and stuck in bed with horrible bed wounds. I would never want that!!! Yes I would want to be comfortable but not completely miserable. I guess you have to ask what is the quality of life in those situations?

It's all a gamble I guess. But I completely agree with the cost of treatments. Right now I've paid $1000s out of pocket and haven't taken any medication or had any surgery. This is just money for mammograms and biopsies after insurance paid their portion. We all need to have these conversations with our families and if you're a believe of higher power, discuss it with him too.

Amen and good luck!

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Dec 26, 2017 06:19PM Bluebird-DE wrote:

Hello - I am pulling up threads on hospice and palliative care. Just now had a conversation with Hubby, I wanted to keep my investigation into hospice and nursing facility from him but decided I just cannot. He has to face this too.

I was told a month back that it is time to engage hospice though they may not be used in the next *few WEEKS*. Sobering.

So I am reading and choosing and making use of what energy and brain faculties I have now when not in terrible pain or on pain meds. Have to face the worst that could happen. And plan more for the way to live well and long as possible.

I am looking at allopathic choices / oncology as well as complementary and alternative choices.

That said, have been off Xeloda for a month, was on eight months and the new concologist I had one appt w said it had not been working at all. So that means I had not been on any therapy that worked since a few months end of 2016 when Ibrance helped. Radiation so I could breathe was in Spring 2017, otherwise I would not have chosen it at that time.

Both your words speak to me, your situations and that you, GraceDD, face possibly choking to death, I had / have the same. Blacked out several times a day before allowing radiation. The idea of just letting go and living hard and fast while we can, it is a phenomenal fantasy if all worked out so we could have great experiences. This is a choice I have always had too.

Added to my favourites so will watch and be back.

btw, I remember CindyRose and her thread.

"Every mistake I have made has proven to be invaluable information for someone. Namely, me." Me. Diane Dx 7/15/2011, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 3, 3/11 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/4/2017 Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Radiation Therapy External: Lymph nodes Surgery Lumpectomy: Right; Lymph node removal: Left

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