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Aug 18, 2018 10:25AM
This is my first post. Good topic!!
I was diagnosed in July with TNBC. I am being very proactive with diet and lifestyle elements. I am an athletic person and pretty fit but have put on more belly fat since aging (57). My main risk factor is DES (I am a DES daughter). I have gone off carbs (except healthy complex carbs, like quinoa, sweet potato). No sugar, no flour, no alcohol. I am juicing veggies every day. Trying to make every bite I put in my body a nutrient dense bite. And I am taking a lot of supplements recommended by an integrative medicine cancer doctor I had a consult with. He also suggests a lot of physical activity including interval training (30 secs high intensity (jogging), 30 secs low intensity (brisk walking), x3... then a three min rest... & repeat for a total of 3 times.) Says it's very important to retaining muscle and keeping strength.
Supplements recommended to me: B-6, Alphalipoic acid, Omega 3 fish oils, whey protein isolate, green powder (turbo greens), Quercetin, curcumin, D3, and L Glutamine started day before chemo for 3 days. Having read about Metformin correlating w better outcomes I started on Metformin w my Oncologist's agreement.
I basically trust my body and my immune system, despite this cancer, because I actually found the cancer due to an inflammatory response... my body as trying to fight it... a pink spot on my breast appeared, which induced me to poke around and find the lump. I am the sort of person who had a baby w no drugs, so sitting here w a port in my chest feels surreal.....
There is some evidence in support of a ketogenic diet for TNBC and also for fasting prior to chemo. I did a "fasting mimicking diet" for four days before my chemo, with day five being the day of the chemo (fasting mimicking = 800 veggie based calories: ~15% protein, ~43% fat, ~43% carbs). The fasting tells your healthy cells to protect themselves, but it makes flawed cells weaker. So a brief fast prior to chemo made sense to me. I will do that each time, I think.
Also, as my tumor is easily palpable, maybe 1/3" below the skin, I put a lot of heat on it. I had read about Hyperthermia (heat) for tumors -- (they use it at the Cleveland Clinic and elsewhere). One of the links I found talked about how vets use hyperthermia to shrink animal tumors, to allow them to be removed. And though most places heat the tumor with ultrasound, the vets often use a plain old re-circulating hot water bottle device. I figured the heat would not hurt me and might help so the day prior to chemo I put a hot water bottle on my tumor for a few hours, very hot, just shy of burning myself. Again, the healthy cells tolerate the heat but the cancer cells go into a heat shock and give off heat shock protein, allowing immune system to recognize them. And during the infusion I had heat on it, and intermittently for the next day or so while the meds were in my blood. At the very least, heat brings blood to the area of the body where it is applied.
I have had one chemo treatment so far, 6 days ago (Taxotere/Carboplatin) and came through it very well. Fatigue, constipation but no nausea. And was elated to feel my tumor shrink -- a lot! It went from a walnut to an almond!
It makes me feel better to "do what I can" and try to give my body (and the chemo) an assist
pCR after neoadjuvant chemo
7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH)
8/13/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
12/27/2018 Lumpectomy: Left
2/11/2019 Whole-breast: Breast, Lymph nodes