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Not mentally well- how to deal with the stress
This week, while getting one of my infusions, I was in so much pain that I asked the nurse if she knew if euthanasia waa legal in the current state. She responded that it's not and walked away. Ended up having a private conversation with the head nurse. I apologized about my comments because I freaked out that nurse. Got…
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Bone mets diagnosed while pregnant
Hello all, I was diagnosed with BC in 2016, at 34. I am 40 now and 3,5 months pregnant with my first child. I ve had a severe back pain and also my CA 15-3 was slightly elevated. MRI of thoraic spine found a lesion in my sternum. This is all I know for now. I also know that if I want to stay pregnant, I can not have the…
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Abraxane
I was wondering about your experience on Abraxane I might be starting in a week or two and would love to hear any feedback. Please hugs to all.
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I cant wait until the Oncologist contacts me
I had a bone scan today because my tumor markers have been increasing and this is what the report says. Do you know what it could mean? Am i understanding it correctly? Has my cancer gone to the bones? TIA
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Working full time to keep health insurance
I am having trouble continuing to work full time and wonder if anyone else is dealing with the same issue. How do you deal with needing to continue to work, being basically stuck in a job because you have to keep the health insurance? Have you found a way to quit working without being financially destroyed? Disability…
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Stage IV - Mutation PIK3CA
Good afternoon. I would like to know which of you have this mutation? When did you find out? What treatment have you been following all this time? And is there anyone who did it? Read about Pikri. They have bad effects. Problems with blood sugar and people sit on it for no more than 5-7 months. So, there is no cure for…
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Mets lymph node., lung cancer, scan-nodal uptake.
Feb. 2022 Mets to a lymph node located one inch above my right breast mastectomy site in the chest wall. Treating with tamoxifen only. Dx'd with stage 1 lung cancer 4/2021. Treated with 5 SBRT radiations. 6/13/22 My recent pet scan there are multiple new sites of nodal uptake and increasing hypermetabolism in the left lung…
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Trodelvy Improves Progression-Free Survival for HR+, HER2- MBC
Trodelvy Slightly Improves Progression-Free Survival for Pre-treated Metastatic Hormone Receptor-Positive, HER2-Negative Breast Cancer June 8, 2022 Trodelvy (chemical name: sacituzumab govitecan-hziy) slightly improved progression-free survival in people diagnosed with metastatic hormone receptor-positive, HER2-negative…
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Many Black MBC Patients Never Informed About Clinical Trials
Many Black Metastatic Breast Cancer Patients Never Informed About Clinical Trials June 8, 2022 Many Black people diagnosed with metastatic breast cancer never find out about clinical trials from their doctors even though most of them are open to participating in one. Read more...
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Lupron shot vs. oophorectomy
Hi all, I've been getting a Lupron shot every four weeks to suppress ovarian function so that I can be on Ibrance and Letrozole. Isn't medically induced menopause so much fun?? My MO said that it was my choice whether I wanted to continue to get this shot every four weeks forever, or to have my ovaries removed. I'm not…
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No treatment and no progression
wanted to let everybody know- I stopped conventional treatment( was on enhertu at the time) in February. Still had lymph nodes that were lighting up on PET , original lesions in lungs seemed to be inactive and fibrotic. Scan at the end of May shown no change. Obviously everybody's situation is different- mine was an…
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Let’s Talk About The Dostarlimab Trial Results Making News
While only tried on 18 rectal cancer patients and not breast cancer, results were all 18 saw tumors vanish.It’s referred to as immune checkpoint inhibitors. No adverse side effects. They say it could signal a paradigm shift in cancer treatment. What might this mean for those of us living with mbc? Would love to hear your…
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Enhertu Improves Survival in People With HER2-Low MBC
A New Standard of Care? Enhertu Improves Survival in People With Metastatic HER2-Low Breast Cancer June 6, 2022 Compared with doctors' choice of chemotherapy, Enhertu (chemical name: fam-trastuzumab-deruxtecan-nxki) improved both progression-free survival and overall survival in people diagnosed with previously treated…
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Everolimus before capecitabine?
It seems Verzenios (abemaciclib) and fulvestrant has stopped working for me and my consultant has offered Capecitabine as the next treatment option. I haven't had chemotherapy before so this scares me a bit especially when I read the side effects! I haven't had everolimus and exemestane so was wondering if anyone has tried…
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UGH- felt a lump
During a shower last night, I felt a lump on my “bad” side. Part of me wants to ignore it. I keep feeling it to see if it really feels like a lump, or maybe something different. Yup, in denial.