Illinois ladies facing bc

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  • WendyTY
    WendyTY Member Posts: 94
    edited July 2008

    Hey Girls!

    It's been a while since I have made time to get out here and say hello.  My last chemo was harder than the first.  But, I made it through it!  It was busy around here with the fourth of July.  I have some pictures I hope to get out in the next couple of days.  It was a real celebration around here.  My sister, her two boys and I decorated our golf cart for the neighborhood parade.  We ended up winning first place!  It was a good time.  Then, I started loosing hair.  I got a mohawk.  Don't remember much but have a bad picture to show for it.  And finally totally bald.  My brother celebrated his 40th birthday this weekend.  An old family friend had me in tears when he said hair or no hair you will always be the prettiest girl I know.  My neice also told me I looked beautiful.  I've been taking Susan's advice and playing up my eyes!

    I had my third AC this morning.  It was a little iffy to start.  My counts were down based on a test from Friday.  They  decided to do it again today and it was okay.  So, I celebrated being 3/4th done with my AC treatments!

     I hope you are all doing well.  I'll try to keep up better in the future.  Rita is helping out the next couple of weeks while my parents return to Alabama for a tennis tournament.

    Wendy The Younger (WAM)

  • blackjack
    blackjack Member Posts: 771
    edited July 2008

    Good Evening Ladies,

    I hope everyone is staying cool as it was a hot one here today.  As for me I have had a very busy weekend...entertaining friends, boating all day yesterday..yeah !! and of course the dreaded remodeling that keeps on giving lol.

    Jackie..I totally agree with you about how certain people or angels come into your life for a reason . As for me I know that I have an angel watching over me.. I can sense when she is there and she has totally helped me throughout the years. I do have inner peace now.. I have dealt with bc and have moved on emotionally with the help of all you wonderful ladies. We are all at different stages of our txs, different levels of emotions and how we response is our own personal experience. With the help of others we all will get through this together.

    Wendy.. I hope you are having a great time in Florida. Don't get to much sun lol I got a lot of sun this weekend on the boat.

    Laura..you go girl and happy 3rd anniversary Ned. Your inner beauty is always glowing ..congrats and wishing you many Ned years to come.

    Rita...you asked about golfing..well I am still in training and I think I will be for a long time lolI can't seem to get the swing down, but I sure can do the twist dance lol..but I am still trying to get the hang of it.

    Zap...how are you doing..how is your writing class..are you almost done.

    Smerf..are you done with your remodeling yet.

    Connie..how is the summer going...fast that is and just think school will be here in no time.

    Leesa, JulieR, Jule, Wendyty, and all the girls in tx..sending you healing hugs and hang in there.

    Janclare..how are you..have you started your remodeling yet.

    Karin..how are you...are you having a good summer. 

    To everyone I missed I hope you are all doing well..sending hugs your way and remember that this is just a bump in the road.

    Well it is jammie time....happy evening to all...

    Remember be healthy..be happy...


    Blackjack

  • Jule
    Jule Member Posts: 85
    edited July 2008

    Hi everyone. I just wanted to say thanks for the well wishes and healing hugs. It really does make me feel better. I go in for my 4th tx Wednesday, and I am hoping that this one is better than the 3rd as the se lasted so much longer the last time.

    My dh, 2 children, and I are going to the Sox game tomorrow night which I am looking forward too. I have to take the steroids tomorrow which I am not looking forward too as that is the start. I am trying to keep focused on where I am in the process but sometimes it is hard. 

    Jackie,  I do agree with you about the angels...but sometimes it is hard to remember that they are there. Best wishes to everyone to have a great week!

  • illinoislady
    illinoislady Member Posts: 39,794
    edited July 2008

    SurprisedWell the rain is coming now with some lightning and thunder now and then.  Wish it was going to cool it off a little more, but we take what comes and rejoice for the day anyhow. 

    WendyTY....those old A/C are hard aren't they???? I called them I ( I had four of them ) Anne Arimyicin and Cyd Cytoxin ---- a slightly lethal couple.  So glad that you are nearly through.  Our struggles to get through chemo seem so mighty at times and I always had a tiny resentful part of me wanting to just let go and quit.  Thank goodness the rest of me wouldn't allow it and much of that was I'm totally sure being here and listening  to everyone else that got through it.  Seems like there isn't much that can't help a tough Illinois gal, but one of the best things is being encouraged by one of her tough Illinois sisters.  Thank goodness for each and every one of you as I sit here with my heart swelling and tears in my eyes. 

    Ans speaking of that Karin dh told me there was a box at my house when he got home last night from you......I can't thank you enough.  Now I can be a bit more liberal with some of these skin meds I think.  I still have some heat issues...and still wondering why I needed 6 boosts but guess that's ok.  Discovered late yesterday that apparently Sunday some time we must have let a mosquito in the house.  I found at least 4 bites on me.  One on my foot, two on my thigh and one right under my arm a little way up from where my lymph nodes were taken out.  Of course all are on my left ( operation ) side.  I put lots of biofine on them and while a little itchy this a.m. they seem fine.  It seems a bump ( may be a little infection ) is raising right in the center of each one so I think they are not going to be with me long.  I'm going to have to call the exterminator if this keeps up. 

    Glad you all understand about the angels.  When something like cancer for instance happens to us we don't always feel very protected and it is hard to feel our connected spiritual energies.  I think for some ( at least for me ) I had to accept that this was going to be part of my life.....because it is hard to work with something you keep denying.  I had to quit refusing to sayok--now this is me and that's that.  In time we all build that bridge to reality and get on with life but like Laura said....it's a little bitter and frightening to swallow when a voice on the phone says those dreaded three words.  I thought enough people had alluded to the possibility that I was very prepared if that is what I heard.  The truth is your never prepared.

    Glad you had such a good time this week-end Blackjack.  You are so uplifting to listen too.  I almost felt as if I were on a boat enjoying the water with you. 

    Jule...yes, those darn se's seem to last a little longer each time since the chemo is cumulative, but I kept telling myself that it's also palpable when they begin to let up and you start wanting food and have some desire to perform your duties again. It's still a struggle but it was my little game with myself......to be able to try and pinpoint the day ( morning, afternoon or evening ) that the I'm going back up feeling started. 

    Jan Clare.....I dreamed about you last night....we visited together--just you and me.  I can't help but wonder what that means. 

    Hope you all have a really good day.  Mine should be....the authorization came in for my extended stay here at the motel so I have a place to stay.  That's great.  All take care and I'll check in later.

    Jackie

  • BustersMom
    BustersMom Member Posts: 260
    edited July 2008

    Good afternoon ladies,

    Wanted to make sure I sent Laura a big WAHOOO for her 3 years of being cancer free :)  Let's cheer to many, many more!!

    My BS called yesterday, my oncotype was 14!! YESSS!! Puts me in the "low risk" category.  I will be meeting with the onco next week to see what tx will be recommended.

    Ding Dong the Drain is Gone!!  The right one, anyway.  Ahhh, what a relief.  The left one is still here & quite active - so I'm trying to be patient (grumble).   I'll be going for my first "fill" next week, that should be interesting, considering I feel like I have giant boulders in my chest.  Yeah, the pain is still pretty intense, but after visiting the recon board, I see that it's not just me.

    Not much else to report - it's a quiet week for me.  Wish I could do more housework, but I'm still on restrictions.  I tried to do a little too much & hurt myself, so now I'm really taking it easy.

     WendyTY - congrats on winning the go-cart parade!!!   Sorry your chemo was kind of tough, but as these ladies often remind us - IL gals are tough.  Glad that you are celebrating the fact that you are 3/4 of the way done.  That's a great way to look at it.

    Jule - hope that your tx on Weds goes okay & that you don't feel too poopy.  Have a great time at the game.

    Jackie - just shooting you a hello & some nice weather vibes.  And watch out for those stupid skeeters.  I love summer, but those critters are the one thing I don't like about it.  Little monsters.

    Blackjack - thanks for the call the other day, sorry I missed you.  Sounds like you had a fun & busy weekend. 

    Everyone else, hello & big hugs to you all.  I hope everyone is doing well.  

    Hugs, JulieR

  • [Deleted User]
    [Deleted User] Member Posts: 4,011
    edited July 2008

    Hey Girls...hope you're all doing as well as can be expected - keeping in mind that some of you are going through ALOT right now...  

    WendyTY - Glad you checked in...hang in there girl! It was so nice to meet you and be able to put a face to "you".  

    Jule - You have a beautiful night for a ball game! Hope you're having lots of fun...you have SO earned it!  

    Jackie - You have been a real trooper! If I was closer...I'd pat you on the back and give you a hug...Any chance you would be able to join us here at my forest on the 9th? Perhaps we could figure out a driving relay plan...let me know!  

    blackjack - Hang in there with all your decorating...it's a lot to juggle...but you're doing a great job! When are you going to Vegas next?  Hmmmmmmmmmmmm...thinking we could meet for a tini there maybe?!  

    Karin - So sweet of you to send Jackie goodies...how's your boss doing?  

    JulieR - I am famous for these words "DRAIN BE GONE" - congrats to you! One down...one to go, go go! lol I HATED THE DRAINS...wanted to rip 'em out...but dh wouldn't let me lol...he actually emptied them for me...several times a day...because I had such an aversion to it! I'm not a wimp...but they just BUGGED ME...almost like a ball and chain...maybe has to do with my claustrophobia! lol    

    KATER - okay - sorry, but, are your cousins THAT MUCH more fun than us! LOL Hope you're having fun...check in girl...  

    -----------------------------------------

    EVERYONE - Have a great evening!

  • Juliechicago
    Juliechicago Member Posts: 179
    edited July 2008

    Hi everyone,

    Just a quick note to let you know I'm doing okay still,  Bloodwork today....but was supposed to be yesterday.  I actually forgot about it.  I'm not sure I can blame it on chemobrain yet...but I think I'm more surprised that I actually managed to forget about cancer for one moment.  I've been so busy trying to get caught up back at work and of course, the mania at home with the kids doesn't slow down. Wow- I actually got too busy with life....

    Levels are low.  Not critical low- but low enough.  "Right where we want you to be...." the nurse tells me.  The irony in that always taking some getting used to.  So, I'm tired. Dragging my butt tired.  And of top of it- got my period-- so add that to my usual anemia.  Husband had to work late tonight-- so came home-- and ordered out. Smile  Thai. Kids were happy. 

    LauraGTO-- you were right about the slugs in the garden.  Eek- lots of them!  My daughter actually thinks they are "cool" and has been picking them off things.YUK!  What was your cure again?

    Blackjack...Tom says hi.  He got quite a kick out of the small world......

    Ugh- kids screaming upstairs. Sigh. Referree time.....gotta run! byeeeee

  • ritajean
    ritajean Member Posts: 4,042
    edited July 2008

    Hi gals!

    Gosh!  I don't know where this day disappeared to.....gone just like that!

    JulieChicago.......so glad you're doing O.K.  The CMF isn't that bad, is it?

    JulieR....Glad you're doing better and love that low oncotype.  It will be interesting to see what they recommend now.  Hang in there!

    I'm so glad to hear how much everyone is enjoying the summer weather.  We griped enough this last winter, didn't we?  Finally it arrived and I've loved every day of it.

    Jackie, I'm so glad that Karin sent you more supplies.  I hope this last week goes well for you and that the skin holds out.  Now you can really lather up and keep it well lubricated.  Such a nice thing to do, Karin!

    Thinking about you Wendy and hoping that you're enjoying your vacation.  I miss your morning graphics and your perky conversations.

     Hope everyone is doing well today and that tomorrow will be even better.

    Catch you later.

    Rita

  • blackjack
    blackjack Member Posts: 771
    edited July 2008

    Good Morning Ladies,

    What a great morning it is. It is going to be a hot one today so get out and enjoy that sunshine and get your Vit.D. I just came in from a 5 mile run along the lake. Those hot flashes kept me up so I decide to go run. It was so beautiful watching the sun rise and saying hi to the fisher guys on the docks. Today I am back to remodeling...yesterday it was a day from h*ll as I waited all day for the drywall guys to come. I finally said a few choice words and low and behold..a whole crew showed up. I told them I am on a time frame and boating is not in their work schedule. lol

    I hope to have this project done with in a few weeks before I go back to school.

    Jackie..how many rads do you have left. Please be careful with those bites of yours. You  can try Benadryl cream on them as it will take away the itch and swelling. Have I told you that I really enjoy your words of inspiration..Even when you are  not feeling good you always post something inspiring and wonderful. So thank you for those encouraging words for all of us to read. You are really an angel in disguise.

    Rita...how is the golfing doing..I am still in the learning phase...just can't get that swing down..but good at doing the twist. lol  Fall is almost upon us and was thinking about our future lunch bunch dates..any ideas or suggestions. Let me know

    Laura...decorating is going good. Hope to be done soon. As for Vegas I am going the end of Sept. I can't wait..maybe we should plan a trip !!!!!!!!!!!

    Juliechicago..it is a very small world...I am sure Tom got a kick out of it. I hope you are feeling better. If you need anything please let me know..sending you a healing hug your way.

    JulieR..I hope you are feeling better..Drain be gone for you soon. Remember to take it easy and rest.

    Wendy..are you having fun on vacation. Did you see any cute cabana boys on the beach lol

    Leesa, Jule, Wendyty, and everyone who is in tx..sending you healing hugs your way.

    Janclare..how is your remodeling going?  I did get the stain out of my dress from dinner. It looks good as new.

    Well I gotta hit the shower now and off to fight with the drywall guys...maybe I whip up a great lunch for them.. the way to get things done is to feed them. lol

    Will ck back later.....have a great day everyone..

    Remember be healthy..be happy

    Blackjack

  • illinoislady
    illinoislady Member Posts: 39,794
    edited July 2008

    Morning everyoneSmile

    So pretty here today already and I think it will be dry today.  The last couple of days were so hot, but Monday I watched the three thoroughbred horses in the field across from the motel play with each other.  That has been such a treat for me.  Have had the pleasure of this several times never before realizing ( I guess due to their size ) that horses play just like any other animal.  I always wonder what they are thinking as the one runs over to the other two and rears up on his or her hind legs. 

    I have three more rads left which includes today.  Probably sounds funny but I can't wait to get home and work---mainly because I won't be trying to fit it into a teensy-tiny time period anymore. It seems most of the summer has passed by while I had to stay in such a narrow space to accomplish and accommodate having the radiation--but hey.  It's a proven life-saver.  Hard to argue much with that.  I'll also be able to get back to my own computer and all my sources for good quotes.

    Had an incident I didn't like last night. A young man was waiting for me to finish with the computer and got on as I left to go to my room.  Later ( I've done this since I've been here ) I came back to check if anyone else posted.  The young man happened to be just leaving.  Don't know what he may have done.......but the computer would not connect to the server.  I would imagine the motel owner had to reconfigure the settings or something.  I was nearly terrified that I would have to be here till Friday w/o computer access.  Ah.....gave up smoking and alcohol but no less addicted, hmmmmm.

    Laura....I will check some dates when I get home and see what things look like around the 9th.  Who knows....I may get lucky. 

    I'm down to 194#'s which was my last weigh-in yesterday at rads oncology.  Can't believe that I've lost so much weight since I started tx in December.  Was 220#'s then.  Now the real work starts of exercising and getting a little muscle built up to support my weight as well as help me get rid of some more. 

    Pat....are you on a trip somewhere and I missed the post or just trying to finish up your re-model.  Hope Mary Jane is having a fun time on vacation. 

    Was talking to my friend Kay last week-end.  She started her rads this week---will go twice a day for 6 days and that is all the txs she will get after her DCIS lumpectomy.  Sounded rather amazing to me.  She said that it is the protocol that was used in the early 1900's when radiation I guess was just being used routinely for cancer ?????  Guess if you do find early DCIS that is all you need.  I know she was happy not to have to have chemo again.  She also told me that her husband Rod was being treated for West Nile virus.  First person I've ever known diagnosed with it. Guess it makes you super tired so driving over to St. Louis  for txs -----  even for just a week will take a bit of a toll on them.  Denny ( dh ) offered to drive them if they needed and would be more than happy to do so....but probably best if they do use someone else. 

    Wendy should be home soon and yep...I think we all miss those long funny, newsy posts. 

    Will check back later.

    Jackie

  • zap
    zap Member Posts: 1,850
    edited July 2008

    Good Morning to All:

     We should have a "Julie" party and play "What's My Line" with them all so I can finally truly get them all straight in my mind.  I do know that all the Julies are too young to know "Whats My Line", now that I think of it.

    Jackie, hope you are able to quell the burns.

    Well, I hired an editor.  I "share" my manuscript at the end of August at the Northwestern Writing Conference.  To be considered seriously, one must bring a somewhat polished piece.  I have about 100 pages (the total book will be about twice that, but I want the feedback before I continue)  and my editor is charging me a very fair fee as he is the husband of a friend. Thank God for friends, right. I should consider being an editor when I retire.  Their feel is $40-60/hour. Needless to say I am terrified bringing the story out of the closet, so to speak.  Writing is so personal.  It is a story I have been wanting to write for so long. I know I will not get published, yet I want to leave something for my grandchildren so they can get to know me if I am not around.  I just hope they won't remember me as "boring".... This book is for young adults, so I am not being dismal about leaving something behind....I only have one grandchild and she is just one! 

    I miss Wendy too. I also miss Kater.  If either of you get whiff of that, please check in.  I know Wendy is having a great time in Florida.

      Got the mri results and no surprises.  I have the herniated disk in the cervical neck area causing the arm to be a mess.  I see the neurosurgeon tomorrow and I am sure he will not suggest surgery as the arm has already shown improvement on its own.  Spines are weird.

    Blackjack, that is clever to be feeding the workers.  JanClare, how is the remodeling going for you.  Smerf, I was at the Sunset in Northbrook yesterday and saw a lady I thought was you.  Almost went up to her and then realized she was not tall enough to be you.  Rita, you sound like you are on an eternal vacation.  Leesa and Wendyty, I hope treatments are okay for you.  Buster's mom, is that Buster in the picture?  Becky, WHERE ARE YOU?  Karin, any news about your concerns?

    Laura, you once sent pics of your house and I loved this archetectual thingy you had over the fireplace and I am looking for something similar.  Any ideas....on where I could get something OLD like that.  I know I cannot find one in a traditional store.

    I never try to cover all the women, so now I am worried I left someone out.  I have two choices: copy and cut the whole effort or take a leap of faith that if I left you out, you will give me another chance.

    Have a wonderful day and all my love,

    Susan 

  • HensonChi
    HensonChi Member Posts: 68
    edited July 2008

    Hello everyone,

    It has been a miserable week since my last chemo.  Doc called me in some perscriptions. The one for the mouth and throat sores seems to be working.  It is called

    CP-DIPHEN/LIDO/MAALOX

     The stomach issues are still bad...nurse said they might have to have me go in to er if they continue...that would be a bummer!

  • ritajean
    ritajean Member Posts: 4,042
    edited July 2008

    What a lovely day!  The temps were just perfect here!  I could be pleased with similar days the entire year. I don't need that change of season thingy!  LOL  ( I must admit that I do like Fall but I know what's coming next and I sure don't like that!)

    HensonChi.....I'm so sorry that you're having such a rough time of it this time.  At least is sounds like the meds for the throat are helping.  Now we need to push those stomach issues right out of the picture.  Have you tried sucking on lemon drops to curb the nausea?  That always seemed to help me.  Hugs to you!!!!  I'll keep my fingers crossed that you can avoid that ER.

    Susan, how exciting!  You've got your own editor and have the book about half done!  Marvelous!  You must really feel a sense of fulfillment!  I bet it is hard to put it out there for viewing........I hope you'll share your favorite parts with us.  You  know, we have several avid readers on this site!  :-)

    Almost done, Jackie and you'll be home and back to work!  I can't imagine how stifling that had to be to be cooped up in that room each week.  I'm sure you handled it much better than I would have done.  Hang in there.  You've about got it licked now!

    Yes, where is Kater?  I guess I'll have to try to contact her by email.  I miss her, too!

    Well, I'm taking a break from an inside wiring telephone failure and think I'd better get back and attack the problem.  None of the house phone get a dial tone but the phone company claims that the phone line is intact.  I suppose I'll have to breakl down and get them to come in and repair it because I've tried about everything I can think of to track down the problem and avoid that outrageous "inside line" repair charge.  :-(

    Catch you all later.  I hope you've all been able to enjoy some of this excellent weather today.

    Rita

  • HensonChi
    HensonChi Member Posts: 68
    edited July 2008

    Thanks Rita  I will definitely try the lemon drops!

  • BustersMom
    BustersMom Member Posts: 260
    edited July 2008

    I'm back - twice in one day! Getting a bit more energy back (I think I'm finally building my hgb back, to be honest)

    Laura - We are the DRAIN HATERS!!!  Well, I'm sure everyone is.  My BF is in charge of emptying mine out as well.  I don't mind stripping them at all, but I cannot empty them, nor can I look at the spot where they enter my body.  Makes me queasy.. so yep, those are jobs for BF. 

    Susan - I think I know the show 'What's My Line'!!  I think it might have been on when I was little, or else I saw it somewhere, somehow.  I was born in '66.   There are a lot of us "Julie's" here!   What do we have, 4 of us now?

    HensonChi - I'm so sorry you are feeling so sick :(  

    Everyone else - hello & hugs to you.   Just a little drive-by to say hello. 

  • [Deleted User]
    [Deleted User] Member Posts: 4,011
    edited July 2008

    Hey Girls...hope you're all doing as well as can be expected - keeping in mind that some of you are going through ALOT right now...  

    WendyTY - Glad you checked in...hang in there girl! It was so nice to meet you and be able to put a face to "you".

    Susan - Tell me more... which artifact are you referring to....I will help you find it... 

    Jule - You have a beautiful night for a ball game! Hope you're having lots of fun...you have SO earned it!  

    Jackie - You have been a real trooper! If I was closer...I'd pat you on the back and give you a hug...Any chance you would be able to join us here at my forest on the 9th? Perhaps we could figure out a driving relay plan...let me know!  

    blackjack - Hang in there with all your decorating...it's a lot to juggle...but you're doing a great job! When are you going to Vegas next?  Hmmmmmmmmmmmm...thinking we could meet for a tini there maybe?!  

    -----------------------------------------

    EVERYONE - Have a great evening!

  • leesa
    leesa Member Posts: 57
    edited July 2008

    Hi Everyone,

    Surprise it's me....Sorry I haven't been on in a while, after my last chemo I've just been a little wild. I've been trying to get everything done and have all the fun I can find. I've been boating with my cousin, to the show with my daughter, lots of shopping and cooking and drinking of wine and martinis, this weekend it's off to visit my brother in Iowa.

    Vic's dental assistant and his receptionist had their vacations over the last couple of weeks so I've been going to his office and playing receptionist and collections clerk, what fun that's been. I like him alot better as a boyfriend than as a boss!  The pay is great too....breakfast of a cup of starbucks, lunch is whatever I want to run for...and dinner on the way home.  I'm really happy the vacations are over.

     I started rads today, yeah, one down 32 to go.

    Oh and all that running around trying to fit all the fun in I can before I go back to work, I don't have to worry about it, I'll have all the time I need for fun.  I got notified that I will be laid off the day I return to work, which is Tuesday, I can't say that I didn't expect it but it's still disappointing and scary. 

    I miss you all and can't wait for the next get together.

    I hope everyone is staying strong and getting better with each day.

    Love,

    Leesa 

  • Becky--IL
    Becky--IL Member Posts: 19
    edited July 2008

    Hi ladies,

    It's been a while since I have posted.  Havent been feeling well after I had AC tx #4 on July 9th. 

     It reallly took a toll on me. All of last week and weekend before felt sooooo fatigued and short of

    breath doing anything.  Finally called doc tues of last week, got blood drawn, red count pretty

    low and with me having symptoms, doc decided to give me a blood transfusion on thurs of last

    week.  By friday morning was feeling lot better.  I had tx #5 today and started the other drug

    Taxotere.  Will see how I feel over next several days, they say it's easier than AC.  Only 3 more

     tx's to go

    Hope everyone going thru tx's are doing ok.  It is getting tougher but just have to keep hanging in

     there.  Havne't read all the posts but will try to check back in soon.  Hugs to all.

    Becky 

  • Becky--IL
    Becky--IL Member Posts: 19
    edited July 2008

    P.S.

    Got results from CT scan and PET scan today also.  Good news, the 2 spots that showed on

    chest wall previously and now GONE, and nothing showing anywhere else.  Big relief.  Just

    thought I would share that too.  Will have scans done again after chemo is finished.

    Becky

  • illinoislady
    illinoislady Member Posts: 39,794
    edited July 2008

    Good morning everyoneSmile

    Sure good to hear from you Leesa and Becky.......and Julie ( Busters Mom ) too.  We all get there---even if we are stumbling and flailing around a bit.

    Becky....I found A/C to be difficult for me as well and since cumulative by #4 I was sure I couldn't have possibly done even one more.  Since cumulative those se's seem to take so long to fade away.  I, along with several others had the 4 Taxotere afterward. It is much easier on you.  I lost all my body hair then, but I didn't care.  Was such a blessing to have chemo be much more gentle.  I did get some bad mouth flavors but they did not last very long.  Hooray for your good test results--should make the thoughts of having had to do A/C really worth it for you. 

    Leesa--wonderful to hear your getting started on your rads. Sounds like you are close home with it...I am so jealous but not so much that I can't be happy for anyone who gets to stay close to home.  Even though I had to be here in my little motel room in Marion...my bonus has been that I've only felt the dreaded fatigue a couple of times and it was over quickly. 

    Julie it's good to hear that you are getting some energy back.  Having your energy level up seems to help you feel a lot more positive about your situation and a lot less like no one is in charge and that you are forever adrift. 

    HensonChi hope you continue to get better and better too.  From your description you are getting Magic Mouthwash and it is magic. I went through about three large bottles of it and it sure made life bearable for me.  The thrush I had was closing off my esophagus slowly and I was to the point where I almost could not swallow anything.  Not a fun thing at all.  Glad you got it handled quickly.

    Rita--Dh and I pay our local phone company---think it's AT&T now, a small monthly fee and they have to fix our phone lines and wiring--even if they are bad in the house.  When we first moved to the country....mice were getting under the house and chewing on the wires.  The man that owned our house before was a fireman so he had a gazillion phone outlets ( lots and lots of wiring ) in the house.  We figured it was money well spent to pay the small monthly charge and the phone company would always be responsible---in or out, and we have had to have them many times both areas.

    Wendy TY and Wendy the vacation girl, Mary Jane, Susan, Pat, Jule and Laura,JulieChicago and Blackjack. and all I've not mentioned, TODAY AND TOMORROW and I'm outta here.

    Have a good one.

    Jackie

  • zap
    zap Member Posts: 1,850
    edited July 2008

    Hi ladies:

    Please look at this link if you have not already received this.  I realize it is pricy, yet it looks kinda interesting.  I would not be able to attend both of the weekdays, but am considering one or the other.

    http://main.y-me.org/site/PageNavigator/LiB_home

    Susan

    PS:  Laura, what caught my eye was the mirror which was set into what I believe was a window frame????  If I go back and find your house tour, I could find it. You had it on a tall brick fireplace.

    PPS:  I got my MRI pictures of my neck which includes my BRAIN!  OMG, it is so strange to see your own brain....soooooo strange! Then again, maybe some brains are stranger than others!

    Susan 

  • conniehar
    conniehar Member Posts: 585
    edited July 2008

    Hi girls -

    Just checking in.  Sounds like everyone is doing ok and that those in treatment are hanging in there.  One of my girlfriends (lives in Johnsburg, Michele)  told me about a friend of hers that was just dx'd so I told her to send her on over.  So, be on the lookout for Kathy.

    Heading back up to the lake tonight.  I go like a crazy person when I am home trying to get everything done at home/work, but then I get to relax at the lake.

    Thinking of you all! 

    PS.  DRAINS SUCK!!

  • zkacmom
    zkacmom Member Posts: 146
    edited July 2008

    Hey Everyone!!!!!!!!!! 

    Everything is going well with me.  Sorry to the girls going through chemo...It just down right stinks!!!!!!!  I remember those days and never want to go back.  I was just thinking this time last year I had just finished chemo and was doing rads and had very little hair.  Now I have alot of hair and it's just like it never happened.  But I still have no boobs and that reminds me everyday of what I have been through.  But it will soon be all done and you will wonder where all the time went...Yeah right.  Anyways wanted to tell you all to hang in there and it does get better.

    Right now, we are getting ourselves packed and ready for our roadtrip to tomorrow.  We will be gone 2 weeks.  We will be going to Nashville, Atlanta and Columbia, SC....We are all excited for it.  It just all the work that you have to do before you go on vacation.  But at least I will come home to a clean house. 

    Talk to you all later,

    Ginny

  • illinoislady
    illinoislady Member Posts: 39,794
    edited July 2008

    Ginny have a wonderful time on vacation and Connie....hmmm, you are really on the go and making the most of your summer.  Sounds like good old fashioned fun to me. 

    Karin--what have you been up to??? Hope work is going well even though you have all the responsibility right now.  Hope you have a nice relaxing week-end after tomorrow.

    Looks like maybe rain tonight and more tomorrow.  A no-hair day for me perhaps.  My hair does not seem to be growing---at least not as fast as I would like but the last couple of weeks the pigment has been busy and there is a lot more color to it then there was.  Looks mainly brown to me.....not the pretty red I was hoping for, but I'll take what I can get and be happy.  Not sure as yet if it will curl or not...be thick or not.  Something exciting to look forward to.

    Will check back a little later.

    Jackie

  • [Deleted User]
    [Deleted User] Member Posts: 4,011
    edited July 2008

    Leesa - One down...okay that's a good start...hang in there...I know it suck*...but you must remain tough...I know you can do it...my thoughts are with you!  

    Becky - Oh dear! I am so sorry you went through that! Hang in there...my thoughts are with you too. Great news about your scans...YOU GO GIRL! - Awesome!  

    Juliechicago - Home Depot sells Slug B-Gone or Slug-Away...can't remember the exact name. It's packaged in a dark green plastic container with a pour spout...they're little pellets that you sprinkle under the leaves, on top of the soil. After you have sprinkled it, it also helps to put about a 1" layer of mulch (cypress) down.  

    Susan - That's so exciting about your book...wow...what a great project. As for my wall hanging...this must be the one. If so...the best place to find something like this is either Kane County or Lake County flea/antique markets. That would be a perfect outing for you and dh...although I'm sure you've frequented them. I can't remember where I got it. Oooooohhh...you can also try World Market.

     

    Henson - Hang in there....sorry you're having such a bad go of it...      

    JulieR - bf and dh = Drain Patrol! LOL  

    Wendrew - Home yet? Or are you still soaking up the rays?

    -------------------------

    Very busy getting ready for tomorrow's party...almost finished with the dvd...it's turning out really nice! My little Shelby is here - helping me with everything.

    Have a Good Friday!

  • ritajean
    ritajean Member Posts: 4,042
    edited July 2008

    Hi gals!

    Becky....I'd been wondering about you so I was especially glad to see your post and REALLY glad to see that your scans were A-O.K.  You're on the downhill slide now!!!!!

    Susan, I've seen similar wall hangings at craft shows around here.  They have been created from old window frames that have the multi-panes.  The glass panes have been replaced with mirrors.  Two or more frames can be bolted together for larger wall displays.  They don't have the arched shape of Laura's piece but are still very interesting.

    Well I'm back to step one with my phones.  I hired an electrician to come in and check out all the wiring (since I also had a few electrical projects I wanted to have done at the same time).  He was here almost all afternoon yesterday.  The wiring and the phones are fine.  He discovered problems at the outside telephone network connection box so now I'm back waiting on the phone company to show up and correct that issue.(which could possibly take until early next week)  I didn't really need this stress and my patience was wearing pretty thin.  Guess I'm using my cell phone until then and I'm not real good about carrying it around the house with me!  Gripe, gripe.......

    Last night I went out to the cancer center for the training for the Reach to Recovery Program in our area.  The training was mainly common sense.  They explained the many resources that we have in our area (many that I wasn't really aware of) and how their system works.  I think the main problem with the program is making newly diagnosed patients aware of the actual program.  I met some nice gals there who were also volunteering and told them about our site.  Anyway, they try to match the newly diagnosed gals with the volunteers and when somebody indicates that they'd like to talk to a past bc gal, they call somebody who's close in age, diagnosis, etc.  The presenter said that it might be awhile before we get a call.  We have lots of info to read before then anyway.

    The sun is finally starting to peek through the clouds here in central Illinois so hopefully we have a lovely day ahead of us.  I'm going to see if Wendy the Younger feels like getting out a bit this afternoon.

    Hope all you gals are doing well with your chemo treatments and rads!   Take one day at a time and one treatment at a time.  Come and vent here if you need to vent and know that I'm thinking of you and sending good vibes your way.

    Are you racing this weekend, Laura???

    Rita

  • zap
    zap Member Posts: 1,850
    edited July 2008

    Good news for me.  I am going to physical therapy for my "damn neck"  and not the surgery table! 

    Susan 

  • ritajean
    ritajean Member Posts: 4,042
    edited July 2008

    Yeah Susan!  That IS good news!  That news should start you out on a great weekend.

    Hip Hip Hooray!!!

    Rita

  • illinoislady
    illinoislady Member Posts: 39,794
    edited July 2008

    I'm home and is it ever beautiful ( even if my house if dirty ) to be back knowing I am staying this time.  I have to get out appt. sheets and do some figuring yet to try and stay co-ordinated with my life now that it is changing---definitely for the better.  At least I'm already feeling that I will have a life. 

    So glad to hear your news Susan.  Maybe we are getting to the place where the first avenue of help is not in a surgery suite.  That could I'm sure always be an option some time down the road, but I do think it often used to be nearly the only solution. 

    Rita.....sounds like more than one phone company has been trained to ASSUME it is not their equipment but YOURS that is faulty.  One of the big reason we let them put the $2.50 ch. ( or whatever it was ) on per month.  We got tired of hearing it must be in your house.  Couple of times it was, but we had signed on for the monthly fee by then so it didn't matter.

    Well guys I am going to go do a couple of things.  I am so thrilled though to be home for good...I can't tell you how excited I am and how much I am looking forward to not dropping everything I'm doing on Sunday afternoon........Talk to ya'll soon.

    Jackie

  • illinoislady
    illinoislady Member Posts: 39,794
    edited July 2008
    There is no reciprocity. Men love women, women love children, children love hamsters.
                -- Alice Thomas Ellis