Illinois ladies facing bc

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  • conniehar
    conniehar Member Posts: 585
    edited November 2008

    Morning everyone!

    Wendy - I agree - it is kind of scary to think that I might not be on anything in 4 years.  My hot flashes have gotten soooo much better in the last month that I am not bothered much by the Tamox.  I keep hoping that something else will come to light that will keep me safe after the Tamox.

    I also have gone back and forth about being on these boards.  After dx, I was researching on here and elsewhere constantly.  Everyone tells you not to do that, but it's difficult.  Now, I mainly stay on this thread.  Every once in a while I will wander off and it can be depressing as well as uplifting.  Sometimes I feel bad that I don't spend as much time in other threads helping others. Other times I just feel like taking a week off from cancer thoughts entirely!  Fortunately, I am able to do that for the most part.

    Laura - how's the juicing going?  Are you going to bring us a sample on the 8th?

    Great to hear from you all!  Have a great day! 

  • illinoislady
    illinoislady Member Posts: 39,797
    edited November 2008
    Assert your right to make a few mistakes. If people can't accept your imperfections, that's their fault. [info][add][mail]Dr. David M. Burns The greatest mistake you can make in life is to be continually fearing you will make one. [info][add][mail]Elbert Hubbard (1856 - 1915) Experience is that marvelous thing that enables you to recognize a mistake when you make it again. [info][add][mail]Franklin P. Jones

    Good Morning everyone.  Hope you are all ready to have a great day.  As you can see from my quotes ( multiples ) I have been thinking about some of my mistakes ( were they really ? ) and knowing now that at first they sure seemed like one........but so often somewhere down the road, and if we practice ( hard for me ) a little patience sometimes you just may find that mistakes allow you to look at things differently ---  and that you have an opportunity to change something in your life.  Having said that ---  I haven't made great changes, but find myself feeling blessed almost about the loss of some people from my life recently ---  I feel free again and this came from what I perceived as a mistake on my part.  Sometimes our mistakes lead us to where we should have probably been all along.  Now I just feel a little goofy for not paying attention to the NAGGING feelings I let slide by for years without question. 

    Warmer here today but still quite wet out from the long rain yesterday.  Lots of leaves on the ground so I will have something to do this week-end if all gets dried up well. 

    I read a fair amt. about cancer when I got diagnosed ( actually that was when it seemed I only had the Pappillary--which is very, very lazy and slow growing ) so by the time I found out otherwise, I had been here for a bit and just decided further investigation would only get to me so I just hung in there with all of you.  For those of you who are newer.....I had two different types of cancer in the same breast ----  all coming out in one lumpectomy so did have 8 rounds of chemo and 7 weeks of rads.  Whew ---  sounds like a lot now so I'm glad it's all done---and while I'm on the subject --Yay for you WendyTY.  One of our real joys is knowing that this is our LAST time for se's. 

    As far as not being on anything in a few years.....my onc. said that we don't know what changes or advances may be made in 5 years so you may be on something else then.....or more of what you are on now (Arimidex ) for that matter.  Hmmmm, well I haven't noticed much ( have been meaning to look it up as the insert is not as descriptive on se's and I would like ) in the short time I've taken the Arimidex, but often when I awake in the a.m. my lower body....all of it feels achy...like when you lay too long on one side sometimes. 

    I would like to know about the juice thing too Laura.  Might give me a reason to keep my juicer.

    Well I need to get going although I'm not going to work today....Lois just had too much to do and needed an extra day --- so I get a day off with dh for a change during the week.

    Have a wonderful day everyone ---- think NO SNOW, YEA.

    Jackie

  • zap
    zap Member Posts: 1,850
    edited November 2008

    I never had andriamycin , and as far as I know, my heart is fine.  Carol, I had the same combination you are having (Cytoxin and Taxotere).  I had infusion on a Thursday after school and was fine that evening and all the next day (even went to work). On Saturday I felt rocky and on Sunday I felt pretty awful.  I was then rocky again on Monday and felt pretty fine by Tuesday.  I was told that my combination was overall easier than Andimycin.  I undertsand the hair issue.  That was just such a hard time.  I felt relieved to get over that hump.  You may be shedding a lot prior to fallout, and that gets very annoying.  I hope you like your wig.  I hated mine but nearly everyone else I know thought it looked great on me.

     Have a nice day!

    Susan 

  • ritajean
    ritajean Member Posts: 4,042
    edited November 2008

    Hi there...

    Hey Connie!  At bowling this last week, one of the ladies on my bowling team told me that she had had bc 11 years ago.  I was shocked as I didn't know she'd been through the journey.  She said that she took Tamoxifin for 5 years and then put her on something else for 5 years and now she's taking a different drug.  She was going to check on the last two drugs. She'd actually forgotten the second one.  Anyway, there apparently is something that can be taken after the 5 year period.

    Rene...so glad you're back!  Congrats on the 3 year anniversary!  I really don't wander too far from this thread and the CMF chemo thread on this website.  I get too emotionally involved and upset when I get into some of the other threads.  Then I come back here and everyone cheers me up!  Please post often here.  We'd love to have you!

    Jule..Monday will be here before you know it.  You will be in the rad room and out in less time than it takes you to get there!

    Well, I'm off for the night!  Hope those in treatment are doing well!  There's still room for more at the December lunch!   I'm looking forward to seeing all of you!  :-)

    Rita

  • wendyk13
    wendyk13 Member Posts: 1,458
    edited November 2008

      Morning!  Snow coming tonight?  Blech, as JulieA would say.

    Rita...if I remember correctly (and that is certainly debatable!) I think after you take tam and if you have since become postmenopausal you can take an AI.  Not sure what the 3rd pill your friend is taking but sure would like to know!

    Connie...by the time your 5 years are up I am betting there will be other stuff out there..I sure hope so!  OH...I got the S. King book and it is a collection of short stories.  Some are pretty good, some hmmmmmmm....but then I felt that way about his other 3 collections of shorts.  I will bring it on the 8th for you.  In my opinion, not one to add to your collection so save the money.

    Laura...I agree with Connie...Please, oh PLease bring a sample of your juice.  Could I please have garlic, grass, flax and kale?  That's my fav!  LOL

    Gotta scoot....everyone have the best day!

  • ritajean
    ritajean Member Posts: 4,042
    edited November 2008

    Good morning gals!

    Wendy, as soon as I find out what my bowling friend is now taking, I will let you know.  She is indeed another success story.  We like those stories, don't we?

    It's misty and yucky here today, too.  I'm going to try to work a bit on the book and then meet Wendy the Younger for our 3 mile walk.  I am so proud of both of us.  We've walked every day except Wednesday and are hoping to walk again tomorrow, too.  I have to admit that I feel more energetic when I am finished than I did just moping around the house.  Hmmm........that should tell me something, shouldn't it?  I have also gone back to the Core Diet and have dropped two pounds this week.  We're going to a birthday party tonight at the club so I'll probably reunite with one of those pounds but I'm going to keep trying hard so that I can enjoy the special holiday "food gatherings" without guilt! 

    Gotta get a move on..........

    More later........

    Rita

  • [Deleted User]
    [Deleted User] Member Posts: 4,011
    edited November 2008

    Carol - That makes perfect sense about the Andrimyacin (sp?)...I've often read here that girls can't have it because of heart issues. Thanks for the explanation. I like to know everything about bc treatment. Losing your hair will be a little tough... but honestly - us girls are so resilient... and...you should get some super soft fleece head caps... like you, I was also bald through winter... my head froze at night. I slept in a cap every night. Hang in there, Carol... you will survive all this bs! lol   

    Connie - I'm so glad to hear your flashes are less frequent - see told ya so! lol My Onc told me that after my 5 year Tamoxifen sentence is up, he will probably start me on an AI... But... you are right, that by then there might be something new and better OR perhaps THERE WILL BE A CURE for us! It doesn't hurt to dream! lol  

    Conne/Jackie - The juicing is going well... I'm trying different concoctions and trying to narrow it down to 4-5 veggie ones that I like and the same for fruit. I feel like a mad scientist... I have to admit though... some of the recipes are quite... well lets just say... interesting... okay I'll be honest... GROSS! lol I just close my eyes and down 'em! lol  

    LittleC - To avoid losing long posts... open another window (I open aol as if I was going to type an e-mail). Type your post there and then when you're finished, just copy and paste it into to a post here.  

    Wendrew - Okay, okay...I will bring a thick and healthy juice for you to sample! lol Hmmmmm... how about beets, garlic, kale, broccoli, fennel, wheatgerm, ginger root and lime. YUM....just for you, dear! lol  

    Rita/Wendrew - The med she's taking is an AI - Aromotase (sp?) Inhibitor... it's the only thing available post Tamoxifen.  

    --------------------------------------

    Well girls... have a great day...I can't believe its Friday already! Dang... this week flew... I love the weekends because dh is home all day... it gets kinda lonely here during the week...  lol... but I do schedule lunches with my gal pals and I have the body builders at the Y to mingle with and today I am observing a visitation of my "case" between the natural mother and the little one... supervised by the case worker. The natural mother wants unsupervised visits, but we are all in agreement, me, the caseworker, the judge and the States Attorney that we are not comfortable with that, at least not at this point. It's taking place at the natural mother's apartment... should be a real eye opener/learning experience. Yikes... 

  • Juliechicago
    Juliechicago Member Posts: 179
    edited November 2008

    Rene and Laura--

    Fenner is my plastic surgeon-- and I just had my reconstruction/lift done by him last month. Feel free to PM or any ask questions. I did a lot of research before going to him-- and felt he was the best in the area. I feel my complications are unique to my personal situation-- I, too have seen some of his other work and was quite impressed.   I also have to say that he was all over the infection when it started and made sure it was addressed immediately.

    He left the ENH/NorthShore network in October and has gone into private practice- but the letter sent to everyone indicated they were taking all the same insurances and I believe it's a pretty wide network. He is in temporary offices in Northbrook until sometime in the spring. His practice will move to a building then in Kenilworth, where he will also have his own operating room for small procedures.  He's pretty much the busiest doc I have ever met-- but I have been fit in as early as 6am to as late as 9pm for appts.

    I am finally done with the antibiotics-- had a celebratory glass of wine to commerate this the other night.  The infection is much healed finally and per Fenner's advice, I have scar tape over the thin area and am just hoping for the best. I see him again in another week.  Next milestone: a bath. I really, really want to take a long, long bath with a book. I'm reading The Story of Edgar Sawtelle- it's absolutely lyrical and the only thing that could make it better would be reading it, uninterrupted, with chocolate, in the bath.

    Hey Brenda-- nice to see you pop in. Will PM you soon!

    Laura--I'm interested in learning more about the compound meds?  Could you tell me more?  Now that I'm over the major humps on most of this- I'd really like to look into a naturopath or nutrition expect. Open to recommendations.  Also- a personal trainer who has some experience working with women who have had breast/armpit surgery. I'm a bit uncertain as to what I can and can't do anymore.

    JulieA-- I've heard a lot of people talk about the Proactive skin care system being really good for returning acne. I'm guessing the hormonal upheaval with the Tamoxifen is contributing too? I'm sure someone here on Tam. can add to that...

    I'm hoping to take Dec 8 off of work so that I can meet everyone.  Have to scrawl this-- sneaking in a look at work as a brain break. Just buried.  Pretty much came back to everything I thought would be finished by the time I came back!!

    Have a great weekend everyone!  

    julie b

  • illinoislady
    illinoislady Member Posts: 39,797
    edited November 2008

    He who wishes to secure the good of others, has already secured his own.

         -- Confucius

    Hi Everyone.....I'm quite late.  Got on this a.m. thinking I would find a cheery quote and found that my Netwitz put all my mail into the web spam folder.  I had to go in and re-accept all the addresses I wanted.  That was all I had time for.  Some time during the day they got it together somewhat.....they let me have a bunch of the actual Spam.  This is sort of why I'm  so close to switching.....in fact I'm so close.....that I will be switching on the 20th. 

    I'll be on Charter Cable then.....my phone, Internet and T.V. will all come through Charter and will make my bill something to swoon over ----  so sure hope the service is really, really good.  I have been told they are not too good with phones.....but we have our cell phones so if it turns out to be true.....I may still be ok.  As far as Internet goes....can they make any more things topsy-turvy than I already experience now.  I have already ( long ago when we lived in town ) had their Cable T. V. and it was all right.....so I think we will do all right. 

    Looks like snow tomorrow for us.  It has rained most of the day ( since noon ) and though it's not cold yet....it's going to get there overnight.  I'm not ready for this, but I'll have to just put a smile on my face and call it even.

    Hope you are all looking forward to a nice ( relaxing if possible ) week-end.  I plan to sleep in hopefully.  I read up on Arimidex and it can cause some insomnia.  Does not make me happy as I'm always such a good sleeper and feel that did so much to get me through the last year and all the chemicals etc.  I'll give it a while and see --- maybe my system will be able to throw it off.  If not.....I'll check into some intervention for it.  Maybe something for every other day or whatever. 

    Well, I'm trying to enjoy the sound of the rain on the roof ----  because it can't be too cold if the rain is still coming down.  My poor feral kitties didn't get their meal today.  That is what I really hate about it.  Anyway, I'll yak at ya'll later.

    Jackie

  • zap
    zap Member Posts: 1,850
    edited November 2008

    I was referred to Dr. Fenner but chose to live what is left of my breast.  I was told he was an artist when it came to reconstruction.  I have  a huge scar, no nipple, yet decided on no further work due to my age and my aversion to hospitals and surgery.   I would  encourage all woman, regardless of age, to  get reconstruction if they are up for it.

    As Kater would chime in...OFF TOPIC.......Rita, was your last year teaching a bit difficult?   I have been a teacher nearly all my adult life and I am 60!  I never skipped a beat while teaching. Even BC did not stop me.  I kept showing up and teaching.  It is what I do and frankly, it is what I do well!   This should probably be a PM to Rita, but maybe some of you can get this. I am not sad.  I am just baffled that my life career is actually coming to an end!  AND, I do not golf!  Everyone asks me if I have a plan. Ironically, it is the same as the plan after  BC....first survive and then thrive!  

    Have a great weekend.

    Susan 

      

  • Jule
    Jule Member Posts: 85
    edited November 2008

    Hi Susan. Do you think that you will want to sub after you retire or are you done? I work with lots of teachers in my job (an am a teacher myself but currently in more of an admin position) and I am always so impressed by the teachers that are teaching all of their lives. I know in my district a lot of retirees sub or tutor at the schools.

    Have a good weekend.

  • illinoislady
    illinoislady Member Posts: 39,797
    edited November 2008

    Susan, aren't you just being a little ambivalent.  I could be wrong.....but I am happy with so much of my life and I think in the main you are too.  You are a good teacher and you know it.....you are happy enough to retire, but you can't quite figure how you have reached this point when you had your whole life in front of you doing what you love.   

    I think they say parting is such sweet sorrow and you can't wait to retire but something else inside somewhere doesn't really want it to have to end. 

    Maybe there are a lot of us who don't have that many regrets about life or the way we have lived it up to now, but after having cancer and surviving thinking somehow this next chapter has to be really special or that we have to find a way to be very, very in touch and in tune and making almost all of our moments and minutes count   ---- like we perhaps should try and appease the Gods as such because of those times we really did take things for granted somewhat. 

    Just some random thoughts here because I know quite well in my lifetime there were those times when I became complacent, feeling my life was set and not allowing myself to  realize that change in one way or the other always comes and you can't really prepare very well sometimes.  I'm just saying I think ( do I really have any idea ) that you are happy that retirement is looming but that it is your love and you don't really know how you will be defined as a person afterwards. 

    I don't know how I will be ---  but I do know there are things I want to do.  Improvements that I think will make me happy, improve my life and outlook and hopefully make people around me happy too.  I want to get back into studying spirituality which I dearly love and I want to learn how to REALLY listen to people.  Nothing that will set the world on its end but I think I had let myself get out of tune with the world and myself and WHEN I am actually in tune.....answers will come and whatever or wherever I find myself will be the right place and I'll be doing the right things and I'll be comfortable with it all. 

    Ok ---  I'm sure I've said more than enough for now......and more than likely have it all backward  so I'll be back tomorrow....when I hope it's not raining. 

    Jackie                                   

  • wendyk13
    wendyk13 Member Posts: 1,458
    edited November 2008

    Morning!  No snow out there so that is good.

    Susan...I agree!  DH is always in need of subs.  You could be a perm. sub and work maybe 2 set days a week.  Pay is pretty good!

    OK...I am embarrassed to tell this story but maybe it could warn someone.

    When I went to Fl in July rather than take a bunch of pill bottles I took the one Calcium bottle and put all the pills in there, including 5 vicodin in case my back was really bad after the plane trip.  Never needed them, or since. So....fast forward to yesterday afternoon.....I realized that I had not taken my 2 calcium pills and 1 magnesium pill and the two bottles were upstairs and I was down so I grabbed that old calcium bottle out of the cupboard and took out my 3 big white pills and swallowed them  Now...when I know DH is on his way home...I treat myself on Friday to a nice, somewhat good-sized glass of my fav pinot grigio.  Does anyone know where this little story is going????  I DID NOT take 2 calcium pills and 1 magnesium pill...I took THREE FRICKIN VICODIN and washed it down with 1.5 glasses of wine.  I actually lost 3 hours of yesterday.  When I had my severe back pain I only ever took a HALF vicodin and that made me loopy.  When I look back on the whole thing, I could have really hurt myself.  Instead...just made a bit of a fool of myself.  Which reminds me....Blackjack...I know I was on the phone with you and I have no idea what we even talked about as you called about an hour after my little pill ingestion so I am sorry!

    OK...moral of the story. I bet all you guys on one occasion or another have thrown pills together,   just for the ease of it all.  DON''T DO THIS!!!!!  I have separated all the pills now, very carefully as all 3 meds are big white pills and I put the vic away upstairs in the bathroom.  And I don't think alcohol is in my future ever again!  Well....at least not for a looooooooong time!  I know better, but I was in a hurry and didn't think and when we do this while doing anything...this is when big mistakes are made.  So....if you guys have one of the lethal pill bottles sitting anywhere...better safe than high as a kite.

    But I do have to admit...my back never felt better!

    Everyone...have a wonderful Saturday!

  • blackjack
    blackjack Member Posts: 771
    edited November 2008

    Wendy...

    OMG, I knew something was wrong yesterday and you sounded sooo weird. I guess you did take my advise about the vicodin..but I didn't tell ya that many. lol. I am glad that you are ok and I know you probable slept like a baby. lol  I do have to tell ya that you were sooo funny..

    Glad to see that the back is better.

    Well girls it looks like we have a nice large group for our holiday lunch so if you still would like to come please let me know asap. I am still working on the details but it looks like it will be at Wildfire in Schaumburg.  So let the holiday partying begin..good food...good freinds..lots of chatter. Details will be coming.

    I hope you all have a great Saturday..stay warm as it is very chilly outside today.

    Remember to be healthy ..be happy.

    Blackjack 

  • illinoislady
    illinoislady Member Posts: 39,797
    edited November 2008

    Good RAINYSaturday morning.  At least it did not turn into snow although we could easily have some and probably will later in the rain.  Did someone say that was slurries???? Whatever but the gray is starting to be a real drag.  I tolerate most things easy enough but it does not take too long to get to me when I don't see some sun.   Maybe we end up most of our fall weather this way and I just don't remember, but I'm ready for gray and wet to be gone.

    The weather seems to have sponsored most of the leaves coming down so one more round out in the yard and we will probably be done for the year again.  That is quite nice.

    Going to be a quiet day here but I hope to get some ambition and get a few things done that have gone by the wayside due to all the yard work. 

    Wendy.....your story was almost scary.  I haven't ever mixed up my pills together as it is hard enough to deal with them from the get-go.  Some on an empty stomach --- some with food -- some in the a.m., and some in the p.m.  Still....there have been a time or two when I probably forgot actually taking the empty stomach pills and took them over again.  Not a horrible thing and none that could really fog you up, but something you'd rather not do.  I'm glad you are back to your old self again --- that just was a bit dangerous to say the least.

    On the plane to California ----  I just put all my pill bottles in a zip-lock bag and into my soft over shoulder carry-on bag.  Didn't want to take a chance of losing my meds if the luggage was lost. I found a bag ( fairly large ) at Wal-Marts that was soft material and had super Velcro to keep the large flap in place --- extra side pockets and was on sale for $3.00.  Couldn't believe it when I saw it, but sometimes perfect just turns up right in front of you when your not looking.  Also found this a couple of days before I left....and it worked out perfect.

    Well, I'm going to start thinking about getting something done for today though I don't think ( heck I know )  I am not filled with much that could be called enthusiasm.  In all this gray the truth is that I am going to be forcing most of what I do.  Hope you all have a good day.

    Jackie

  • illinoislady
    illinoislady Member Posts: 39,797
    edited November 2008
    To succeed in life, you need three things: a wishbone, a backbone and a funnybone.
    -Reba McEntire
  • wendyk13
    wendyk13 Member Posts: 1,458
    edited November 2008

    Gee Blackjack...glad I was so amusing!  DH agreed with you. The one thing I do remember was that I couldn't figure out how to turn on the microwave!  Good lord...how do these addicts take 5 and 6 of these pills at a time and still function!!!!!!! No wonder I don't really remember any of my time in hospital last year for my back as I was on 1 vicodin every 3 hours.  Those pills really make me high and maybe I should never take them....period!  Back to Tylenol for me!

    But...now DH tells me his little story.  He took his anti-arrthymial med one morning, and then popped the second one by mistake so he got scared and took TWO of the rate control pills, thinking that would help and that's how he ended up in the hospital in September!  So another tip for you guys...never mix up pills in one bottle and never try to correct a medication error with more medication!  Jeepers...what idiots we are!

    I VERY carefully counted out all my pills and put them in the correct containers.  I showed the mag. and calcium pills and a vicodin to DH and he couldn't believe how close they all were, right down to the score line.  Unbelievable.  And there isn't any additional writing on the supplements to help differentiate.

  • motheroffoursons
    motheroffoursons Member Posts: 80
    edited November 2008

    Hi All,

    Haven't posted for awhile, even though I often look at the boards.

    If you get together this week, I can still go.

    I am having trouble, probably from Tamoxifen, that causes ovarians cysts.  It acts like estrogen on the cysts.  I had an ultrasound this week, and now I have two cysts/complex masses on the same ovary.  It has been growing  rather rapidly and getting stranger.  The two cysts together now form a mass of 12-13 cm across. About the size of a large grapefruit.  From the ultrasound, they are still saying it is probably begnign, but one might be borderline tumor.

    I see the Dr. on the 21st and suspect surgery is in my near future, and I want a hysterectomy as I have other issues that increase my risk for other gyne. cancers. 

    I suspect from the size of the cyst they will not do the laporascopic thing, but the more extensive cut through the abdomen that will keep me in the hospital for a couple of days.

    I am going to try to schedule the surgery after the 10th of Dec. as my husband wants to fly back from Israel to take care of me!  I do need someone to hold me hand the day of surgery.  I am already scared and nervous.

    Tamoxifen, another gift that keeps on giving.

    Anyway, let me know of any get togethers.  I need the diversion!

  • zap
    zap Member Posts: 1,850
    edited November 2008

     I feel very "little" worried about my future when people are facing  such big things.  Mother of Four, I wish you well.  I live near you.  Can I do anything at al while you are in the hospital or after?   Just PM me and I will be there on the spot.  I can see why you want your husband near.  We all want someone to hold our hand.  I know you want to have him hold your hand, but I am good for a couple of casseroles!

    Wendy, that sounds like a "climbing into the fort" experience.  I am just so glad you are okay.  I took one vicadin in my whole life (back pain  too) and when my husband asked how I was feeling, I said, "Not bad!  The pain is NEXT to me and not in me," and when he asked where the pain was was, I pointed to a spot on the bed next to me! LOL!  That was one pill and no wine, so I can imagine you were looped!  Thanks for the warning.  I do mix pills in bottles too when I travel, so I appreciate your warning.

    Susan 

    Susan 

  • conniehar
    conniehar Member Posts: 585
    edited November 2008

    Just a fly by hello!

    Very busy weekend.  We had a Brownie Daddy/Daughter event last night that I had to volunteer for.  My daughter and DH had a great time - lasertag!  We were there until 11 pm!  Then it was up bright and early this morning for a boy scout pancake breakfast.  I am still stuffed.  My son did a great job serving everyone those pancakes.  Tonight we have a pizza party to go to.

    Sharon - sorry to hear about your trouble with cysts.  I will be thinking of you!

    Rita - that's interesting about the 3 meds your friend has been on.  You are right - we love hearinng those success stories.

    Wow Wendy - I can't imagine taking 3 Vicodin!  That's a funny story, but seriously glad you are ok.   And what a story about your DH!  So, you didn't know until now why he ended up in the hospital???    I actually bought one of those pill boxes.  I planned to use it for our trips to MI in the summer so I didn't have to bring all the bottles with me every time, but now I use it every day as I can never remember if I took my Tamox.

    Enjoy the rest of your weekend everyone!

  • elf_song
    elf_song Member Posts: 148
    edited November 2008

    Hi, Everyone~ I am new in this blog...

    I had no idea this many ladies in IL facing bc... I had mast. on left and recon. with expander on October...   And I have two lovely boys, 33 month and 11 month...  Then, of course dedicated husband.. Wink  My treatment is 8 cycles of chemo, 6 weeks of radiation and taking medicine for one year..  I just start one of the 8 cycles of chemo and second chemo is on 18th..   I am getting Adriamycin and Cytoxan..  I had reaction to Adriamycin so they gave me allergy medicine.. And I was vomiting next 3days... It was bad morning sickness all over again..     I hope next chemo will be better...    Thanks for creating this blog Ms. Rita.. and have great weekend everybody~!

  • wendyk13
    wendyk13 Member Posts: 1,458
    edited November 2008

    Morning!

    Elfsong....welcome!  You are so young to have to deal with this but having those little ones around must give you much joy and a goal to focus on right now.  Make sure you tell your onc/chemo nurses about the vomiting.  They should be able to give you different anti-nausea meds to help prevent this as it is so much easier to prevent the nausea than to treat it once it starts.  Please tell us a bit more about yourself when you have time.  You'll find us a bit wacky a times but in general a wealth of knowledge and very supportative.  Come back often!

    Connie...the scary part about DH was that it turns out he had been self=adjusting these drugs for while.  Anti-arrthymial drugs are NOTHING to fool with as the first se listed is sudden cardiac death!  And then him trying to correct the fast heart rate by taking a rate controller - well that's why he passed out on the way to the hospital.  One drug tries to speed up the rate and the other tries to slow it down and can't so your BP bottoms out and down you go.  And I never knew he had done this and he never told anyone.  The tx wouldn't have been any different as he still had to sit in the hospital and be weaned off the old drug.  BUT.....he knows now not to do that anymore.  AND...the new drug is working perfectly with only nausea as a slight se, easily corrected with a little 7up.

    Susan...laughed about your vicodin story.  Some people pop that drug like candy...I really don't know how they do it!

    Berrypatch/carol....how are you doing?  Mom get home ok?

    Karin, calling Karin....are you OK or just super-busy?

    Sharon....I have been wondering about you!  Ah these little drugs...ain't they wonderful!  NOT!  I am so happy that your DH will be back for your surgery - DH's sometimes aren't very helpful at these times but it doesn't mean we don't want them within hugging distance.  You're coming on the 8th, correct?

    Jackie...I have always just thrown pills together in one bottle but this was the first time I traveled since beginning my new little pill regime.  Since I am very careful I just dump some out, sort them out and put them in a little case.  What I did Friday was TOTALLY forget that that calcium bottle was my VACATION bottle and just shook out the "white pills" and swallowed them.  Dumb.  If I had at least marked the bottle with "VACATION PILLS" that never would have happened.

    Rented "Mad Money" last night...it wasn't as bad as the critics thought, funny we thought.  We also got "Deception" with Michelle Williams so will watch that later when DH gets bored with football.  Went to up to bed early last night and the 2 of laughed our butts off watching Adrienne Barbeau and Louis Jordan in the "Swamp Thing".  I don't think that was supposed to be a comedy!!!!!!

    Hope everyone else is doing well and tx is not treating you too badly.  Have a wonderful, happy Sunday!

  • Mich101
    Mich101 Member Posts: 489
    edited November 2008

    Wendy-Scary stories on the pills for you and dh, glad everything ended up ok.  I think we'll all be a little more careful now. Your picture today is soooo funny!

    Elfsong-Welcome. You are so young to be dealing with this. Check in often. These IL girls are great and this site with provide you comfort. They help me daily!

    Sharon-Hoping all goes well for you.

    Does anyone see their gyn. more than once a year because of the tamox?

    Kater-Your mom has been through alot. Praying for good test results for her.

    To everyone have a great day! 

  • illinoislady
    illinoislady Member Posts: 39,797
    edited November 2008

    Beauty, truth, friendship, love, creation - these are the great values of life. We can't prove them, or explain them, yet they are the most stable things in our lives.
    Jesse Herman Holmes

    Welcome to a beautiful SUNNY Sunday morning everyoneCool.I am thrilled to say the least.  Without my sun I just sink a little more every day and I doubt I even complain of the chill just as long as the sun it out.

    Elfsong we are a huge group.  Just like you....as long as I DIDN'T have cancer.....I didn't know how many people really did.  It's a little shocking to know there are such numbers, and the ladies on this site are mainly from the Illinois area so-------but glad you found us and hope you keep coming back.

    Wendy ---  I'm thinking it might be a man thing with the pills.  Dh here was forever mixing, matching and changing his dose ( usually to more ) if anything.  Also throwing in herbal remedies for good measure along with everything else.  Finally got him to sit down and think about what he REALLY felt he needed a fix for.....then helped him wean himself off all the drugs.  He gets some supplements through mail order  ---  I think not having something to take makes him nervous.  I always tease him about that joke about all the health food addicts in the nursing home dying of nothing.  How wonderful to be 69 years old and not really need anything.  The things wrong with him ( very bad back/vertebrae ) from old car accident and slightly elevated cholesterol can be handled w/o prescribed medication.  Then you don't have to worry about getting a SE from the meds that you then have to take another prescribed medication for -- which is how we all end up on so much stuff.

    Sharon.....I had a grapefruit sized tumor ( very benign ) in my uterus and due to that kept my monthly ( turned in to more like every other month ) cycles until I was 53 -- a real drag.  When the tumor started to grow Dr. decided best to have everything out to avoid any later complications.  That is when I went on HRT.  I now feel  in hindsight that it was probably one of the biggest reasons for my stroke and cancer.  Who knows...might have had it happen anyway, but doing HRT sure didn't help anything but my hot flashes. 

    Well, I'm hoping that pretty sun is shining bright for all of you and that you feel renewed and ready to enjoy to the fullest whatever you do today.  I'm cleaning house again ---  didn't get done yesterday.  Decided to wash all my rugs.  I'll be checking in later.  See you then.

    Jackie

  • Jule
    Jule Member Posts: 85
    edited November 2008

    Elf-song,

    Welcome. I hope that your next tx is better. Are they giving you steroids? They're yucky....but I know that personally they helped me get through the chemo. I had the same drugs that you had as well as Taxotere. Good news though - only 7 more to go:)

    Jackie I wish it were sunny here. In Chicago only gray and gloomy again!

    Have a great Sunday everyone. Rads start tomorrow for me. Keeping fingers crossed that all goes well.

  • zap
    zap Member Posts: 1,850
    edited November 2008

    Welcome elf-song.  Yes, lots of people have BC.  I remember sharing it with a few here and there and they would whisper, "Me too."  This forum has no problem discussing it, while there are some who  went through it all quietly...mostly older woman.

    I never had nausea but I was 58 when I went through chemo.  My chemo nurse said that younger women have the nausea while poeple my age are spared.  I have no idea why.  She may have just said that because this young woman I was sharing the room with was ill and she wanted me to believe I was not a candidate for nausea.  I too took the steroids and another pill BEFORE I got the chemo. They (doctors and nurses) always swear they can find the right pill to eliminate the nausea. 

    Kater, your mom is such a trooper!  What determination she shows for us all.

    Jackie, I too think that my hormone replacement brought all this on.  Who knows, really.  I just think we have to  think twice before we take a doctor's advice.  I was told to take it to save my bones as my mom had osteoporosis. 

    Julie, rads tomorrow....you'll do great.  Just visualize those bad cells blowing up with each zap.

    Susan 

    Have a great Sunday....maybe the Bear will do something good today! 

  • ritajean
    ritajean Member Posts: 4,042
    edited November 2008

    Good morning everyone!

    Brrr...it's cold out there!  That makes it a little easier for me to stay inside and work on finishing this book.  I'm finally down to the proofing and final touches.  It's a good thing because it's driving me crazy.  My days of schedules and deadlines are about over!  :-)

    Welcome, elf song.  You have come to the right place.  The ladies on this thread are kind, loving, and SO HELPFUL!   We will help you through your journey.  I am so sorry that you have to face this challenge at such a young age.  My heart pours out to you.  Please join us often and post as much as possible.  This is a great place to vent when you need to unload emotions that you'd rather not unload to hubby and family.  We've all been in the same place and we do understand.

    Jule...tomorrow's the day!  Many of us had little trouble with the rads and I'm hoping the same is true for you.  It's just such an inconvenience to show up everyday! 

    JulieChicago...I do hope that you will be able to join us on the 8th.  I really want to meet the other CMFer on this thread!  I'm glad things are improving for you and sure hope they continue!

    Susan, I sent you a PM.  I'm a Bears fan, too!  They need to get "on a roll!"

    Sharon......oh my gosh!  Hugs to you, dear!  Several years ago I had the "full blown" hysterectomy.  My incision goes from my belly button.....straight down.  Over time the scar has faded.  I really was amazed, though at how easily I bounced back from that surgery.  I was off school (no teaching) for a month, but within a week I was easily moving around the house.  I was careful not to over-do but it was just me and the cat so I had to pretty much fend for myself.  It really wasn't as bad as I anticipated.   You will be in my prayers and I hope to see you on the 8th.  Just remember how tough we Illinois gals are!

    Well, I need to get my car cleaned today and do some proofing.  I hope all of you have a great Sunday.  Tomorrow we are celebrating "no mo' chemo" for Wendy the Younger at the riverboat.  Hopefully we'll be rich by tomorrow night!  HA!  

    Catch you all later.

    Rita

  • elf_song
    elf_song Member Posts: 148
    edited November 2008

    Thanks for welcoming me ladies~!   I got tears and I am very happy to be here~!    I feel like I have lots of BIG SISTERS now, alright~!  How wonderful is that??  Laughing   Now, I can let it out all of my fears and get support I need from the people who's been through and understands it all...  What a relief..

    It is nice Sunday isn't it?  We had little bit of snow flakes and Sunshine..  My older son loves snow and he just can't wait to go outside make snowman and snow balls..  

    I got dx with bc right before my 37th birthday on September..(some birthday that was)    I couln't think anything...    I didn't even know how to tell my husband and how to deal with two little boys.. It was totally overwhelming..    The hardiest part was telling my parents in Korea..    So, I wait until surgery is done and first chemo..  I tried to tell them before the surgery but I just couldn't open my mouth..  Then, when they got the news from my brother, they were shocked and of course my mother cried...  She still cry everyday here and there..   Every time she think about me she cry she said..   That's what happened to me too at the beginning but now I am going stronger than ever~!  I can bit this cancers butt~!~!  and We all can do~!

    Have a great day ladies~!

    EJ

  • zap
    zap Member Posts: 1,850
    edited November 2008

    Yup, EJ, you are one strong lady.  I can hear it in your post.  You will beat this!  Yes, you will!  We will help you.  It is good your mom knows about your situation,  as all women, young and old, need a mom.  I am sure she is sad she cannot be with you right now. You don't just have big sisters here:  you have aunts and friends!

    Rita, thanks  for the PM.  I am composing a response as your words were so on target for me and I want to take time to respond to you.   The Bears played so poorly.  My second daughter had a party and we watched the game with a group of old and young in her wonderful apratment in Lincoln Park!  Man, what a poor game they played.

     My grandchild (16 months) was there.  My older daughter is pregnant with baby number two.  Most all the people at the party have been spared the economy and still have jobs.  After the game we listened to Obama and his challenges.  Man, he has a lot on his plate!  We do too!

    Have a great week, all.

    Susan 

  • BustersMom
    BustersMom Member Posts: 260
    edited November 2008

    EJ - welcome, so glad you found this group.  I can't tell you how helpful these ladies have been - both with information and just making you laugh, and letting you know they care.  

    Wendy - 3 vicodin & some vino?   What a combo - I'm glad you were at home, safe & sound!!  I love the little cartoon you posted earlier.  So true!

    Jule - first rad tomorrow, sending you good vibes.  Like Susan said, just imagine any little bad cells getting blown up. 

    Rita & WendyTY - whooohoooo the riverboat!!  I hope you guys have lots of luck & win a couple of big jackpots! 

    Blackjack - Wildfire is a nice place & they have great food.  That is where my bridal shower was :)  

    I looked outside and saw this stuff all over the BBQ grill cover, and my patio table.  What is that stuff ?  It's white and fluffy looking.   It's not that.....  SNOW stuff, is it ?  Not already ???!!!   Oy!

    I start freaking out when snow shows up... because I don't know how to drive in it, LOL.   I learned to drive in San Diego, and to this day, I cannot drive in the snow.  DH says that this year, we will go out to a parking lot & teach me how to handle it this winter.  Should be interesting. 

    Had a nice, mellow weekend - although I did not enjoy that Bears game at all today.  It was poopy.  

    Hope everyone is resting & relaxing this cold Sunday night.  Take care - JulieA