Illinois ladies facing bc
Comments
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Wow! so much going on here, and I've been away too long to catch up quickly. I'll have to come back to read more during the week. I'm getting many new windows tomorrow, and this weather will make that so much fun! Brrrrr......All my drapes and shades are down, and we are in a goldfish bowl in this 1952 ranch house with all picture windows. Be careful which bathroom you use, LOL.
About medical records...we as patients are entitled to access, but we are not the owners. The doctor's own the records in their offices, and hospitals and facilities are owners of records compiled there. We are entitled to access though, and they are entitled to charge us for copies. They do have to pay staff to make copies, and buy printers, ink etc. so that's probably fair. It is interesting to read through the notes. My DH has terrible handwriting, so all his notes are typewritten so no one needs a decoder to understand them. I do get copies of all my test reports and results, but because I don't want to have a mountain of papers I don't get every progress note. Too much stuff to store, seriously, but if you want it they will copy it for you. They are supposed to document even every phone call between you and the doctor, or his staff, so papers can really mount up!
Buddy, I'm confused about your delayed chemo, and the rads question. Radiation is local treatment, and chemo is distant, so one doesn't substitute for the other I would think. Sounds like you have found a good rads doctor, but don't you still need the finish chemo or not question answered? What am I missing?
I did get another review of my path slides, although it was identical to the first. I remember being charged 100$ for the new look, but I don't remember what my original hospital charged for providing the slides. Insurance did pay for it. I have something very rare, and my DH was a little freaked out because their are no studies on how to treat it. My cancer is IDC, but originates from the apocrine gland. Not enough people with it to do a study, so they just use standard chemo, and it is usually triple neg.
JulieC....So glad your colonoscopy came out clean, so to speak! Swallowing the camera is pretty easy, so I'm told, Wish we could do the colonoscopy that way!
My DH is staring at me, which must mean he wants me to help him with something! I'll come back later, I hope. We've got a dinner at the downtown Maggiano's tonight. With the Old Orchard version 5 minutes from my house I am becoming a very frequent customer.
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I'm sneaking back for a minute. My DH has too many projects lined up, and I am busy with my own. He always needs an assistant. All nurses read that as a "circulating nurse." I think maybe Susan could give him a check mark in that report card box that says" works independently!"
Jo....if complaining helps get you through treatment, then don't stop! We are always ready to listen. My DH was so glad I found you all, but wished it was sooner, as he had to listen to me complain through six months of chemo, and then even louder through seven weeks of rads.
Susan...I'll bet you are going to have so much fun now, but I'm also sure the kids will really miss you. Not publishing, hmmmmm. Here I though we could have book signing lunches in the future!
Juliet...So happy for you! They are so lucky they found you to hire, because you are always good at whatever you decide to do.
Jackie...I'm so sorry about Heidi. Barnes has an excellent reputation, and I hope they are making a good plan for her treatment.
Wendy, I am so jealous of your pile of books to read. I think I'm spending most of my time getting my house in better order this summer. We are doing some projects, but also just need to declutter. I do have a chaise lounge on the patio that is beckoning, but first things first, I guess. I did buy a new cushion for it, because a fox came by and was napping on the old one. Now, that was a funny sight! Not to mention cute, but I was thinking lice and ticks, so I threw the cushion away. Now I keep it inside when not in human use.
Being called again.....he is organizing piles of journals, and of course needs my help!
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I am learning so much from you girls. First I didnt know I could get the 2nd opinion, I didnt know the hospitol saved my slides. 7 years huh. Thats so good to know. I was already worried they had thrown mine out. I will be a very busy girl tomorrow. I think I will start with a call to the Oncs and ask him how to go about it. Kinda scary about all the notes. I didnt know that went on. sometimes I make comments and jokes. From now on I am really gonna watch what I say. One time I was joking with him and made a comment about giving me the marinol pill (pot). OOOPs. guess thats gonna be in there too.
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For the girls going through tx, don't worry about complaining here. WE are here to help you through this, to listen, to give support and send you big hugs. WE have all been there at different times with chemo, rads and lots of md appts. So please don't apologize.
The Lunch Bunch is meeting soon...so ck your emails for details and let me know if you can come. We always have lots of fun and laughter....Hope to see you all there.
Reading books all day..sound like a plan to me. Cleaning house not so much..would rather be boating but not today. Weather not good. But then there is always tomorrow.
Let's think warm weather and sunshine.
BJ
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Thanks Blackjack, Boating sure sounds like fun. We managed to skip the rain here again. They say its coming tonight.
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Yup, they put in your comments. One visit my rads onc asked me how I was feeling, and I responded, GRUMPY! I was always grumpy while at rads appointments, and he probably deserved combat pay for getting me through it. But of course, the first sentence he wrote in the chart was "she feels grumpy" today. I remember charting like that, but it feels so different when I am on the patient side of the whole thing. Every medical person you see is not only assessing your physical progress, but your mental and emotional state at the same time. It was not so fun to be under such close scrutiny, but I understand it's what they are required to do.
We had quite a downpour here this am, and for once I am happy because I am watering my neighbor's little patch of new sod while she is gone. No watering yesterday, or today!
Laura, please add me to the list of people sending a card to Australia. I'm sure Paula appreciates all your concern and support. You're a good friend, girlfriend!
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SORRY TO BE SO SHORT, BUT WAS WONDERING IF ANYONE HAD ANY LOWER BACK PAIN WITH CHEMO? I CAN'T SEEM TO FIND ANY RELIEF FROM IT. IT KIND OF RADIATES INTO MY LEGS. CAN I USE A HEAT PAD?
JO
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Jo - I had entire body pain! I did use a heating pad...I don't see why it would hurt to try it. Sorry... I hope it's better tomorrow.
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JMO - I think it's ridiculous that anyone has to pay for their records. MY GAWD... aren't their administrative fees built into their medical fees? I have NEVER paid a fee for ANY of my records... and quite frankly... I NEVER will. After every test, biopsy, etc., I just say - PLEASE send me a copy of the report - the entire report. They either fax it to me or send it snail mail.
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As for the cards to Paula.... some suggestions... keep 'em simple...write that you are in the Illinois Survivor Group with me... Say that I have asked for your thoughts and prayers for her. You could also say something about us all being connected as breast cancer sisters no matter what part of the world we live in. And/or...that you just wanted her to know that an Illinois girl was keeping her in your thoughts. (She loves Chicago!)
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Here's a poem someone posted on another thread:
gowing bald is very sad
we miss the hairs that we once had
we wake and it's another day
a hundred hairs have slipped away
what we wish we could control
reveals a window to our soul
we smile and say that it doesn't matter
inside we cry and we are sadder
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Paula UPDATE: she is still not walking well... and she gets out of breath very easily. Her second chemo is Wednesday... hope she doesn't have a bad reaction to it. She is dealing with that and the loss of her Independence... which we all know how valuable that is at the age of 33. She may be forced to move to her parent's house for the duration of her chemo... 6 months. They live about two hundred miles from her. I let her know that she could come her, stay with me and dh... and I would take her to treatments, etc... since I'm not "working" and won't be for a long time. She is happy to have options. She's worried about losing her job with Quantas... her apartment and everything she's worked so hard for. BUT... she is fighting hard! And she still manages to try and seem upbeat. One of our bc sisters who lives in Japan, is designing a website for Paula. It will allow her friends and family to have updates about her and a place for us to raise funds to help her have one less thing to worry about - the almighty $. Just wanted to give you an update.
AGAIN... thank you so much for keeping her in your thoughts and prayers!
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On a more positive note... I hope you all - despite what current issues you are dealing with... were able to find something fun or happy this weekend!
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Good evening everyone. No chance to talk to you this a.m. Jo, I am sorry to hear that your chemo is being devilish to you. Hopefully, time and another tx may get you on a better path. You will know more of what to expect so you can start to deal with it right before it happens and MISS a lot of it hopefully.
Laura....love your picture this time --- and the color of the blouse is so you. I also loved the poem from the other thread that you shared. I think many of us ( had it come earlier ) and several of the gals now will feel a little better that it is what we must suffer to do our utmost in giving ourselves every known opportunity to have a long, rewarding life despite this set-back.
Pat...always good to find you here.
I now have a relevant update on Heidi. Monday --- when she had to return to the hospital after her episode was definitely a heart attack. This Thursday they will do triple heart by-pass. Some of you already know this....but I did not, they do not open the chest now.....they enter from under each arm. So, no stopping your heart and all of that. It sounds like it is way less complicated in several ways. After they have taken care of that...( they are starting the planning tomorrow I think ) they will determine what it is going to take to get into her really bad leg and by-pass the occluded vein there. Not sure of the condition of the other leg.....just know it's not as bad as the one with the gangrenous foot .
Was a long trip today. Had to stop in Fairview Hts. and leave dh's phone to be upgraded. Took an hour so we did some shopping at Sam's while waiting. Big fiasco there with a mad checker.Then back to the Verizon center. Started raining....oh joy. Finally, got to the hospital. Stayed till just past 6 p.m. Then home with a quick stop at Hardee's so we could grab a sandwich..
I'll be here in the morning for a bit. Hope you all had an ok day.
Hugs,
Jackie
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Buddy... I know what would help in all of the retreiving of papers and slides etc... mention the words "MY LAWYER WILL BE IN TOUCH"... I say this as sarcastic, but if i get mad enough as i would here for you, it could work!!!! Just a thought..lolol.'
Blackjack... no boating here in Michigan.. have a 34ft RV and a sports car!!!We do day trips and enjoy the beach IF we could !!!Sonds like you are having a great time boating !!!!
Raining here in Michigan too.. got to a great Anitque Festival in St Joseph yesterday and picked up some great recipe books and kitchen misc. Cooking seems to be my new passion and look forward to some great recipes after my LAST treatment and revocery!!!!!! Today goin to Lighthouse Mall.. i shake with excitement goin there and all the stores!!!My DH just always knows to take me there if i am cranky or down.. love how that works.
Wendy....Yes.. muy brain is percolating alright... with coffee!!!!Are you keeping up with the laundry. you gave me the week off.. remember..chop chop!!!
Jackie,...looking at my last tx's in my journal.. 8 days when i usuall start feeling somewhat better in taste and energy.. curious to see how it will be for this TX. You have been great help in what to expect cause it is causing some anxiety!!! Trying to control some of this and that is not goin to happen!!!Continue to pray for Heidi. What a time!!!
Jo Jo Jo.. get on the heating pad as Laura says it is ok too and rest. You have had alot occur and enough where your body needs some TLC and time to just heal a good few days. After about a week, it does turn around and it will for you.
Laura.. Mailing out Paulas card today. Unlike everyone else. i was able to write a card withput a problem..lololol. Chemo and me being fresh is just a personality change that i have to simply accept...lol.
Ok.. if i forgot anyone, sorry. Be well and stay dry@!
Love and Hugs,
Donna
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Donna. Thats a great idea. Its probably the truth anyways.
Illinoislady. I didnt know that is how heart surgery is done. Wow. Thats amazing.
Ok girls here I go. one more cup of coffee (brave juice) and I am gonna start makeing calls. I will keep you posted. Thanks again to all of you for helping me. Love Ya
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Laura and Donna- Doc thinks the pain may be from the reaction or all the steriods, and the heating pad is fine. (See, you guys are as good as a doc. LOL) I will be doing this frequently til it ends. I hope it starts to ease up soon. I thought I was being really positive through this whole thing. But now I feel like I have been hit by a bus. I want to be left alone, and then I hate being alone. I want my husband to cuddle me and then I have a hot flash and I can't stand being touched. I want someone to call and then I don't feel like talking. Hopefully, this is temporary and all will be better in the next few days. I'm counting on it.
Buddy- Good luck with all your phone calls today.
Jackie- Heidi will be in my thoughts as well this week.
Everyone else and all above... Thanks for letting me complain.
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Poor MamaQ. I am so sorry you are in pain. Just keep telling yourself , you have a treatment behind you. I have feelings like you do also. I spend a lot of time in my room with the door closed. Just during my icky days. I have only had 4 AC but I still think my first treatment was far worse than the other 3. Tomorrow is my first taxtere. I am very nervous.
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Hi all:
MamaQ, I do remember the feeling like I had been hit by a bus. Can you take some alleve? It will pass, but stay on the heating pad. The weather is so bad for aches and pains! I bet when it warms up you will feel better.
Buddy, I am with you in spirit. I am not a terrible aggressive person (although my dh tells me I am) when it comes to unpleasant things. Confronting the doctors and staff would be hard for me to do. Yet, I know you must do that and must get up all your strength. It is especially hard when we are at a disadvantage and CANCER IS A DEFINITE DISADVANTAGE (at least pschologically). You can do it!
This is my first day of retirement and I am going to the home of a teacher to see her new baby, and another teacher's baby and my DD who is bringing her two and it should be fun (chaotic). Time to shower! I like this new schedule of getting up at 8! Susan
Susan
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Good Morning everyone......is this Rita's first whole day home and back from vacation> If so, Welcome Home Rita. I am sitting here waiting ( hope we don't lose power and my post here ) for a big pour down. Sounds like most of the day will be rather wet. DARN, Darn,Darn , but we have had a few nice days so I can't complain too loud -- so I'm whispering but it's still a complaint.
Jo --- we are here specifically so you can **complain** to the right people. The best place to find empathy is with those who have been on the same exact path. I imagine we all went through the time you described.....I know I too was very positive in the beginning. I knew I was strong and for some reason thought I would all but glide right through chemo -- continue to work and even have to remind people that I had X number of chemo's to go. Like you, that did not happen and I wondered how I had missed the 6 semi's that just ran over me. And so it went for most of my time through....and while it sure won't seem like it now, you might be amazed at how well you will feel when this lets up.. I could always easily tell when my body went from the point where destruction was still going on to the moment when it started healing. Was like walking out of a very dak tunnel and finding light all around with a beach and blue water just ahead. You are just glad your alive again....and able to quit wondering what you have gotten into that you have almost no ability to control. Your ambivalence seems so very normal to me. Here's hoping the change for you comes very soon.
Buddy- Donna is right again. Use what you have to use -- like the words which strike fear --- do I have to get a lawyer....or you'll be hearing from my lawyer. Whatevr it takes to get results asap. People are toying with the most precious thing you have -- your life. They do not deserve to be let off easy.
Donna - you too continue to amaze me --- just like Budders. You are so up-beat and positive when you are in your **good** period. It is what gets as through and I am convinced that coming here and not wanting to let all my brave friends down helped me not actually QUIT because a time or two I really did wonder if I could make it all the way. So yes.....one more time for you and yes.....it will feel bad ---- but it is going to make your beach and blue water so very, very special because the beach and blue water don't do away this time. I hope this works....I'm going to try and paste one of my favorirte poems in here for you.:
Don't Quit
Anonymous
When things go wrong, as they sometimes will,
When the road you're trudging seems all uphill,
When the funds are low and the debts are high,
And you want to smile, but you have to sigh,
When care is pressing you down a bit
Rest if you must, but don't you quit.
Life is queer with its twists and its turns,
As everyone of us sometimes learns,
And many a failure turns about
When they might have won, had they stuck it out.
Don't give up though the pace seems slow,
You may succeed with another blow.
Often the goal is nearer than,
It seems to a faint and faltering man,
Often the struggler has given up
When he might have captured the victor's cup;
And he learned too late when the night came down,
How close he was to the golden crown.
Success is failure turned inside out
The silver tint of the clouds of doubt
And you never can tell how close you are,
It may be near when it seems so far;
So stick to the fight when you're hardest hit,
It's when things seem worst that you must not quit!0 -
Sorry everyone for the funny marks....I was in a hurry to get it in in case we lost power....heck of a storm out there.....so I didn't copy and paste the poem into an email first ehich usually gets all those marks gone.
Susan - thrilled that you are no longer a working gal. Welcome to your retirement and I'm sure it's going to be all your hoping for because you will make it that way. Enjoy, Enjoy.
Hope you are all not getting this storm. It sure seems like it's going to be awful most of the day. Hopefully BIL got to St. Louis ok. He needed to get there early today for a Dr's conference. I definiely will appreciate all prayers for Heidi. She seems brave to us but Dave says she is very concerned about the heart by-pass surgery.
I'll check with you all later today.
Hugs,
Jackie
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Bernice Johnson Reagon:
Life's challenges are not supposed to paralyze you, they're supposed to help you discover who you are
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YEAH!!! FOR ME.. I DID IT. I GOT SOME ANSWERS. I FOUND OUT THERE ARE EVEN MORE MISTAKES IN MY PATH REPORT. TUMOR SIZE .2, 2 AND 2.2. tHEY ARE REVIEWING MY ENTIRE PATH. IT SAYS 11 NODES REACTIVE TO CHANGES. ANYONE KNOW WHAT THIS MEANS. I ACTUALLY HAD 22 NODES OUT. I DIDNT KNOW THIS EITHER. AND FINALLY ONE NODE WAS 75% TE OTHER WAS 10-20%. HOW DO THESE #'S SOUND TO YOU GIRLS. DO NODES GET 100%. OR IS THIS 75 AVERAGES THEN IT SPREADS TO THE NEXT ONE. THE RAD DOC CALLED AND SHE WANTS ME TO HAVE RADS. HMMMM.
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Just a quickie drive-by as I have to leave soon....
Buddy.....I have to admit I have no idea what 75% or 10-20% means except that it could mean that 75% of the node showed cancer...maybe???? But that would still be a positive node to me! Wow....there were certainly some errors in your path! I'm still voting for sending slides out! Your rad onc sounds like a keeper tho so to me, if she is now saying rads, then maybe that is indeed the way to go. It's really not bad, just the every-day, sucky part gets really old really quickly.
Jo....I don't think your reactions to a lot have anything to do with chemo! It's being human! Sometimes we want what we don't have and then when we get what we asked for, we don't want it! I got severe back back after chemo...however in my case it was a hermiated disc. Back pain from the steroids sounds like it might be right tho....
Donna...sounds like you had a good weekend...do some shopping for me! I did all your laundry and will start on the ironing during Y&R.
Laura...count me in as one who loves that color on you! So pretty.......(not you, your blouse - HAHAHAHAHAHAHAHA!!!!!)
Jackie......well, at least Heidi has her answers! Not what she wanted to hear, certainly. I do see that you guys are getting hammered with the weather. We got some storms here around 2am with downpours but right now the sun is peaking out.
Have to scoot.....hope you all are having a good Monday!
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Good for you, Buddy! I wish you good news.
Now I have a problem. It is not a problem, but has shaken me up a bit. My original BC surgeon moved her practice out East. I then got another doctor who would take over. I see her twice a year (one for mammogram and one for mri). We all know how afraid I am of the mri. So I am past the mri visit as I wanted to wait until after the retirement jazz. Called today and the new doctor is on maternity leave! That means I now need another new doctor. I am awaiting the call to see who that will be. I am worried about the mri (putting it off). My Dh actually suggested I ask all of if you have annual breast mri's. I had one because the mammo did nor pick up the first one and so they said my breasts were dense....thus the mri. Now I hear that most women do not get annual mri's. Can we have a survey here....annual mri's or not? The reason I ask is that the new doctor (whomever that will be) may not want to order an mri, so I want to be prepared. Are they affordable in that if the new doctor says no mri, can I get one out of pocket. This is crazy in that I am phobic of them, yet they do show what is going on. Thanks!
Susan
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Susan..to answer your question I get one mamo in April and MRI in Oct. Any one of your md can order it. I have had my gyn and bs ordered my test. Who ever you feel the most comfortable with can order your test. I see my bs just for breast exams every 6 months. The longer you are out from your original diagnosis and NED they may just put you back on yearly screenings. Some md's do that. Good luck. Let me know what happens.
BJ
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Hi gals! I'm home! We pulled in last night about 10:00 and although our trip was fantastic, I'm SO GLAD to be home and my cats were SO GLAD to see me. WendyTY took very good care of them (as I knew she would) but I still missed them. Ashie, the indoor cat, has followed me around most of the morning and sleeps at my feet, no matter where I decide to settle.
I need that laundry fairy and it appears that she's gone out of business! Talk about a pile of dirty clothes! Yuck!
I have not gotten caught up with everybody yet and it will still probably take me a couple of days but I've skimmed some of the posts and it looks like everyone is coping pretty well.
Thanks for the welcome backs! You gals are super. I'll be back later and try to read a few more posts to see what I've missed.
Rita
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Hi all,
I know I have been MIA lately. Just running around like crazy doing seems like everything under the sun. I think it is catching up with me. I went to St Louis for another fill this past Thursday (I am thinking this might be my last one). I haven't had the fills to bother me before but this one has bothered me a lot. I have hurt off and on since the appointment and I felt totally sick Sunday. I had hot/cold chills, nausea and headaches. I am some better today but just weak feeling. The foobs hurt and I cannot seem to get comfortable. My DH thinks it is all the prescription drugs I am taking - could be. I don't know. Anyway, I hate feeling icky.
Talked to my good friend last night - the one who has lymphoma. He has had a battery of tests and now has his chemo port. He begins his chemo cocktails on June 16th. Every year we go out with this couple to celebrate our anniversaries. My DH and I will be married 19 years this year. I think it might be their 20th. This year we are not going out with them - too many other things - tests, doctor visits, etc. He said the date of his first treatment and I was like "OH - that is the day of our anniverary." He is going to be in there like 6 hours for it! He said we could come and visit him and watch the chemo "drip". He has a unique type of humor. Things are just not light-hearted and free as in years past. We are all just taking things one day at a time. I think he is going to be OK - he just has a hard road ahead of him and I am really feel for him and wish I can take it all away. I feel that for you all too. Laura, your friend looks so healthy in the picture. No one would ever guess she is in a battle for her life. I hope she hangs tough! Tell her to hang in there!! She is too young and has too much living left to do!!
So glad school is done for now. My daughter is too. We are enjoying the summer days even though the weather is so freaky. One day it is hot and sunny and the next it is cool and cloudy. She is in summer league, swimming, camps, etc etc. I hope I can keep up with it all. I promise I will upload pictures sometime.
Has anyone else on this thread had tissue expander pain in the final fills where it makes you feel sick? I am suppose to go back on the 18th but I might just call before then and say "Hey - I am feeling sick here and it started right after this last fill." Not sure what can be done.
Take care everyone!
~Jennifer
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Buddy... get the slides sent out for a second opinion. None of this is jiving and do not understand how extreme it seems to be getting in interpertation. I am very lost here in what has been given to you and it is maddening to me that all of this is as it is!!!!!!!!!!!!!!!You need a second path opinion as that is what i would suggest.ALso.. this last DR.. have it all laid out and ask what does this all mean, instead of you trying to decipher it all!!!!!!!!!!!This is just crazy!!!!! Tomm, is your taxotere tx, honestly, it went well for me and are they putting you on Decadron before tx? Drink lots of water as you tell me.They will watch everything the first time also.
JO...Can I RELATE to all you are feeling!!!!!IT to me, takes a week to 8 days and things turn around. That is why i have a cancer journal so i can see the pattern for each tx as you forget how crazy,icky, leave me alone feeling, want someone to care feelings to i am goin to sream, kick or punch you..lolol.. This is all part of it!!!I also want to eat sugar and all that is bad as that is not what i usually do!!!
Jackie.. WOW...i am goin to print out that poem when i get home!!!! We are just leaving Michigan and it was interesting as we go to the same RV private place and same people go etc..one woman whom i thought was a friend.. saw me as i had a scarf on my head and she just turned and went the other way. The courage is a choice and it is interesting how some outsiders do not know how to handle someone with cancer. Thought there were other women who afre like mom's to me and were so aweosme to talk to. Another friend's dad was telling me how he is with bladder (contained) cancer and he has a great atttitude and was grateful to share the talk etc!!!
Daisy my golden was across the street at the Dunes in Michigan with my DH.She is always good and obedient, even off lead. She saw me coming to them across a BUSY hwy to get to them with poop bags and she got off from my DH and was runninng toward me and would not stop for she wants me ALL the time.. i ran in the middle of HWY. stopping a truck from hitting her.!!!!She had no idea she did anything wrong. WE are so traumatized as we lost a golden years back by a car accident and we are not idiots, we know dogs.This is a lesson to DH as he said, you two can never be seperated!!!!
Welcome back RI"TA POO!!!! We missed you as much as your kitties!!! Your bring such sunshine to all you write to, We are on our way home from Michigan and love being away and know tht in two days.. my last treatment comes and i will be down again..but it is IT!!!!!!!!!!YES..Laundry fairy is OUT of Business.. all requests go to Wendy13..she irons too!!!!
Jennifer...All the best to you and for your friend!!!!!i If expanders etc feel off and you do, call on that to rule out infectons. My mx is without expanders and know that it is impt to keep a check on it all with your PS! Be safe and sure!
Susan...Do the annual MRI's if it makes your heart feel right!!!! What is your heart tellin you and what makes you feel safe and not anixety ridden. You know what is best as everyone has its own safety measure in the brain.. I did a bila/mx as i knew i would wake up everyday worrying about cancer reoccurring in the second breast!!! Provactive is the answer and do what you need to do!!!There is nothing stupid or foolish about doin anything as you need to do for you!!! Even if you don;t feel comfortable with them!!!
Well i hope all is responded too as i get confused so easily. Buddy.. after tomm we can talk on the path misc!
Hugs,
Donna
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Jennifer - I had expanders & didn't feel ill after fills - just tight/painful. I'd call your MD just to tell them about it, and as Donna said, you want to ensure that there's no infection or other problems.
Good luck!! Juliet
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Jennifer I also had no problem with fills. Just a little hard for a few days. But do remember it was just a month ago my right one for noreason got infected. depending on your wbc will be your symptoms. if its low your symptoms may be mild since you have nothing to finght back the infection with. but when it starts to rise you get a real infection battle. I dont want to scare you. I am sure its not an infection. But please do watch. staph infections can be bad.
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Thanks for the advice. I called and left a message for them to call me back. I don't feel right and this time is so different than before.. They haven't called me back yet - probably will in the morning.
Buddy - I have been reading your posts and I am really concerned with all the "non-answers" you are getting. I would definitely get to the bottom of it all. Whatever it takes - it sounds like a coverup to me. Perhaps I am a non-trusting person here but it really sounds like you have gotten the run around and they do not seem to be handling this professionally. First, I would demand all my records and I would demand an explanation - a thorough explanation. If I didn't get what I wanted from them, I would do as Laura said and "Get Ugly". You have rights as a patient and I think sometimes the medical community think we are so not in the "know" that they don't expect us to ask the difficult questions, etc. I had one oncologist resent me asking questions - be assured that was the one and only time I went to that doctor. A really good doctor will look after your best interests, will be forthcoming with all tests, results, expected outcomes and treatment and will be willing to answer any questions you have as a patient, etc. If they do not meet these standards, it is time to pack it up and find someome who will do it. Good luck to you in your dealings with these people. It seems you have fought an uphill battle with your employer and now this. It doesn't seem fair at all. Someone battling cancer should not have to deal with all this C*R*A*P. You go girl!!
Donna - you are a brave woman to run into the highway. I can imagine how scared you were. I am sure you and your husband's heart skipped a beat when you saw what was happening right before your eyes. I am very thankful that you and your golden are safe! That was too close though!
~ Jennifer
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Thank you. You are right. I guess the pathologist is a mean man and he called my docs giving them a hard time over me. He had the nerve to say what is her problem why is she calling here. My Onc.got into it with him and straightend him out. I guess there is heat there now. He said she only wants her path and she is entitled to it. From the very begining I have thought there was a cover up. There is no other reason they should be hiding this info. They knew there were many mistakes I think. Yes your right about being fed up. My job thing. I keep getting infections. I have been on antibiotics every chemo tx. The 2 fun surgeries. chemo delay now rad dilema I try to stay positive. I could have it a lot worse. So now I know one node was 75% and one 10-20%. Is that a lot. do they typically get to 100% then spill over. Or is this how they are usually found. The rad doc says since the one was 75 % even though the standard is 4 or more nodes get treated. She wants to rad my chest wall and nodes. My Onc thinks maybe go dowtown for another opinion. Since rads can be bad if not really needed. He did ask another rad Doc his opinion today, He really didnt know for sure. He also said go down town. He said he would have to lean more to the rad tx. But that is what he does for a living.
Pulled a tick off my son today. Its really a bad year for them
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Buddy, watch your son for a couple of weeks. If he gets a rash or unusually tired he would probably need to e looked at to make sure he did not get anything from the tick I to think too many things are not clear in your record. How can good decisions be made about just where to go next in your care. I do think like Donna and Jennifer.....I'd get those slides and get a second opinion and then figure out what to do after that.
Donna..,.being an animal person I was holding my breath with the story about you and Daisy. I did not hear grieving upset....so I thought it would be ok but still the idea of even minor injuries to anyone ( yes Daisy is nearly a person to me too ) had me anxious. I'm glad to hear that other than some frightening moments you all made it thru the ordeal.
I need to settle down for the night so I'm going to go......you are all in my prayers and I will be visualizing comfort for all. I'll be back in the morning.
Hugs,
Jackie
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Budder - Perhaps you should consider Northwestern (downtown chi-town) to review your tissue. Just a suggestion...KNOWLEDGE IS POWER...
Jennifer - I cannot add any info about expanders... I was way too chicken to even accept that possibility after my Mastectomies. You posted about Paula... I know... she is young... and that's what's so upsetting to me. I think back to my 30's and want to cry... I just want her to be able to live her life and be happy and care free.
Donna - OMG - that was so scary... thank goodness your pooch is okay... be well. Good luck on Wednesday. RITA'S BACK... yay!
Susan - Before I had the "good" boob removed... my plan was to alternate with breast MRI and mammo... 6 month MRI... 6 month mammo... think about alternating your diagnostic options. ALSO consider thermal imaging... Dr Mercola in Hoffman Estates is an excellent source. I will be seeing him - as he is a FAB Dr.
EVERYONE BE WELL!
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