Illinois ladies facing bc

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  • illinoislady
    illinoislady Posts: 46,506
    edited December 2011

    Robo -- if you keep talking like that I'll never leave.  See you all in the morning.

    Hugs, Jackie

  • lago
    lago Posts: 11,653
    edited December 2011

    La la la la la ! 

    *.˛.°★。˛ °.★** *★* *˛.`**We Wish You A**"‘~ ★
    ˛ °_██_*。*./ \ .˛* .˛.*.★*Merry Christmas。*~, 。*/\
    ˛. (´• ̮•)*˛°*/.♫.♫\*˛.* ˛_Π_____. * ˛* .˛.* *˛.* *˛.* /*o\
    .°( . • . ) ˛°./• '♫ ' •\.*./_______/~\*. ˛*.。˛* ˛. * /o*~o\
    *(...'•'.. ) *˛╬╬╬╬╬˛°.|田田 |門|╬╬╬╬ ..*.* *.。/*˛o*o~\
    ¯˜"*°••°*"˜¯`´¯˜"*°••°*"˜¯`¬´¯˜"*°´¯˜"*°••°*"´¯˜"*°°*"˜¯ 

  • illinoislady
    illinoislady Posts: 46,506
    edited December 2011
    Christmas Animations
  • wendyk13
    wendyk13 Posts: 1,458
    edited December 2011

    Just stopping by to wish all of you the joys of the season, however you celebrate! Although this had been a journey none of us wanted to take, you have all made it so much easier for me. Please know I hold you all in my heart, everyday and wish for us all....good health and much joy. Thanks for being there for me....I would say you'll never know how much this forum means to me...but I think you all feel the same way.



    Now...more family celebrating today...is it too early to start drinking??? Oh ok I know...alcohol bad! But I'm thinking Mimosa might be just the ticket!



    Have a wonderful day! And YAY for the weather!!!!!!

  • blackjack
    blackjack Posts: 771
    edited December 2011

    MERRY CHRISTMAS EVERYONE...... I  hope you are all enjoying this wonderful holiday season and wonderful weather we are having today. I wish there was a dusting of snow but I will take Mr. Sunshine any day. I had a houseful of family and friends last night and a visit from Santa. Boy can my family eat. Way too much food and drinks and we are doing it again today. I really need those comfy sweat pants today.lol Tomorrow is my ds birthday so more celebrating is in store...

    I am celebrating friendships, wonderful life, and good health to all of you here. You are all amazing women who have come together for support, encouragement, and lots of hugs.You all have a special place in my heart for all that you have done for me emotionally and spiritually. I am am so grateful to have you all in my life even if I don't post often.

    Wishing you all a Merry Christmas and a healthy and Happy New Year to come.

    Off to do more family partying......

    Remember to be healthy...be happy and enjoy your life.

    BJ

  • CorinneM1
    CorinneM1 Posts: 317
    edited December 2011

    Happy holidays everyone.. Hoping everyone is spending these days with loved ones, warm hearts, good food and cozy memories.

  • lago
    lago Posts: 11,653
    edited December 2011

    I'm drinking a Diet Dr. Pepper! (Stopped drinking soda when I started chemo because of my bones. I had a 1-2 DDP a day habit since 1983). I also ate at Cumin for lunch yesterday, Lao Sze Chuan for dinner in Chinatown and a huge margarita for lunch on Friday. (Highly recommend drinking a margarita before shopping).

    Right now the turkey is cooking (and the laundry is washing). Zoolights tonight.

    ♥ don't know how I would have made it without you guys ♥

  • conniehar
    conniehar Posts: 585
    edited December 2011

    Merry Christmas everyone!  I wish nothing but many years of good health for everyone!

  • illinoislady
    illinoislady Posts: 46,506
    edited December 2011
    The full measure of a man is
    not to be found in the man himself,
    but in the colors and textures that
    come alive in others because of him.
    - Albert Schweitzer
  • illinoislady
    illinoislady Posts: 46,506
    edited December 2011

    Good morning everyone.  Anyone going shopping today????  It is always a temptation, but somehow I never actually do it.  Must be a good reason why....maybe I'll figure it out one of these days. 

    I do have to take a Yankee candle back.  It doesn't seem to produce much scent....maybe it's old.  Otherwise....our holiday was great.

    Went yesterday and saw "We Bought A Zoo".  I loved it, but then being an animal lover ( it was a simple plot ) if it is fairly upliffting I will.  The little girl in the movie did so well.  I loved her expressions....very adult.  I think she carried it for me.  Wouldn't mind having a copy around to watch now and then.....but not in a hurry. 

    Hope you all had enjoyable time with your family and friends.  I'll be looking in later....see you then.  Hope those recent surgery gals are doing fine as well. 

    Hugs, Jackie

  • Madismommy719
    Madismommy719 Posts: 377
    edited December 2011

    Robo....I've been doing the happy dance for 2 weeks AND my taste buds returned for Christmas!!!! YAY!!!! Now, a couple more weeks and it's "hair watch 2012" :)

  • lago
    lago Posts: 11,653
    edited December 2011

    Good Morning Ladies! I did the shopping yesterday. Mostly bought a few things for my DH but I did get a few great buys at Banana Republic. I have a GAP card that also works there. Between coupons and discounts I only paid 1/3 of the price of everything that was already 1/2 off… nice.

    No work for me today. Found out at 9pm last night. I certainly hope I'm in tomorrow. This is my last scheduled week. Frown

    So this weekend 2 of my pals from the Oct 2010 chemo thread finally downloaded skype. One is from Canada the other from Austrailia. The one from AU says I'm her long lost twin. We seem to like the same music. Some day we plan to meet. The one from Canada isn't that far. We know we will meet someday. She's in Ontario, 7.5 miles away. I bet we could meet in MI for a half way point. I love skype!

    So I'm guessing Lemondrop and Spunkyboobster were just enjoying their holiday weekend.

    Madmom so glad you got your taste for Christmas. That's awesome. I hope you and Robo take pictures of your hair growth once it starts. I didn't start till week 6 because basically I was ignoring my head. I figured the first 3 weeks would be like any other cycle and it would take at least another 3 weeks for more hair. I was wrong. I have no pictures of me bald.

    AdEy!

    ------------------------------

    *!*!*!*!*!*!*!*!*!* Next up New Years *!*!*!*!*!*!*!*!*!*

  • illinoislady
    illinoislady Posts: 46,506
    edited December 2011
    When I am able to resist the temptation to judge others,
    I can see them as teachers.
    - Gerald Jampolsky
  • illinoislady
    illinoislady Posts: 46,506
    edited December 2011

    Good morning everyone.....brrrr and I went to bed last night with rain, woke up this morning with mushy ice, then it turned to snow.....around maybe an inch....and is now raining again which will probably wash away the snow.....or bring more later....yikes..we don't know what we are doing.

    At least we are here and happy.  Jenn....huge Happy Dance.  It is a little hard to enjoy life when something like taste is fouled up.  So happy for you that it is back --- it is truly looking up for you now.  Won't be so difficult to keep on, keeping on. 

    Thinking of Spunky and Lemon and hoping your holidays went well.  Saying hi to everyone else. 

    Hope everyone is still enjoying the positive glow of family and traditions.  I'll be checking in later.  See you all then.

    Hugs, Jackie 

  • onward
    onward Posts: 229
    edited December 2011

    Belated Holiday Blessings to all. I had Christmas Eve at my house this year (last year I was feeling bald bloated and puny) and it was just a joy. Christmas day was considered a pj day.l Stayed home with the hubby and the boys and just enjoyed. I even made them watch the sound of music with me since oldest visited the church they were married at while in austria and the youngest will get the chance in a few weeks. They actually liked it.

    Today I am lunching with my elderly aunts, tomorrow planning my february in florida and its back to cleaning as I am doing New Years eve as well. Perhaps a few naps tossed in between. :  ) Onward

  • lemondrop1967
    lemondrop1967 Posts: 85
    edited December 2011

    (Belated) Happy Holidays to all, and a huge thank you for all of your welcoming and supportive words.  I have still only told a handful of people in my life about my diagnosis, so your support has really meant the world to me.  I am intending to start communicating with friends a little more once the holidays are over.  My recovery so far has been somewhat up and down.  I am still in a lot more pain than I think I should be at this point.  I actually had to ask for some more of the hard-core pain meds to get through the Christmas weekend.  I am now out of those again (have been off for about 24 hours), and am again struggling with managing the pain on just OTC meds. I have left a message with the dr's office and am awaiting a callback.  I have always had a pretty high tolerance for pain (had 2 natural childbirths!), so I am almost embarrassed to be complaining about pain, but I feel like it's keeping me from doing anything.  Unless I don't move at all, I really hurt.  I got 2 drains out last week and am supposed to get the other 2 out on Thursday, assuming my fluid output is low enough.  We did have a really nice Christmas, and I am very grateful for that.  As far as the kids were concerned, everything was normal for Christmas.  I had hoped to maybe start working from home next week, but I am not sure if I will be up for that or not.  My daughter's birthday is 12/31 -- she'll be turning 4.  I have a few gifts for her, but have not really planned anything -- it was all I could do to get ready for Christmas before my surgery.  She is not expecting much - just a family party for now (and maybe a preschool friends party later in the month), but I think I am going to need to get my mom to plan it.  I am trying really hard to stay positive about what's ahead, but it's hard. My DH has been trying very hard to help out as much as possible, and my kids have been so gentle and loving.  I know things could be alot worse for me, but I am still hurting and scared about what's ahead for me.  Sorry for so much complaining -- sending positive vibes to all and wishes for a bright and healthy new year for all of us. 

  • zap
    zap Posts: 1,850
    edited December 2011

    Lemon.....pain is the worst!  You cannot really enjoy  anything when in pain and feeling relaxed is out of the question AND you have the little ones who need you.  I hope you get the relief you need and that help continues to come your way.  You are so lucky to have your mother who would probably trade places with you in a minute if she could.

     Onward, I too love the Sound of Music.  It is now playing at the Drury Lane Theater.  The music class at my school went and they thought it was a good production and middle school kids are pretty hard on musicals.  They did say that the quality of the vocalists was uneven.  I always did have  a disconnect with the music and the fact that Nazis were running around....but the teacher said that the theater group handled all that very effectively.

    I am glad Christmas is over.  I loved it and had a wonderful one, but I prefer Thanksgiving (uncluttered, less expensive and less hassled). I just love being with family and not shopping for them!   Rita, I did find a perfect toy for the kids  and that would be Magnatiles.  It is a building toy.  You cannot get them at ToysRUs.  I ordered online.  They are expensive, but I just got the starter kit and like Legos, you can add to their supply as they grow.  They love them over any other toy.

    Jackie, I am a bit concerned in that I heard Sears is closing many stores and I know Denny works at Sears.  I am so hopeful to hear that his store will remain open. Hard times for us all. K-Mart is closing many stores as well.

    I am going to Hackneys (anyone know about it)...Pat, of course does!  I am meeting some friends and waiting for those onion rings!

    Have a good week.

    Susan

  • CorinneM1
    CorinneM1 Posts: 317
    edited December 2011

    I am glad the holidays are almost over.  Just wasn't really feeling the holiday spirit this year and been holding back my inner Grinch as much as possible.  Family (not my kids) were on my nerves and I looking to go camping or go out of town for Easter to remove myself from any obiligiation or expectation.  And I hate camping. Really truely really can't stand camping.  Camping=eggy tasting water and dirty toes.

    Lemondrop, hopefully with the remaining drains removed, you will feel a lot better. 

    Mads and Robo--I am more excited about hair watch 2012 than I am about NYE.  I am going to cheer on each and every hair folicle!  :)

  • mdg
    mdg Posts: 1,468
    edited December 2011

    So nice to read everyone's happy holiday posts. We are in Michigan visitng our family and friends. It is our first visit back since moving to IL. Every day is packed with activites and visits. It is fun though. My DS is loving seeing his cousins and family.

    Lemon - the anticipation of what is to come was the worst part for me. Often times it was worse than what really happened. Your mind plays tricks on you and can really freak you out. Just know many of us that walked this road before you felt the same exact way. We get it. Try hard to savor the holidays with your kids. Those moments are amazing and so much better than BC thoughts. I know it is hard......hugs. Also...what suburb are you in? I am in Geneva. Maybe we can meet for lunch. I can come your way. I am free after I drop my son off at school in the mornings. We will be back for the New Year. PM me if you are up for it. I found it helpful to talk to someone that was ahead of me in this. I call my friend my "BC mentor". We still chat via text and email quite a bit. She was exactly one year ahead of me in this. Her perspective was good for me. It gave me hope. I continue to gain more hope from these fine ladies here. Hang in there!!

  • [Deleted User]
    [Deleted User] Posts: 4,011
    edited December 2011

    Hi girls!

    Jackie - I am TOUCHED and honored with your new screen photo! I love it! Hugs...

    LEMON - I had severe pain, that lasted for months, after my surgeries. The Drs were convinced it was all in my head! Gabapentin/Norontin did give me some relief. But I ended up having pain blocker injections into my Mast site and node removal sites. Hang in there. Make them listen to you...it's your body and quality of life is a real serious issue.

    ----------------------------------------------

    I had a cortisone injection in my finger today. I have trigger finger (repetitive use of my garden shears). My ring finger gets locked in a bent position. OMG...the injection was HORRIFICALLY painful. Just about fainted and felt like vomiting! WOW. HOLY MOLY...won't be doing that again EVER. If the injection doesn't "fix" the problem, I will have to have surgery. Sigh...

    Loved reading about the holiday gt togethers. Although I know that going through tx, etc. really does lessen the excitement. I had chemo through Thanksgiving, Christmas, New Years and then rads during Easter. Hang in there girls! I wish that no one had to go through this. Hugs, happy thoughts and prayers to all of you.

  • Timbuktu
    Timbuktu Posts: 1,423
    edited December 2011

    U of C surgeon said the lump was scar tissue, fat necrosis.  Good news!

    She also told me that for months they have been reviewing my case and decided that I did not have micromets or lymph invasion!  Don't know what to make of this.  They never even told me although she seemed to think I knew.  Now I have to take the report to Sloan and see what they think.  Very strange, no?

  • lago
    lago Posts: 11,653
    edited December 2011

    Good news Timbuktu. Hope it's true about the no micromets.

  • illinoislady
    illinoislady Posts: 46,506
    edited December 2011

    Corinne --- sometimes it is hard to feel "festive" when all this C stuff is going on.  I hope the New Yr. brings some new energy for you.  Timbutku -- that is interesting.  Dr's, I think they tell us things after we ask the questions --- but how would you know to ask it......there are always so many you have to get through.  I'll have fingers crossed that Sloan has the same opinion. 

    Hope you all have a nice sunny day. I'm off to Mt. Vernon for a blood test.  They always seem to come so fast to me.....but just every three months. 

    I'll be checking in later when I have more time.  See you all then.

    Hugs, Jackie

  • illinoislady
    illinoislady Posts: 46,506
    edited December 2011
    "Consider the misfortunes of others, and you will be the better able to bear your own."
    Unknown
  • hawk
    hawk Posts: 255
    edited December 2011

    Jackie, love that quote!



    Lemondrop, I'm praying for your pain to go away.



    I talked to my BS last night - my margins are clear. I have DCIS/IDC. I have very clear margins by the IDC side. I only have 1mm margin on the DCIS side. My BS says he doesn't recommend anymore surgery that the 1mm is definitely clear. I am scared it is too close. He said if it was his wife, he would not re-excise. He said he will re-excise if I want that. Now I am trying to decide - go on to radiation, re-excise and then radiation or just go for a mastectomy now! Any opinions?

  • zap
    zap Posts: 1,850
    edited December 2011

    Welcome Hawk (love that name).  Clean margins are clean margins and I would think the surgeon would go in again if there was any doubt.  And yet I realize that Cancer is all about DOUBT and double-guessing and jusr hoping to heaven the nasty thing is done with, which in my heart I believe it is.

    Well my town is on the news as there is some man with a rifle in a home nearby.  I just pray that no one is killed and that children are safe.  The helicopters are buzzing overhead.  Very surreal to think this is going on across town.

    Hope all is well!

  • Madismommy719
    Madismommy719 Posts: 377
    edited December 2011

    Ok....need to vent..... Just found out today that our insurance coverage is changing as of January 2nd.... Same high premiums out of DH's checks, same pricey co pays for Dr.'s and prescriptions but now we also are responsible for 20% of the total bills too..... With no ceiling for out of pocket. I just added up what our insurance agreed to and paid in 2011 for me...... 97,000 dollars. yes, do that math. 20% with no cap..... More than our last car cost. I'm NOT happy......

  • zap
    zap Posts: 1,850
    edited December 2011

    Madismom

    I do not wish to start any tension on this board, but what you are describing in terms of health care/insurance affecting your income, is what is happening to so many in this country.  Insurance companies are very insensitive.  With your history, are they jacking your  DH's rate  up?  Worth looking at. I have heard that a person needs a spouse's coverage benefits if they have a history of BC (Rene, jump in here) and their coverage  under spouse's plan is at an inflated rate. THIS IS WRONG!

    My rant here is that health insurance was once intended to be a benefit!  Now health care insurance is  a necessity.  The rules are changing and we, as consumers, must make our demands. Obama put forth a plan and it was flawed, but perhaps we can tweek it,

    Thanks!

    Susan

  • lago
    lago Posts: 11,653
    edited December 2011

    Hawk my margins were clear but close. My IDC was .75mm from the posterior margin, DCIS was 2mm from posterior region. You read that right… less than 1mm for the IDC. I was even given a pass on radiation (although in a gray area ). I'm 16 months NED (since surgery is when I'm counting). I'm not worried but I will admit when I first read it I was concerned too.

    Madmom my insurance  changes next month too. We have an even higher decuctable and they pay even less for out of network. My PS is out of network. Granted I should be OK as long as I don't need a revision but I fear lefty is falling south again. Hopefully it won't get any worse. I still have a liver scan to do in February.

  • hawk
    hawk Posts: 255
    edited December 2011

    Thank you Lago! Your 16 months of NED is absolutely encouraging.