Illinois ladies facing bc
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Lets all visit Jackie... sounds like summer in her hood!
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One winter break Chicago was in the deep freeze. We drove 7 hours south. The temp was in the 50's! We felt like telling everyone in Chicago to "come on down". Just an afternoon drive away and it was heaven!
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That's so true---Jackie will talk about beautiful weather and it freezing here and snowy or whatever--Those few hrs, make a big difference--altho this winter we were pretty close with the weather , which in the past never happened. I think poor Jackie had a harder time with the winter this year than I did.
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Yes, we did have a really lovely day and where was I....inside. After 7 months I broke down and went to the hair salon to get a perm.....then had to go wait in the car shop for my new tires to be put on. Not too exciting.....but I feel safer in my car for sure. Got a big surprise.....I thought I'd need brakes, but turns out I'm fine.........my car is ten years old. The shop owner asked me how many panic stops I make.....and I said, that happens so seldom I don't remember. He said....well, that is why you don't need new brakes now. Learn something new all the time.
Cam, I likely did have a bit of a harder time since almost ( maybe once or twice ) daily without fail I have to get out no matter what the weather and go feed my feral cats. Twice it was nearly too bad for anyone to go out and the poor kitties had to wait, but only one day and then a week or so later, one more time. Otherwise....I'm out at some point every day, rain, snow, ice, or wind. Some day I'm going to find someone to donate that job too......just like it was donated to me 8 or so years ago.
Blessings
Jackie
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Jackie the people you care for are so very lucky they have you.
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An oldie' but a goodie'.
Count your blessings. Once you realize
how valuable you are and how much you have going for you,
the smiles will return, the sun will break out,
the music will play, and you will finally
be able to move forward the life that God intended
for you with grace, strength, courage, and confidence.
- Og Mandino0 -
Hi gals! I think I have finally caught up on posts and want to welcome the new ladies to our thread.
Tim.....I was shocked to hear about all the things that you have had to deal with lately. Hugs to you! When times like this hit, you do realize how very strong of a person you really are.....and you are indeed strong. I hope you get some answers about the lymph in the tumor and that the meds help calm your emotions and stress. Hang in there and concentrate on Jackie's inspirational quotes. :-)
The sun is shining today in central Illinois but it's still too cool to get out and dig in the dirt! That's something that always improves my mood and energy level. I hated to leave that Florida sunshine behind but I am glad to be home. I like my house and the everyday Illinois routine.
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Really cool here this morning, but there is some sun which helps to fix things for me. I can deal with just about anything if I look out and see gorgeous Mr. Sun waiting patiently. It is going to be a great Sunday. Rita, on my way home yesterday I stopped in at a 'thrift' re-sale shop. Had some cookbooks there - the organizational kind. So, of course I couldn't pass them by. Later at home, when I got to browsing in it.....turns out it was from Bloomington. I'm sure I'm going to find something scrumptious to try.
Hope you all have a really pretty Sunday.
Blessings
Jackie
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How ironic, Jackie! You try some of those recipes and then share the best ones.
The sun is shning here today and that seems to help my mood, even if the temps are not what I'd like to see! I hope everyone has a great Sunday!
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Yes rita, the sun has magical properties. Not sure why but the mood always rises with the sun.
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The greatest test of courage on
earth is to bear defeat without losing heart.~Robert G.
Ingersoll0 -
Sun is out...it may rain a bit or even have a few snowflakes therein, but I'm going to have a wonderful day anyway. We really do have a choice. Spring is on the way and I know soon there will be little buds to see. Actually other than tulips and Easter lilies one of the biggest signs is the bushes out back and across the road will start putting out leaves on their branches.
Soon we won't be able to see the few houses around us ( only two others on our lane ) and we will feel alone in the woods again. Fine by me. So, it will be an ok day for me no matter what it does.
Hope you up North won't have too much going on.
Blessings
Jackie
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Lady, you have the right attitude! I think all of us appreciate each new day with which we are gifted , cold, wet, sunny, snowy (although that is getting a bit difficult!)
Lago or anyone else who has had to deal with ulcer meds. I just found out that Carafate binds with cipro as well as other meds. Have to be careful about the timing of all of the meds. The drs didn't seem to think of that, I had to research it myself when my bp started climbing. Proton pump inhibitors make it harder to absorb iron too. Drs are in such a rush these days, they don't take the time to sit down and explain the interactions of all these meds but thank goodness we have the net!
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Timbuktu ask your pharmacist. I have found they are the best at knowing about drug interactions. I don't have blood pressure issues and don't take Cipro. You also need to inform your doctors about this. I also ask all my doctors to send the info to my PCP (primary care physicial) since they should be overseeing everything.
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I just saw my dr today and he said my urine was positive for infection. I told him about the interaction and he agreed that the cipro may have bound to the Carafate. I have to get the infection totally cleared up before radiation treatment.
Pharmacists are a great resource and I think they have given me better advice in the past than drs. They often catch mistakes, that's part of their job, but apparently this one slipped under the radar.
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Compassion, in which all ethics must take root, can only attain its full breadth and depth if it embraces all living creatures and does not limit itself to humankind.
Albert Schweitzer
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Well we woke up this morning to a white yard again but it is quickly melting. There wasn't enough to hamper my trip down the lane to go shopping for groceries so I have one job done today. I really am ready for spring, though!
Hope everyone has a good day.
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hi ladies. Been a whirlwind month and a while since I checked in. Had bilateral at NW last week and all were surprised to have lymph node involvement. Meet with oncology team next week but sounds like chemo may start mid April. Really had high hopes surgery would eliminate need for adjunct treatments. Trying to stay strong and not get too down about chemo and it's effects.
JMG - I'm a month or so behind you in the same facilities. I hope you are doing fantastic and are well.
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Kelly sorry about the nodes--but u'll find out next week ad u ill feel better bout this whole crap.
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Timbuktu, I hope your infection clears up quickly. Believe me, I understand.
I just got out of hospital on Saturday for fast heartrate, Low BP, and difficult breathing. Got 5 bags of fluid. Got 2 bags of fluid Monday. Now, understand, I've been drinking 5 20oz. bottles of water a day + whatever else (soup, popsicles, juice, etc). Now my WBC count actually went up to 17 all of a sudden. They said it was from the
bone shot, but I think I have an infection. I'm taking Penicillin right
now because the insertion site at my PICC line is really red and
painful. Waiting on results of a culture. 5 strong pills down, no
improvement, but I go to MO tomorrow. Also suddenly severe toothache in
my GUM. I went to the dentist a month before chemo for a bad
tooth/redo of a root canal. Instead of sending me to an endodontist
while I still had time he said a new cap would fix it. I told him time
was of the essence, but by doing that, HE got to get $1500 for nothing
first. Now I'm screwed. Now I can worry about an infection there,
too. Called the triage nurse and she said the Penicillin should keep me
good until tomorrow's visit. I hope so, my gum's red and hurts like
nerve pain. I swear to God, the weirdest crap happens to me. I just
cannot get a break. I would be feeling good right now and getting ready
for next infusion and heading back to work for the final week but all
this weird stuff keeps happening to me. And I'm afraid it's stuff that
keeps me up at night...like the fear of getting sepsis.Kelly 115, welcome! Don't worry about the above, that's ME>and I knew it would be...I've got a huge undiagnosed nervous system problem that always rears its ugly head....otherwise, I have had little or no regular SE at NW...no nausea, no bone pain, only a slight fever for a couple of days and mouth thrush. I hope you do just as well! The above problems are because of my weird body....I only hope the infection gets better....I am worried about it and my regular oncologist, dentist and endodontist are all of out town this week, of course. And my next infusion is scheduled for next Thursday. Maybe I'll see you there! I'm not at Prentice, but in the Arkes building. :-)
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JMG - so sorry to hear about the nervous system issues and infections. Ug. That's a lot to deal with on top the immediate need to address cancer.
I'll be thinking of you and hoping everything clears up quickly.
I meet MO and RO on Wednesday. Suspect chemo starts mid April. No clear sense of what to expect but trying to learn and prepare. Found with surgery the research and education helped me feel some control and provided a sense of what to expect. Interesting ride. One week out I'm still adjusting to strange feelings of the TEs, the numbness and strange sensations. Feel well and recovering and now thinking about how to manage return to work and preparing for chemo.
Wishes of peace and strength for all you incredibly strong women. Your posts and quotes are immensely helpful and comforting. Thank you.
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Sometimes all you can do is take it how it comes and do the best you are able. When and if you find yourself needing a really good cry, don't waste time batting any eyelash. I was always a really strong person and it is was what everyone expected from me and said so. There are those times though when you have to use real and very wet tears to wash away the debris of fear, disappointments, problems, un-expected outcomes or in jmg's case somewhat totally expected ones. Once you have done that the boot-straps are waiting and you can forge ahead.
There is a quote....and I'm going from my sometimes quite faulty memory here but it goes something like this....."I didn't say it would be easy, I said it would be worth it". Some of the parts of this journey are not so easy, but the result of getting your life back.....after you have helped your medical team save it makes you look back in awe. It becomes so worth it. Someday....you even reach the point where it is no longer all about cancer and the txs.
We who can say we are sort of old-timers hung in because we had this site and a bunch of wonderful women who answered our questions, and gave us the strength of numbers. We ceased to be alone and upset, downright scared and found someone who understood us perfectly, whether we were laughing or crying or irate over some stupid remark or just feeling kind of punk for no good reason.
We continue to stay here to pay back, to offer to others what was given to us......a rock to lean on, a shoulder to cry on and the joy of hopes shared with those who truly knew all about the trip no one is eager to take.
Warm wishes, healing hope and lots of love and understanding.
Blessings
Jackie
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Thank you both.....you are my touchstones for sure. Hugs and thanks again. You've given me the strength to make it to tomorrow and I think even get a good night's sleep.
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He who lives in harmony with himself lives in harmony with the universe.
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Marcus Aurelius0 -
"When you do things from your soul, you feel a river moving in you, a joy." —Jalal al-Din Muhammad Rumi
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Rain this morning and some overnight. I'll have to look inside me to see the sun I guess.....but it will come. Temps. sounds like they will be all right this week. Hmmm, I do think we are in Spring. That makes for very happy thoughts.
I hope you all have a wonderful day.
Blessings
Jackie
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kazzy.....So sorry to hear about the lymph nodes and the possibility of chemo in the future. Although we all dread the chemo, it was not as terrible and frightening as I had envisioned it to be. We will be here to help you get through it if you do find that it's indeed in your future. I think that most of us discovered that we were much stronger ladies than we ever thought and I'm sure you will discover the same thing. At first it is so frightening and overwhelming....and indeed scary....because we don't understand the procedures and treatments that are available to us. Knowledge gives you the power to make good decisions with the help of your oncologist and those good decisions calm us. Hugs to you. Come often and keep us updated.
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Thanks Ritajean. You're correct in that the experience so far is uncovering strengths I didn't know I had. Seeing it with my family and friends as well. There are amazing elements to the journey.
One week post surgery, I am already returning to "go" or "on" mode - researching, scheduling and preparing. Things like Gyn. appts, LGFB class at hospital, investigating cold cap therapy, local wig salons, etc. All of it helps me feel a bit more "in control" on a journey where there is very little.
Finding inspiration from sharing experiences and witnessng the strength and humor of other women.0 -
So many good quotes today...I just closed my eyes and picked one.
Imagine peace. Imagine love. Imagine oneness.
Imagine whatever most speaks to
your heart.
Whatever you can imagine, you can accomplish.
The canvas of
life awaits You -
the painter of your dreams.
- Jonathan Lockwood
Huie0
