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Taxotere, Carboplatin and Herceptin

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Comments

  • Poppy_Spruce
    Poppy_Spruce Member Posts: 85
    edited May 2008

    Kristy - I have not heard of TCH women with PICC lines. How does that work? Will you have the line hanging off your arm for a whole year? Do you just get used to it - or does it drive you nuts? Who flushes it and changes the dressing?

    I don't mean to sound like I am drilling you. Hope I am not offending you - I am a nurse and wildly curious about how that works.

    Thanks for sharing!

  • KristyAnn
    KristyAnn Member Posts: 131
    edited May 2008

    Nan,

    The nurses change the dressings and flush the two lines when I go in weekly for either TCH(Every third week) or Herceptin (the in between weeks). When they first put in the PICC line in the hospital, they left the tails hanging but at the first treatment in the chemo room, the nurses wrap up the tails and tuck them in on top of the other stuff and it is all covered in some kind of clear adhesive covering so nothing hangs out. There is the appearance of a large bandaged area on the inside of my upper arm and I thought it would irritate me but I really dont feel it much anymore.

    My onc nurse said a lot of women get the PICC out when they are finished with the weekly treatment and go to only every 3 weeks- Im not sure what I will do- I was pretty stressed and bruised by the time I got mine in I might just hang on to it a little longer than that. It can stay in until my year of herceptin is finished if I want it to.

    Kristy 

  • lwy
    lwy Member Posts: 116
    edited May 2008

    hi ladies,

    it's been awhile since I've posted. I scanned back to make sure I didn't miss anything, but if I did I apologize.

    I've been doing well, busy with work and vacation. I got my port out the same week I got my last herceptin. even though I have a big scar, it's so nice not to have that alien poking out of me!

    I'm so excited because I get to meet Dr. Solomon tomorrow, he's the guy who discovered herceptin and did all the major studies on herceptin and TCH vs adriamycin. I know, I'm a dork but it is exciting to get to meet the guy who may have saved our lives! he is giving a talk to our oncology center about new updates in breast cancer treatment. if he says anything new, I'll make sure to let you guys know.

    Also this weekend is the big ASCO meeting, which is the annual oncology conference and there will be lots of updates on breast cancer research. I am registered to attend and even though I should be going to learn more about colorectal cancer, I will also make sure to go to the breast cancer stuff. I'm most curious to find out if they determined if 2 years verse one year of herceptin is better. part of me hopes it isn't because then I'll have to get my port put back in! but if it is really better then.... i guess i'll have to get it shoved back in!

    Cindy and katymom- how are you guys?my hair growth feels stunted. it was doing so well for awhile but lately I don't feel it is going anywhere. my top is definately slower growing. i'm so sick of feeling like I have a mullet! the weight loss has also stalled. I'm still 5 pounds heavier than I was on diagnosis and I can not loose it! i have to keep reminding myself that at least I lost 15 pounds but I still feel like I don't look like myself!

    oh well, i hope everyone else is doing well.

    Leslie

  • AlyMarie
    AlyMarie Member Posts: 192
    edited May 2008

    Well, tomorrow is "D-day" (or should I say "C" day?) for me.  Well maybe anyway.  I had a CT scan today to see if my sinus infection has cleared.  I can tell you right now that I know it hasn't.  For the last 2 days I've had a "thick" feeling throat, like I have a frog I can't clear, I'm coughing up some ever so lovely (not) gunk and I feel terrible.  My bet is that they will postpone, but we'll see.  On the way out of the hospital from having my scan, we rode the elevator with two women, one of whom had obviously undergone chemo - she had lost her hair and was wearing her breast cancer ribbon ball cap.  I was struck by how cute she looked and how cheerful she seemed and I told her so.  I told her I was supposed to start my breast cancer chemo tomorrow.  She told me she was having her last treatment tomorrow (yay for her!).  She was so sweet - told me not to bother with wigs, that she thought they were hot and scratchy and that she thought that ball caps were the way to go.  On the way out of the elevator she turned around and smiled and said "bless you!".  I said "you too!".  She was obviously younger than me - she looked like she might be in her early 30's.  I felt so inspired by her.  I thought yeah, maybe I can do this thing after all.  Maybe God knew I needed a little inspiration today. :o)

    I hope all of you are doing well and holding up through everything!!!

  • shelbaroni
    shelbaroni Member Posts: 350
    edited May 2008

    Aly Marie: My prayers are with you for a complete healing of your sinus infection and that you can start treatments as soon as possible. The sooner you start, the sooner you're done, right? And being in the "on deck" circle myself (treatments start next Thursday), I know how anxiety-provoking the count-down can be (sorry for mixing metaphors). Let us know.

  • ShayRN
    ShayRN Member Posts: 2
    edited May 2008

    Thanks for the tip on this site Nan. I am new here ladies but have just finished my 6th TCH treatment. Hallelujah!!! I wasn't sure I was going to finish on schedule. You get to the point where you just don't know if you will actually feel better again. I really can't complain too much. My SE's were manageable after you figure out that you can't stay on your "Whole foods, no perservatives, no sugar" diet and get through chemo. At least I couldn't. I felt guilty eating toast and bagels or whatever I could get down, but the diarrhea made it so whole fruits and veges were a bad idea the first week. Do what you have to do to keep you body with some nourishment. Even if it is carnation instant breakfast. I figure there is plenty of time after treatment to be diligent about my diet.I hope those who are just starting are as pleasantly surprised as I was that this is more doable than you imagine. Thanks for chatting 

  • Poppy_Spruce
    Poppy_Spruce Member Posts: 85
    edited May 2008

    Hi, Girls!

    I don't have anything new to say except that I wanted to give Shay a big ((HUG)) and welcome her to the thread. We have all been where you are - and for me, the last TCH treatment was the hardest mentally. I just did not want to go - because I knew that 1) I wasn't really finished because I still had herceptin, and 2) I had the unknown road of rad ahead of me.

    I spent a few scary days reading the rads boards, and some of those women (Bless their souls) scared the living crap out of me. So, I decided to stick to my thread with my girls.

    I hope that you and all the others can find comfort in coming back to us!

  • suemed8749
    suemed8749 Member Posts: 210
    edited May 2008

    shelbaroni: Great picture! What a shame you have to lose that gorgeous hair - but I know you'll find some headgear that you like. So you're ready to go Thursday - you'll do fine! Stay on top of those side effects - stock up on all those sexy products like stool softener, imodium, something for heartburn, etc. I had TX 3 11 days ago, and today's the first day my stomach's acting semi-normal - this time it was crazy diarrhea - I was afraid to eat at work, seriously. But I feel OK today - and yesterday was my last day of work - school's out for summer, YAY!

    Anyway - good luck to you and everybody else  starting/continuing/finishing up treatment.

    Sue

  • mary6204
    mary6204 Member Posts: 34
    edited May 2008

    Hi everyone, I had TCH #4 Wednesday.  The nausea is starting, but I think I'm ready.  New drugs to try and I go to the hospital tomorrow morning for an IV, my doc wants me to stay ahead of the nausea.  We'll see if it helps or not. 

    I can't quite handle going back to see what everyone's posted lately.  So I'll just wish everyone a good weekend with few (or no) side effects and if anyone new has joined, sorry you had to, but welcome anyways. 

    I did read what Nan had to say about her hair.  I did something silly, when I cut it the last time before I had it shaved down to 1/2"  I saved a bunch of my hair in a baggie, just to compare my new color one day when it comes in.  Weird I know, but I'll always be curious.

    God Bless, Ladies and hang in there, I plan to fight this all the way. Mary

  • shelbaroni
    shelbaroni Member Posts: 350
    edited May 2008

    Suemed....Thanks for the compliment about the hair, but it's coming off Sunday. I've already ordered some cute (and soft cotton) headcovers in various colors and styles that I would even wear with hair! My 9 year old son has already started mourning his beautiful, strong mom. But who knows? As long as we can have a bike ride or shoot hoops or have a catch once in awhile, he probably won't care that I look strange. At this point, I'm just at the top of the rollercoaster looking down. That's the point I like to just close my eyes and let 'er rip! By the way, my oncodoc has prescribed all sorts of erotic antiemetics for me. I have them all picked up and ready to go. I'll let you know what happens. Thanks for the support.

  • AlyMarie
    AlyMarie Member Posts: 192
    edited May 2008

    Well, my sinus infection has mostly cleared (yaay!) so I got the full monty today (boooo!). :o)  Feeling OK so far but tired.  I had to take a Benadryl because I was having coughing fits from the sinus drainage and it's making me want to snooze.  I've got a boatload of drugs for nausea, sleep, etc.  I should be set!!  The chemo nurses were SO nice and I was so happy when I walked into the infusion room to see the woman I ran into in the elevator yesterday.  She gave me lots of encouragement and we exchanged contact info so we could keep in touch.  Her hubby was there with her too and he seems to be just as supportive as mine is.  We're both lucky.

    I thought I'd share a chuckle.  So I have those lovely bad veins which make I/V's difficult.  A bit into my first bag of nasty chemicals my arm started to ache from the I/V so the nurse wrapped a hot pack around it which expanded the vein and eased the ache.  So since that helped so much, she got a heating pad and wrapped it loosely over my arm.  Later, I wrapped it a little tighter because I wasn't feeling the heat.  Midway through my last bag (Taxotere) I think "hmmm, that's interesting.  My arm is burning a bit from the I/V.  Must be that nasty Taxotere" and I went back to what I was doing (eating Chicken McNuggets!).  Yeah.  It wasn't the I/V.  It was the freaking heating pad!  I had wrapped it too tightly and the coils were burning my arm!!  When I took it off I had bright red burns on my arm (they've almost completely faded away now).  Can you say DUH?  Can you say WHAT A BONEHEAD??  I knew you could!  Anyway, hope you're all laughing now because we all sure need it!  Thanks for your prayers and good wishes.  Keep your fingers crossed for me and pray that Old Man Nausea bumps his head and STAYS in bed!! :o)

    Aly.

  • suemed8749
    suemed8749 Member Posts: 210
    edited May 2008

    Hi Aly: Glad you have one tx down! It's nice that you have a friend in the treatment room and such kind nurses - and now you know the difference between between burning veins and burning skin! Wishing you a good sleep tonight and MINIMAL side effects. Don't be surprised if you look like a five-year-old who went crazy in her mom's make-up tomorow - I get a lovely neon pink glow the next day. And you get the fun of finding out which way your GI tract will go - constipation, diarrhea, or sometimes both! Seriously - I hope things go well for you - drink lots of water, rest when you're tired, and stay on top of the side effects.

    Sue

  • AlyMarie
    AlyMarie Member Posts: 192
    edited May 2008

    Well I have a rather long car ride to endure tomorrow so I hope any nasty GI stuff does me the courtesy of waiting until Sunday!  I can't imagine getting caught short with diarrhea in the car!  EEEEEP!!!

  • AlyMarie
    AlyMarie Member Posts: 192
    edited May 2008

    You know, I just read my paperwork and I'm curious about something.  Only Herceptin even lists diarrhea as a less common side effect.  I'm wondering what everybody thinks might cause the diarrhea?  My paperwork says that dairy foods, caffeinated drinks, high fat or spicy foods, etc. can cause it.  Do you guys think it's actually the drugs, or do you think it's caused by foods eaten while being treated with the drugs?  I know I'm going to quit the Coca Cola for at least the first week after an infusion.  I don't imagine it will taste very good anyway, my mouth is already dry and tinny from the antibiotics I've been on.

  • mary6204
    mary6204 Member Posts: 34
    edited May 2008

    Hi Aly, thanks for the heating pad chuckle.  I have had diarrhea horribly with each of my 3 TCH treatments.  The 3rd one I ignored since I lost 5 lbs. (talk about stupid) so I got dehydrated, depleted my potassium levels and  had severe nausea and dizziness.  I had to get an IV which helped a lot and I now take potassium twice daily.  Talk about dumb on my part.  I had my 4th tx Wednesday and although the diarrhea hasn't hit yet, I'm ready with Immodium and I'm due to go to the hospital in an hour for an IV and another one Monday at the onc office to stay on top of it.   I've read that a lot of gals get constipation and a few get diarrhea.  The doc's told me it's probably nothing I'm eating or drinking, just the chemo. 

    Good luck, Mary

  • shelbaroni
    shelbaroni Member Posts: 350
    edited May 2008

    Hey Aly...do me a favor and post often these next few days. Five days til treatment and I'm jumpier than a jewel thief in a room full of psychic detectives. I'm watching you, girl. I'm right behind you. Give me the straight scoop:) ...and has anyone ever had GI side effects BEFORE they begin treatment? I think I've been reading this blog too much.

  • AlyMarie
    AlyMarie Member Posts: 192
    edited May 2008

    Mary, I'm sure sorry to hear that you're having trouble.  This morning my tummy feels crampy which is worrying me.  I was going to pick up some Immodium but have to call the doc first because of the Clindamycin I'm on (which can cause diarrhea) and with that I think you have to be careful about taking anti-diarrheal medication (sigh).  I'll sure as heck stop taking that if I get diarrhea. The infection is nearly cleared anyway and I can't suffer and get dehydrated like that.  I've got a call in to the cancer center to see what they want me to do.

    Shelbaroni, I definitely will post and let you know how things are going.  So far this morning I feel mostly Ok, just a little wobbly probably from not sleeping so well.  I crashed hard last night but woke up all night long off and on so I'm tired now.  I will say try to relax and stop stressing yourself out because yes, you can give yourself stomach trouble from that.  The actual getting of the drugs is not a big deal at all and from what that woman I met told me, the worst she had was flu like symptoms from about the Sunday after a Friday treatment, to the following Wednesday, and she had Adriamycin which is *really* nasty.  We'll be OK, I'm sure of it!!

    Aly.

  • ShayRN
    ShayRN Member Posts: 2
    edited May 2008

    You ladies are great! thanks for the hug Nan and to all of you who are so fun and honest in dealing with this new adventure in life. To those of you who are just starting the tx's and worried about the hair. I hear you! I just finished my last tx 3 days ago but the hair loss thing was a big issue. I have 3 little boys (8, 7, and 4 yrs) who were paranoid that I would look scarry and funny and they wouldn't have their real mom. I went out and bought some expensive wigs so I could look exactly the same as I had before. They hated them. After my hair was shaved they preferred me bald and hate it when I wear the wigs. Go figure. You may be able to save yourself alot of money and touble by skipping the wigs. I finally took them shopping and they all picked out a sports cap they wanted me to wear of their favorite teams so I could look Cool. Much cheaper than the wigs.

    As far as the nausea. I was pretty stupid the first few rounds and let myself get way dehydrated because everything tasted gross. I found the colder the better when it comes to getting things down. I live on fruite smoothies the first few days and it has made a big difference. Anyway, hope you are all having a fabulous day. Oh, Nan, I did the same thing the week before my last treatment. Got online about radiation and heard the horror stories. I was thinking rads would be a piece of cake after chemo. Tell me the truth! are you finished now or in the middle of yours? How did it go? What should I do to prepare? Thanks!

  • Poppy_Spruce
    Poppy_Spruce Member Posts: 85
    edited May 2008

    Ah, rads - let me preface this by saying that what I am about to post is NOT THE NORM, and I am only sharing it because I know that Shay, as a fellow RN, will be appalled at the lack of professionalism and ethics in this story. But here it is to share and learn from - not to scare anyone: http://community.breastcancer.org/topic/70/conversation/694118?page=1#idx_11

    Ok - so I finished rads in January. I hated every minute of it because it was the biggest mental drain that I have ever experienced in my life. I was totally expecting it to be a cake walk - but the traveling every day (it was 45 minutes from my house) in Maine (during the snowiest winter we have ever had) to a facility that is equiped with old machines (daily breakdowns and long waits were the norm) just about did my psyche in! I hated waiting hours past my scheduled appointment in a johnny, clutching my purse like a mental patient (or Sophia from the Golden Girls) and then lying half naked on a table while techs moved me around like a beached whale.

    It was awful - and certainly NOT the experience most women have. I don't want to scare anyone. Physically, it was no big deal - nothing more than a sunburn. But I think that the combo of winter weather delyaing my treatments (and thereby extending my radiation sentence) was my personal breaking point. We all have them- I hit mine pretty hard during rads.

    A good friend of mine told me that while I was on the table - having my bad times - to remember that God was making me into a diamond. And just to show how my ADD mind works - I started thinking how much my friend likes Neil Diamond...and then I thought about how much I liked Sweet Caroline...and before I knew I was mentally belting it out like I was at Fenway during the 7th inning stretch. On the day I had my last treatment - I told my 3 bestest friends the story - and we all made a mental playdate - and sang the song to ourselves at the exact time of my last treatment.

    So I leave you with these words: Rads was physically doable, but by the time I had reached that phase in my treatment, I was really thinking that it would be a breeze. I was ready to jump back into normal with both feet - and you gotta remember that you are close - but you aren't quite there yet. Give yourself the time and patience you need in this next stage of your treatment - and when you can - sing a verse of Sweet Caroline for me!

  • cinrae123
    cinrae123 Member Posts: 211
    edited May 2008

    Hey ladies.

    Hope those of you who have started are doing good.  Been reading your posts and sounds as though things are ok.

    Shel,,,,,,,,,dont worry ok?  You will get thru this.  Think positive and remember that light at the end of the tunnel.  All I can say is,,,,,,,,,,for me chemo sucked big time,,,,,,hated everything about it.......but here I am 9 months after my last chemo,,,,,,,,and feel fine.  Had a mammo in Jan and got an all clear.  Thats the light we are looking for.  Just stay on top of your side effects and take everything they give you to take to help you.  Be strong girl.

    Nan,,,,,,,,sounds like things are going well for you too.  Thats wonderful

    For those of you asking about rads,,,,,,,,,,,,,rads for me was no big deal.  The only bummer part was just having to go every day for 8 weeks,,,,,,,,that part sucked.  lol   I did get some burning,,,,,,,but used ointment and it cleared up just fine.  Sorry you had such an awful experience with that Nan.  Thats a long drive for a few min huh?   Unfortunately for all of us ladies,,,,,,,,,,,we just have to do what we have to do huh?  Bite the bullet and do it.  And hopefully we have added lots and lots of years to our lives.

    Have a great weekend ladies,,,,,,,,,,,,take care.  Be strong.

    Cindy

  • shelbaroni
    shelbaroni Member Posts: 350
    edited May 2008

    Thanks, Cindy. I'll try to stop whining and soiling myself. Maybe I'm hoping that if I do it enough now, I won't have as much left for treatment time. Like on roller coasters, I like to start screaming slightly BEFORE the descent. But seriously, you and the rest of the ladies are quite inspiring.

  • AlyMarie
    AlyMarie Member Posts: 192
    edited June 2008

    Hi all!  Well, I made it through my long car ride today with no nasty diarrhea.  So far only tiny twinges of nausea which were immediately put to bed by a single nausea pill. My hubby and I had a late lunch out today (food still tastes ok) and I'm REALLY tired after a long day, but I'm Ok.  We'll see what tomorrow brings!

    Shelbaroni, I know you will be just fine!  Hang in there!!

    Hugs to you all!

    Aly.

  • cinrae123
    cinrae123 Member Posts: 211
    edited June 2008

    Shel,,,,,,,,,,,,,,,u are quite welcome.  I have to tell you,,,,,,,when I was first diagnosed and came to this board...........omg it was so helpful.  Hearing from people that had already been there and ladies going thru it at the same time as me,,,,,,,,,what a great support system.  Besides our own families and friends we all have,,,,,,,it was just so darn helpful for me at least,,,,,,to share with others that have been there or are going there.  I think people in the same boat as us,,,,,,,can understand better, you know?  I know my family especially were so supportive,,,,,,and my friends too of course,,,,,,,but the ladies here were just inspirational to me.  Just knowing that every treatment got me closer to the end you know?  I just finished my last herceptin about a month ago,,,,,,,,,and now when I look back on my journey,,,,,wow, I am truly proud of myself.  lol (givin myself a pat on the back, lol) Sure, there were many times I considered stopping treatment,,,,,,but I would look at my family and friends and say Hell Nooooooooo,,,,,,,I'm kickin this cancers butt big time. 

    So all you ladies,,,,,,,,,,,hang in there.  Before you know it this will be your past.  Take advantage of every medicine they give you for side effects,,,,,,,take care of yourself,,,,,,rest when you need to,,,,,,,feel sorry for yourself (its ok to do that, I did that a lot, lol) let people help you when you need it,,,,,,,and by all means,,,,,,,,bitch if you have to.  This is a great place to vent.  We are all here to listen and give positive encouragement.  By the way Shel,,,,,,,where is Imperial Beach?  I am in Southern Cali, Orange County.

    Someone had asked about GI problems,,,,,,I never had any until chemo.  lol  Now I have to take Protonix every day for indigestion.  Go figure huh?

    Shay,,,,,,,dont worry about radiation girl.  It is sooooooooo much better than chemo.  Its just time consuming really.  Hopefully your experience will be a good one for you.  That story about your kids picking out a hat is adorable.  I wore my wig all the time cause I have a small funky head and I looked weird in hats and scarves.  Never went topless ,,,,always wore my wig,,,,,,,unless I was at home at night then I would just wear a hat.  My own family hardly ever saw me without something on my head.  I always figured if I cant look at myself bald,,,,,,I surely couldnt expect them to.  lol

    Aly,,,,,,,,I had that metallic taste too.  I could never find anything that tasted good.  But it will go away.  Mine usually went away a few days right before my next treatment.  What made things even worse,,,,was I wanted to eat something but everything tasted nasty,,,,,,then I would watch the Food Network channel and just drool and wished things would taste good.  Suggestion?  Stay away from the food channel.  lol  During that time, I had compiled a list of things I wanted to make when I was done with treatment and things would taste good.  Eventually the bad taste went away and I started marking things off my list that I made.  I actually followed thru and crossed off everything on my list.   Yummy   lol

    Nan,,,,,,,hows the hair coming along?  Mine is just so slowwwwwwwwwwwwwww.  I so want not to wear my wig,,,,,but its just too short and thin right now.  O well,,,,,,at least its coming in.

    And to all the rest that I may not have mentioned personally,,,,,,just know that I am thinking of you all and sending you positive vibes. Smile

    Guess I blabbed enough here.  Have a good rest of the weekend girls.  Chin up.

    Now kick some cancer butt gals.

    Take care,,,,,,,,,,Cindy

  • cinrae123
    cinrae123 Member Posts: 211
    edited June 2008

    OMGGGGGGGGGGGGG

    Did I write a novel or what?  Sorry bout that,,,,,,didnt realize I had written that much.   Oops

    Cindy

  • shelbaroni
    shelbaroni Member Posts: 350
    edited June 2008

    Cindy: I adore your novel. It made my morning. I'm about to go to church, and my husband and I are going to tell everyone this morning what's going on, how to think about it, and how to have faith for me. Then after lunch, off comes the hair. I will post my Annie Lennox photo if I'm not too hideous. lol, I think. Anyway, Imperial Beach is the most southwesterly incorporated town in the continental US. On a clear day, you can see the bull ring in Tijuana. Our beach is famous in the surfing world as the place people trained before hitting the North Shore. And Shay...your story about your kids and the wigs and the hats touched my heart, since I have younger kids (9 and 11) who are more than a bit freaked about how I'll look with no hair. (My older three...22, 19, and 16 are cool, like "go punk" By the way, can you get piercings while you're on chemo? Probably not, huh). Anyway, I'll probably stick with hats and do-rags as much as possible. And Aly...keep up the running commentary. Good job on the car ride. I took one of my Ambien to sleep last night, and according to my husband, I stayed in bed, didn't raid the refrigerator or attempt to drive my car. So I think we have a winner.

  • AlyMarie
    AlyMarie Member Posts: 192
    edited June 2008

    Shelbaroni, you look adorable!  How are you handling it?  You are so brave in my eyes!  The best I could do was cut 4" off mine to start.

    Just for an update, today I've been mostly Ok, although I'm definitely not feeling great.  Tired, no energy, feeling sorry for myself, that kind of thing.  Not having a horrible amount of trouble with nausea (haven't needed any additional meds), but the trouble I am having I've discovered is because I'm not eating enough (duh!).  I'm trying to do a little better.  It's hard when you just don't feel like it!  My hubby went out and got me some potatoes for mashing and Ensure and bananas, things of the like.  Hopefully I'll be able to eat those easily enough and that will help. So far, even though I'm not exactly jumping up and down, things are tolerable.  I'm still vertical!!  Hubby is staying home tomorrow to help me as well.  It's hard the first time to know just how much I'll be able to do after a treatment and I have a nearly 3 year old to chase after!

    So as it turns out, the tummy cramps from yesterday were menstrual and not chemo related GI, although it's obvious that the chemo kicked it off because it's 2 weeks early.  Anybody else have this problem?  I know I'll be going into early menopause, but is this the way it starts?  Anybody know?

    Hugs to you all and hope you are well!

    Aly.

  • AlyMarie
    AlyMarie Member Posts: 192
    edited June 2008

    Oh and Cinrae, does the bad taste really last the whole time?  Food still tastes OK, but the "cotton mouth" and bad taste really stink.  The chemo nurses said it only last a few days.  Are they fibbing to me? :o)

  • Poppy_Spruce
    Poppy_Spruce Member Posts: 85
    edited June 2008

    Shel: I like your hair - very chic and Annie Lennox has nothin' on you, my brave sister!

    Aly: Like you, the best I could do was cut my hair to shoulder length - actually it was a little shorter. I just could not shave my head - it was my way of taking control. I so loved my hair that losing long stands or short chunks wouldn't matter - the bottom line was that I was losing my hair and it was very hard for me to deal with. So, I didn't shave it and I mourned the loss - and six months later - I still mourn it because I look like my brother. Good looking guy - not so good looking girl!

    Chemo-mouth was just awful. Maybe your experience will be different - cause everyone's is - but I had that awful taste with me from the day of treatment for a good week. I think that the further along I got in my treatments, the earlier it came on and the longer it lasted. It must be because of the acculmulation in the system. Unfortunately, I didn't lose any weight because the only time that the taste left my mouth - was when I was eating! I certainly didn't need any excuses to eat! Sucking on hard fruitty candy worked and baking soda gargles worked a little bit. It will be nothing more than a distant memory when you pass your last chemo cycle.

    Herceptin gives me a funny smell that only I notice. It is like a chemical-smell..hard to describe, but I am sure someone else out there has smelled it, too. It lasts a day or two after my treatment.

    Chemo doesn't always push you into early menopause. It depends on how close you were when you started chemo. I was 33, and I had a period for the first four treatments, no period for the last two, and got it back again after that last chemo cycle. I was every 28 days like clockwork until I started tamoxifen. Now, I vary between 28 - 35 days. It is a love/hate thing for sure. I hate getting my period, but getting it means that things are still functioning.

  • KristyAnn
    KristyAnn Member Posts: 131
    edited June 2008

    Hi Everyone,

    How long did it take to completely lose your hair on TCH? I will be having tx 3 this Thursday and I still have about 40-50% of my hair (I buzzed it so its a little hard to tell)- I really thought it would be completely gone by now!

    Kristy

  • Poppy_Spruce
    Poppy_Spruce Member Posts: 85
    edited June 2008

    Kristy: I never did lose it all. It was a gradual shedding that got bad enough for me to need a wig around my third (maybe 4th) treatment. Certain areas of my head seemed to get hit worse than others - like where my bangs used to be and back toward the crown of my head.

    I was told that taxotere would cause total loss of body hair - and my legs, under arms and private area did totally lose it, although I don't remember when that happened. It was hardly traumatic - and if my head rebounded as quickly as that did - well, wouldn't I be a happy camper?!

    My eyebrows thinned out, especially in the outer corners which practically disappeared. I also lost some eyelashes in the middle of my lids. This happened in between the 5th and 6th treatment. I had to fill in my brows with dark brown eyeshadow. I had false lashes, but didn't wear them. After my 6th treatment, I started high-potency biotin, brow gel from Billion Dollar Brows and Revitalash.

    I think the combination has helped. My nails are growing like crazy, I have about 2 1/2 inches of hair on top of my head and 3 - 4 inches in the back. My eyebrows are back and although I don't know if it helped re-grow my lashes, the Revitalash did make them longer.