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Taxotere, Carboplatin and Herceptin

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  • gramma23
    gramma23 Member Posts: 482
    edited July 2008

    Mobay1020, I had muscle pains and back pains from the very first chemo. the Herceptin did not cause it but I was thinking the throwing up had strained my muscles but after a while that should have gone away. I decided it was the chemo. It would shoot pains into my back or sides like around the ribs or just be so sore I could barely move, I told my husband I was sure hoping I did not have to have the Neulasta shot with all the problems I was having anyway. It has kind of stopped some now. I had mouth sores so you began to ask yourself if it is the med for that or maybe I am not getting enough fluid down but I was drinking as much water as I could hold. I think I question everything. Now both my knees are so swollen I can barely walk. I just keep on keeping on and I try to be careful not to fall. I have arthritis and fibromyalgia so I also thought all my problems could be from that. I ate my first solid food today since last Sunday and then the mouth sores came on with a vengence. I hope you pains will stop soon. I have another chemo on Wed. so I am afraid it will start over again. I am really scared but I am trying to be prepared. I got someone to teach my Sunday school class for the Sunday afterward but my little ones are 4 to 5 and it is hard for them to understand. I have tried to prepare them in case I am sick but they just want me. they will be okay I am sure. I have the lesson ready for the lady to teach.

    If you have a chance to get Vicodin go a head and get it just in case you can't stand the pain. Just because you have it does not mean you have to take it unless you feel that you need it. Better to have pain med and not need it than to need it and not have it.You can get better if you are not in pain and I am sure the doc will agree with me.I take pain meds for my arthritis and fibro and have for a while.

    It does not mean your treatment is doing better or worse by how bad you feel. Everyone takes it different. I hope you do well and keep a good attitude. Please don't worry but do ask the doc/nurse if you have questions. I should have called about my mouth sores sooner and now I know. I will be on that phone in a heartbeat with anything wrong. they got onto me for trying to be stoic.

    Shel, Your new do looks good! I wonder how many looks you will get from that?

    Carolyn

  • shelbaroni
    shelbaroni Member Posts: 350
    edited July 2008
    Carolyn;

    Just came home from Comic Con, which if you don't know what it is, it's a gigantic 4 1/2 day annual event at the San Diego Convention Center for comic book, anime, science fiction, and costume geeks and the vendors that cater to them. There weren't as many costumes as I'd hoped, but there were lots. I took my two younger kids and a 17 year-old friend of mine who's been in my art class for a few years. We had the best time! I was probably asked 40-50 times by people if they could take my picture. What is very interesting is that I felt more comfortable at that event without anything on my head but a giant blue arrow than I am at church or just at the supermarket. People stared at me because they thought I had an awesome costume rather than because they felt sorry for me. If anyone out there is a graduate student in social psychology, there's a whole dissertation in there somewhere! Oh well, I'm going to go wash off the arrow and go back to being plain ol' Shelby the cancer patient. But there'll always be a little bit of Avatar in my soul!
  • bethanybeane
    bethanybeane Member Posts: 167
    edited July 2008

    Shelby!!!!!!! You know that you are not defined by this chemo process, having had this diagnosis, or having no hair. You are fun and wonderful and you can bend air!!! ~Bethany

  • gramma23
    gramma23 Member Posts: 482
    edited July 2008

    Shelby I understand now about your looks. that sounds like fun but I would not have the courage to do that. Well, I guess if I was into comics and knew others would be dressed up I might. Anyway i am glad you had a good time!

    As for being defined by the chemo or radiation or any other problem we might have I think to myself this too shall pass. It will, I know it seems long but a while from now you will look back and consider it an experience. We try to tell our kids and grandsons this is just one more experience on the road of life. My grandson totaled his pickup and he really liked this pickup. It was the first one he had bought himself and he was so sad. it was a gas guzzler though and he had said he needed to get a smaller vehicle to drive t work. We were so happy he was okay and explained be careful what you ask for. Now he has a smaller pickup but no big one with 4 wheel-drive.

    Lets just consider this an experience in life, not one we would choose but it is ours and you might find a way to use it for something good. We all need encouragement and this can be your help since you are farther along than I am in this experience. I know others will come after us and we can lead them so they are not so scared.

    My hair started coming out Sunday, just a little but I have a feeling it won't be long now. My head itches. I take another treatment on Wed. and if it does not fall out after that I will be surprised. By the way do your eyebrows come out too? I just had to pluck mine. I swear those grow faster than anything on my body. My underarms have not had hair for years but the eyebrows have made up for more than their share. My legs don't grow hair much either but those eyebrows are growing as we speak. I hope they fall out!

    Carolyn

  • suemed8749
    suemed8749 Member Posts: 210
    edited July 2008

    Now Carolyn, didn't you just warn about being careful what you wish for? When you wake up tomorrow with no eyebrows, you have nobody to blame but yourself! Seriously, I started losing eyelashes/brows between #5 and 6. I finished #6 last week, and my brows are pretty sparse and probably about 1/3 of my lashes are gone. I'm not very hairy, but I've never worn eyebrow make-up before, so I'm trying to fake it as naturally as possible - eyebrow pencil and dark eyeshadow by my lashes. This is minor the in big picture!

    Shel - I hope Comic Con was GREAT. Is this the event I saw on Entourage? I know that was in San Diego, so I think I have an idea what you were up to.

    Everybody have a great week, and a special wish for minimal SE's to everybody having tx.

    Sue

  • gramma23
    gramma23 Member Posts: 482
    edited July 2008

    You are right Sue! I will probably lose those and it will take forever for them to come back. I don't wear makeup so I wonder what it will look like? I guess I can paste some fake hair on my face for eyebrows! Surprised

    Carolyn

  • TF80209
    TF80209 Member Posts: 83
    edited July 2008

    Carolyn and Sue: You brought up a topic that is still with me 7 months after my last chemo -- where did those brows go? Like Sue, my eyelashes and brows started coming out between #5 and #6. About a month after #6 I had three eyelashes left on each eyelid. The brows were nice and thin so I didn' t mind. But then they started fading to blond and the new brows growing in are just as sparse as the hair on my legs and underarms. I have also acquired brow pencils for the first time in my life. My eyelashes took forever to grow back and even now they not very long. Ah well, at least the hair on my head came in full force, even if it is baby fine.

    Terri.

  • bethanybeane
    bethanybeane Member Posts: 167
    edited July 2008

    Terri and Sue,

    Well I'm glad you posted this information about eyebrows/eyelashes loss at the end of  treatments -- I really didn't expect those hair losses to be part of the cummulative effects...Shucks. But it's so much better to know what to expect. Thank you for sharing. Hope you're doing well and relieved to be done. Hooray for you. ~Bethany

  • AlyMarie
    AlyMarie Member Posts: 192
    edited July 2008

    Now Terri, didn't we already talk about where your eyebrows went?  Vermont is so nice this time of year (giggle).  I haven't lost either brows or lashes yet and I don't think my brows have thinned yet either.  I'm hoping they don't.  Losing the hair is hard enough, at least having brows and lashes counteracts that a little bit.

    Hi everybody.  I haven't posted in a while.  I just got home about an hour ago from poisoning....oops, I mean TREATMENT #3.  Halfway through now, that's good.  My psychiatrist has now put me on Ritalin of all things.  Apparrently it is very helpful for cancer patients going through chemotherapy because it is a stimulant and helps counteract the awful tiredness we suffer from.  It also apparrently has a mild antidepressant effect which BOY DO I NEED RIGHT NOW!!!  I'm hoping it will help cut the incredible fatigue I usually suffer from.  I'll keep you guys posted, you never know what might also help someone else!!

    It's nice to read all the positive posts.  Brenda, you are still in my thoughts and I hope you recover quickly and do well.  I mentioned you to my chemo nurse today and she was so surprised and upset to hear about what happened to you.  She also sends her well wishes.

    Bethany, you look so beautiful.  There are some women out there (nobody on this thread of course because you are all adorable!) who just can't pull off the bald look but you do it with amazing grace.  How wonderful!!

    Shel, you are absolutely insane.  I just love it!!  Your photo gave me laughing fits!

    Love to you all!

    Aly.

  • cookie1956
    cookie1956 Member Posts: 8
    edited July 2008

    I have a question for Taxtotere, carboplatin and herceptin patients.....I lost much of my hair about 14 days after my first treatment.  But I did not lose all of it. I still have my eyelashes, eyebrows, too. Should I expect to lost more following future treatments?

  • AlyMarie
    AlyMarie Member Posts: 192
    edited July 2008

    Hi Cookie!  What I know is that everybody reacts differently to the chemo drugs.  Generally people lose all their hair, starting about 14 days in just like you, but there have been others who have kept a percentage of it and never lost it all.  You may lose the rest after future treatments but you may not.  It's hard to know.  I still had hair at my second treatment and I remember telling my chemo nurse "hey look, I still have hair" (because she warned me that I would lose it all before my second treatment) and she laughed and said "yeah, and we're about to fix that problem". :o)  If your hair is still falling out to some degree it's probably likely that you'll continue to lose it until it's gone but I will for SURE keep my fingers crossed that you are one of the lucky ones that gets to keep some!!!

     Aly.

  • shelbaroni
    shelbaroni Member Posts: 350
    edited July 2008
    Great head of ...well, HEAD, Bethany! Boy, if I looked that good, I wouldn't even bother with blue arrows!

    Aly: interesting about the Ritalin for depression. I think I'll ask the Royal High Poisoner about that this next time. I'm to the point where I just about don't give a @#!* about anyone or anything. I am downgrading from generalized rage to flat affect. I am knee-jerk deleting people's emails rather than reading them and giving responses. You ladies are just about the only people that I "talk" to other than my immediate family. Of course, all this might change after my last treatment on August 7, but maybe not. Because then I still have the Herceptin until next June and the surgery. And I'm entering the phase where I'm scared as hell that none of this did any good anyway and I'm just going to have a recurrence. (Anyone else have that fear from time to time?) And then there's always the fear that my hair will never come back and people will always relate to me like I have a terminal diagnosis.

    I'm just little Merry Sunshine today, huh? Well, I can't be Avatar every day. Maybe I need to be. 
  • bethanybeane
    bethanybeane Member Posts: 167
    edited July 2008

    Shelby: Maybe this will make you laugh.

    http://www.cartoonstock.com/newscartoons/cartoonists/ksm/lowres/ksmn1495l.jpg

    Sleep well all. 

  • AlyMarie
    AlyMarie Member Posts: 192
    edited July 2008

    Shel, actually it's not for the depression I think as much as it is for the fatigue.  Apparrently it is very helpful for that as far as cancer patients go (so my psychiatrist tells me!).  The mild anti depressant effect is just a side benny but I have to tell you, I sure was a happy camper yesterday.  I baked cookies for the chemo suite with my daughter and I did housework and I had much more energy than usual.  We'll see how it reacts with the chemo and if it helps at all or if the chemo just overwhelms it.  I'm really hoping it helps because the severe fatigue is usually my worst problem.

    I have the same fear as you.  How will I know when I'm done that this even did any good?  I think *everybody* going through breast cancer is scared about suff like that.  I worry every day about what if it comes back.  I even talked to my onc about it again today and she reminded me that with Herceptin and the chemo, etc. I have better than a 90% chance of complete "cure".  My radiation Oncologist was even more optimistic and said he thinks the surgery alone was probably enough to "cure" me since we got it all with clear margins and there was no lymph node involvement.  Your tumour was half the size of mine (fortunately I have big boobs!) so you caught it even earlier.  I'm sure your odds are just as good if not better.

    I read a pamphlet while I was having chemo today because I forgot to bring a book (doh!).  The pamphlet said that finishing treatment is often a *really* scary time for folks because it becomes comforting to be in the doctor's office all the time and having them buzzing around you making sure you're Ok and when you suddenly don't have that any more, it can be frightening, especially if you worry a lot about the cancer coming back.  Maybe facing your last chemo treatment in a few days is causing a little bit of that for you, although I know you'll still continue with Herceptin so maybe not so much.  It makes sense though. When I read it I thought "holy crap what will I do?  I'll be terrified!" so it does seem logical.

    On the other hand that doesn't mean that Little Miss Alyson Anxiety won't be having mammograms probably every 6 months and PET scans at least every year for as long as I can convince my doctors to let me. :o)  For certain it will always be on my mind and that will make me more diligent about taking care of myself as I'm sure it will for you.

    I think Cindy had the right idea.  I can't remember exactly what she said but it was something along the lines of not letting the worry of recurrence suck the joy out of day to day life.  Like, trying to understand that the worry is normal and not letting it consume you.  Let me tell you that is SO hard for me right now with the combination of anxiety and depression I suffer from but when I get through this I'm going to try and give it my best shot. 

    It's Ok to be Little Merry Sunshine.  This whole process absolutely sucks and I can't tell you how often I get pissed off or feel sorry for myself to the point of hysterical bawling.  I think anybody who goes through breast cancer like Little Miss Happy Pants is in denial.  My Onc told me today that I'd been such a trooper through all this and I burst out laughing because I think just the opposite.  I said "yeah?  Even when I'm in here bawling my eyes out?".  I always feel like everybody around me is so much stronger and more brave than I.

    Your hair will come back.  I have yet to hear any stories about anybody who didn't get their hair back and believe me, people are always more than willing to pass along their negative bullshit cancer stories. :o)

    What surgery are you having, by the way?  Was it reconstruction?  I was always curious and I hope you don't mind me asking, but I always wondered why you chose mastectomy when your tumour was so tiny?  I know some people do that sometimes "to be on the safe side" (is that the right way to put it?) and I've always been interested to know what drives people to choose one solution over another because I often wonder if I made the right choice.  You don't have to answer if you don't want to, I know the choice is a very personal one.

    Hugs to you!!

    Aly.

  • shelbaroni
    shelbaroni Member Posts: 350
    edited July 2008
    Aly:

    Thanks for the words of encouragement. I had a mastectomy because although the tumor itself was tiny, I had a good 5 cm of dcis surrounding it. I had a total of three biopsies trying to get clean margins on that. A good deal of my breast tissue (didn't have much to begin with) was gone after that, so the surgeon said he recommended taking the breast. Even with the mastectomy, they only got a 1mm clean margin on the chest wall for the dcis. At least this way, I didn't have to have radiation. So I had a latissimus flap reconstruction, from which I still have discomfort and stiffness in my back...I've been wondering if that was a huge mistake, too. So after they think I'm recovered from the chemo, I'll have the tissue expander replaced by an implant on the affected side. He's also going to work on the other side to make it "match". I think I've got him convinced to keep me in the A cup range--I hope. Funny--I've never had a lot of respect for women who get "cosmetic" breast surgery. I'm possibly going to have my herniated belly button (from baby #5 who weighed 9 pounds 12 oz at birth) fixed at the same time. Then my entire torso can hurt like hell all at once.
  • gramma23
    gramma23 Member Posts: 482
    edited July 2008

    Bethany, that was funny! I think I can be more sympathetic with men who have male pattern baldness. so many people make jokes about them. I think I would cry if someone did that to me. I have even done that to a couple of friends and they take it good but how does it make them feel later? I told our courier before I left work I would be his twin when I got back. he said just wear a cap since he does.

    As for reconstruction i had wondered if a person did not need to why do they have a mast. I have a friend who has lymphoma and has breast lumps and they can't get clear margins and she wants them both removed. She is in chemo right now and I figure when she is able she will have them removed. she is in her late 60s and her husband died of this same thing. She is battling several cancer problems but at least she knew the symptoms from her husbands bout with it and got it fairly early. I worry so much about her. I am so lucky I have my dh and he is good to me. I also have the kids and they check on me all the time. I am a lucky person. I had clear margins and only 4 lymph nodes with cancer. I have large breasts and so one is a little smaller but you really don't notice it unless I am undressed.

    My other friend had cancer and is good right now but he had chemo several times and his hair came back every time. Good luck everyone. tomorrow is #2 of the chemo plus the Herceptin. Fun, fun , fun!

    Carolyn

  • bonbon6565
    bonbon6565 Member Posts: 2
    edited July 2008

    Shelby,

    Yes, I am beginning to get the "doubts".  I had my last chemo last Wednesday and I'm getting that fear/panic that it didn't work.  I had my 1st ultrasound yesterday since my BM and it came back normal, but my Onc. wants to do another PET scan before I start rads to get new baselines.  I think all the NEW tests are bringing back the memories of 6 months ago.  It's good to know I'm not alone in my fears.  I like your nick name for your ONC.  My husband dubbed the chemist "Sir Mix-alot", she cracked up, I think they appreciate the humor. 

  • bonbon6565
    bonbon6565 Member Posts: 2
    edited July 2008

    Cookie,

    My hair started falling out rapidly between 14 & 17 days after my 1st treatment.  The place where I bought my wig insisted I let them shave my head with the electric shaver, so I went with it.  Well as Words from DH, they did a "Piss Poor job" he had the joy of the clean up job with the Bic.  For the next three treatments I would grow stubble and 14 days later the stubble would fall out, then my 5th treatment, which was June 11th, I noticed my hair just wasn't growing anymore "ANYWHERE". So only within the last 3 weeks I've had no armhair.  I still have white peach fuzz on my legs and head, (I'm a brunette), but that's it. Although sparse, I have also managed to keep most of my eyebrows and eyelashes, but I've been reading that the eyebrows do eventually fall out sometime after the last treatment, so I may not be out of the woods yet.  My dh thinks I'm crazy when I told him that story the other night, He keeps thinking all the SE's will be completely gone within the next 2 weeks - He's tried to be extremely positive throughout this whole thing.  

    I originally WAS NOT going to shave my head, but once it started happening I was going Mental, so I was glad I did it, one less thing to obsess/stress about, but every treatment when I would see the stubble falling out, it would still bother me.

  • texasmom
    texasmom Member Posts: 14
    edited July 2008

    I think the weight gain is caused by the steroid and the swelling is an allergic reaction to the medication. My doctor gave me extra steroid pills to take to elimninate ankle swelling. He thought what I was getting with chemo was not enough.

  • shelbaroni
    shelbaroni Member Posts: 350
    edited July 2008
    Carolyn;

    I'm one of those who, if they would let me, would totally have the other breast removed even though nothing is wrong with it. First off, if I want to be symmetrical at all, I'll need an implant on the unaffected side, which will make imaging less accurate. Secondly, I am such an obsessive worrier and I have so hated the screenplay by Stephen King that I've been cast in that I will do just about anything to decrease the probability of this EVER happening again. The tricky thing about that dcis stuff is that it doesn't show up on mammograms until it turns nasty. I had a clean MRI of the unaffected side before they did the mastectomy. Maybe they'll do me again before the reconstruction surgery.

    I've decided that the interesting thing about the place I'm in right now is that (sorry to sound academic) it really parallels Maslow's hierarchy of needs. In other words, you can tell that I feel on top of my game physically, because I'm picking up on so many social and emotional nuances and obsessing over what might seem to many insignificant things. Really, it's only when I can run 3-4 miles and put in a full day of motherhood and write and paint and do the things I do that I start sniveling about people looking at me funny at church. When I'm just grateful to be breathing--now that's when you know that I'm totally immobilized by nausea and other lovely symptoms of acute cytotoxic poisoning. A more fully evolved human would be more grateful that she can function well and would be able to keep the whining in check. Maybe in my next life. 
  • TF80209
    TF80209 Member Posts: 83
    edited July 2008

    Aly: I think I'm upset that my eyebrows went on vacation to Vermont and I haven't even gotten a postcard.

    Shel: I periodically think about a recurrence and wonder how I would react. Even though my odds of a recurrence are very low, the odds of me getting BC in the first place were very low, so odds don't mean much to me anymore.

    My onc has been weaning me off of appointments. I haven't seen her in 9 weeks. I see her again on Monday. In the meantime I've still been having echocardiograms, an annual exam with my PCP, a pap smear with my gyn, eye exam, will meet with the surgeon soon..... So I do have people checking out various parts of me to make sure all is well. I think the long Herceptin treatment time helps make the transition to trying to live life normally again. In the meantime I'm still living YADA -- yet another doctor's appointment.

    My head started showing a shadow towards the end of my treatments so I figured I'd get hair back. I did stress out about the bald spots I have on my head. Who knew? My temples are still pretty bare and I had two bald spots on the top of my head. They eventually got covered as my hair got longer -- it's all of one inch now! It's a rather interesting process to start over with new hair.

    Congrats to those who have hit the halfway mark and have recently finished.

    Terri.

  • suemed8749
    suemed8749 Member Posts: 210
    edited July 2008

    Shel: You and I had the mast for the same reasons. I started out with what was supposed to be a simple lumpectomy - mammo, ultrasound, and MRI showed only the original 2.2 cm tumor. But that turned into lumpec. #2 due to 2 ducts of DCIS and that turned up another small IDC tumor. At that point - TAKE IT OFF! At least the path report after the mammo showed nothing else. Now, like you, I'm questioning keeping the other, supposedly healthy breast. If MRI didn't show the DCIS or the small tumor in the right breast, how will it show anything in the other one? My surgeon says that just because it didn't work before doesn't mean it won't work in the future - she's already planning on using MRI for scheduled check-ups. Also, my PS wants to lift the healthy breast, and he said he may use a small implant to do that - like you, I wonder if that will interfere with the imaging. I have some time before my exchange surgery (I chose an expander because it seemed the simplest surgery and I was terrified about putting off chemo any longer.) And I will spend that time worrying about what to do with "lefty" - should she stay or should she go?

    Re scans: I think the PET scan was the worst thing I've gone through with this simply because I was completely convinced that it had spread already. I have a spot on my back that aches, and my mind literally turned that into this amazing, tension-caused burning pain that spread over both shoulders and down my arms - when I got the all-clear PET results - that pain was gone. The original ache is still there sometimes, and my Onc tries to reassure me that the PET was clear, so he isn't too concerned, but that fear of recurrence is SO strong.

    Ah well, I have a ton of stuff to do before returning to work next week, and I actually feel good enough to get some of it done! My daughter (hospital RN) came over last night and was whining, "Nobody gives me the summer off," and I wanted to smack her (I don't exactly think I've had the last two months "off"!), but I just laughed and gave her a foot rub.

  • cinrae123
    cinrae123 Member Posts: 211
    edited July 2008

    Hey girls.  I havent posted in a while but have been keeping up on everyone by reading your posts.  I didnt want to be the mother hen, you know?  But every once in a while I will pop in and offer some advice (well hopefully good advice, but shoot, what do I know, huh?)

     First off let me say,,,,,,,,,I think all you women are amazing.  You are doing such a good job.  I know that a few of you have had some not so good days,,,,,,,,,but you are an inspiration to keep on going and fight this monster.  You just do the best you can with those side effects and just know that the light at the end of the tunnel is getting closer.  Trust me on this ok?

     And Aly,,,,,,,,,yes it may have been me saying that about reoccurance.  See for me.........sure, I'm not gonna lie,,,,,,,,I do think about a reoccurance,,,,,,,,,,,,but I dont let it consume my every day thought.    I think I said this before but its like a black cloud hanging over our heads,,,,,,,,,,,but I choose to blow that black cloud away and see the sunny days.  I just wont  let it take over my every day thoughts of enjoying a wonderful life.  I know that I did the right thing for me by doing chemo and radiation,,,,,,,and if something else comes up later,,,,,,,,,,I will deal with it then. It's in Gods hands now and I am just following his lead in life.  But in the meantime,,,,,,,,,,I see sunny blue skies.  I know that we are all different and we deal with things differently,,,,,,,,and thats ok too.  If God made us all the same,,,,,,,,,,the world would be a boring place huh?  Everyone just needs to do whats right for themselves.  I am not one to judge anyone for their feelings or how they live their life..........but for me this way of dealing with reoccurance works for me.

    And girls,,,,,,,,,,,,,its ok to whine and bitch and moan and groan.  Trust me I did that too.  My poor family, lol.  They were sure troopers for me.  Without my family and friends I probably would have given up during treatment,,,,,,,,,but I hung in there and am as glad as hell that I did.

    I had a mammo last week,,,,,,,,,,,,there was some calcifications in the scar tissue area of where the surgery was but no big deal.  Guess thats kinda normal.  I'm not sweating it.

    And the hair issue,,,,,,,,,,,ok ladies.........I am almost one year post chemo and about 3 months post my last herceptin,,,,,,,,,,,and its about 3 inches long.  OMG,,,,,,,,I never thought it would take this long to grow hair.  I know I am just impatient in that dept. but cant help it.  I still wear my wig in public as its so short I just dont know what to do with it.  I did go get it trimmed up a couple of weeks ago as the back was longer than the rest (looked like a mullet style) and she told me what kind of hair products to use,,,,,,,,,but I just dont get it.  So I do go to the beach wigless and around the house,,,,,,,,,,but am just not comfortable in public yet.  I have a thin spot on the top too,,,,,,,which is most attractive I might add.  lol  NOT.  I so admire those of you going topless,,,,,,,,,,it's absolutely wonderful.  I was never comfortable with that.  And you ladies look awesome too.  I have a funky small head so to me it looks weird.  lol  ooooooo and one more thing,,,,,,,,,,,,,,,,I did lose my eyelashes and some of my eyebrows, lost the hair on my legs, my arms, under arms and down in that private area, lol.  It has all grown back except on my left underarm which is the side I had radiation on.  I just have a few hairs there.  Man if I would have known that it wouldnt come in on the radiated side,,,,,,,,,,I would have had the nurse zap me a few times under the right arm.  lol

    Well,,,,,,,,,,,,,,,gotta head on out for now.  But I am so glad you are all doing ok and trying to keep those SE to a minimal.

    Think about all of you often,,,,,,,,,,,keep your chin up and remember that light at the end of the tunnel is alllllllllllllmost there.

    Cindy

  • AlyMarie
    AlyMarie Member Posts: 192
    edited July 2008

    Shel - now I completely understand why you would have opted for the mastectomy.  I have pretty good sized breasts - DD-DDD depending on the bra so I had lots of tissue to spare.  In fact, they took out the 2CM tumour and more than 1CM of clear margins all around it and my breast doesn't look any different except for a mild flat spot that you can only notice when I turn sideways.  Everything else still looks the same, which I'm thankful for.

    You did scare me a little bit though with the whole DCIS not showing up on a mammogram thing.  I assume that an MRI would light all that up though (right?) so at this point at least I shouldn't have to worry about something they didn't see, I hope!!  Someone tell me something positive!! :o)

  • HensonChi
    HensonChi Member Posts: 68
    edited July 2008

    Bump

  • shelbaroni
    shelbaroni Member Posts: 350
    edited July 2008
    Aly;

    I believe they've told me that dcis shows up on MRIs. I sure the hell hope it does. As for your breasts looking pretty much like they did, my first surgeon told me that breast tissue is amazing that way. If they take some out, it pretty much "fills in" to look the same, unless they take a significant amount. The one good thing about my situation is I don't have to have radiation, which the main thing I hear about that is the annoyance of having to do it day in and day out. 
  • AlyMarie
    AlyMarie Member Posts: 192
    edited July 2008

    I sure hope the hell it does too!  I'm going to ask that question before my next poisoning I think.  Yeah, I'm not looking forward to the inconvenience of radiation either.  I've had enough fatigue and I hear by the end of radiation therapy you're pretty much wiped out.  Oh well, we've gotta do what we've gotta do in order to see our 90th birthdays, right? :o)

  • suemed8749
    suemed8749 Member Posts: 210
    edited July 2008

    Aly: I'm the one who said that my DCIS didn't show up on MRI. I had a clear MRI before the lumpectomy, but after my lumpectomy turned it up, my surgeon re-checked the report and even checked on the MRI machine. My onc. said that this happens in 2-3% of the population - and I was lucky enough to fall into that group! So I ended up going from lumpectomy to mast. You guys should be fine with standard imaging.

    Sue

  • cinrae123
    cinrae123 Member Posts: 211
    edited July 2008

    Hey girls,,,,,,,,,,about radiation...........I honestly felt good during that time.  I had no problems at all except the skin was burnt,,,,,,,,and I used Miaderm for that,  Just having to go every day for 8 weeks was a drag though. 

    And yep,,,,,,,,,we gotta do what we gotta do.  lol  Unfortunately, huh?

    It'll go by fast ladies,,,,,,,,,honest.  Smile

    Cindy

  • shelbaroni
    shelbaroni Member Posts: 350
    edited July 2008

    I think I'll just have EVERYTHING removed just in case....as soon as I can come up with a life-support housing for my brain. I remember a character on Teenage Mutant Ninja Turtles like that back in the '80's. His name was Krang, I believe.