Taxotere, Carboplatin and Herceptin
Comments
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lago - I am still doing that! At my last onc appt. I brought up whether I should stay on it - he said he preferred I come off but every time I try I put on 3-4 lbs. overnight. I am wondering if it is rebound and would dissipate after a couple of weeks but I am so uncomfortable I go back to the diuretic. Are you still on yours? Also it seems to help me control my LE arm better.
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Not - I didn't get hydration IV either. I drank and drank, still do to replace all the fluid I lose with my chemopause hot flashes!!0
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SpecialK Do you mean the diuretic? My onc told me to let my PCP handle that. I needed a refill so I met with him. He feels its from the ESD. One of the side effects of Anastrozole can be fluid retention. He told me I could take the entire pill because I'm on such a small amount but still taking the 1/20
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lago - yes I do mean the diuretic. I talked to the onc about it because he was the one who prescribed it, and I agree it is most likely continuing to be a problem because of the ESD. I am also still only taking the 1/2 pill. The onc said he would write the scrip again if I really wanted - I have enough left until the next time I see him but I may try to experiment and try not taking it for a couple of weeks and see what happens. I am not particularly well managed by a PCP - because they are military they keep rotating out so I avoid going there because I take the whole appointment slot explaining everything to somebody new every time, lol! The only med managed by the PCP is Lipitor. I would actually like to try to come off that if I can and see if diet and exercise can control my cholesterol better - not sure if it will work, because I think for me it is genetically high.
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SpecialK I tried experiementing this spring with skipping every other day. I would put on 3lbs when I didn't take that 1/2 a pill. Blood pressure is fine though. I did let my PCP do it one my arm that one time because I did feel it was important to get the correct reading. It runs high normal in my angle and dangerously high in my leg.
So in 3.5 years I can get of the only 2 meds I take… ESD & PIP (pee inducing pill). Could call it DJ (de-juicer) too.
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SpecialK... Yes. It's heaven here. It keeps me going. I'm from LI, NY and my fam moved to Wellington, FLA. I can't stand the humidity and bugs. How are you doing in FLA? It would be very hard to leave heaven. Are you done with chemo?0
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lago - I like the PIP name! I am calling it that from now on! I get the 3-4 lbs. if I skip it for a day - it is such a bummer. My BP is low, always has been, usually 110/60 or so.
not - I was in SLO in '08, still have friends there but I graduated in '78. I left in '80 and moved to Sacramento, then married an Air Force guy so have lived all over the world. Florida is buggy and hot - don't like it - I am a California native!
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Moonflower... Did you have SE from the chemo? You're done with chemo, right? That must be a good feeling. I'm hearing from women who got terrible SEs, but a liter of hydration stopped the severity. I'm asking for it tomorrow!
I was eating healthy and wasn't eating any sugar, but with chemo I let myself eat whatever I wanted and that was a lot of sugary junk. My magnesium was low one lab test and they gave me some IV also. I heard that if you eat sugar/carbs you need 14 x the amount of magnesium to digest it, so I bought some liquid magnesium from the HFS (health food store, gosh we love acronyms) and put it on my the bottom of my feet- heels (so it doesn't burn and I don't OD). I haven't had low test results since.
Thanks for sharing. Are you doing OK now?
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Omaz... How did you handle these chemos? I'm sure drinking a lot helped. What's a chemopause? Are you taking a break between chemos?
Did the SEs get worse and get to be too much?
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Hi not - Chemopause refers to chemotherapy induced menopause - in other words I was having regular periods when I started chemo and they stopped after the first treatment. I started having hot flashes every hour and it continues to this day, 2 years later. I had a tough time with chemo because I developed neuropathy. I think there is some research that there may be a genetic predisposition to developing neuropathy from the taxane drugs (taxol and taxotere). Each round of treatment was slightly different, with different SEs though some were the same throughout. I learned how to do my anti-nausea meds better after the first treatment and that helped. I also went for acupuncture treatment each week. I didn't like the needle part very much at all but I think talking with the acupuncturist about all my chemo-induced problems for 40 minutes before each treatment helped a lot! There was a lot to treatment - the steroids (my onc does a pretty high dose), the neulasta and then the chemo.0
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Do other people here have hypothyroidism? Low temp and BP?
Has anyone tried iodine?
This short video on iodine and the connection to thyroid and BC.
http://www.youtube.com/watch?v=lt_7592f67M
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not I went onto chemopause too. Last period was 2 weeks before chemo. My hot flashes were minor compared to most. Just some warm flashes between 2-5am. Never sweaty.
There does seem to be a connection with low D and breast cancer. I was diagnosed with very low D months before my cancer diagnosis. If you haven't had yours checked I recommend you discuss this with your doctors. As far as thyriod mine was high normal once when I was 20 (the opposite of hypothyroidism). Never had any issues after that.
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Not, I am doing better 10 weeks PFC. I am, however , still on Herceptin, or, at least hope to be continuing. I am at a low EF right now, and have to wait to get back on. I am still low on magnesium, though and needed an iv on Thursday. I was at one time taking 6 pills daily of magnesium,.it caused the big D to run wild. Had to back off the amount. I had not heard of liquid magnesium, I will look into that. My big d is at least improving to where I get some warning and have the time to make it to a bathroom, which is a blessing. I may actually give up my diapers soon. What dignity! LOL!
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moonflower - I heard you can also take a bath in epsom salts and absorb magnesium that way...now that's something you'd need to research and talk with your doc about, but how cool would it be if that helped your mag issues without the big D?
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Dance, That presupposes I could get down into the tub, AND back out, LOL, knees are that bad! LOL but, soaking feet, now that I could do, just have to do it more often, not a bad idea. Damn, I love you guys! Always have ideas for the workaround! LOL
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Oops Moonflower...yeah, bad knees preclude baths!!! But foot soaks...ahhh...good excuse to pamper yourself!
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Hmmm Chemopause sounds bad. I feel for young women with BC. I'm 58 and went through menopause at 50 and only had small SE. The BEST thing was it got rid of my PMS migraines. The natural thing that worked for PMS for me for 10 years was DHEA. It was cheap, OTC, and it worked right away taken when symptoms arrose. I only took 1/4 of a 25 mg pill and it got rid of my PMS! I called it my 'happy pill'.
Stay strong ladies.
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Moon you can get a sitz bath that fits in the toilet so you don't have to get in the tub. I considered it because after tx 1 I got the big C and finally after I "gave birth," Metamucil induced that is and ended up with hemroids. Prep H took care of it that time so I didn't need it.0
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THX, Lago, but I am not the one with hemmorroids. Although I suppose I could soak up magnesium through the lower mucus membranes! LOL. But after my larger babies, 10lb 4oz, and 9lb 8oz , sitz baths saved my butt , quite literally! LOL
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Moonflower...I bet that would inspire some entertaining poetry! ha ha ha!
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moon - that's some serious babies!
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dance, just remember you asked for it.
Hemorroids? Oh say it isn't so!
Tiny little pains in the *ss I know!
Whether from babies, or meds, or chemo,
Hemorroids can kiss my *SS and blow!0 -
Nice!!!
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Moon - BA HA HA!!!!!
Love it!
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In my bath here I sitz
Because of one too many sh*tz
...
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LOL@ dance!
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Dance, that made me burst out laughing. What a way to start the day! Thanks.
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I had my 2nd chemo last Friday - just been trying to find things that taste edible. I didn't have the taste issues much at all last time but this time they are a real problem. The nausea is about the same even with the emend this time. I'm having a bit more joint pain but I also hadn't been taking Tylenol constantly like the first go around so I'm taking it now. The pain isn't unbearable - just annoying right now. I'm forcing myself to drink water though it doesn't taste great to me as I know I need it. Some immodium yesterday stopped up some D. I have the hem'roid issues too (though have had them long before the chemo) and I usually use wet wipes, witch-hazel wipes and the prep H depending on how bad it gets.
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Jinkala maybe add some citris to your water. Orange, lemon or lime. I hear that can work as long as you don't have mouth sores. My taste changes were minimal. I'm wondering if that was because I sucked on ice chips during taxotere infusion. I did to prevent mouth sores since I did get one tx 1.0
