Taxotere, Carboplatin and Herceptin
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Count me in with the Herceptin pee smell. During chemo it was really noticable. But Herceptin had its own smell.
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Haven't read through the whole thread, but has anyone had intermittent tingling in their hands? No loss of sensation, just feels like my fingers are going to sleep occasionally. Also - is it normal to feel hungry all the time?
I feel like I have my pregnant / nursing appetite back.
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Yup - McKatherine - those can be side effects - I've had the tingly fingers, wasn't hungry, but I did crave protein. Be sure to let your MO know about the fingers. Can be beginning of peripheral neuropathy caused by either the taxotere or the carboplatin, or another side effect of taxotere that effects your finger nails - Lago is the go to girl on nail issues, I wasn't sure which caused the problem for me, as I had both neuropathy and nail issues. The steroids can make you eat a lot too.
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Nail issues feel very different than tingling neuropathy. If your nails start to lift the the nail beds will start to hurt. Neuropathy is more tingling or numbness in the finger tips.
It's very important to tell your onc about the neurpathy the next time you see her/him. If s/he feels your SE is to severe s/he will reduce your dose as needed. You don't want permanent damage.
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The taxo-tears are driving me crazy! My eyes just tear all the time and I feel like I am constantly wiping them. Last week I went to my optometrist because it felt like I had something in my eye that I could not flush out. She said that it was dry eye and to use eye drops. Well, I have been using drops in my eyes at least twice every hour and they are still tearing. I am thinking of going to an opthamoligist (MD) to see if I have clogged tear ducts. Most mornings I can't even get my eye makeup on because of the wetness. Then if I do get it on, it starts coming off immediately with the next tears (even the waterproof stuff). Yes I know I could go without make-up, but with no hair and little in the way of brows and lashes, the makeup does help me to feel not quite so awful looking. If any of you have thoughts on the tearing situation, I would welcome your thoughts.
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Bren58 - I had alot of problems with Taxotears too. The good news is, it does diminish and go away after chemo. I used Theratears maximum strength at night. It's kind of like a gel almost so you have to use it when you are ready to close the eyes for the night. It helped. This was the recommendation of my opthalmologist. My eyes would twitch too and drive me nuts! I am now almost 11 months PFC and those problems are gone. Hang in there!
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Yup had the tears and twitching too. Pissed me off because I was unable to read or play video games at my last treatments. Hated the twitching when the eyes were out of sync. It does go away. I think that was the first SE to disappear.
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I had the twitchiness (all over really) during my bad chemo weeks but it always went away before the next treatment and now that I'm just on Herceptin, I don't have it at all. I still have the teariness and runny nose though not as frequently as before.
My only real vision problems were with one of my nausea meds. It would make my vision blurry for about half of my bad week before it would go away. I don't remember the name of the drug offhand - my mind must be trying to block all that bad stuff now. Heh
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Jinkala are you talking about Emmend because it did that too me too for about 2 days after I stopped. I never took any other nausea meds after that though. I thought I was the only one.
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Hi Bren58! I have the exact same problem as you. Same thing with the make up and just driving me crazy! My treatment ended in October and they told me it would go away, but it hasn't. In desperation I have started using eye drops to see if they will help, even though I'm running most of the time! It does seem to help me a little. I was told by my Oncology nurse allergy drops were the way to go. I have been using Naphcon A. I'm worried too, after reading some posts, that my tear ducts are plugged - or worse yet - destroyed. Oy. I wouldn't surprise me as the Taxotere destroyed my lymph nodes.
I use liner on my bottom lash line and have had to switch to cream eye shadow. I can't wear mascara at all, no way. I use a soft pencil to fill in my brown line. Make sure when you put on blush or face powder you keep your eyes closed. If find that was making it worse.
Kelloggs - When did you start noticing improvement?
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You ladies with the taxotears, it takes a while. Also, you may be either losing eyelashes, it some may be growing in and curling and irritating the eyeball. I actually had to pluck a few that curled the wrong way into my eye. You don't realize why you tear up when this is happening until it actually hurts.just something to watch out for. Hope the tears stop for you soon. Much love
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lago - it was Compazine that gave me the blurry vision. I think that got added in around cycle 3 or 4 because the Emmend and the Zofran just weren't quite controling the nausea.
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Bren, my taxotears are driving me crazy too. And my left eye has been twitching all day, it's doing it as I type this! Argh.
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Thanks Moonflower, as long as there is hope!
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I too had the tears I finally tried something called lubricating drops and that helped, also had the nose drip from Herceptin so people were always asking me are you ok? thinking i was crying lol!
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Just after my last tx I had to go to a funeral (Friend's sister who lost her battle with non Hodgkin's lymphoma, age 45). I was talking to my friends DH an of course my eyes start were so watery I started to tear. I explained to him that I wasn't crying it was the chemo… he said "Yes we know all about it from Stephanie (the gal who just passed).
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Anybody notice their pee is a faint light blue color?
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volleymom - nope!
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I've never noticed that, volleymom.
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Chemo day have a nasty headache ache everywhere ugh only 2 more left.....Yeah need to stay out of the hospital been hospitalized two out of three, doc said to call this weekend if bad already scheduled for Monday for fluids and my Neulasta shot need lots of prayer.
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Keeping you in my thoughts and prayers, volleymom.
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volleymom77 only 2 more left. Sucks that you have been dealing with hospital visits… but you're almost to the finishline.
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Sending prayer! Hang in there Vollymom. My next to last was absolutely the worst. Maybe you need an extra week in between. That really helped me. It helps to allow the residual old stuff to wash out rather than accumulate and add to the new, which really packs a punch when combined,
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Volleymom- praying for you!!
Landing in the hospital after round 1 has me a little worried. But hopefully I'll get neulasta next time and can avoid this! (I hope, I hope). But I cringed today when my primary's hospitalist said, "eh you might be a frequent flier -some people get this every round!". Nice encouraging words, no? Maybe she was just being honest.
Getting antibiotics, fluids and blessed Tylenol and Motrin!! Hope to be outa here Monday!!
One more question for the veterans on here - how many rounds in before the herceptin SE kick in?0 -
I had them right away, herceptin always gave me a headache, I realized that when I had my first couple weekly ones, it would last 2-3 days, then be gone. But compared to the other chemo side effects it wasn't really much. I got the headache after every single herceptin, except one, the accidently took 90 minutes to give me the weekly infusion, no side effects that week. Sounds like you've had a rough go of it. I had different side effects each chemo, so hopefully you won't have the end up in the hospital one next time!
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I didn't really have SE from just Herceptin. I was a little stiff and my hair grew a little slower but I didn't know that till Herceptin ended. The combination of chemo and herceptin I had the bloody noses, runny nose but once chemo stopped (and winter was over) it ended.
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Lago, that gives me hope for my nose. It's SO sore, cracked and dry on the inside from all the running and bleeding. Hopefully now that spring is coming and the dry weather going away I can get some comfort soon.
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steiner - are you putting Aquaphor in your nose?
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I'm wondering if the Dr. Neil Med nasal rinse/bottle would help.
I use this one but I haven't used it during chemo. I suppose like everything else I would ask my oncologist prior to trying it during chemo and it has to be prepared with distilled/purified water. No tap water (very, very dangerous to use tap water with it - i.e. can literally be deadly).
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steiner18, are you on a benedryl drip along with chemo? If so you might ask them to cut the dose in half then slowly ween off it. The benedryl did all that to my nose. I was so much better w/o it.
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