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Taxotere, Carboplatin and Herceptin

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Comments

  • cgesq
    cgesq Member Posts: 183
    edited March 2013

    Florbo, Exercize away!!!

    I too feel tired the day of herceptin, but after that, I'm good to go.  Herceptin shouldn't have any effects on your exercize regime.

    Good luck!

  • volleymom77
    volleymom77 Member Posts: 34
    edited March 2013

    Friday is almost here, however getting up and down the stairs is tough, Legs burn red blood cells must be low again. Nervous been resting alot, last time red blood cells were low she still did it and gave me blood. Hugs to everyone. Plus quick question anyone have their chemo reduced 20 percent did it hurt less? Part of me wants to finish but my body is so whipped.....

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited March 2013

    Vball, my tx was decreased by 25%. It was better, but of course it got worse every tx. Stilly kids said I looked better after Tx when it was decreased.

  • Adavisart
    Adavisart Member Posts: 26
    edited March 2013

    Special K that is hilarious!

  • LeeA
    LeeA Member Posts: 1,092
    edited March 2013

    volleymom, the chemotherapy portion of my treatment was reduced yesterday (yesterday was number five).  This was due to my WBC.  The Herceptin portion stayed the same.  I'm not sure of the percentage of reduction but I plan on asking when I go in for the Neulasta shot today. 

    Best wishes with everything!

  • volleymom77
    volleymom77 Member Posts: 34
    edited March 2013

    I did my last chemo today yeah............ I ache everywhere planning on sleep and rest till Monday when I get fluids and Neulasta shot. Keep posted if 20 percent decrease helps, doc has me drinking Boost helps me keep weight on. Had lost between 15 to 20 pounds need to keep some weight on for surgery, meet with surgeon on Monday too. Hope everyone enjoys their holiday weekend and gives their family and friends love and hugs.

  • Dea43
    Dea43 Member Posts: 14
    edited March 2013

    Volleymom, my chemo was not reduced. My counts were all low and I got postponed til next week, but I feel pretty good. My body is recouping, so I hope to get my last two treatments and be done.



    LeeA so with a chemo reduction, do you end up with an extra round? They do that to give your body a little break?



    Have a nice Easter all.

  • LeeA
    LeeA Member Posts: 1,092
    edited March 2013

    Dea43, the RN in the infusion room says no, there won't be an extra round - and I'm fine with that.  

    Glad to hear you're feeling good!

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited March 2013

    Vball, Congrats!

  • lago
    lago Member Posts: 11,653
    edited March 2013

    Vmom yay! in 3 weeks the healing begins

  • Speedy4
    Speedy4 Member Posts: 44
    edited April 2013

    After 3 MO opinions I have finally made and come to peace with a decision. I will start the first of six treatments of TCH this Thursday. Thank you all for always being willing to answer questions and give support! I'm truly grateful!

  • volleymom77
    volleymom77 Member Posts: 34
    edited April 2013

    Well received fluids and Neulasta shot yesterday, plus met with surgeon. MRI is April 9th and results April 10th. Neulasta shot hurts big time again resting the best I can. Surgeon said after consulting with a second surgeon they believe I do have Paget's too, ugh so they will take the nipple even if only lumpectomy, I cried do not know why? Will know more next week, at least I get to rest for three to four weeks.

  • Sunday1856
    Sunday1856 Member Posts: 3
    edited April 2013

    Hi Everyone - I start TCH bright and early tomorrow followed the next day by a Neulasta shot that they are going to show me how to do myself to save a trip to the hospital.  I have tea tree oil, OPI Nail Envy, ginger, stool softeners, soda and salt for mouthwash and lots of hand sanitizer.  Anything else I need that you all can think of.  Also, any tips or thoughts as to how the next few weeks will go?  I am getting 6 treatments 3 weeks apart.

    Thanks so much!

  • sewingnut
    sewingnut Member Posts: 475
    edited April 2013

    Sunday, check out this thread. It was a big help to me. Alot of info in one place.  Good luck

    http://community.breastcancer.org/forum/69/topic/706846?page=38#post_3488865

  • Sunday1856
    Sunday1856 Member Posts: 3
    edited April 2013

    Amazing information!  THANKS!!

  • Speedy4
    Speedy4 Member Posts: 44
    edited April 2013

    Sunday~what is the OPI nail envy for?

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited April 2013

    Speedy, some of us on here, have used Claritan (not the D) for the Nuelasta pain. It seems to work well. Start the day of the shot and take for a couple of days. It really helped me. But check with your mo.

    And you will make it to the end of tx, it goes fast.

    Vball, do you think you need a reason to cry? I mean, other than, say, cancer? And surgery, and pain, and nerves, and fear, and anger? Well, no, I think you have enough reason to cry if you want. We'll help you pick up the pieces later! Much love to all.

  • Marcie47
    Marcie47 Member Posts: 163
    edited April 2013

    Sunday, I didn't need to take the nuelasta shots, see if your ONC will take your blood count first and if your white count isn't low, it could be one less drug/side effect you might not need!! I am sooooo thankful that my ONC took it week by week and I never needed it😄

  • Speedy4
    Speedy4 Member Posts: 44
    edited April 2013

    I asked my MO about the Nuelasta shot and she said "we'll see how it goes". Hopefully I won't need it!

  • Jinkala
    Jinkala Member Posts: 133
    edited April 2013

    Hey Sunday, you might consider a bottle of Immodium as well.  I think I used the stool softener once over the course of the 6 chemos but used up a small bottle of Immodium for each cycle and it was the only thing that really helped. 

    TCH seems to hit each of us a bit differently so it's really hard to predict how it will go or what side effects you will have to deal with the most.  My worst issues were with my sense of taste, my nausea, lethargy, some muscle pain and the diarrhea.  Post chemo, my worst lingering effect is weird feeling toes (not numb and not tingly - just feel wrong) and some bad blistering on one of my feet.

  • lago
    lago Member Posts: 11,653
    edited April 2013

     Sunday, I might not rush to purchase things you might never need. I never used the Immodium, plastic utensils… actually never used any narcotics even after BMX! I do think the Claritin for Nuelasta (as long as  your not on Zyrtec) is a good idea though. The first shot SE for some reason are more intense. After than not so bad. Just be sure to check with your onc.

    I also used Biotene mouth wash to prevent dry mouth recommended by my dentist.

    I would also ask your onc about Tea Tree Oil. I hear it has some estrogen properties.

  • Sickofpink
    Sickofpink Member Posts: 38
    edited April 2013

    Lago - I love your new pic. So Pretty!

    Special K, I'm with you.

    After walking I usuallytake my scarfor hat of in the car - and I have answered the door that way. It;s kinda fun! (For a few minutes)

     6 weeks PFC - when wil my eyelashes come back and my nails fal off? Hair is another few months, I guess...

    Herceptin makes me tired and nauseus but  oh well, coudl be worse - and has been!

    if this wast twitter I'd add #overit

    xo

  • specialk
    specialk Member Posts: 9,261
    edited April 2013

    sickofpink - I miss SoCal!

  • Speedy4
    Speedy4 Member Posts: 44
    edited April 2013

    Going for first TCH tomorrow. Have so much information going around In my head, I hope I can keep it all straight. One question I still have is about nails...does putting them in ice help? It is during just the Taxotere or all ?

  • lago
    lago Member Posts: 11,653
    edited April 2013

    Just during Taxotere. It helps some people but not me. I think you need to keep them really cold.

  • Speedy4
    Speedy4 Member Posts: 44
    edited April 2013

    Thanks!

  • Jinkala
    Jinkala Member Posts: 133
    edited April 2013

    I haven't had any nail issues at all - not during and not PFC either.  About the only change in them I have noticed is that my normally tiny whitish area at the base gradually has covered most of the nail.  They also are a little ripply but it's only noticeable if you really look closely at them.  I didn't do anything special with them at all during chemo.

    Pretty much, be on the look out for side effects but don't start worrying about one before you even find out if you are going to get that side effect.

  • lago
    lago Member Posts: 11,653
    edited April 2013

    The nail lifting is less common… granted I got it and as my dermatologist said a really bad case of it but I haven't met anyone yet who has gone through only one round of chemo and had problems as bad as I did. 

  • rickysgirl
    rickysgirl Member Posts: 139
    edited April 2013

    Sunday, I'm a little late with a reply as I haven't been on in a few days.  Before I started chemo, I went out and bought EVERYTHING IMAGINABLE to combat any side effect that came along.  I used a stool softener ONCE after the first round.  I used, and continue to use, a lot of hand santizier, which I do anyway, and some Biotine every now and again.  That was it.  That being said, I did usually have to get something after each round, because you just never know what is going to come up.  My first two were the worst for SE's, but 3-6 I had nothing.  I remember having one day when I was walking down my hall, and all of a sudden, I just "went" all over myself.  No warning, no stopping it.  It was like a waterfall. Thank goodness I was at home.   I rushed out and bought the biggest package of Depends I could find.........and used one.  I have cabinets full of stuff I purchased and never used.  One of my big issues was food.  I stocked the fridge with all the stuff these wonderful ladies suggested, but my taste bud issues prevented me from eating a lot of it, and I had to throw it out.  I learned to get what I felt like I wanted at the time.  After the first one, all I wanted was chocolate milk, so I stocked up, and after the 2nd, I didn't want it.  I wanted yogurt.  So I stocked up on yogurt, and after the 3rd, I didn't want it.  I can't tell you how many meals I fixed for myself and ended up throwing away because it all tasted so bad, so take it a day at a time.  I have a wonderful neighbor who would call every morning to see what I felt like having, on my down days, and she would bring it to me.  On my good days, I'd just go get what I felt like.  It's so hard to predict one day to the next about any of this.  Foods, SE's, anything. 

    I made the mistake of trying to get mentally prepared for all the "bad" SE's that "could be" coming, that I just wasted a lot of energy and wore myself out.  I was always waiting for the other shoe to drop.  As it turned out, like I said, 1 & 2 were the roughest, and 3-6 were so minimal that they're hardly memorable.  My biggest SE was the fatigue.  It was hard for me to walk from one room to the other, so I just decided that whatever gets done, gets done, and what doesn't, doesn't.  My boyfriend helped (somewhat) and my neighbor was a Godsend. 

    I would like to say that for as prepared as I thought I was, I wasn't.  You take the physical aspects a day at a time, as we can never be prepared for that since we all react differently.  I made the mistake of ignoring my mental health, and as a result, I became somewhat closed off, did a lot of dwelling, and played the poor me victim.  WRONG !!! For those that are close to you, keep them in the loop.  No one will ever understand what you're going through excpet those of us who have been through it, so you need to let them know how you're feeling, physically and mentally.  Keep the lines of communication open.  I didn't and as a result, had a BIG problem in my most personal relationship.  We're getting through it, but I wasn't the only one at fault.  There was me who was pitiful and my boyfriend who was clueless.  Neither one of us spoke up and we crashed..........for now.  I got so bogged down about the physical that I let the mental slide, and it can have a drastic effect.  Keep self-aware.  If you want to talk, PM me and I'll give you my number.  Hang in there.  We've got your back !!!!!!  These ladies on here did so much for me that I don't think I could've gotten through it without them. 

  • PositiveThnking
    PositiveThnking Member Posts: 37
    edited April 2013

    Hi all catching up on threads.  3rd trip to chemo bar done.  Speedy,  I can confirm as well the Neulasta is much more tolerable after the first round.  The first one is the most painful.  Not feeling much at all this round in bone pain, but thats also because marrow is decreased.  The Clartin helps a lot.  I also use the Biotine for dry mouth.  So far its a bit of nausea, dry mouth, and the fatigue.  I'll get the diarrhea in a day or so.. drinking a lot of liquids.   I haven't had any trouble with my nails.   The hair is gone but so far have kept eyebrows and eyelashes.

    A note on the acupunture.  I am thrilled I have full range of motion and no pain or strain on my surgery side and I'm waiting to see if it helps with energy levels.  We moved onto "phase 2" of sticking me full of pins to help with energy levels now that the arm is back to normal.  I am so happy to be at the 1/2 way point in the chemo!

    Sickofpink.  I second that!  #overit