Taxotere, Carboplatin and Herceptin
Comments
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Susan3 - I was reading that a lot of us experience this and it sounds like you are doing everything right. They were keeping a squeeze bottle of water in the bathroom to rinse off with and applying diaper rash cream. I keep baby wipes in my purse for when I'm away from home.
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susan - ask your onc if it could be thrush of the skin in that area. That happened to me, it wasn't pleasant at all. (I also got thrush in my armpit and mouth...apparently it loved to take over during chemo in my body). They have a nystatin powder you can apply which is quite effective and helpful, if that is what is going on.
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Hi Susan - I had that after one treatment. I did two things - I increased my water intake and I used Aquaphor in both places after urination and/or bowel movement and that really seemed to help. I think it was a combination of dryness and irritation - hope you find a solution
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Susan - I used the squirt bottle & Desitin. Also got an Rx for Mycalog cream when it perisisted. (nystatin/triamcinolone). Due to aging dry tissue, the Aquafor is a great idea.
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I swear by PreparationH wipes. I use them every time I go potty. They have witch hazel and aloe in them. I used them long before chemo and didn't have any problems while on chemo.
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SlowDeep - yes, I use wipes now too. It's hard to find any that are flushable w/out perfume added anymore. I usually get Cottonelle since the scent seems the least intrusive to my nose.
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I wanted to add a few things to the questions about emotions. I had my first chemo (taxotere, herceptin, perjeta) on July 18th another next Friday. I had gotten my period and it was very heavy. I was really worried actually and called my MO. She called me back and said that was okay, hopefully it will be less and less in future but that the chemo does mess with your hormones a lot and the ovaries. Which is why some women have a temporary "chemo menopause".
Another thing, since some of you are talking about cold caps, I did the cold caps first one and will continue as long as I see results. I haven't been too worried except today. (It was exactly 2 weeks ago this past Friday-today is Sunday). I happened to just lightly pull my hair on accident and a rather large chunk of hair strands came out. I was so shocked I gasped. So now I"m wondering if the rest are just barely hanging on or what the deal is. Hopefully they work but I've had to prepare myself for the chance they may not. Otherwise it's seemed like they have been hanging on....still early thought. I am doing chemo cold caps, not penguin.
I don't know how many of you here are also doing perjeta. My worst side effect, be FAR, has been the stomach cramps and diarrhea. It has been awful with just a few days of relief but I have to be careful what/ how much I eat the other days. Do you all have this too?
Wishing you all the best and no terrible side effects.
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Rosemama - I think the diarrhea is probably from the Taxotere, not the Perjeta. At least that was my experience. Good luck w/the hair.
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After round 4, I noticed darks spots on some of my fingernails. They have slowly gotten darker, but so far it's nothing worse than just dark spots. Is this the first sign of something worse to come (i.e. nail lift)?
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mine were dark much bigger sections of the nails and lefties about 10 weeks PFC. Not everyone's do however. Good luck
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Rosemamma, wishing you success with the caps. I did Penguin. Not sure if you've seen this thread, but you may find it helpful. Lots of support for those going through the capping process here:
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Susan..... I experienced that same itching after my first treatment. WOW was it bad. Kept me up all night and I scratched my butt so hard that I actually scratched the skin right off and ended up with fresh wounds on top of the itching!! The doctor told me to use Benadryl cream on it. I didn't need to, because it never came back again. They did add additional meds (steroids, if I'm not mistaken) to my next treatment and the nurse told me it was probably because I had a reaction the first time. Either way, it never happened again.0 -
Ever - I had a few that looked like that after round 6 and 3 that were much darker. The ones that looked like yours are not lifting. But the really dark ones have lifted. They started lifting about 9 weeks PFC.
Princess - for some reason I thought the nails were going to lift from the nail bed out until I saw your pictures. That really helped. I have 3 that have lifted.
Have a great day everyone.
ddgm
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Everforward -does it hurt or feel numb at your finger tips?
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The nails don't hurt and there's no tingling or numbness. I was so pleased that my nails hadn't given me any problems during the entire treatment (last of 6 rounds is the day after tomorrow), but now I'm worried that they'll start falling off PFC. How unfair!
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Everforward I had a couple nails do what yours have and they did not fall off. Mine were actually a little darker. You may be ok. My Big toes still hurt something fierce though...I am hoping they do not fall off. All the best...M0 -
blownaway - numbness at the fingertips is more likely to be neuropathy, not nail issues. You need to let you MO know about this if you are experiencing this.
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rosemamma- perjeta has literally been the shits for me
I lost 13# in 6 days after my first chemo from the diarrhea. Every treatment seems to have gotten a bit easier, but I still have it for at least 4-5 days. I started using tucks pads and my kids' diaper cream because my bum was so incredibly sore. I also use a steroid cream every day.
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Special K - its on my list of questions - I'll have to read up on neuropathy.
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blownaway - it is nerve damage and is a SE of taxanes and some other chemo agents. The reason to alert your MO is that if it does not resolve by the subsequent tx they may need to do a dose adjustment. This is a SE that has the potential to be permanent so it is important to keep your MO up to date on it. Here is a link from BCO on the subject:
http://www.breastcancer.org/treatment/side_effects/neuropathy
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thanks everyone for all your knowledge
. I will add squirt bottle to the bathroom..why didn't I think of that..lol. Easier than jumping I. Shower every time.Hope everyone is feeling well today
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The nerve damage was cumulative for me. It would clear up before the next treatment except for between 5 & 6. It did get better, but did not clear up completely. I still have some neuropathy on the bottoms of my feet. It has gotten better since the last chemo in May. Hoping for a full recovery.0 -
Same thing for me Ddgm...it was cumulative last two treatments, my fingers are almost completely resolved but the bottoms of my feet still burn. My feet have improved but it is still very annoying. I hope for full recovery for both/all of us.
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SpecialK - Thanks for the link - it mentions the sharp, stabbing pains that Ive been experiencing all over my body, plus constipation, etc. I am on two of the drugs listed that cause neuropathy - go figure. Im going armed with my list next time. My onco was on vacation last appt.
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Hello,
I learned today that I will be taking Taxotere, CarboPlatin, Perjeta and Herceptin. Is this the right forum if my regimen includes Perjeta?
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Hi LLizz - I don't know that there is a thread for that combination yet but this one will be good for you to particpate in reference the three that are discussed here.
There is also a thread for Taxotere Perjeta and Herceptin and I believe that some posting in there also got carbo - so that might be a good place for you also. It is located here...
https://community.breastcancer.org/forum/80/topic/818704?page=1#idx_9
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Liz - since Perjeta for early stage BC is so recently FDA approved there are a bunch of us on this thread who had chemo before that time so were unable to receive Perjeta, but some of the more recently diagnosed ladies are having it, so definitely stay here with us.
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Liz - I agree. We'd love to have you. I had Perjeta with my first round.
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Hello everyone,
I am so glad to have found this group. I am scheduled to begin TCH this Friday. I have "googled" all things related to my situation, but have gotten the most information from this site. I will not be using cold caps, have cut my hair short, and have a wig appointment in the works. I think I am set for Friday, but would love to hear recommendations for the "must have" purchases I should make before then. Also, how soon will I start to get SEs? Friday night? I hope you are all feeling well and thank you for all the valuable information! I feel comforted here and love to read these posts each night!
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Donna: Welcome. If you're taking steroids (like Decadron usually day before, day of & day after) you may not feel too horrible until you're through with those. I had infusions on Wednesday & crashed on Saturday. One thing to check is if they're going to add anti-nausea meds to your infusion. You can probably count on either constipation or diarrhea. Sorry, I know that's not much help. But since we're all different, you may breeze through. I bought meds for every eventuality & never opened many of them. Also, are you going to use ice (or frozen peas) for your nails? If you're going to have a neulasta shot 24 hours after chemo, be sure to take Claritin starting the day of chemo & for a week afterwards. I'm sure lots of others will join in with recommendations. Below is a link to a thread that covers lots of general thoughts.
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