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Taxotere, Carboplatin and Herceptin

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  • suemed8749
    suemed8749 Member Posts: 210
    edited October 2008

    Five kids and no curves to show for it?? I'm getting one foob - Mentor Memory Gel. There's a great video on the Mentor website where they take giant shears and chop an implant in two and you can watch the glop sort of snap back into the implant. I highly recommend it - the red, white, and blue implant on the home page is also a great visual - Mentor: Made in America.  Plus the PS is going to lift the "droopy" boob - can't have one perky and one droopy, now can we? I started a C and plan to remain one.

  • shelbaroni
    shelbaroni Member Posts: 350
    edited October 2008

    Sue;

    Yeah. Trust me. NO curves. I fit perfectly in men's Levis. Sick, huh. I have a Mentor brand tissue expander. I think I'm getting Memory Gel, too. My ps was describing the space age goo, and it sounds very similar to the silly putty you're getting. I wonder if it would pick up the Sunday funnies in mirror image if you took it out and pressed it. Or would it bounce down the stairs? You have to wonder... 

  • cupcake7
    cupcake7 Member Posts: 321
    edited October 2008

    Hey gang.  This was the worst day for me.  Couldn't hardly lift my head off the pillow for most of the day, but thank God no nausea once again.  I can take down time, weak, tired anything, but the nausea.  This time I kept on fluids like Beef consomme, toast, and as much liquids as I could get down.  At first the constipation, but this time instead of running for the double colace/senna I only took one and waited and yep here comes the other way.  My gosh it smelled just like those chemical toilets do.  Figures with the chemicals they put in the body.  I flushed my liver real good then took one Modium AD and after another watery one took a dose of Milk of Mag,  By the second dose it cleared it up.  I think the light foods really do help.  I am weaker than a pop corn poot so going to crash in bed.  Nite all.  Tomorrow around late afternoon I will come out of it some.  Have to let the body rest.

  • gramma23
    gramma23 Member Posts: 482
    edited October 2008

    You girls are both babies compared to me. I am 61! I don't mind being my age if I just felt better. I have had arthritis since I was a child but I have been diag with fibromyalgia since 1991 and had it before that but no one wanted to make that diag. finally my rheum. made the diag. I wish I knew then what I know now because I would have bought long term insurance before the diag. I can not get it now because they say I am more likely to have to go to a Nursing Home. My husband has had both his hips replaced and has arthritis but he could get it. I guess they are betting a man will die of something else before he has to live in a Nursing environment.

    I am wanting to get back to work but they won't let me. Mind you I just feel like this the one week just before my bad poisoning. Then for the 2 weeks after that I am happy I am not working and can baby myself. that is coming up Wed. #5. I am almost there I hope.. I have been eating like crazy because I don't feel like eating after it for a while. I just hope my blood count is good and I can go ahead and get it and not have a blood transfusion. Shelby, I have been visualizing a red blood cell. I hope it helps but I don't have your painting.

    They are having the walk for a cure here in Oklahoma City today. I am not going because we are getting our coats out and seeing what else we need to buy. We had several left from last year so I am hoping we don't have to buy many. My dh asked if I was dreading today since they have to be brought down from upstairs and organized. I told him I would be regretting it tomorrow when I am so sore I can hardly breathe. I also have a class to teach in the morning too.

    Good luck Sue, I am lucky that I just had a lumpectomy but I have a lump near the incision but the doc says it is scar tissue. I asked when I could have a mammogram and he said 6 months after rad. is finished. he thinks it will go away in time. I hope he is right. My breast is always red on the one that I had the lump but no one has told me why. they say they don't know. Hummmm! " I don't know" does not make you feel good about your doc and nurses.

    have a good weekend everyone (if you can).

    Carolyn

  • bethanybeane
    bethanybeane Member Posts: 167
    edited October 2008

    Good morning everybody,

    One week from Monday.....and counting.... to #6. Starting to come out of #5 except for bloating and fatigue.

    Today I want to make a collage for my son, Hunter, who will be 35 on October 19. He's a physics professor, jazz musician and daddy and I want to combine those ideas into something colorful to cheer him through the long dark Seattle winter. He misses the Texas sunshine -- although right about now I'm an ingrate: pretty sick of the hot sun -- at least the heat and lack of rain over the last few months corresponding to "my summer of 2008."Oppressive when you are dragging anyway.

    I think I've asked this before, but am not sure I got an answer: has anyone had problems with eyelid twitching? Drives me crazeeeeeeee!!! They even wiggle when my eyes are closed. Maybe an ativan would help.

    I just want to "brag" that I'm THE youngest person on this board since my birthday is on February 29 and I have had only 15 birthdays! ;-)

    Hope everyone has a relaxing and joy filled weekend.  xox B

  • shelbaroni
    shelbaroni Member Posts: 350
    edited October 2008

    Bethany;

    My eyelid twitching just set off the seismograph on Mount Soledad. 5.2 on the Richter scale. Seriously, it's been bad. Though I have observed that it's been on the decline since my last poisoning, which was August 7. Some stuff takes awhile to go away. I'm finally not snotting out my eyes anymore, either, which is heaven! I'm not sure there's anything you can do about eye twitching. It just happens, and it's normal. I think it's the taxotere.

    You have the same birthday as the protagonist, Fredric, in "Pirates of Penzance", a role which my son Zack played in last spring's school musical. Just don't sign any contracts with a Pirate King!

    Good luck with your collage. All I can picture is a sax or trumpet with physics equations blasting out of the bell over a background of music manuscript paper. Sounds like a fun project! 

  • cupcake7
    cupcake7 Member Posts: 321
    edited October 2008

    Seem to be coming out of it some today.  Still fatigued, but I can deal with that.  The next few days will be unusually tired and no energy, but that is ok too I will get through.  I think allowing myself to rest and I do mean rest even through the steroids and not eating a lot did help me.  I feel better now having a semi handle on the SE (what to expect when helps)  I think I will make the last two doses ok now like the camp chemo song said.  I am blest not to have kids anymore and a husband that takes over and takes care of himself.  I just don't know how you moms do it.  I have enough problems just taking care of me.  Now is the time to start thinking of the Mastectomy and the ins and outs of that.  For those of you who had yours first before Chemo did you do ok?  I mean was it hard to get over the healing?  They are talking about doing the reversal colostomy at the same time.  Do you think that would be too much at once?  I'm ready to move on to the next phase of this cancer.  I want it cut out of my body, or what is left of it.  I just found out they don't have a plastic surgeon at the hospital I go to, but have to go to another branch.  Not sure cause this is the state of the line in new stuff and they don't have a plastic surgeon on staff?  That's strange.  Any questions I should be looking at????

     Carolyn glad to read about hubby. 

    Beth I will be excited to after the 5.  I am so happy for you.  Facing just one more!!!  Don't you think it has went a little easier as it went along???

  • shelbaroni
    shelbaroni Member Posts: 350
    edited October 2008

    Brenda;

    I don't know what kind of mastectomy/recon you're planning, but I had the latissimus flap one, where they pull muscle tissue out of your back to be the vascular supply for the recon. Most of my pain was in my back post-op. I asked my husband what he thought about getting the mastectomy and the hook up at the same time, since he also has had a colostomy for the same reason and reversal. All he could say is that the most pain he had post-op from the reattachment is that first BM. He prayed that God knock him out...and He did. His opinion, having had the reattachment and watching me go through the mastectomy is that it's a bit much to have both at once. But then, if you just have the breast removed with no tissue out of your back or your abdomen (they call that a tram flap), it might be doable. It'll be interesting to hear what the plastic surgeon you decide to work with says. It's good to find a general surgeon and a plastic surgeon who are used to working together, too!

    BTW...as far as those of us with kids. I have thought back on the whole thing, and I think if it was just me and my husband as an old married couple, in a way, chemo would have been harder than it was managing a large family. Because I had constant reminders of what I was going to live for...that I want to see them all grow up, get married, get post graduate degrees or whatever. And the girls...I want to be at all their births. Every day, too, I had "normal" things going on. I helped with homework, took people to baseball games, and read books with them. And it seemed like the more normal things were going on around me, the better. Plus, my youngest two especially are prayer warriors first class who would not let satan get the upper hand when it came to their mom. 

  • bethanybeane
    bethanybeane Member Posts: 167
    edited October 2008
    A paradox,
    A most ingenious paradox!
    We've quips and quibbles heard in flocks,
    But none to beat this paradox!

    Zack as Frederic. Kuhl -- sounds like you have terrific kids. Hunter was John Raitt in "The Pajama Game" and the Prince in "Once upon a Mattress"

    I'm bummed. I wanted to watch Saturday Night Live but our local NBC station and the cable company are having it out b/c the local channel wants to charge. The world is changing and I'm so fofused.

    B -- Not only are my eyes twitching but my the nerves in my teeth feel sensitive -- what the heck could that be? Taxotere pillaging the nervous system. Good grief. I am sooooo tired of this.

  • Kirsten66
    Kirsten66 Member Posts: 5
    edited October 2008

    I am heading for the TCH treatment in about a month...getting my lumpectomy on 10/14 and will start TCH after that for 18 weeks - Herceptin every week for a year, and TC every 3rd week for 18 weeks (6 total).   Radiation after that.  I am SO glad I found this thread specific to TCH.   Yeah, the hair loss will suck but I found the most AWESOME wig place and went with girlfriends to try them on and take pictures...so I'll be as ready as I can be.  It's very helpful to read how people going thru it are managing things...trying to keep up with some exercise seems to be helping a lot of people and it seems like almost everyone had the taste problem with even water being gross.  Waiting for it to start is becoming almost worse than the actual (altho I'm sure I will change that once the side effects hit)...I just want to get started and start weeding through it.  

    Thanks to everyone for sharing everything!   This is SO helpful! 

  • suemed8749
    suemed8749 Member Posts: 210
    edited October 2008

    Hi Kirsten, welcome to the TCH Club, aka Camp Chemo. It's the camp NOBODY want to go to, but there is the benefit of coming here and discussing all the camp activities with all the fellow campers and counselors. Wish the food and drink selections were a little better, but the companionship is great.

    Shel: Remember Flubber? Maybe that's the secret ingredient in the Memory Gel! Although I DO like the idea of being able to pick up the funnies with my foob, I also like the image of bouncing off the gym floor on my right foob and flying so high I can dunk a basketball and win the big game! (Sorry to those who are too young or didn't like goofy Disney movies!)

    Brenda: "weaker than a pop corn poot" . . . ROTFL!!!  I hope you're feeling better today. Seriously, my mastectomy was much easier than I ever thought. A friend brought by flowers the next day, and I shocked her when I opened the door - she didn't even think I'd be home from the hospital yet, much less dressed and watching TV in the living room with my family. I can't comment on having the colostomy reversal at the same time, but I agree with Shel that there's something to be said about having both done at the same time and only having to be anesthetized once.

    All the women on the reconstruction threads tell me that the exchange surgery is a much easier surgery than the mastectomy/expander insertion, so I'm looking forward to having an uneventful procedure on Oct. 14.

    Hi to Carolyn, Bethany (Baby Girl), Aly, and all other TCH Campers. I'm off to the Y - I am determined not to put back on the 25 pounds I lost the hard way since January.

    Sue

  • shelbaroni
    shelbaroni Member Posts: 350
    edited October 2008

    Kirsten;

    Welcome. Yes. I heartily agree that waiting is hard. I was reading this thread before I started in June, and it was almost a relief to actually start! You should make a list of all the things you want to do while you still have hair and feel decent and do them! Not that you will feel horrible the whole time, but there will be enough time that you don't feel "up to par" (now, THAT'S  a euphemism!), that you shouldn't count on, well, running a half marathon or anything. Or save that stuff for after treatment. Or if the opportunity to pose for TreSemme ads for Elle Magazine comes up, take it now. That sort of thing.

    Bethany;

    Sounds like you have a theatrical family as well! Most of my personal experience in theater has been in the pit orchestra (trumpet, French horn) and costuming. But I did play the 70 year old librarian in a community theater production of "The Human Comedy" a few years ago. My husband saw Tina Fey do Palin last night--thought it was really funny. I didn't stay up that late cuz I had to take my daughter to a swim meet at 7 am this morning. I haven't the foggiest about your teeth. You could just need to get a check up. My first check up after chemo, I found out that I have a friggin' WART on my gums! How did THAT happen????

    Sue;

    Yes, I do remember flubber. It would be AWESOME if we could jump chest down on the gym floor with our floobs (foobs made of flubber--we're going to need a Champ Chemo Lexicon before we're through) and propel ourselves up to the basketball hoop! Maybe I've watched too many cartoons over the years! 

  • bethanybeane
    bethanybeane Member Posts: 167
    edited October 2008

    Dear Sue, Ok, I'm on board for prayers and sending you good vibes on Tuesday, October 14.

    Did you lose weight on the chemo???? I have gained 15 pounds and am so bummed even though I knew it was likely. I'm looking forward to getting it off ASAP so that when I do have hair again, I'll feel better about everything. I'm inspired to walk and eat soup and/or do the South Beach Diet...guess I'll have to give up my nightly date with Ben & Jerry. 

    Kristin -- sorry that you've found yourself here. This group provides so much emotional and practical support -- not to mention the humor -- it's good to remember that laughter is the best medicine. I cannot begin to express how grateful I am to have found this thread. I run here every evening at least and -- even if I don't write anything -- I find myself learning and caring about others. That in itself is a good thing in the midst of this craziness -- things seem so out of your control -- and here you can find a sense of not being alone with this. Here are women who totally get what you are going through. Plus, lots of tips for how to take control of side effects.

    Sounds like you've got a positive attitude about the hair thing and, believe me, once it starts to fall out, it's almost a relief to be able to put that part behind you .... Hope you'll stick around and keep us up to date on your treatments. 

    Bethany

  • lwy
    lwy Member Posts: 116
    edited October 2008

    Carolyn- I also had a lumpectomy and still have a lump at the surgical site and it has been more than 1 and 1/2 years. I have already had an MRI and mammogram since the surgery and they keep telling me it is just scar tissue but I have to get another mammogram this december to reevaluate it.  My breast has also been red since the surgery, mainly around the areola area. My oncologist tells me it is because of altered lymphatic flow but I only had a sentinel lymph node biopsy and not the whole axillary dissection so I find it weird. It's still red but hasn't gotten worse and no on seems concerned so it must be normal!

    Leslie 

  • cupcake7
    cupcake7 Member Posts: 321
    edited October 2008

    Thanks Shell for the info.  Latissimus Flap?  I will read up on that one.  Why did you choose that procedure?  I would just imagine the first BM would be awful. Tell your husband thanks for his input. The both surgries at once might be to much, unless I have the removal and do the reconstruct later.  I am leaning on the tummy tuck and boob job at the same time.  Lord knows I have enough of the fat there to use.  I also understand that if they take the breast why radiate?  What are you radiating if you take off the breast? 

    Brother last time is was the awful sores in the vagina and now this time the hemorrhoids flared up.  My gosh I don't even use that area no more with the Colostomy so why in the world world the diarrhea from the chemo flare them up???  I have an e-mail into the onc on that one.  After giving birth 39 years ago with a 10 pound boy (my only birth child)  I have had hemorrhoids, like DAH, but they never bothered me until about a year ago.  I certainly am going to tell them when they re-connect to cut those puppies out, or tie them off, (whatever they do) while they are at it.

    Welcome Kristen to our little camp club.  Hey once you get started you will feel much better cause the worst is just not knowing how it will effect you, and what to expect. Or it was for me anyway. They have tweaked my treatment to the place where I don't have nausea anymore, no bad taste, no mouth sores, etc.  Just the extreme fatigue.  And of course some of the above mentioned nuances.  You may just sail through it some people do.  As far as  the hair it will grow back its no big deal.  Getting well and living a good long life is.  Just put one foot in front of the next and before you know it this will all be behind you.  Come in here and ask questions and let us know how you are doing.  The support is awesome, and something about all of us that is walking it and knows just puts it on a different level from all the other people we talk to. 

  • Seven11
    Seven11 Member Posts: 13
    edited October 2010

    Hi all - just checking in.  I just had my second round of TCH last week and am tolerating it pretty well.  I have 4 more, each three weeks apart so I should be done sometime around Christmas. 

    I lost my hair just before my last treatment which has, well, sucked, but I'm moving forward. 

    Oh, and mine is neo-adjuvant.  

  • Gina_M
    Gina_M Member Posts: 108
    edited October 2008

    Hi everyone -

    I just started a new topic for those of us who want to share experiences with recovering from chemo and starting radiation.

    Gina

  • gramma23
    gramma23 Member Posts: 482
    edited October 2008

    Welcome Kristen, I know you will get lots of help here.I am sorry you have to be here but glad you found us anyway. I have learned I was not the only one with these strange thoughts and feelings. I also am learning how to cope with side effects.

    Bethany I have the eye twitching and I also have my chin, back arm and other parts of my body do that. I am afraid someone will think I am winking at them at times. My chin will quiver like a little kid starting to cry sometimes.I don't know what starts it or why it quits. I have had this problem for years though and I do believe it is a result of my fibromyalgia. I think my cheek ( on my face!) is the worse feeling though. I hope yours goes away after treatment though.

    Iwy, thank you for your info about the lump. It does bother me to think it might not be scar tissue. I will try not to worry.

    I wanted to tell everyone about this weekend. We went out to eat and this young man who was our waiter started to talk to us and you could tell he had a speech problem. After he got our drink order he asked me how I was doing with my treatment. I was wearing a scarf so it was why he asked that. I told him how many treatments I had left. He took off his hat to show us a scar on the back of his head. He had brain cancer at age 14 and he is 28 now and he just wanted to encourage me. I thought he was a sweet person. then that evening we stopped at a local taco place to get my husband supper and the young woman that helped us has cancer of the uterus. she said she wanted more children so she was not wanting to have chemo but she had lymph node involvement. She told me she would pray for me and of course I told her that I would pray for her. I am thinking it is the scarf but then I am really tired from this weekend of being busy so I may look bad too. It is amazing how many have had cancer or having treatments now too.My husband was amazed at people talking to others about it. I told him it helps to say something to other people and get input from them too.

    I know some are having treatments Tues. and mine is Wed. I hope all goes well for us. I am hoping my RBC are up and I don't have to have a blood transfusion.

    Carolyn

  • cupcake7
    cupcake7 Member Posts: 321
    edited October 2008

    Carolyn:  I know what you mean about Cancer is everywhere, or was it, when we were well, didn't notice it as much??  Is it because with today's way of communicating that we hear more of it or is cancer spreading like the malignancy that it is??  I think the latter.  Environment?  Stress?  Food? Many times in down times I think of it, but I just pray for the cure so no one has to go through this treatment anymore.  I have a busy week with Muga, Herceptin, and Colostomy appointments but will check in if I have time.  You all have a wonderful week and chat with you later.

  • shelbaroni
    shelbaroni Member Posts: 350
    edited October 2008

    Brenda;

    As to your question about types of reconstruction and why I chose the lat. flap... a lot of thought, reading, and prayer went into that one. The tram (stomach) one was out of the question for me. I'm quite athletic, need my rectus abdominal muscles, and like to wear 2 piece bathing suits:) When you visit plastic surgeons, they'll let you see books of result pictures. It's really evident when they take out the muscle on one side of your abdomen if you don't have a lot of fat there! Secondly, I decided not to get the straight implants, because there's a higher likelihood of encapsulation, which means kind of a sick puckering around the implant, if you don't have any muscle tissue to be a vascular feed to the reconstruction site. Also, I don't have a lot of fat in my chest, and the implant would just be under a really thin skin. So since I had to have muscle brought in from somewhere, we thought the best option would be the back. The incision is right under my bra line, and even though he took about 60 per cent of my latissimus muscle on the right side, you can't see it to look at me naked. I've regained most of my upper body strength, although I still can't do man push ups yet (which I could do before surgery)...but I'll get it back before ski season. Also the little flap of skin from my side under my arm is what he put on the areola area to make into the nipple later. It's healed beautifully, and when it's done, no one will be able to tell the difference, because all the scars are hidden. 

  • gramma23
    gramma23 Member Posts: 482
    edited October 2008

    Shel, that is real interesting. I never really thought what went into reconstruction but the woman that works next door to the bank I worked at was having reconstructive surgery. I just never talked to her about it since I was not having it. She seemed to do well during her treatments and all she had done. I didn't work with her though and only seen her at pay days most times so I was really not that close to her situation. As Brenda said I think it was something someone else was going through and it didn't involve me. I will never think like that again and when the young woman told me about her problem last night I just felt like crying for her. She was too young for this but then I know cancer does not respect age. One other time they thought I had cancer when I was 29 and was having a hysterectomy and had a lump in my breast too. I was so relieved I did not have cancer that the hysterectomy did not seem like anything. I am hoping this young woman will get the same break. I am not athletic but I certainly do feel better this week and got some walking in. I feel so weak after the chemo I began to think I will be like that forever but then I finally come out of it and can do stuff again. Maybe if I was younger I could bounce back faster.

    Brenda I wish you the best and will be thinking about you and all you will be going through.

    Carolyn

  • suemed8749
    suemed8749 Member Posts: 210
    edited October 2008

    Bethany: Thanks for the prayers and good vibes for next Tuesday. About the weight loss - I actually lost most of it before chemo. I was so stressed, I lost my appetite - I had a lumpectomy and re-excision before the mast, and each new chunk of bad news caused me to eat a little less. I lost about 5 more pounds during chemo, which I've put back on, so I'm trying hard now to keep the rest off. I'm wearing clothes that I couldn't wear last year, and I don't want to pull out the "fat clothes" again! Enjoy your "feeling good week" before #6 next Monday - you're almost there!

    Brenda: Wishing you well this busy week. I was nervous about the second MUGA, but I only dropped 2%, from 74 to 72, so that was good news. I hope all goes well for you.

    klfh: That's about when my hair went, too. Yeah, it sucks, but it does pass. I have a fuzzy scalp now, and my daughters tell me I'm "cute" - uh, right. Best wishes to you as you continue your treatments.

    Everybody have a great week!

    Sue

  • Kirsten66
    Kirsten66 Member Posts: 5
    edited October 2008

    Wow...what a warm welcome!  Thanks, gals!  You all made me smile tonight, and so I will look forward to those smiles when I am feeling shiteous and really need it.   I am happy I found this site and this thread and will continue to keep everyone posted as I go, and to check in on all of you as well. 

    KLFH - you made me LAFF OUT LOUD with your "lost my hair...sucked...moving forward."  Cause, really...what else can we do, huh?  When I was going thru a divorce a decade ago, a friend of mine said "when you look down and find you are walking in sh*t...you just have to keep walking."    Because Lord knows, you don't want to stop where you are and just...stand in it.   Simple, but I liked it. 

    A friend bought me my first "to wear during chemo" hat...a very fun newsboy cap that wouldn't fit over my current head of hair, so I know it will work just fine once I am bald.   Plan on having quite the collection by the time the hairs go.  Going tomorrow to get several inches lopped off so I can start easing into it.  And my sister-in-law Katie emailed me today that she is cutting off 10 inches of her gorgeous, chestnut hair and donating it to "Locks of Love" in my honor.  I of course was blown away.  And when she told my sweet, darling nephews that I wouldn't be able to play this game we call "jet ski" with them for a little while, 6 year old Billy said "that's okay...if she can't play Jet Ski, I will just play a different game with her."    Sniff, sniff.

     Okay, going off to watch some t.v. and...keep on waiting.  ARGH!   Let's get AT it already.  I am SO glad you guys understand that part of it!   Thanks so much and sending out good juju for all of us!

  • cupcake7
    cupcake7 Member Posts: 321
    edited October 2008

    I find myself looking forward to coming in here and reading what you all are doing and the great advice you give.  Shell you sound so wonderfully athletic.  I used to be in younger years.  I think I am the oldest here at 63.  Some days I feel like 80.  I came down with diabetes, and really started taking care of myself, exercising everyday, and eating good foods until this cancer dx.  I can't eat all the fresh veggies I was before...cooked?  YUCK.  Can't wait to get back to them.  Exercise?  I know you say I will feel better if I do, but I swear it is hard to just walk and get around.  The few good days I have would just be that and then back down again.  I will wait until my life again to begin once again.  The only good thing is I have kept off the 63 pounds I lost and my diabetes, outside of the steroids, is in the normal range.  I was feeling better than I ever had for years.  It was good I lost all the weight and got the diabetes under control cause it has helped me through this part of my life.  I would really be in bad shape if I had that too.  I have been reading also that overweight woman have a high reaccourance rate of cancer return so want to keep that in check also.  I have 10 more pounds to go to ideal weight, but haven't tried to loose anymore at this point cause I need some to tied me over through the chemo treatments when I can't eat well.  I go up then back down.  I am also eating more carbs than before for comfort foods.  But like I said I will get back.  I am only concentrating in getting past this chemo and then the next stage of surgery then rads.  I had the MUGA today and it took all I had to get there and home again.  It just whipped me.  I ask if I can find out, but these are the test that go to the onc and I will have to hear from her.  I may e-mail her and maybe she will tell me before the next visit next month. Sue I hope I have as good as read as yours.  That is permanent isn't it?  I heard any damage, even the 2% is non reverable.  ??? 

    Kristen you are funnnee.  Great support family you have too.  That really helps.  So glad you have joined us.  I will be praying for you on the 14th that the surgery will go well.  Did you fill out your profile?  I don't see your stage of cancer on the bottom of your post.

    Well gang time to hit the hay so I can get up and go in for the Herceptin tomorrow.  I don't do well the Herceptin after the big three.  I think cause I am just to tired.  Today certainly didn't help not to be able to rest. 

  • shelbaroni
    shelbaroni Member Posts: 350
    edited October 2008

    Hey Brenda!

    Look at it this way. You're ten years older than me, and I usually eat ten years for breakfast!

    But seriously, your big athletic event is keeping those 63 pounds off. At one time, I worked as a weight control counselor at a couple different centers. I have seen people lose...and gain back...up to 200 pounds! So if you can lose that much and keep it off, it is a major accomplishment. And your body definitely thanks you! God bless your day tomorrow.

    Oh...and you asked earlier about why they would radiate after mastectomy? I think it has to do with having positive nodes. Since the lymphatic system is how these nasty little buggers migrate around the body, like old time riverboat gamblers on the Mississippi. If the sheriff (i.e. rads) doesn't stop them in their tracks, they'll just hop on the next paddlewheel and head down to New Orleans (i.e. your lungs or your bones). That's what I've heard (but the colorful illustrations I made up myself, I must admit.) 

    And Kirsten...I believe Brenda is correct. You ARE funny, which wins you a place in all of our hearts. Memorize the Camp Chemo theme song, which is back about as many pages as the longest book in The Lord of the Rings trilogy, and sing it to your oncologist and the nurse at your first infusion. You will probably be the most popular patient in the office that day. And they'll remember you as the one with the "attitude". 

  • cupcake7
    cupcake7 Member Posts: 321
    edited October 2008

    Shell you are a hoot..I can just picture them hopping on the paddle wheel.  Thanks I do feel really good about the life change for sure. 

    I got the results of the MUGA when I ask the onc nurse at Herceptin treatment today.  It is in my record.  I began with a 62%, ( remember I am an old lady so wouldn't register the 74% as Sue did cause she has a younger heart,) but I only dropped 1% to a 61% so that is good. 

    I am soooo tired today.  It is true that the Herceptin right after the big three is harder on me than usual and the onc says it is because I am weak to start with and get hit again.  I just know this is how it reacts on me.  The next 2 Herceptins won't be bad.  I sail through them.  So with that said back to the couch to get the strength back.    Chat with ya all later....Brenda

  • AlyMarie
    AlyMarie Member Posts: 192
    edited October 2008

    Hey all!  It's been fun reading your posts lately!! :o)  I was just wondering if anybody else got headaches with chemo?  I've had one for about the last week and even my eyeballs hurt.  Someone stop me from going to the OH MY GOD IT'S BRAIN CANCER place (lol!). :o)

    Aly.

  • cupcake7
    cupcake7 Member Posts: 321
    edited October 2008

    Seems like everything now I get I think its the big C.  I have heard of the headaches, but I haven't had any.  You have been on treatment for awhile but  I don't remember you saying you got them before??  Hope it is better.  Tyenol help??  Don't go to the brain cancer place but rather the taxotere as the bad guy cause he causes most of my ailments. 

  • Seven11
    Seven11 Member Posts: 13
    edited October 2010

    Thanks Kirsten.  At some point, we just have to accept our lives for what they are!

    Question for those of you who have been through this.  I am doing neo-adjuvant treatments.  For anyone else who did it, how did you know if your tumor was shrinking?  How many treatments did you have before they ran tests and what kinds of tests did they run?

    I have had two treatments and think the turmor is shrinking, but of course I am not very objective. 

  • AlyMarie
    AlyMarie Member Posts: 192
    edited October 2008

    Hi Brenda!  Yeah, I get headaches all the time (I'm a migraine sufferer) but not usually one that lasts for a week or makes my eyeballs hurt.  I called the doc yesterday and she reassured me that it's a normal side effect.  She gave me the "push extra fluids" speech, which I guess is supposed to help my abdominal cramping, etc. as well so I'll keep trying that.  Tylenol does help but I hate to take it all the time, you know? :o)

    I have my follow up MRI on Friday and man am I scared about that!!