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Taxotere, Carboplatin and Herceptin

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  • gramma23
    gramma23 Member Posts: 482
    edited October 2008

    Cupcake, I am so sorry you had such a horrible day. I will keep you in my prayers. I have to wait until Nov. 6 for my last chemo since my doc is going to be gone and I go see a woman instead on Thur. instead of Wed. I am with you as far as not wanting to do anymore tx. I will of course but I dread it so bad. As for the nose bleeds my book they gave me when I started mentions nosebleeds and tells you what to do if certain things happen like bleeding too much or too long etc. I get my nasty shot right at the chemo lab. I think they are set up a lot different there than some. I guess that is lucky for me but I have to go back the next day for it and I am not sure why I have to make the trip again and not just get it that day. It hurts me so bad and if I have a choice after the last one I will not take it. The Neupogen did not hurt me like Neulasta does but it was 5 shots and it did not help me either so I guess if I have to have one more then I will and be thankful it is over. ( I hope anyway) I will start rad. in Dec I guess.

    I have not seen the movie and I think I won't. I know some have had it worse than me. My emotions are a little on edge right now so I don't need anymore. I don't cry but I get depressed a little. I just want this to be over and for people to quit telling me about those who have cancer that has no hope or that died from it or had damage to other parts from radiation or chemo. I have to trust my doc and go from there . Most of all I have to trust that God is doing the best for me and not think too much. that is one of my problems, thinking too much.

    Carolyn

  • Donalee
    Donalee Member Posts: 106
    edited October 2008

    OMG! Brenda I'm so sorry about those F%^$%$ nurses!!! I have a port and it is easier but not painless so I kinda know (not really) how you felt! Some nurses get it right away and some do it the slow and painful way. I always get blood drawn from my arm though. I had a guy forget to wipe dry the alcohol swab right before the needle went in and it burned like fire!! I couldn't figure out why until the next time when I was actually watching them and saw that they usually WIPE dry the area before inserting the needle! DUH! Then the last time I got blood drawn, I'm all ready for the poke and the girl was so good I couldn't feel it! It was incredible. If I could I would send her to you!! I have seen nurses try over and over and it is just inhumane the pain you must go through! I wish everyone had a port. It hurts but they always get it on one try.

    Good luck today with #5!

    Hugs everyone!

    Donalee

  • gramma23
    gramma23 Member Posts: 482
    edited October 2008

    Donalee, I have a port too but they have to get the blood for the CBC out of my arm. Mine are always good and I have never had a problem with them but I am always tense because my friend who goes the same place I go said they have hurt her. They also give me the blood transfusion in my port and I am thankful for that. I dreamed one time I was trying to take my port out and give it to someone. I always feel bad when I see them putting that treatment in someone's arm. You can tell some have had a lot of sticks to get it right. I can't look at it any more. My husband can always tell when I see that and he tells me not to look. haha!

    Tomorrow I go for Herceptin but it won't be bad.I have to be downtown in the morning for the rheumy at 7 am and then over to the cancer center. I will have to wait a while I guess because they open at 8:30 and it is right across the street so it won't take a minute to get there. We might even get a good parking place!

    My brother found out the lymph node was cancer in his neck but they said he would just have it removed and no treatments. He had radiation because of his cancer on his tongue so I wonder if that caused the lymph node to be cancer or if it keeps him from having to have chemo. I know they will test it once they get it out and things may change. He is so weak now from needing blood and not being able to get it. I hope all is good from then on. Please keep him in your thoughts.

    Carolyn

  • cupcake7
    cupcake7 Member Posts: 321
    edited October 2008

    Donalee thanks.  Yeah I have a port too, but they told me not to let the lab draw from there unless they are from Oncology and your little one that didn't wipe before is a good example.  You trust them to do it right and if that was your port you could have gotten an infection in it and guess what you loose the port for the rest of your chemo.  So when they say "oh you have a port"  I look at them like touch it and you die.  Thanks for listening it helped to vent.

    Carolyn sounds like you and I will be finishing up at the same time.  Mine is November 11th.   Thanks for the info on the nose bleeds.  It just confirms my feelings that it was something to do with the chemo and not just me.  It has stopped so we will see this time if it comes back.  Thank you for the prayers and I will remember you too.  I haven't had any problems with the nasty shot other than hurts when it goes in, I'm lucky I guess cause I have heard all your problems with it, but you especially need it for your low count don't you? I have to go back the next day too.  They said the shot needs to be give 24 hours after chemo.  My WBC was high this time with a 10.8 so don't know why I need it but maybe it just keeps it up there.  We WILL get through this girl.  We will and every time I feel tears I just pray and ask Jesus to come and hold my hand.  So comforting knowing he is there as you know that feeling being a Christian.  Maybe a good cry would be good for you Carolyn.  The movie gave hope, yes at first with the women and what they were facing was and the ones lost, but the end gave me hope.  I understand how you would feel and you need to do what you need to do.  I sometimes think when I get on and get overloaded with to much information its harmful, but I just don't seem like I can stop it.  I WANT to know.  Bad or good I want to know.  I can't remember what you stage or dx was???   My first dx was locally advanced breast cancer stage 111A metastatic to Lymph Nodes.  I think that word Metastatic is bad and I questioned that but she used it loosely beings it has left the tumor and spread to the Lymph Nodes, and most likely microscopic cells are floating around in the blood stream looking for a place to get stuck and grow, but the chemo will wipe those out.  I have good thoughts that they are going to reduce this lump...Lymph Nodes or Tumor??  Get the micro cells blasted out and I will go on with the cancer gone.  Beings Herceptin in only 7 years old they don't really have stats on the longevity, but I am looking at 10 to 20 years.  At my age I will be 83 so that is a good time to go anyway.  My times are in HIS hands and walking this walk has just brought me closer to Him.  I trust Him first and for most like you, then I trust my doctors and the treatment third.  We both are going to do fine Carolyn I just feel it.  I just posted and read about your Brother.  I will continue to hold him up in prayer.  Please let me know how he is doing I really do care.

  • traci1970
    traci1970 Member Posts: 104
    edited October 2008

    I just found this thread and I have laughed and cried while reading it.  I am scheduled for my 4th of 6 TCH treatments this week.  I am flipping out for no good reason.  I am just sick of it and excuse me but pissed off.  I was diagnosed two weeks before my youngest daughters 1st birthday and I have not complained much and I have "been strong" well, screw it.  I am at the point I don't want to be strong.  I want my old life back.  I want to go through a day that breast cancer does not enter my mind.  I want the cute guy behind the counter at Starbucks or wherever to smile at me because I am cute, not because I am bald and he feels sorry for me.  Does anyone else ever feel the same way?  I am normally okay with all of this but today...not so much.  I am sorry to complain  :)

  • Genia
    Genia Member Posts: 1,055
    edited October 2008

    Hi all.....I just found this thread last night and have been reading a lot of your posts.  I too am HER2+ and am on the TCH regimen.......I have had two rounds so far.  My last one was this past Weds. and I am scheduled for 6 of them, with Herceptin for a year.......and Tamoxifen for 5 years.

    My Dr. gives me Neulasta.......and last time my white cells went 4 times higher than they were supposed to.  I seriously thought I was gonna die.  I can't remember ever feeling as bad as I did this past weekend.  I had no fever.......but just was as weak as a kitten.  Couldn't hold my head up and ended up in the ER where the little Doogie Howser Dr. said "Oh it's just your white cells working overtime....they are 4 times higher than they need to be"  But you'll get through this......I wanted to SMACK him.  Let him try feeling like this.......bet he wouldn't be so POSITIVE!!!!

    My Dr. and I are gonna talk about this shot.......I either don't need it.......or I need a lower dose.  Cause I had enough white cells for a super human.........lol

    hugsssss

    Genia

  • Donalee
    Donalee Member Posts: 106
    edited October 2008

    Welcome Genia and Traci1970! Sorrry you girls have to join but glad to have you with us. Speaking for all of us we know just how you feel Traci! Sick and tired of being sick and tired is alost our motto! I'm sick of the sympathy looks also! I picked up my 15 yr. old daughter and a friend of hers today and I don't think he knew I had cancer. (She doesn' t spread the news too much) oooh that look he gave me. Didn't piss me off just made me kind of sad all over again. Sometimes I think I'm normal? Then, "the look" drives it home. Hang in there. My last of 6 chemos was Sept. 17th. My hair has started "showing" now so just today I'm dying it and my scalp red! hahaha, the girls at radiationh will get a kick out of that. I hope it's not pink! I've seen enough of that lately.

    Genia, wow that's crazy about the white cells! I bet you didn't feel Super Human! These Docs really don't know what we're going through!!! Hope your next one is better!

    Hugs to all!

    Donalee

  • kimbly
    kimbly Member Posts: 46
    edited October 2008

    UGH Cupcake so sorry you had such a hard time of it.  I have been really lucky with my blood draws, every other time I get the choice of a finger pic or arm jab. I hate, hate the finger pick so if they let me I do the arm jab.  There is one nurse who will not let me not do the finger prick if it says finger prick...

    I learned a ton from that movie as well.  It really reinforced the feeling of Herceptin being a miracle drug.  Cupcake if you email lifetime tv I think they will send you a copy.  There was a post a while back asking for people interested in hosting viewing parties with a particular woman's name. I will see if I can find it in my email and post it here in another post.  

    Reading all your stories of chemo experiences .. you ladies are all so strong.  I am now 6.5 months out of chemo..still doing herceptin only though until Jan 2.  I even am liking my hair right now. I am in dire need of a trim, funny but the hair is fuzzy a bit on the ends like 'new' hair.. I need that trimmed to get a more styled look soon.  My hair styliest is on maternity leave for a few more weeks and then off I go to get her help!  I also experieced nose bleeds regularily and yes the Neulasta hurt like hec!!! I was so glad when I felt that last one ... 

    Keep strong ladies ... you can do it!!!  (((( hugs )))) 

  • bethanybeane
    bethanybeane Member Posts: 167
    edited October 2008

    Hey everybody and new friends,

    Wish this board was not acting like a revolving door. Sorry to see new people and yet glad to have you here. My heart goes out to all -- new and old.

    I have my simulation day after tomorrow and don't know yet how soon we will start rads -- My last TCH chemo was 10/13. I would like to get some stamina back before I start this brisk routine sometime in November.I have first "all by itself" Herceptin infusion on 11/3 and then every three weeks for a year. Will be strange to go in and walk out knowing that I won't get sicker. 

    Best to all, Bethany

  • shelbaroni
    shelbaroni Member Posts: 350
    edited October 2008

    Welcome Genia and Traci. I wish you smooth sailing through the stormy sea.

    I have no time, really, in between trips with the kids here and there today and trying to get some dinner cooked and onto paper plates to eat in the car. So all I'll say for now is, for those of you who missed the movie, go to www.mylifetimetv.com, and you can actually watch it online. 

    God bless you all! 

  • traci1970
    traci1970 Member Posts: 104
    edited October 2008

    I saw the movie Saturday and it was great.  It was upsetting to see all of the red tape that must be dealt with.  I laugh at my post now.  I think I was having a meltdown.  hahaha  I am much better now. 

    I do h ave a ? for bethanybean.  What is simulation?  I also want to say that I get the tch every three weeks and the herceptin weekly.  I have been getting it weekly from the start.  It is a good feeling on the weeks I only get the herceptin knowing I will not be sick.  It may change to to every three weeks after my chemo is finished.  I am not sure yet. 

    Does anyone know much about dense dosing?  It sounds like it works well but I don't know much about it yet.  God bless you all and I will try to keep my meltdowns under control...:)  traci

  • bethanybeane
    bethanybeane Member Posts: 167
    edited October 2008

    Gosh _____Traci feel free. Melt down here anytime.

    Here's the breastcancer.org link to "simulation" -- it has to do with radiation treatments....they set up the "dials" on the x-ray machine and mark where they're going to point the ray gun every day for 6 weeks.

    http://www.breastcancer.org/treatment/radiation/ext_expect/simulation.jsp 

    Shelby: I like your funny picture with Yorick. It makes me laugh every time I see it. Can you braid your hair yet?

    ~Bethany

  • shelbaroni
    shelbaroni Member Posts: 350
    edited October 2008

    Bethany--Can't do the braid yet. I tried to do Sarah Palin's "glory bun", but I don't quite have enough on top yet. Guess I can't go as a Republican for Halloween. Oh snap!

  • kimbly
    kimbly Member Posts: 46
    edited October 2008

    It is strange going into the chemo infusion room and getting just herceptin, probably because I feel good about going in there contrary to when the chemo was happening. 

  • shelbaroni
    shelbaroni Member Posts: 350
    edited October 2008

    Kimbly---

    The Big H is nothing like chemo. But it can give you the squirts for a day or so (one of the patients in my office calls it her "free eat day" cuz everything she eats comes right out). But I've only had that once, and it wasn't bad. With me, I just kinda feel tired like I'm trying to fight off the flu for a day or so. Don't do what I did and go on a 10 mile hike the day after your H. See how your body responds. It's hard to know how you'll just respond to H when you've always had the T and the C along with it! 

  • traci1970
    traci1970 Member Posts: 104
    edited October 2008

    I get an upset stomache too with the herceptin.  I am getting it weekly now.  I wonder if it will go to every three weeks when I am finished with the big chemo?????  Anyone else get it weekly??

  • shelbaroni
    shelbaroni Member Posts: 350
    edited October 2008

    Traci;

    I asked my chemo nurse why some people get it weekly and some get it once every 3 weeks. Apparently, the weekly protocol is more old school--that's how it was originally given. I prefer every 3 weeks--it takes an hour and a half, but Suite 420 (the "happiest place on earth") is an hour from my house in heavy traffic, so I like to minimize trips.  

  • Kirsten66
    Kirsten66 Member Posts: 5
    edited October 2008

    Hi everyone.  I am back, surgery was last week on Tuesday, 10/14.   It was outpatient but I was scheduled in the early afternoon and didn't get home till...geez, I can barely remember now...close to 10pm (hotel was about 35 mins from my house).  Mom and Dad and boyfriend were with me the whole time.   I definitely was not expecting the surgery to be as difficult to recover from.  Had a partial mastectomy, which I knew going in...my fabulous surgeon wanted to try and save my nipple so much, but because the tumor was right behind it and very close to the surface, she just couldn't.  But I look at its location as a blessing, because it allowed me to find it so early on, and I will get a new "Bionic Nipple" built down the road.  Question on that - does that happen before radiation or after?  I have yet to ask the doctors the question, and I'm sure one of them can tell me, and I'll meet with a plastic surgeon at some point in the coming weeks.  Just wondering if anyone knew off the top of their head.  Haven't looked in the mirror yet at my "semi-boob" but have peeked down at it a few times...still have a "mound" on the sides but flat across the center...it reminds me of a cake in the oven that got deflated in the middle. 

    Haven't had a lot of real "pain", more just soreness where the port went in and under my arm.  Backside of my arm got some pain and numbness, I understand that's because of the node removal.  Nodes were all negative and tumor was 5mm, and she got clean margins, so that was all "good" news, as this stupid disease goes.   The antibiotic I've been on (thru this Friday) makes me feel SO nauseous at times so I walk around with my Saltines and am constantly nibbling...feel like a fatty cuz I normally do not nibble all the time. 

    Was off the rest of last week and came back into work on Monday.   Went home at 4p when I got tired.  Yesterday was bad cuz of the nausea so went home around 3pm and just slept it off and kept on sleeping.  Feel loopy today from all the sleeping and a little "out of it" but pretty okay. 

     Follow-up with surgeon tomorrow morning and really hoping the drain will come out, becuz that is so annoying and irritating and I hate having to keep wearing my boyfriend's baggy shirts.   Was already feeling icky enough after chopping off my hair and now not only can't I really do anything with it cuz of limited range of motion, I am wearing big ole baggy shirts.   I know, I know...I got a loooong road ahead of me still so just suck it up and deal.  I can't believe after this surgery ordeal that this wasn't the worst of it.  That I still have chemo to look forward to.  After that, radiation and recon.  Whatever.   People are much worse off than me.

     Felt SO great finding out the nodes were negative but then I start doing searches about survival and just start panicking all over again.  But, again...nothing much any of us can do about it except press onward, right?  

     Chemo set to start with the cocktail on 11/14.  Mom coming down for that, since she is a retired oncology nurse and that was her "thing", so it'll be good to have her around to help me thru whatever happens.

    Glad to read some of you are doing well, sorry to hear others aren't...it sure is a tough road.

    Prayers and love to everyone!

  • AlyMarie
    AlyMarie Member Posts: 192
    edited October 2008

    Kirsten, ask your doctor about your probability of "cure". I'll bet it's in the 90th percentile somewhere.  Remember, you've got a lot of good things going on.  You had a small tumour, no lymph node involvement and you're getting all the proper follow up "just in case" treatments (chemo, radiation) with the best thing of all being Herceptin!  My tumour was bigger than yours but was also grade 3, ER/PR+ and HER2+ just like you and my probability of long term survival (per the docs) is 92%.  I'd say that's pretty damn good.  Don't read ugly sad stories on the internet, it'll just freak you out.  People always post the negative more than the positive because the negative stuff is what "sells".  I had to learn to stop looking at stuff out there.  We're all gonna get through this and be just fine, I know it!!

    Aly.

  • Kirsten66
    Kirsten66 Member Posts: 5
    edited October 2008

    Oh, AlyMarie...I was having such a hard day, trying to not think about this and just now I peeked back on the message boards for some support and there was your reply, which definitely helped.  My oncologist, whom I love, did say she would talk about probability and stats with me once we had all the info, and I have another appt with her next week.   But thank you, thank you, thank you...it is hard sometimes to read all the negative stuff, even tho we know the negative stuff is out there.   You helped perk me up significantly, and I thank you for that.  God bless you. 

  • Donalee
    Donalee Member Posts: 106
    edited October 2008

    Traci, I got Herceptin every week in between chemo and with chemo every 3 weeks. Now that i'm done with chemo I get Herc. every 3 weeks for a year. It seemed wierd not to go in now every week. But hey, now I started Rads and am there every single day!!! BLAH!

    Kristen, Congrats that your surgery went well and no nodes! yea! Hope you heal well. You're lucky to have someone in the field in your family. That's how I started my treatment. My husbands cousin is in oncology so I know for sure that I started the correct treatment for my dx. Hang in there! I had the exact same surgery. My arm pit was sore the longest.

    Have a great day everyone!!!

    Donalee (aka: too many exclamation marks!!!) hahahaha

    P.S. Can't stop eating chocolate AGAIN!

  • AlyMarie
    AlyMarie Member Posts: 192
    edited October 2008

    Kirsten, you are so welcome.  I'm glad I could help you feel better.  My Onc gave me my stats in the beginning so I could see the difference in potential outcomes based on a range of options from no treatment, to the full whammy (surgery, chemo, radiation) so I could make my choice as to what I wanted to do.  Obviously 92% long term survival probability sounded pretty good to me so I chose the full whammy. :o)

    I know how hard this all is for you. We all do!!!  Just remember that everybody here cares about you and we're always here to lend a shoulder if you need one!

    Alyson

  • cupcake7
    cupcake7 Member Posts: 321
    edited October 2008

    Welcome Genina and Traci to Camp Chemo.  Yes Traci I felt just last week that I was SO done with all this, but a couple of blah days and I picked up the baton and carry it on.  We WILL get through this and it seems the longer this poison goes the harder it is.  I have just gotten number 5 done with yesterday and waiting for the sledge hammer to drop.  Genia I have learned you HAVE to be your own health advocate through this.  Knowledge is power so do the research on your cancer.

    Thanks Kimbly on saying you have nose bleeds to.  The onc just acted like it was something else than the chemo.  Strange I never had them before...

    Beth these new campers are to take over for us like we did for the ladies that just left us and moving on to their next stage.  Thank God this page will go on for others like us.  It has been such a life saver for me to come in and talk to real people in the same boat.  The onc , or the nurses as wonderful as they are just don't have a clue. 

    Traci What is dense dosing?  Is that to do with Rads?  I get Herceptin every week and on the third week they add the Carboplatin and the Taxotere.  After number 6 I will go to every three weeks of Herceptin to complete the year.  I was reading the sight when I googled Dr. Salmon, The guy who invented Herceptin, and read his report.  Very interesting.

    Kirstan great report on your surgery.  One thing behind you.  My onc started the chemo first and then the Surgery and then the Rads.  Guess they are all different. 

  • Genia
    Genia Member Posts: 1,055
    edited October 2008

    FOOD............BLAH!!!!!

    I never ever thought food would make me sick to just think of it......cause I love to eat!!!  I swear since this last go round of chemo and the stupid NeuBLASTA shot.....food tastes horrible to me.  I constantly feel like I have lard in my mouth when I'm trying to eat something......and it's about all I can do to swallow it.  UGH......

    My tongue is sore.......and the roof of my mouth feels burned.  I called the Dr. today and they called me in some liquid to swish around and swallow.  It's called the magic rinse.......and it has maalox, benedryl and xylocaine in it.  It tastes like horse pee........and then it numbed my throat and I couldn't even feel myself swallow anymore.  HECK no wonder it says to take AFTER eating........you would choke if you took it before.......lol

    I HATE HAVING CANCER........I want my old life back.  

    Ok......done ranting and whining now......whew.......just gotta do this every now and then!!!   :)

  • bethanybeane
    bethanybeane Member Posts: 167
    edited October 2008

    Chemo?....does anybody have sore or sensitive skin on the tips of your toes or fingers? I'm hoping it's not peripheral neuropathy.....This is different than joint pain which I have all over -- especially this week --- and actually had before chemo to some extent (fibromyalgia).

    This toe thing feels like I played in the swimming pool too long without my aquabooties.....does this sound familiar to anybody?

    Bethany

  • AlyMarie
    AlyMarie Member Posts: 192
    edited October 2008

    Genia, I really hope you feel better soon.  Yeah, this whole thing really does suck. :o(

    I have a question too.  I think some of you that are on Herceptin only now said you felt a little like you were getting the flu or something after having it.  I just had my first Herceptin only dose on Monday.  I had a cold over the weekend but was pretty much better by Monday.  Today I feel like I'm getting sick all over again.  For those of you who have this experience as well, does it usually take a couple of days to happen?  I'm just wondering if I can blame this on the Herceptin or if I really am getting sick all over again. :o(

    Thanks all!

    Aly.

  • cupcake7
    cupcake7 Member Posts: 321
    edited October 2008

    Genia my second round of chemo I got the mouth sores and got the magic mouth wash for round 3 but it never came so looks like I only got one time of it.  Hope that is with you too.  The cells in your mouth divide rapidly as well as in your throat and intestines so that is what is happening when the Tax/Carbo start killing them off.  Mark on your calendar little happy and sad faces of the days you feel this, the days you feel worse , and then get feeling better and a few treatments you will see your path that this will take with you.  We are all different. This really helped me to know my worst days and see the happy face knowing that day I will be coming out of it.  For me day one was ok, then day two at the end it started making me feel weak.  Day 3 in the evening I was shot, day 5 couldn't lift my head off the pillow...this was my worst day.  By day 6 evening I was feeling a lot better, but still very fatigued.  This lasted until the following 3 days.  Day 10 I was coming out of it.  That has been my pattern.  10 days to kill these little buggers..yep I can do it. 

     Beth yes it is Neuropathy  It is caused by the Steroids.  I guess the chemo too but I know steroids in the form of Decradon does it.  I have it in my feet, and my toe nails are turning dark.  I do know after I stop taking the Steroids it calms down and doesn't hit until I take them again so I am pretty sure once we get past this it will all heal up.  Diabetics, me being one, gets this when Blood Glucose is out of control and that is why there are amputations of feet etc. when people with diabetes don't take care of it and there numbers got el wacko.  It will clear up when your off.  I bet on your good days you don't feel it.  I know for me my feet tickle and can't stop moving them.  If I slap them on the floor when sitting it helps...know why?  It gets the blood to them.

    Aly you sound like me after my big TCH treatment and go back the following Tuesday for Herceptin.  My body is weak from the blast and the Herceptin hits me harder than on the other weeks when it is alone.  I would bet you were just weak from getting over your cold and it hit you harder. 

  • shelbaroni
    shelbaroni Member Posts: 350
    edited October 2008

    Sweet sassy-molassy! This joint was jumpin' today! I just checked in every once in awhile while I was writing, but didn't have time to post. My kids have had me on Indy 500 qualifying pace since 2 pm, so now I'm going to toss in my two cents, which in today's economy, is bupkis minus one.

    Bethany;

    I thought you were done with the Poison. I had that finger/toe stuff a long time ago, and I still have toes that "die", especially after running and/or walking. Yes, I think it is peripheral neuropathy, maybe. But it's reversible. Tell your Royal High Poisoner or his Consort/Proxy. If you're through with your tx's, it's just a matter of time, though. You might end up with some "surprise" nail issues like I had. I thought I was going to escape the nail thing because I just had 4 tx's. But I had kept them manicured and polished. Well, last week, I took off my own polish only to discover that all my fingernails were white halfway down like a badly done French manicure. A couple of them broke and ripped that far, so in self defense, I trimmed them all down to childhood nail-biter length. My two big toenails came completely off. I'm wondering what I'm going to do in ski boots with no big toenails (I usually lose them AFTER the ski trip!) Not that my piddling little sob story competes with those of you actively undergoing treatments...but just to say that some of this stuff shows up late.

    Like...two months plus after my last treatment, I'm FINALLY OFF THE LASIX! Yay! Of course, I still put my legs up the wall in self defense and am probably more anally vigilant about sodium than I've ever been in my life. But I'm off the Lasix. Next to go will be the Ambien. Only because I don't have any refills left:)

    But you know what? I ran a 5K in a little under 29 minutes this morning. Which is as good as I ever was. So if any of you newbies are fitness fanatics, take it from me. If you never let your fitness completely slide, it'll come back. And fast. Comes back faster than your hair, that's for sure!

    GENIA:

    I love your quote! Have I formally welcomed you to Camp Chemo? I hope you find our theme song sometime in your lighter moments. It will make you smile. I promise.

    Please rinse faithfully with your horse piss. Some poor mensch had to hold that horse steady while another more pathetic schlub held the bottle. All that was done for YOU. Seriously, I used the horse piss too, and it was a miracle drug! Everything was tolerable after about 2 swishes. Not to say anything tasted good, though. When we talk about "sewer mouth", you know where we're at. I'd say that's worst about the second week after treatment. For me, it would just be clearing up right before you go in again. Sometimes they ratchet down your dosages the second time if you had a lot of this mouth stuff the first time. That's what happened with me. I didn't even have to do the horse thing second time around. But please. Stick with us. We'll get you through this thing.

    Kirsten:

    I had my surgery (mastectomy and partial reconstruction) last March. It was a weird period. Your emotions are all over the place. Some of my friends are nurses, and they tell me that it takes a really long time just to get the anaesthesia out of your system. So please don't trust how you feel about things and what you're thinking right now. I'm not saying you're nuts; I'm just saying it will pass and even out. Really.

    BUT THE BIG THING IS THAT YOUR NODES ARE NEGATIVE! PRAISE GOD!

    Yes, the baggy shirts are weird at first. I'm turning 54 Nov. 2, but shop in the juniors' dept. with my 20 yr. old daughter, and it was weird for me, with all the drains and all. I thought I would always look post-surgical. But a couple months after surgery, I was in a swimsuit and yoga clothes!

    Hang out with us. We'll put the cherry in your cocktail!

    Donalee;

    Maybe you and the French boy need to make chocolate crepes? That DOES sound good!

    Aly:

    You're becoming the socioemotional leader of this group. I'm proud of you. Just loving everyone up and making them feel special. You're kicking butt and takin' names these days. I'm loving it!

    Holy schnikes! This thing reads like a parody of one of the apostle Paul's epistles! How ridiculous. I'll sign off. You guys are really special to me. I hope you know that.

    Shelby 

  • Donalee
    Donalee Member Posts: 106
    edited October 2008

    OH Shel! hahahahaha! You write beautifully!

    Did you get your book published yet? I'd love to read it!

    I know you are a supplement and vitamin 'guru'. So I have a question for you. I assumed that since I was a month away from chemo I could start taking vitamins. So I started taking Ester C, vitamin D, and iron, along with some antioxident/supplements. I saw my rad onc yesterday and I asked him if taking vitamins was O.K. and he said no antioxidents. What exactly did he mean. Vitamin C? and/or all vitamins? I'm a little dumb in this area. You would think they would tell you this before the start of radiation but they must assume we all know everything!

    THANKS for the crepe idea. Valentin told me the other day he loves crepes and would give me his mother's recipe. Now my mouth is watering. Gotta go eat the last chocolate left!

    I am so sorry to all of you with sewer mouth for this post. I never liked chocolate like this before, chemo changed that. The only thing that I liked was chocolate and lemons. Put lots of lemons in your water, it makes it easier to drink.

    Hugs to all!

    Donalee

  • Genia
    Genia Member Posts: 1,055
    edited October 2008

    Thank you for such a warm welcome here.......I feel so blessed to have all of you!!!

    I had some warm hot chocolate last night........and I was was smackin my lips it tasted soooo good!!!  That's the first thing I've had that I could "TASTE" since last Weds.  

    I find it so amazing the things I took for granted before cancer.......and before starting my toxic dump!!!   I look so forward to that week before chemo when I can eat without feeling like I'm gonna HURL..........ugh!!!

    hugssssss and hope everyone has a terrific, feel good day!

    Genia