Bottle o Tamoxifen
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Artemis I'm with you mmmmPicard
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What does everyone get reccomended as far as alcohol goes? I make my own wine and am debating making very much this year so I am not tempted. I love my daily dose and have been only having a couple of glasses a week since diagnosed.
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Hello EVERYONE!!!!!
I have a drink now and then. I enjoy relaxing with a cocktail. So far the tamxoifen has giving me very little s/e....hotflashes...yahhhhh
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I have, so far, decided not to drink alcohol. I read it releases estrogen into your bloodstream, promotes fat storage and decreses muscle. I am doing so much to balance and metabolise estrogen, for now I'm not doing it. Though, I tell you, I do miss an occasional glass of wine!!! Not sure if this will be a forever thing with me. But trying it now! Husband doesn't drink, so it's sort of easy...
Have been on Tamoxifen 3 months! I get hot flashes, sometimes vaginal discharge (comes and goes). No other SE's, pretty simple so far...
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Greetings Tamox Tsarinas -
I just took my very first Tamox tablet at 11:00 a.m. and feel pleasantly high and rather floaty!
The only other medication I take is Xanax, which I take at 7am each morning.
I read that there are no contraindications with Xanax - even my med onco informed me of same.
Perchance this is a side effect that no one has yet mentioned? Has anyone else ever experienced this feeling?
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britt- dudette, you are makin my day. that would be an absolute total riot if I got high on Tamoxifen combined with Xanax.
my ONC said I could take Xanax with Tamox- but I have only been taking it "as needed" to control my night time eating compulsion pre-BC, and then of course I was eating them like M&Ms from DX to Surgery... but i was asking if I could take the Xanax if I got mood problems on Tamox instead of Effexor, since I already knew their effect and he said that'd be fine.
Spring- you remain the voice of good news!
Artemis... I have three words for you and your Captain Morgan's spicy Rum invite to your berth.... and you know what they are...
BEAM ME UP!
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Rachel!
Yes, I have been taking Xanax for "free-floating anxiety disorder" every day for the past 8 years. My med onco knows my history and how much I take each day and insisted that taking the Tamox would be absolutely no problem whatsoever. I decided not to take the medications at the same time, since I am very paranoid about stuff like that!
Anyway, the Tamox metabolism test categorized me as an "extensive metabolizer" and I am still getting my periods at the cougaresque age of 52 . . . and I am due any day now.
Well, anything to help my own personal Tamox Train along . . . perhaps taking the Xanax will prevent any mood problems - hopefully! But I feel like I just took a Vicodin! And I did eat breakfast so it was not on an empty stomach!
I shall see if I feel this way each day. It may be just taking the first Tamox that is causing this delicious feeling . . . and as each day goes by, I may become accustomed to the dosage, and I will be my usual delightfully cynical self!
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Helena - there is ABSOLUTELY definitive research showing that drinking alcohol - beer, wine, even organic wine, spirits - increases estrogen levels thus increasing your chances of getting breast cancer.
That said, I think quality of life trumps risk, and I still have a few glasses of wine a week - everything in moderation, right? During my active treatment, however, I did not drink a drop.
I always read through these posts and have a dozen or more responses that I want to post, then by the time I get to the end, I've forgotten everything. So sad.
By the way - had my Pap and bone scan. Yesterday had the ultrasound on that lump, tomorrow will have a mammogram tomorrow. It will be about a week before I know if I need a biopsy.
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Britt, I wish I got high from Tamox! Too funny!!
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Hello Ladies....just hangin" out and tryin" to catch up here...dag guum(sp'?) laptop will not work..prob. to many days spent on deck smokn' and chattn'....well...my quit date is this Sunday..after a GR8 time sat...lol.. gotta do it...pretty dumb that I even continued after my Mom died last year of Lung Cancer...I'll make it though..been planning this for a few weeks now...wrote all over my last carton.."LAST ONE...NO MORE"....2 weeks on Tam. now and I think I'm ok so far...still early I know..Being positve!!.....jules
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Munchy sending you good vibes and sent a prayer for you on your tests... .
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Good Luck Jules! You can do it!!
Munchy, praying for good results too!
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Britt, I take it at night maybe I would otherwise notice something, but haven't heard anyone else mention that, or maybe you're the first one to admit it? Cracks me up, hope you're not driving until you find out if the effect is temporary or not. Have fun with it
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Leggy~~~ I also have rib pain and back, my med onc said it was normal. I had 2 surgeries and really did not follow the dr orders ( no lifting) I have a 4 yr old who still likes to be held. I also continued all my house work etc. But if it persists, I think I will ask the surgeon when I go for my 6 mth c/u, and my rads onc when I go for my 3 mth c/u. One is July 23 and the other is July 29 so I will get 2 opinions and maybe different options. I have been resting my left arm as much as possible to help alleviate the pain.
I have been trying to have some sex, but the kids just will not go to bed early enough or leave us alone long enough. My 11 yr old is starting to question everything. He got quite an education on the bus.
Still doing okay on tamox. A few hot flashes, followed by cold flashes. Seriously, if I have a hotflash at night, afterward I am freezing. WHich is great for summer, I can save on the AC.
My husband has just started having hotflashes, now maybe he will understand a little of what I am going thru. Have a good day and enjoy life, one day at a time. Remember this to will pass, eventually.
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I know - my med onco told me to take it in the morning - so I selected 11:00 am as a good time, since I take my Xanax at 7 am. And I am not driving until I discover whether or not this effect is just the result of my body getting accustomed to the medication. Also no wine in the interim!!!! I know, it is rather amusing, and I am enjoying it! Such a nice feeling of peace, serenity and relaxation - who knows, I make take it tomorrow and turn into a flaming shrew!
If anyone else ever experienced this side effect, I am surprised they never mentioned it - it does make Tamox sound a bit less formidable!
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Munchy, report back, Okay?? Thinking of you. I went to the GYN last month and she said she felt a lump in my tummy, and wanted an ultrasound, UGH. It was nothing but freaked me the HECK OUT!!! I guess this will be how it is now. All these things we used to think, ah whatever, it's nothing... No longer!!! But everything was okay... Chin up!
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Munchy- I totally know what you mean about wanting to respond to each post and then forgetting by the time i got to post. Sometimes (like now) I start to write the post at the bottom of the page, then scroll back up, read the next post... etc. Meanwhile, I was all hot and bothered (well not as hot and bothered as I will be on Tamox...) to find this proof about alcohol and estrogen, because you didn't cite an article... but a simple google pulled this up:
http://www.cancer.org/docroot/NWS/content/update/NWS_1_1xU_Alcohol_Increases_Hormone_Levels__Raising_Breast_Cancer_Risk.asp and it's the American Cancer Society, so I can't even say its some hokey for-profit site... damn. But like you say... gotta live. 5 years and the occasional libation... feh! Fingers crossed for your tests to come back clear
And someone here is a long time Tamox user, they said they had either their period or the hot flashes each month. Well aint that a fun way to pass each month? Argh. I need a drink already. Or a Xanax.
Britt the cougar...
Linda- gotta combine it with Xanax to see if you get high! This could become quite the thread if we all did that... and I'd buy stock in Tamoxifen...
Jules- good luck with quitting smoking. Smoking quit me in the 80s, I was the most inconsiderate smoker, now I get sick if I get a whiff from a smoker 20 yds away from me outdoors...karma is a bitch. But my skin is nicer, my fingers and teeth are nicer. my breath is nicer, I feel good about not feeding the big tobacco corporations, not having to clean up the ashtrays, being able to not only have a conversation or enter a party without a cig in my hand but also knowing when someone else feels insecure- when i see them go for a cig. Very very sorry about your mom.
Mary- rofl "sex eduation on the bus". Hey, that's where I learned most too. Wonder what it about those school buses? You serious about hubby getting hot flashes?
Spring- yeah, from now on if you stub your toe they are going to check it for cancer first. Which actually, is good. But it still freaks me out.
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Jules -
Very best wishes on your quitting smoking - if you can do it with everything else going on, you are a superstar!
I quit 28 years ago. Felt like I had lost my best friend for 10 months. Then, it got better!
Now I can walk much farther than I could in my 20s! And, I can smell the flowers along the way.
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Sign me up for some Xanax too! A month of rain and I could really use it!
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Hi, all. I've been on the Tam Train for a week now and have found this board so helpful -- thank you to everybody for sharing so generously. For those gals who've had SEs -- when did those kick in? I haven't really had any yet, except some irritability that may just be PMS (or just me!!), and am starting to worry I'm not metabolizing the tam. Still waiting on CYP2D6 results, so we'll see.
One thing on the alcohol question (from one who adores her glass of wine or beer in the evenings): while my onc said I should probably try to drink as little as possible given the ER+ thing and alcohol, a big-time nutritionist I met with said it's probably not so much alcohol itself that's the problem, but how our body "clears" it. Her recommendation was to go ahead and drink moderately, but be sure to eat some protein along with any alcohol, b/c that helps the liver, etc. clear it better.
I need to ask her more about all that when we meet again in July, but for now I've been trying to follow her advice, and also am trying to keep to 1-2 glasses a week...very hard in these lovely summertime evenings!!
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Morning everyone, Britt congratulations I hope the ride is SE free! Love cougaresque LOL.
Munchy, I guess I am in denial about alcohol as I deem it a necessary evil. Sometimes I can go for a week without a drink but I certainly don't want to drink more than what I already do. Being slim I feel I have already reduced the risk a little .... perhaps, maybe .... Why is all the good stuff bad for you? Good luck with all your test results, we are all sending positive thoughts and wishes for you. (((hugs))))
Mary - trying to have sex .... now there's an idea .... maybe not. As for the sex education on the bus, I think I need a few trips to update myself after hearing my 7 year old and 10 year olds lessons. What the...
Hi Jules ... good luck with the quitting smoking ... I wish my DH would start with you. Are you doing patches or going cold turkey?
Rachel - didn't even bother reading your link - yep there's that denial again. hey what do you do....
Off to work today after two weeks off.
have a great day
Helena
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Helena- just as long as they don't mess with chocolate. I didn't really read the link either
And my ONC said it was OK so... it's not denial. pjclarky- yeah you hit the nail on the head. I remember the first time I could smell something again that I couldn't before. There was a guard working the night shift where I was working the night shift. I met him one night on his rounds he found me at my desk, had a nice chat. The next night I smelled Brut before he even walked in the door. So... at least I was prepared for him having a crush on me.
I found this update post from holtbolt about how she told her son she won the contest- you all remember voting. I can see in her post history she posted twice and it was about midnight so my guess is that she was just too pooped to post. So, here's what she said- it's pretty cool!
Okay..... what a day!!! Max is stunned.. overcome with sheer joy ... I cannot tell you how happy we are at this moment... he is texting, emailing like a crazy person... he will NOT be sleeping tonight...So, we are eating spagetti.. and we (my husband and I) decided to play the game "if you could meet anybody (dead or alive) who would it be......." So, I went first and said mine.. 1) Elvis and 2) Rod Stewart (I'm a huge fan)... then my husband went next and I don't even remember what his two were because I was so excited I wasn't listening.. and then we said Max .. who are your picks.. and I kid you not.. he says...Well, 1) Joe Perry and 2) Stephen Tyler... !! So, I said .. you know what? You ARE meeting them Wednesday night.... and he said "What??" with this Very confused look... like he couldn't comprehend what I just said (or he's wondering how his own mom could be so cruel as to make a joke like that I don't know (lol)..... and I started to explain and he just stared and you could tell (as we explained about the contest and people voting, etc..) that it was clickin in that this was somehow Real.. and the tears welled up and he's rubbin his eyes.. and the chin quivered a little and....... well... I have never seen him happier..... he is totally shocked... and happy and... I don't know.. .... you know... during chemo... it killed me every day seeing his face when he came in from school..... he always came in the door at 3:25 and had this scared/worried look like every day he didn't know what he'd see when he walked in (some days I looked ok (wig, makeup, somewhat normal), some days I did not.. pretty scary)... I will never forget that scared/worried look when he came through the door with this backpack.... THIS... was a different look.. this look tonight... sheer happiness and joy.. this is the best day I have had in a Very very long time... life is good
We cannot WAIT for Wednesday... first we are invited to a VIP Pre show party (Joey Kramer will be there. the drummer)... food, drinks, contests for more prizes... then the meet & greet with Stephen and Joe (pictures, autographs)... then the CONCERT ... OMG.. we are so so excited... we can't stand it... (oh yeah... they also send him some exclusive Aerosmith gift bag.. stuff from the fan site store)... Ahhh!!I know this might sound silly (this contest) to some people...and I realize it's a small victory in the whole scheme of things.. but you know.. it meant a lot to me to make him smile... and this would simply NOT have happened without you guys!!! Thank you!!P.S. I cut and pasted this from the other thread.. sorry if you had to read it twice!! lol I'm exhausted! lol
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Hey Rachel, is the ex looking to stay with you, when he comes to visit? If so, wear that dress!!! Wait, he might never leave then. Thanks for the info. I looked at the onc. email again, and I guess, I have to stick up for him, a little. He did say he thought my pain, was chemo./rads. related, under my left breast. Although, my whole rib cage hurts, on both sides. But this is the first time he would say, it might be a SE. I read what I feared, and not all that he wrote.
FEAR NOT, ONLY BELIEVE is my new mantra..
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Leggy- on not being able to read the whole letter...terror will do that to a person... that's where denial comes in! Sometimes... denial is a good thing!
Like, do whatever you can and then practice denial so you can get on with your life... 
Sometimes... Xanax is a good thing!!!! har har har! 0 -
Don't know about the rest of you but I don't want to care about medical things today. I am feeling pretty good in general. My father drove 1,200 miles to see my baldness in person. I'll see him tomorrow. I think I'll take him to a small town nearby where they party down on the 4th. I had a couple of visits with the ADA enforcers at work this week. The women I am dealing with rolled up in her wheelchair, one hand not fully formed and immobile, great haircut, comfortable clothing. She is so smart, cool and experienced. This will be a very fluid and positive process for me. I am soooo glad because my direct supervisors are not the easist people to deal with. The nice lady in the wheelchair is going to keep them in line for me. Yeah!
I worked about just now. Is Coldplay uncool now or something? I have no idea. They are perfect for working out. My cat is outside rolling in the dirt and my daylilies bloomed today. Also I asked my BF to take off his gatchies so I could see and he did. He's cute. Life is Great!
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I just realized I'm YOTH. I did that to myself. I feel like goofing around tonight. My naked lovely is sleeping and I don't feel like reading Wuthering Heights anymore. It's overdue today anyway.
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I know one thing, I'll get a bottle of wine for the 4th! A nice Cab. to wash down, some protein, like a big fat steak....Why not!
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Wow, after 2 days away, it just took me forever to read all the posts! And I've already forgotten who asked what. I've been on tamoxifen since mid Nov. and the side effects seem to come and go except for the hot flashes and libido problems. I was perimenopausal, skipping periods for months at a time before this whole thing started, and still have that happening. Last period was mid March, and I'm thinking was that the last one? I've thought that before though, only to suddenly be surprised by it again, so I won't know until it's been a full year, I guess.
Hot flashes I was having before tamoxifen, but they have intensified and increased since. Vaginal discharge comes and goes, as do bone/joint pains, although my right knee has been feeling arthritic pretty much the whole time now that I think about it, but ibuprofen does help and I'm also trying curcumin, suggested by my Onc for joint pains. Been on it for 5 days now and I do think it might be helping.
I had sexual problems before the tamoxifen, and now in addition to that, it's just become so hard to feel anything at all, I'm now getting some performance anxiety over the whole thing, thinking nothing is going to work, so why bother. I was prescribed Wellbutrin by my Onc to help the libido, and amazingly enough, it brought back the sensations and made it a lot easier to get to the finish too, but alas, it gave me such heart palpitations/anxiety feelings, I had to go off of it. Damn. But I'm still searching for something else. (See all my posts on the Mojo board. Or PM me if you want more info on any of this).
I had some crazy, frequent crying spells a few months back, but I think that might have been triggered more by some very upsetting life events that were going on since August. I haven't cried like that for many weeks now. I always had depressed moods right before my period, so maybe I'm really done with the period and that's why my mood has remained stable. Or maybe the wellbutrin had some effect on the mood. Or maybe I'm getting over the things that were upsetting me.
I"m so ambivalent about taking this medication, just took a week's break from the tamoxifen to see if any symptoms would go away or if I would still have them anyway due to the whole menopausal thing going on and I think the hot flashes have decreased a bit, but everything else is the same. I probably need to stay off it for a month to really know for sure, but I've started getting worried that maybe it's a bad idea, so will probably start taking it again sometime this week, Just refilled the Rx today. I keep planning that one day I will join the Natural girls and just stop taking it for good and go the alternative route completely, but I can't just bring myself to do that yet. Maybe after I do a full year of it......
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YOTH - what the hell are gatchies ..... my mind is racing with possibilities .... what did you see?!!! Hope you are enjoying your day without medical crap - but I guess with the gatchies strip you probably are .....
Rose - wow your post sounds familiar ... I too took a break from Tamoxifen (started Feb 09) - my onc said take a month - I took 2 weeks - too scared. Anyway didn't feel too much better during that time although my mood did lift a little but since going back on I feel really good. I hope it works for you too. I had the crying spell thing real bad 3 months into Tamoxifen.
As for the sex thing, well my DH and I had issues before I was diagnosed last October, and don't freak out everyone, but in a couple of weeks it will be about 1 year since we had sex. Like you said Rose I am really getting anxiety about resuming the whole thing again (mind you I now have two pretty cute new foobs to replace my horrendous monster expanders) - I know I'm going to be the one to instigate it as well - hey but once back in the saddle!!!
I'm obviously home from work and I'm back at this board again - can it be classed as BC porn - I feel addicted. Oh well I'll just add it to my growing list of things I am in denial about.
soft hugs
Helena
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RoseG, most of the things that the natural girls do, like avoiding soy, looking for better food sources, and adding vitamins can be done while you are still taking Tamoxifen, so there is no need to wait.
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