Bottle o Tamoxifen
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Rachel,
Hmmmm...never heard of madmen until now and have no idea what it is -- so I tried to check out the link you sent just to find out, but it wants some kind of flash player I don't have (and am unmotivated to spend who knows how long on my dialup connection finding) -- so, I guess I'll never really know. LOL, that's OK. Those avatars look kind of "too cheerful" for my taste anyway.
So Julia Child had breast cancer, huh? Guess I'll go read that article..I remember my mother watching Julia Child's show when I was a kid.
Hope you're having a good day. I got up a little too early (in spite of the Ambien), but not too bad and I didn't even come close to waking up in the middle of the night. Progress! :-)
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Hmmm, Rachel, I think something's wrong with the Julia Child breast cancer link. I got a blank page
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Leggy- Arthritis is no fun, I am 49 and had a hip replacement in October 2008. The hip feels much better but I do have some restrictions that are lifetime. I am working on moving in ways that do not risk dislocation and doing ok. I do some moves I know I should not but can. The Ortho has warned me to be careful especially this first year but also said if I can physically can it is probably ok, but I do watch it and am trying to do things int he garden with less bending. I also have arthritis in the other hip, knees, wrist, ankle everywhere really. I also have a Morten's Nueroma in my foot. I take Naprosyn, 500-1000 mg daily depends on how I feel, Glucosimine, Tumeric and Fish oil. Most days I feel pretty good but try to do things an hour or so and then sit for a bit and then go back at. I sit when I can do things also. I find that activity makes it better, too much in activity stiffens me up too much. Try to learn how to do the things you like that don't hurt. Hope this helps.
Helena- I am praying your numbers come in lower, I am sure they will.
Rachael, great research as always, hope you get the mess cleaned p I really feel for you. You are right, the fatigue really knocks you down I find I am taking more short naps. Took Darvocet last night because I was really sore, slept good.
I see the Thyroid specialist Tuesday about the lumps on my thyroid, hope it goes well and she thinks it is alright to wait until after Rads to biopsy.
To ALL CANCER SUCKS, but I will not let it stop my life, it sure puts a lot of road blocks and restrictions in but I will work around and thru them.
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Hello and Happy Saturday!!!!! Yes Lena this is truly a fun bunch of gals to hang with.
I have to venture to the grocery store today.
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I too have been on for three weeks and only minimal a little discharge but had hot flashes prior and they do not seem to be too bad maybe a bit more frequent but livable!
PM me too if you want to hook up via facebook
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Helena QOTD... nice to see you at the party!!!
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I'm glad I looked for this thread again. I start Tamoxifen....tomorrow (just decided to give myself one more day). After my first breast cancer, I was prescribed no hormonal therapy (very long story involving multiple oncologists). After my second adventure with breast ca, I took Arimidex for over a year, then I decided no more tremendous, significant side effects with abysmal quality of life, so I switched to Evista and gained new, improved (remember it's almost always relative) quality of life. Well, I started my third cancer experience (chest wall this time) in January '09, and now, after biopsy, T/C chemo, and more surgery, I will be starting Tamoxifen. I'm approaching it with a positive outlook but I am not naive. I will continue to check in here for wisdom and support (and hopefully to offer such as I can)!
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Carollynn and Leggy,
I had a hip replacement in April 08. Carollynn, it sounds like I may have fewer restrictions than you. About the only restrictions I have is no jogging or high impact sports. I can hike, climb, go to yoga and pilates class, etc. My surgeon used the anterior approach, which is why I chose him. He said it would be almost impossible for me to dislocate, due to the design of the prosthesis. Leggy, if your arthritis is severe enough for a hip replacement to be an option, I'd say go for it. I fought the idea for a long time, but am so glad I had it. It is great to have a working hip joint and no pain.
Carollyn, I also have a Morton's Neruroma. I suspect it was caused by favoring my 'good' leg for so long before the hip replacement. As long as I wear inserts in my shoes, it doesn't really bother me.
I take tumeric too, as an anti inflamatory, and calcium and fish oil with added D3. Plus tamoxifen of course. Just to keep things on subject. . . When I started taking tamoxifen last October, my major side effect were leg and hip (on the non surgical side) pains at night. I haven't noticed the pains as much, but have noticed that I am feeling emotionally flat. I wouldn't say I am depressed, but I am not enjoying things as much as I used to. And my libido is missing in action.0 -
Hi gang, haven't you all been really busy posting, it's taken me ages to catch up!!! Well 10 days into Tamox - no major problems. Had a couple of night-time hot flashes but it's manageable, tiny increase in discharge, main problem is the aches and pains - my poor feet are just agony! I guess it could be a lot worse if I wasn't taking the pain killers. And I'm still a bit sore after rads too. Still keeping up the exercise - don't know where I'm getting the will power and the energy. Well actually I think I do - it's probably unadulterated fear of recurrance!!!
Mary - Delighted to hear you got your test results and that you are happy.
Leggy - At last. Arthritis is no joke but I understand how relieved you must be that it's not stupid cancer!!
HelenaJ - I'm rooting for a 29 or less for you - stupid test, stupid BC!!
Rachel - Such a flair for the high life - those pics are priceless!! Oh I sympathize with you about the pain in your foot. I get such a pain in my big toe I think I could locate ever bone just by where it pains!! Hope the pink eye is unpinked soon. Don't know how you manage to stay so upbeat after that fire and everything.
Lena - Glad to hear you are feeling a tinesy bit better - slow and steady wins the race!!
Brenda - 3rd times a charm - huh!!! Hope you get as much support as you need here - and sometimes you'll get a good laugh too.
Hello to everyone else - hope the weekend is going well for you. Will check in again soon.
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Hi everyone, Thanks to Lisa and Carollyn, yep arthritis is no joke, but the alternative was freaking me out, especially after the doctor said "I don't think it's cancer related, but need to rule it out"...Yikes anyway, I'm going to get glue. and turmeric, but I've never seen the turmeric. Where do you get it? Is it any place you buy vitamins?
Rachel, Helena, and Mary those pic's are so cute!
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Oh that made me laugh out loud... just a classic ...cheers Rachel ... (look after yourself please, hugs for your redeye and foot).
Once again I have written everything down but in short everyone take it easy whether it is going to the grocery store (well done Mary) or starting on Tamoxifen (brenda ..hugs) or getting tests (carollynn ..hugs) and getting energy to get up and go again (ainm..hugs).
Meg - no se's - well ain't that great!! Silver linings everywhere
10mg could be the trick???!!!!have a wonderfu day
big hugs
Helena
ps. whenever I need a pick-me-up I am going to look at us partying Rachel...LOL
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Leggy, I buy tumeric (in capsule form) at our local version of Whole Foods. I think most stores that sell vitamins and supplements would have it. I've only been taking it for a few weeks, but I think it is helpful.
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Carollyn, your only 49 and had a hip replacement, you poor thing! How long did you have to suffer, before they did it? My doctor said my arthritic hip was degenerative, but minor, I can't imagine, what you'd have to go through, before they considered it major. I don't know about the Morton's neruroma, but I can barely feel my feet anyway, from chemo...neuropathy. My feet feel like they've gone to sleep, and I have sand in my shoes.
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Oh hey, I didn't mean to complain about the stupid pink eye or the foot thing, just that some stuff is just stuff, not cancer related or tamoxirelated... anyone remember when you didn't worry that some small pain was cancer? F*cking cancer.
Brendatrue- nice to see ya here. I read up on your posts, you are one graceful lady. I am hoping that Tamoxifen works it's miracles on you, and you stay NED
Leggy-madmenyourself.com but.. they don't have a doggie yet. Mad Men is a TV show on American Movie Classics that's set in the 50's-60's. I stopped watching but loved the details they capture from that time... so this is just a web site where you can create an image of yourself, you pick your face, eyes nose mouth, body type, clothing... and voilà, you download your cartoon image. I think it's nice to see myself in the same place as youse guys.
I slept most of today away. Strange. My kid was sleeping all day too. Woke up to care for the kiddie... but barely functioning... The nanny showed up, I went back to bed and slept until noon. Well at least I got a workout in tonight.
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Lena - I am still not sleeping through the night. My hot flashes have gotten worse since I've been on the Tamoxifen for almost a month now. This is really the only SE I have been having so I feel lucky that way. I still wake even when I take Ambien CR. I was prescribed a 30 day way back in March for chemo SE's and take it sparingly. I had an episode when I took it and I was woken up by my DD's friend 2 hours later around 1:00. My daughter was hysterical over a boy problem and was calling her friend who was away. The friend called me because she was worried about my DD. I went outside and found her boyfriend's friends but no DD. She was off trying to "work things out with BF". Apparently I said some choice things that I do not remember and "could not be repeated"and now the boyfriend is offended and won't acknowledge me & DH. .SE's can be forgetfullness, aggression, sleepwalking, etc if you don't get 7-8 hours of sleep, I guess I was in a semi-stupor when all this happened and now I am the "badguy". DD will be going back to school in 3 weeks, about 4.5 hours from BF. Just hope she "wakes up". Anyway moral of the story - MAKE SURE TO GET 7-8 HOURS OF SLEEP ON AMBIEN!!! I am almost wondering if I'll sleep better once she is back at school and I won't know that she is out till 2 or 3 in the morning like she has been almost every night this summer. I guess I figure that out a month from now..
Anyway, so much reading here. Everybody thanks, this is a great board. We are strong andd we'll all get through this BC and all that comes with it, along with life as it continues with it's unexpected ups and downs.
Have a great week all,
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I have been on the little pill Tamox for 2 weeks now. My question -does it stop your periods from showing up monthly??
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Soooooooooooo many posts!!
PattiB-You took me back a few years when both my DD's were teenagers...AARRGGH!!! I went through that crap for years!!!!!!!!! Hang in there and beware of the Ambien night entertainment! shoot...
Meg, love the silver linings!
Ladies, your madmen pics really made me SMILE!!! I tried one but don't how to post it here?? hmmm
Ok gotta run for now! Checking in to say HI!
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Hello to all, Rachel, I just missed you on FB. I was on real quick to see what my mephew in Cali said. He was bleeding from his rectum at the end of the school year. He had tests that r/o Krohn's disease and other intestinal probelms. He lost 25 lbs during the summer and finally had a colonoscopy and endoscopy that found nothing. He is still losing weight. He leaves Cali at the end of the Aug to attend Michigan State University.
Rachel it is nice to deal with something other than cancer, so don't worry about complaining.
Brenda and Lisa-e welcome aboard.
Leggy here is to arthritis, it is better than cancer. I have osteo-arth. in both knees.
Patti, they really should cut you some slack considering what you have been through. You are right about the ambiem, my cousin took it and was sleep walking and getting up during the nigth and forgetting things.
I did not get up until 10:30am, this morning, I miss Mass and just plain do not feel like doing anything. I still have my jammies on at 2pm. Oh yes it is raining again, so the kids are all inside.
My DH is cleaning his mess on the countertop finally, now I have to work on him to get all of his tools put away. I wish he could truly understand everything I have been through. He is great and really helps, but he just can not seem to understand that I just had surgery and that I just get tired. Not sure if being tired is a se from tamox or if it is just my body trying to recover from a year of hell. Oh well enough complaining.
Have a great day!!!!
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Mary, I've found that no one understands, fatigue like we do. Hey Rachel, pink eye sucks, it's OK to complain here, that's what we're here for, right...You listen to us bit#h enough. PattiB, I take Ambien, ever since chemo. and it took awhile before I could get used to trying to go back to sleep, when I wake up at 2am to pee...But I'm finally getting about 7-8 hrs./night. A lot of women have natural sleep remedies, but I like ambien.
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Mary - You said it! We are tired from our year from hell. Our bodies have been put through major changes in a short amount of time, along with us attending to life as usual in a lot of cases. I'm lucky working in the school district, I have been off since mid June and much of this summer has been spent being a real couch potato. Back to work in 2 1/2 weeks and not looking forward to it. That may help me sleep better, too. And you are right he should give me some slack, my DD does get it somewhat - we are just not really bringing it up again. As much as I will miss her, I can't wait til she is back at school.
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Kathya0814 - Hi there - there is no hard and fast rule on periods stopping on tamoxifen. I have been on it since Feb 09 and still have a regular period (although shorter in duration) - I am also 47 so perhaps age has something to do with it too. Hope tam is being kind to you.
Kari - do they have big pink flowers on madmen? You have to download the photo into Photobucket or another program similar. I can pm you how to do it if you like.
Patti - sorry to hear about the hot flashing and lack of sleep. My daughters are 7 & 10 so I have yet to experience their hormonal/teen angst - bad enough dealing with mine!!!!!!!!! Try to enjoy the rest of the break. ((hugs))
Mary and Leggy - after my exchange surgery I just bummed around for a week - soooooo tired, watched daytime telly and watched the dust grow. Couldn't believe it.. the operation was a snap (as operations go that is) but the fatigue was a killer. Listen to your body Mary. And don't get me started on DH's mess .... ((hugs for your nephew))
Rachel - yes, enough of your whingeing - you are only here to make us laugh and give us fantastic information when we are down.
Sounds like you needed the sleep. And what's with all these planes in the Hudson - how tragic.Have a fab fab day everyone
big hugs
Helena
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I figured it out in photobucket, but it posted the pic twice! What a dunce I am!!!
Helena, Help! PM me....good grief!!
Hugs to all!
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kari if you can put it up on Facebook I can grab it from there
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kari and moi...
Now... if we could agree on a background- and attire, we could all attend the same party!
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ha ha ha ha ha .... (hey Kari, didn't work huh? You are as cute as a button)
rachel shouldn't you be in bed? I can't wear that green, does horrible things to my freckles.
Oh, and I just bought some Vitamin D3 - you put three drops on your hand and lick it off - should I be taking lemon and salt with it ...................he he he
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Oh I don't mean we wear the same dress or colors, just that we agree whether its evening formal or afternoon cocktails. A plain background of maybe that bright purple background - I can delete that easily.
Or just pick any background but have it be the same so we all look like we're in the same room
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Oh wait, maybe even better if we don't match for attire... like its a casino or we're castaways ... Gilligan's Tamoxifen Island
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bags not being gilligan ...
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