Bottle o Tamoxifen
Comments
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I didn't think I would have to ask ya'll about periods, since I haven't had one since April, 08, and that one was stress related,(after DXand before surgery). But the last few days I've been spotting and have had sharp pains occasionally in my ovaries. Today I've had really bad lower back pain, like when I had periods. Before I email my Onc. and get no response from him, I thought I'd ask you girls. Is anyone out there who has had this happen?
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Hey Mary22, Glad to hear you are a die hard Lions fan, yea they made more history, too bad they can't count pre-season games!! The Tigers must be watching them they are trying to fall out of first place AGAIN!!
Dawn, I have had a lot of sleep issues also and am on ambien, it works well but know I can't stay on it, worked a full day, ran errands, went out to eat, hit a deer and thought Friday night now I am tired from a full day so will try to sleep without the Ambien, very restless sleep so will keep taking it until it runs out.
Hope all have a good week, see a new Gyn tommorrow wonder what info she will have!!!!
Busy weekend canning goodies!!
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Mary, so sorry about your friend. I really HATE cancer....big hugs to you both. I hope she has a great team of docs and wonderful family support. I am sure she is grateful for your friendship.
Football? I am stuck participating in our company pool (we only have 9 employees including my husband and I) and usually win every other week or so even though I hardly watch any of the games. I am not too big into the NFL...more of a baseball nut but I do watch a lot of sports and would rather watch ESPN than the local news or CNN anymore. I deplore BAD news.
I have my follow up tomorrow with my new onc who I switched to in July for the bisphosphanate trial.......I have never had a good sit down with her so I am coming armed with a few questions and hope my baby cooperates. She and my son were a nightmare at the PS's office on Thursday.
hugs
Diane
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Carollynn79, yes another loss. But I have faith that they may actually win at least one game this season, hopefully on Thanksgiving Day!!!!!!
I had a busy weekend, between my side job and Sunday school, never a dull moment. I did laundry all day today, because I let it slide all week.
I had dinner at my MIL's and she baked a cake for me, I turn 21 for the second time on Tues.
Monday night my DS has open house, I want to get there early and home so I can watch House.
Have a very happy Monday and a marvie week!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
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Leggy - Maybe you should call your gyno about your "problem". If you haven't had a period since last April and now you are spotting you need to get it checked out as its been over a year and now you are considered to be in menopause right? Isn't that how it works?. Hope it turns out to be a phantom period and you get an appointment quickly. Its always something isn't it?
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didle20Diane - a lot of cancer doctors reccomend a plant based diet b/c certain green vegetables (broccoli, kale) contain an enzyme (sulforaphane) which has been found to repair DNA (repaired DNA suppresses abnormal cell growth and cancer is the result of normal cells, changing to abnormal cells that multiply out of control). Hopkins says eat one ounce of broccoli sprouts a day b/c according to their studies sprouts have 20-50 times more sulforaphane than regular broccoli (basically, according to Hopkins you would have to eat 1.5 lbs of boiled broccoli to get the same about of sulforaphane in an ounce of broccoli sprouts). The orginal findings were published in 1997 (Rachel posted the link to it), but the more current research is on the brocco sprouts website (which is affiliated with Hopkins). There is also a very recent Hopkins study that found sulforaphane traveled to human breast tissue after a single oral dose of a broccoli sprout preparation, which is a good thing. Obviously, I don't know whether Hopkins is right, but it's a world class institution and if they say eating an ounce of sprouts a day can help keep the cancer away, then I'm eating it (but not enjoying it at all . . .).
Leggyg-I'm on tamox and still getting my periods. However, my onco and gyno both told me to get in touch ASAP if I saw spotting between my periods - probably because of the potential endometrial problems caused by Tamox. I included a link that discusses the symptons to look out for. As for your Onc. not responding - what the heck??? if it was my Onc. I would email him/her 10 times a day until I got a response. I suggest you send an email, describe your symptoms and remind him/her that you're on Tamox - definitely check it out. J
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Mary- that news alone is enough to make anyone go off on a rant. For once big mouth me has nothing to say but sending love.
ALL- I got my Afghanistan contacts- but if you sent out a feeler to someone already and they want some support, let me know (asap please), we will not fail them.
j414- I got a craving for broccoli sprouts, can't hurt
Leggy- yeah its about the OB/GYN ... get there and see what's what. Fun fun fun!
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Thanks girls, that's what I thought.
Carollyn, you hit a deer, bummer, sorry about that.
Mary, I'm sorry SFC.
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I am drilling my new onc tomorrow.....what pisses me off is NOT ONCE has any doctor that I have seen since being DX with SFBC has ever said anything about diet and excercise. Very irritating. I will let you all know how it goes tomorrow. If I didn't have small children I may not have done chemo OR tamox but this is the "norm" and I bought into it even though somewhere deep inside I really feel like the mastectomy could have been the end of my TX. When we all gather to celebrate my 100th birthday we can all say "told ya so"
hugs
Diane
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Leggy, yes my GYN said call ASAP if I spot or bleed!! Keep us Posted!! hugs sister
Chatty group this weekend, LOL! I am pooped but wanted to say HI to all
Was at a family party yesterday talking with a gal. She is the friend of my SIL, but I've known her for years and really like her and her DH. Anyhoo, she is an audiologist with her own practice and she had lymphoma 20 years ago and went thru 7 mos of chemo back then and she said she is still fearful of the SFC returning too. Then last December her bus. partner Teresa found out she had pancreatic cancer....well Teresa, early 50's has less than a month to live. 3 different chemos, experimental chemos, many surgeries, and nothing worked. I cried. Such a fu#ked up disease!!!!!!!!!! We talked a lot about all the side fx and stuff that nobody else at the party could understand, you guys know. Saw my best friend today who is in town and she lost her mom to ovarian cancer, when mom was 54, she was like my 2nd mom cause I practically lived over there growing up. SFC!!!!!!!!!!!!!!!!!! Mary, sorry to hear about your friend.
Ok, now I have to go buy some of those broccoli sprouts, crap, I was just at Trader Joes today! ARRGH!!
Never had kale, is it good?
Nightie night!
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Diane- when you wrote that you were "drilling" your ONC tomorrow, all i could think was well... finally a side benefit to seeing the ONC...
Rachel has a very dirty mind...
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Ouch Ouch Ouch - never knew I had so much feeling in my new foobs!!!! Had nipples done this morning, how surreal was that!!! Just a local and we were all chatting. Anyway have to wear these big foam pads with holes in the middle over them for 4 WEEKS!!! The things we do.
And of course, my favourite.... no running for at least 2 weeks, possibly 4. Geesh. Got to pull out all my big flowy muumuus to wear.Not much to add to what has aleady been said, leggy yep you should see someone, Mary - SFBC
Carollynn - poor deer, hope you were alright. Ainm - hope you get some sleep, Kari - too many of us around isn't there. Diane - you kicked its butt girl, can't wait to meet your kids at your 100th!! Brendatrue - I was out running the other day and my sister drove past and I started crying about you know all the crap and stuff and she said she was going to pop round later ... waiting for her to show up all day ... nothing .... she called a day later and said she didn't want to make me sadder... WTF... I told her not showing up made me sadder. Guess what?? She said my comment upset her. sigh.... how did my being sad end up by making her upset - I nearly apologised, but didn't. What do you do. Rachel - so glad you have someone to help out in Afghanistan. Hi to Kookiesmom, Msdeltadawn, j414, izzy - and sorry if I missed anyone else. Shouldn't leave it so long to post - hard to catch up. Been researching like crazy about getting my implants removed and replaced. Spoke with my PS today and she thinks I need to go up to a 420cc (I am a 360cc) to stop the movement (squeak) so it isn't too radical and Pamelaesque and if my ooky goopy nipples are Ok I can probably get it done before the end of the year. Yeah, I think.
Bought a couple of my special DVD's to watch today whilst I lounge around and recuperate - Out of Africa and the English Patient and of course can't get the DVD to work ...
have a great day/nite everyone
big handshakes
Helena
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Helena, up with NIGHT TERRORS AGAIN......ugh for mom......I love both of those movies....hope you can get the DVD working......
no hugs for 4 weeks? Ouch......my PS said the same thing about the size of the implant. I have 2 weeks left with my good breast.....she said that if everything goes well I will go straight to implant on the good side and high hopes that the TE on the mastectomy side will fill properly so I can have my fills and same size implant 3 months later. I had already had a reduction in 2003 so I have a lot of scar tissue on either side. One thing my onc does do is use human cadever tissue to sew in if you will the implant to keep it in place. It is something she has only been doing for a bit over 2 years. See if your PS did anything similar. Did you get gel or saline implants? I am going for gel.
hugs and handshakes
Diane
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Hey a live one !!!! Poor little one and POOR MUM (or as you guys say MOM - its just so American LOL). No luck with the DVD's watched reruns of The Nanny and Seinfeld - pretty good 2nd choices and laughed not cried, probably better for me. And yes, handshakes all round for a few weeks - good thing my DH got some squeaky action a week ago!!!!
Are you talking about Alloderm? I researched all about that, thanx to this amazing forum, but over here in Oz you have to get the King of the F'ing World to approve its use - we are sooooooo far behind you guys. It sounds amazing and I was hoping my PS could just try and fix the squeaky side with it and leave the other side alone. No go.
Are you Ok about taking the good breast? And a reduction in 2003 - don't you just love the irony.
I have textured silicon - my PS prefers them over saline and prefers anatomically correct ones over the round ones for women of my "special age" - she means ageing quickly, skin thinning, don't want to look like a Cougar age. Apparently the silicon/gel are more "real" feeling. My husband however hasn't felt them but I think they feel OK, but not soft and squishy like the old pair.
Great to talk to someone at this time of my night but not fair on you - and Diane you did all the treatments honey you are definitely going to be blowing out those 100 candles.
big handshake
Helena xx
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I am not sure what they call it, alloderm rings a bell. I will ask her in 2 weeks. I have been lax in getting any info on my upcoming surgery because it was just too much. I even told her at my pre op appointment just do what you gotta do......I am so over all this. My only option was implants which is where she likes to start anyways. I didn't have radiation and don't have the body fat (uh....look at my tummy LOL) for the Trams or S Gaps which I was petrified of anyway with the recovery time....(wouldn't work with 3 little kids for me now). She is hopeful that the implants will take and if I do have issues on either side we will cross that bridge at that time.
Yeah, went from being a 32F to a 32C which became a 34D after 3 pregnancies and the fact that I had very dense breast tissue that grew back...HMMM. With the skin I have left she said that I would still be a C cup. I was actually hoping for a bit smaller really but whatever. I just want the first surgery out of the way and the fills to begin. I hope it isn't too painful. Haven't even found the Oct 09 recon thread....too many others to keep up with. My thread is the 4 local gals that I met through BCO that have all used the same surgeon for their implants. In fact my neighbor down the street used the same practice for her prophylactic masts and recon after she found out she was BRCA positive. She did great!
I just hope I can make it the 3 weeks of no heavy lifting.....my baby demands to be held
I will miss picking her up.Trying to get back to sleep.................night terror over finally. Googled it and said lack of sleep was a cause.....I wish I could get her to nap more but she won't.
hugs
Diane
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Diane - just a quickie, making dinner and showers and all the other nite time chores with the girls - just on the liftting - I gave my girls a piggy-back after a few weeks and lots of side hugs (hope that converts) and they loved it - and they were 6 and 9 at the time!!! By the way does VA mean Vancouver?
Sleep tight and "just do what you gotta do" sounds like a damn good motto.
signing off too
Helena
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Hey ladies, a quick question. I've found out that it helps my insomnia drastically if I take my pill in the morning. I've also found that I need to take it with a fairly substantial breakfast in order to avoid feeling sick. Yesterday morning we totally overslept and I ate a granola bar in the car on the way to church while I took my pill. Cue feelings of nausea all day long. I woke up at 5:30 this morning feeling even worse and had 2 major hot flashes (my first since I started taking tamoxifen 3 1/2 weeks ago). I've been dry-heaving for the last 2 hours and feel HORRIBLE. I don't think there's anyway I can get a pill down this morning. Is it horrible to skip one? Or to wait and take it this evening if I'm feeling better? My doctor isn't in until 10 on Monday mornings or I would've just called her lol!
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Salli- its OK to miss a dose. I stopped taking it for a couple of weeks when I had my exchange surgery and the Dr. said it was fine and wanted me to do that. So I don't think missing one is gonna do anything. I have a sensitive tummy as well and take my Tamox. at dinner. I put the darling little pill right on my plate like it is a part of my dinner otherwise I won't remember if I took it or not! I only eat a little bit in the morning so dinner is my choice. I can't sleep good but I think I am getting used to running on empty. I nap like a champ on the weekend however! Hope you start to feel better soon! Maybe you have a stomach bug or ate something bad?
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HI ladies! Was away this weekend (again) so have a lot of catch-up reading to do.
Question on the broccoli sprouts--is that the same as broccolini (baby broccoli)? I have been eating a lot of that since DX but I sense it's not the same thing as sprouts. I guess I can ask at Whole Foods and see if they can direct me to them.
Leggy-yes, you need to call your obgyn. I have had ovarian "sensitivity" since being on tamox (and now an ovarian cyst, thank you very much)--no spotting though although I am still pre-meno. I know they want to watch any endometrial issues...good luck.
Helena--good luck on your nips healing and with the new implants!
Ainm--I was wondering if that was your name but didn't want to ask--that's cute!
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Allie, broccoli sprouts are different than broccolini - remember Lisa from the Motivation thread? She talked about the sprouts a lot. I finally found them somewhere months ago...now I can't remember where! LOL I think Whole Foods or Trader Joes....shoot...
Diane, you poor thing, you have a lot to keep up with...surgeries...night terrors, etc. You handle it all with grace my friend!! And I smiled because at least when you have to get up during the night, sweet Helena is online!! YAY!!!! Hi Helena!!
Helena, VA = Virginia the state
Best of luck with the healing and now having to think of another procedure - getting more filled up!! So are you contemplating the higher fill?? Would that be a big procedure? I'm soooo clueless on the whole implant thing!!Had a heart to heart with DH about recon on Friday night. Talked to my older DD on the phone about it then DH...I am really scared about it. DH suggested to talk to a couple of PS's and get their opinion first then make whatever decision I want. I think I just want to NOT think about it for a while.
Ainm - I was also wondering about the name thing!! Thanks for clarifying for us!! OH, when I was at the party on Saturday the friend I was talking to, the audiologist, she also is a photographer and her and her DH had just been in Ireland. She was showing me pictures on her camera of many door entrances of buildings, beautiful colored doors and some that were very decorative. How Gorgeous they are there!!! She is going to make a calendar with the photos. I told her about you, she said she would love to go back, that its simply beautiful.
Hugs and handshakes and side hugs! xoxo, Kari
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Quickie Post from Sloan Kettering- Just finished mammogram and US- only on bad boob ALLCLEAR!!!
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So I was typing and they called me and I had to run... probably happen again... so much to say... can't remember now!!!! I started Tamox Sep 17, all is well there too.
I have spent the last week or so terrified... didn't say anything because there was nothing anyone could say that would have made it better.
Oh I tried to post from iPhone but the damn thing will NOT post on the thread. They keyboard doesn't come up.
I don't know how you managed Diane... wtf is up with that?
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Rachel--yaaaay!!
Kari--yes I remember hearing about broccoli sprouts and looked at the time but guess I need to look harder...
And I love broccolini so will keep eating that too...I would just take your time on the recon issue. It's a big decision and you want to feel comfortable with it. I don't think there are any timing issues with doing it sooner rather than later so just put it off so you can stop thinking about it for a while...of course I have not gone through it so can't lend any expert advice!
I don't know what I would do if I have to deal with that (hopefully not)...at least there are a lot of people here to talk to who have been through all the different kinds... 0 -
A quick pop in! Ladies you are all so busy...so many posts...can't keep up with all of you!! Such a lively bunch of great sisters!!
Congrats Helena on the nips!!
My weekend with Tony...was fabulous! He is the one for me...no doubt in my mind!!!
xoxo
Lisa
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YEEEAAAAAAAAAAAAHHHHHHHHHHHHHHHHHHHHH RACHEL!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! And glad all quiet on the tamoxifen front - welcome to the tamoxifen club, it is official. Excellent my friend. hugs.... no better be air kisses.
It is 4.30am here and can't sleep .. ah just like old times. Have to sleep raised at 45 degrees and my husband is snoring madly and can't roll him over due to nips. Sigh. Hope you managed more sleep Diane. And of course I have to work today. Groan.
Promise I will catch up with you all when I get home from work - going to get a warm milk. Handshakes all round.
PS. Kari my beautiful friend reconstruction is always going to be there, take your time and get stronger. You have the most amazing man & family and you are so happy, take your time .... side hugs & handshakes hehehehehehe
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Helena - you are wishing you could sleep and I am at work wishing I could too!!! Sorry you are up - my hubby is quite the snorer as well. I have to sleep with ear plugs alot of nights. If he falls asleep on the couch I just leave him there. I hope that doesn't sound mean but the snoring gets really annoying! So you had your nipples done and you can go right back to work? I am still trying to decide whether to do mine or not. Hope you can get back to bed or couch for an hour or more!
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hmmmm snoring or night terrors???? I have to say I will take the night terrors which by the way are turning into day terrors, too for the past few days. my DD got back to sleep after a 45 minute cry and I got back to sleep about 45 minutes later. I must say I am really lucky that I can usually fall back asleep AND not feel too bad during the day either. This daytime terror issue has been a huge inconvenience. Today I took my son to school then had to take DD to dentist (yes she is not even 2...her top teeth came in but all the enamel is slowly coming off...hard to explain, it isn't bottle rot they just looked chipped..I will post a picture on FB...it looks kinda cool) and she was great...watched Elmo, got her teeth cleaned all by herself....but when it was time to go home.....SHE went nuclear and that turned into a 45 minute hysterical cry all the way to my oncologists appointment. She luckily (for me) fell asleep and slept through most of my appointment. Grilled my onc about a few things.....
1. Asked for the Tamox metabolizer test....2 weeks for results
2. Tumor markers...she is testing me but I think after this one I don't want to be tested again unless I have symptoms come up
3. Vit D.....was a 37 right after chemo and had not been taking supplements....starting dowing 2 a day and am curious if this raises my levels.
4. Asked her about DIM and I3C...she acted like she had never heard of these supplements before could I send her some information. Oh yeah, I will.........
Met my man (DH) for lunch to pick up my older daughter then went to get my son at school and now home with the 2 younger ones sleeping!!!! Oh and DD had another 30 minute fit before passing out on the family room floor!
Lisa................so happy for you and Tony
I love a little romance. Been with my man 13 years and wish time would slow down for us. I am blessed that we have such a wonderful relationship!Rachel..........I KNEW you had started Tamox
All aboard.....I will be jumping off the Tamox train for 1 week pre and 3 weeks post for both my surgeries............WOW...this is the same onc that told me I had started Tamox later than she would have liked. Whatever! I will take the break. I don't really have any SE's to speak of anyways. Yeah, and the Iphone is for s**t when it comes to posting on BC.org....that is why I am such a FB'er......Everyone.....PM me if you aren't already on my FB page
and want to see pictures of my life LOLHelena............sorry you are up now
and yes I live in VA actually right outside of Washington DC.Kari........I waited for recon too and am still glad I did. I wanted to get myself to a place where I felt like "me" again. I feel like I am there. I am a bit apprehensive but I know that I will get through this too....at least I don't have chemo to deal with at the same time. I foroget if you had rads or not? I know that sometimes they can do implants after rads....but most of the time it is the trams and s gaps that are a really big deal IMO. My girlfriend did the SGAP and it wasn't easy. That was the one thing she wished they would have prepared her a little better for. She even talked to several gals that had it done but I guess she didn't realize exactly what an 11 hours surgery would do to her body. She is 2 1/2 months out and LOVES the result but still has nagging pain in her butt literally...they took all the fat from her butt and she said it hurt like heck. She also has a hole the size of a quarter on her backside that is taking forever to heal up. She may need another surgery to fix that. Not trying to scare you just trying to keep it real. I look at implants like....hey if I was twiggy with double a's and wanted to go to a C cup. The surgery is about an hour on either end...........I had 0 recovery after my mastectomy. I had my surgery Friday at 6 and was fine....no pain meds at all and was at work Monday AM and my staff had no idea until I told them 2 months later that I had BC....had to tell them because my head was going be shaved
Allie....I love your avatar...what is in your hubby's mouth though?
HUGS to all......see you tonight
Diane
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Hey Kookiesmom - still awake may as well get going for the day. arrgghh. So funny about leaving your hubby on the lounge - I go to bed earlier than my DH and if I have to get up to go to the loo I tiptoe so I don't wake mine up from sleeping in front of the telly!! So much easier to have a good nite sleep if you get to go to sleep before them!!
Nipples done at 10am yesterday and I drove home (1 hour trip). Easy, not a difficult procedure at all - I went for the C V flap procedure.. They hurt for a few hours last nite but feel fine today. Of course they are all packed in and I am going to look like a real goose today at work but luckily they already know, otherwise it would be very difficult to explain! To be honest I could have lived without getting them done but my hubby is only 41 and they are supposed to make a huge difference aesthetically and to the overall "finished" effect. I'll let you know
Lisa - I'm so happy it is all working out for you guys - I'm assuming he is no longer sleeping on the lounge....:D
Kari - I will get the larger implants - only 60cc more and will still be a C cup. My last exchange surgery went really well and wasn't difficult or painful at all. It is all the damn recovery time, fatigue and no running afterwards which really gets to me, but the sqeaking and discomfort is worse.
Allie - sorry to hear about the cyst, hope it isn't going to cause trouble.
Sallie - like Kookiesmom said don't worry about missing a dose - I have forgotten a couple of times over the past 6 months.
Hi Meg.
Sigh... time to start the morning shift.
big waves
Helena
Ps. Hey Diane - glad you got back to sleep - will check out the photos.
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Good morning Helena....too bad BC doesn't have skype yet....oh FB is supposed to get an app similar soon!
hugs
Diane
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Oh dear, don't want admit this one but heard of skype but have no idea what it is... how embarassing. I guess it is a camera thingy. ;l
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