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Bottle o Tamoxifen

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Comments

  • LeggyJ
    LeggyJ Member Posts: 195
    edited October 2009

    That's why they put me on Celexa, the anti-bitchy pill.

  • bcamnb
    bcamnb Member Posts: 334
    edited October 2009

    Hi my560sel,

    My doc warned me about mood swings and my husband said he hoped only for the euphoria type. I am only 3+ weeks into the Tamox  so maybe that's to come.

    Good luck!

  • London-Virginia
    London-Virginia Member Posts: 109
    edited October 2009

    MTG - thanks for all the really useful info.  Much appreciated. 

    Actually, your skin does dry out at any time of year and this is just commonplace.  Several people I know have found this.

    Winter time will exacerbate this due to the usual things like indoor heating, the cold etc.

    Not very contentious surely?

    I wonder why it is on this Board that there is so much ill will, and if you want to find misinformation I could name certain aggressive posters who are world class.

  • don23
    don23 Member Posts: 213
    edited October 2009

    My560 - when I first started tamoxifen I had that bitchiness you're talking about. I couldn't even stand myself. I felt sorry for my family that had to put up with me and my moods. It did get better as time went on. I have been on tamoxifen for three months now. I have less "moments" than in the beginning but still get my days. It might just be from the stress of bc that does this to us and the tamoxifen intensifies it - just my thought.

  • kfinnigan
    kfinnigan Member Posts: 490
    edited October 2009

    Hi girls!!

    I guess I'm just lucky, just sweetie pie happy face over here!  My DH even told me since my periods stopped due to chemopause I'm always in a good mood!  I'll take that side effect!!  I just have the achy parts that I never had before, but like Rach said, I ain't quittin the pill, cause its savin my butt!!

    Getting excited...only a couple of weeks until us NoCal girlies meet up!!  WOOHOOO  and take the secret handshake photo for this thread!!  My bc sister that I hook up with for lunch wants to go too!  YAY, won't have to drive alone!  I had the BEST weekend!!  Road trip...will post pics on FB and spent yesterday with my younger DD, drove to Walnut Creek to meet her for the day and then stopped and visited my Dad and then stopped at my older DD's house and visited.  What a social butterfly I was!! haha!!  Felt good to do all that normal stuff.  Cause last year SUCKED MUCHO during chemo!!  Now its all about LIVING!!

    Helena, SO HAPPY you popped in!  I MISS YOU!!!!!  

    Hi Mary, Rachel, PattyB, Leggy, Lisa-e, Lisa, Juli and everyone else!  

    We're all in the same boat here girls, trying to kick cancer's big ugly ass!!  ROCK ON!!!

  • MillieD
    MillieD Member Posts: 24
    edited October 2009

    bump

  • pkb143
    pkb143 Member Posts: 69
    edited October 2009

    hey, Kari, happy you had such a great weekend. You positively sound like a little ray of sunshine, there, and that's great to hear.

     my560sel, I've been on Tamoxifen since 9/30 and have no "more than normal" bitchiness to report here, but perhaps I should get a second opinion about that from DH, just in case I'm not being entirely objective. No paranormal activity to report, either, but I do think the OSU Cowboys are finally going to whup it up on Texas here on Halloween! 

    I'm feeling pretty happy about my reconstruction now in that I'm up to 900 ccs and I may be almost to the "STOP THE FILLS" point here as I'm filling up my blouses. I don't want to be huge, just a little bigger maybe (B to a C) but it's so hard to tell....

    ...and benisse mentioned a book she' reading which sounds interesting. I've just ordered "Beating Cancer with Nutrition" by Patrick Quillin just because it was recommended by an old friend of mine (and former boss) who's now battling pancreatic cancer.

  • my560sel
    my560sel Member Posts: 399
    edited October 2009

    Thanks all for your input... I think the bitchiness is coming from the headaches. I've been on  Tamox for a couple of months now and had light headaches in the beginning but they're getting worse and I feel bloated all the time............... I thought I would be one of the lucky ones to not have SE's - guess I'll have to ride this out and TRY to be a nicer person when I feel the urge come over me  to squeeze the living daylights out of someone Innocent

    Edited for typos

  • Mary22
    Mary22 Member Posts: 428
    edited October 2009

    Let's see, certainly alot going on here.

    Yes Rachel, the weather has been warm, but I am loving it!!!!!! We are still able to take the children out for recess and my dd can walk home from the bus.

    Terri, I have always been a bitch, but once I started on Tamox I was a MAJOR BITCH!!!!!!!! My onc prescribed Efexxor XR 75mg and it has helped tremendously!!! I recently had my ovaries removed, because I am BRCA2+, and was mildly surprised that I had very few menopause symptoms. I have had a few hotflashes and every morning at 4:30 I get awaken by a hot flash!

    I haven't posted in a couple of days, because I spent all day Sunday in bed. I barely made it home from church, then went straight to bed. Every single joint and muscle hurt in my body. I had experianced this once before in 2006, only then did I swell up like a balloon. Back then all test came back negative, Lyme, and auto immune diseases.

    Have a great day, I did, one of our students was absent and that is always nice!!!!

  • cd1234
    cd1234 Member Posts: 40
    edited October 2009

    I am like Kari...sweetie pie happy face!! no bitchiness, just happy! So glad to be done with chemo and I can live my life again! I just read a great book. It is called the PH Miracle. Great book, great way to eat. It is kind of over the top, but I have been following the rules to have a PH balanced body for 10 days and feel GREAT!

    Benisse-I also read the book Living Through Breast Cancer. Very well written. Helped me through many issues.

    I am with you ladies..."I ain't quitin that pill cause its saving my butt!"

  • lisa-e
    lisa-e Member Posts: 169
    edited October 2009

    I am another one who feels like tamoxifen is 'saving my butt.'  Other than surgery, it is the only treatment I am receiving for my breast cancer.   I am very hesitant to use any supplements because they may interfere with it.  Luckily, my side effects are pretty mild. 

    I am also looking forward to the No. Cal get together.  But I don't know where or when to show up.  Have any decisions been made?  Did I miss something?

  • CrazyCatLady
    CrazyCatLady Member Posts: 1
    edited October 2009

    HELP!

    I have finally resolved the problem of the long wait at the RadOnc, but now I have another.

    I started Tamox last week (on my 62nd b'day).  I am already on EffexorXR 75.  After 18 rad treatments, I am dry,red and itchy.  Last night I slept 4 hours.

    I am going NUTS.....

    Ambien DOES NOT work.  What can I ask my RadOnc for tomorrow?

    All suggestions will be greatly appreciated.

    Verna, AR

  • LeggyJ
    LeggyJ Member Posts: 195
    edited October 2009

    Sorry Allie, my bad, noon Rutherford Grill, in Rutherford CA on Nov. 8th!!!  After lunch, we'll do a tour of---------------.

  • MTG
    MTG Member Posts: 337
    edited October 2009
    Crazy Cat Lady - I'm just coming over from the September and October radiation threads. Many of us are having the same issue. Most women there seem to start with over the counter Cortizone Cream and if that doesn't work then progress to Silvadene, which is a precription cream. I'm at the Cortizone stage; it's ok but not loving it.  Taking lots of cool baths and applying cold compresses (often with 10% Apple Cider Vinegar) which seem to help. But haven't found a wonder cure yet.
  • Juli50
    Juli50 Member Posts: 652
    edited October 2009

    Verna - I take 0.5 mg of Ativan and sleep great! Without it, I wake up constantly.

    Hi Kari - your little get together is only 400 miles north of me. :(

    Maybe all the Cali girls can meet in Cambria (near Hearst Castle) some day. :)

    hugs Kiss

  • LeggyJ
    LeggyJ Member Posts: 195
    edited October 2009

    I would love to go to Cambria!  While going to Cal Poly in SLO, I had the pleasure of going up that way, but it's been awhile.  I do remember the town of Harmony, had a great restaurant, where I celebrated my graduation in 83, isn't that nearby?

  • Juli50
    Juli50 Member Posts: 652
    edited October 2009

    Yes, Harmony is very close, population 18 (+/-) LOL. I don't think there is a restaurant there anymore. Just a couple gifts shops and the post office. My stepmom lives in Cambria, so I go up there once or twice a year. I love it there!

  • AllieM22
    AllieM22 Member Posts: 188
    edited October 2009

    Hi ladiiiies!! Checking in as I have family here--having a great time and back from a trip to Mt Shasta. So beautiful. I was in the Cambria area a few weeks ago too--so lovely down there.

    Helena--thanks for checking in--we miss you!!! :)

    Glad to see we now have TWO sweety pie happy faces! :)   (Tamox hasn't made me any more bitchy than usual...I am MOSTLY sweety pie happy face.)

    Leggy--thanks for info! Can't wait! let me know if we are bringing anything.

  • kfinnigan
    kfinnigan Member Posts: 490
    edited October 2009

    Hi girls!  Love the Cambria, SLO area!!  We try to get down that way once or twice a year too!  So Juli...keep us posted on when you will be in that area, and maybe we can all hook up??  Mt. Shasta is wonderful!!  We stopped there on our 4th of July jaunt up to Portland.  My BIL's parents live in Mt. Shasta.

    Sweetie pie happy faces or a some bitchiness...ITS ALL GOOD!! 

    Crystal, I am going to Google that book.

    Mary, glad you had a nice day yesterday!

    PattyB, will look into that book too.  A friend of a friend just lost her battle with pancreatic cancer.  she went pretty quick...CANCER BITES!!!!!!!!!!!!! 

  • Rachel_BC
    Rachel_BC Member Posts: 679
    edited October 2009

    Leggy- walking on the beach barefoot with Wolfie... man o man o man o man... that's the good stuff ain't it?  Like for me it's been these mornings where I get the kid, change him and keep him in jammies, then bring him to my room and my bed to watch cartoons and cuddle sometimes I fall back asleep and sometimes the cat (the crazy cat) joins us on the bed.  Those moments... make me HAPPY.  Like totally, completely happy.  And sometimes I don't even remember the witch in the sky....

    PattyB part deux- you ALWAYS crack me up.  Tamox messing with your FB application eh?  :D

    I am typing in the dark, so probably screw up.  The kid was up last night from 1030pm until 1230am, he's got a runny nose, and I'm sitting in his room while he watches Tommy the Train so he'll relax and not freak out while hopefully getting tired enough to go to bed.  I little dicey because he also threw up the other day and I am a little scared of him vomiting in his sleep.  I wish he could tell me what's bugging him :(

     benisse- GOOD FOR YOU girl!   Eveyrthing your nurse said makes a lot of sense. One thing about RADs, I got GREAT sleep.  I am sleeping really well now too.  My fave SFBC books are also published in 2005, so they didn't have OncotypeDX and a couple other things yet.  That kind of gives me hope, if so much can improve in 4 measly years, maybe, maybe.... keep a good thought :)

    Terri- Mary makes a lot of (good)  jokes about this bitchiness... and I think (think) that of course for some people it might have that effect, as we know the SEs wander and are different and all that but my little personal theory is that this kind of SE is a lot like the normal hormonal monthly PMSy type stuff.  A lot of the SEs are period/PMS-like... low back pain, moodiness, rage, euphoria, cramps all that jazz.  Some of my theory comes from the months I monitored myself BEFORE taking Tamox.  I found I would be full of RAGE some days sorta before my period and then I get this like totally happy feeling.  It does make a sort of sense, after all, Tamox is f*cking up our normal hormones, like, that's it's job, right?  And I know before SFBC I dismissed a ton of stuff, like which of my boobs was bigger or if I had a pain here or there ... I mean its all part of the fun of being a woman (you have to say that last part with that floaty annoying voice), but now it's like waiting for a pot to boil... Anyway... I think I am just the same bitch I was before Tamox.  but, that's me... ;)

    Leggy- I wonder if they would put us in anti-bitchy pills if we didnt have SFBC?  I wonder if we can  get some for some bitches I know... they dont have SFBC but I would sure love to give a few people a doggie downer... :D  (oh I am in a MOOD tonight!!!!)

    and I did the last interview for the kid's nursery school and I think I can say with a degree of certainty I blew it.   Oh well.  If we get in it will be a miracle.  I'll know in March.

    bcam... one gal on here swore she got hight from Tamox the first week... good luck!!!! I think i am just high so far on not having sparks fly from my ears and stuff.... yet

    kari- I keep thinking about the NoCal gals meet up, that's just so cool, and so are  you!  I'd hate to be a bad mood salesman trying to sell you one... keep battin it out of the park girl!!!  Oh it's Nov 5, right? I thought I was going to be at jury selection, but turns out that they don't actually have the plaintiff or defendant (I think) there for the voir dire.  I thought they did, because when I was on jury duty for a murder trial, the defendant was there (boy was that scary).   Anyway, I'll probably just be sitting here with the kid doing nuttin while you guys are doing the secret handshake in some extremely cool secret garden thingie... and then you are off to- I forget which gorgeous place for thanksgiving?  Rock on girl :)  I';; check ya on FB and YEAH BABY its all about the LIVING!!!!

    Terri- good luck with the headaches.  That can be tricky and I don't have a good answer.  A friend from my RADs thread had to stop Tamox because her headaches got really bad.  She didn't want to stop and she's waiting to hear from her ONC what he's got up his sleeve for next.  Someone here tried a tamoxivacation (onc-approved) and it did stop her headaches and AFAIK she hasn't had a problem since.  Again, this is just my 2 cents, no empirical data to back it up, just these two gals I know, but my 2 cents is to not let it get so bad that you would have to stop Tamox... ask your ONC if you can take a 2 week to 5 week break and see if you can beat the headaches.  Or... I am just hoping the headaches go away, or are allergies or something else... maybe try yogic breathing, and/or eucalyptus (whole foods has some great eucalyptus towlettes) sex, deep breathing.... laughter... lots of laughter :)

    Mary mary- I knew she'd be back with the bitch jokes :)  I am sorry to be contrary (again) but I met Mary and she'd have to work hard to get to bitch level.  Comes naturally to me though. :)  I read a bunch of studies (yeah, right, I know, big news there)  that people dont get sick from the cold - they dunked a bunch of Harvard students in a cold pool on a cold day, and none got sick.  They said people get sick from other sick people, and it just happens more when its cold because everyone is stuck inside on top of each other... so I don't let the kid play indoors in the winter with other kids but I have been sending him out in the rain and cold to play, with proper attire.  Now he's got a cold- I think.   I still think he got it from one of us or on the subway on the way to class or just in general, because I don't keep him in an isolation room or anything like that.  Anyway, give yourself a break, a lot of people have had a day off recently.  And you- you have been through the SFBC ringer, then the BRCA stuf, then the oomph, then a couple heavy duty crises at work- including the co-worker with the terrible SFC- how is she doing?  So sorry, you just don't rate as a bitch and deserve a day in bed.  :)

    cdean- I think I am going to make that my sig line.  Either that or I AINT PLAYIN.  So as much as I am a certified bitch... I am joining the sweety pie happy face gals... I am so relieved (with an asterisk) that so far I have no SEs from Tamox.  I was terrified.  TERRIFIED.  I will say something hard here... I read the heidi ho thread, this was one cool woman with young kids, and she posted just before she was going into the hospital for what she knew, and turned out to be the last time, and she asked how to say goodbye to her kids and said she wasn't ready to leave them.  I can't get that out of my head for anything.  Every second, just so happy and feeling so lucky that I get to live and be with my kid.  For heidi ho and for everyone else who isn't as lucky, I am doing all I can to show I appreciate my life, my kid, the whole shebang.  

    lisa-e yeah babe- maybe PM Leggy and get the details?  OK so this is my "gang" here... the ones who are all about making this pill

    WORK  

    FOR

    US

    I think maybe I will change my sig line to - "making Tamoxifen work- for Heidi- Ho"

    CrazyCatLady- You don't sound all that crazy to me :)  You sound like someone who is having to deal with a lot of amazing bad crap all at the same time- and considering that, you sound like a champ. From the little I know about you, and what you are going through, here's a couple bits... RADs alone often gives us problems sleeping, complete with feelings of dread, extremely dark thoughts.  Fun, eh?  No explanation, but that's a usual thing.  Unsurprising that Ambien isn't helping, this is some big time crap being thrown at your body and mind.  A sledgehammer probably wouldn't help.  But there is good news.  In a couple weeks you wont be able to stay awake for trying.  For the redness and itching, if you are talking about from RADs, there's a couple things you can do, but it depends a lot on the circumstance- and bottom line, there's a good chance you can't make it go away... its just getting through it.  18 sessions out of... 33?  Any place where skin touches skin is  going to be the problem area- so if you have big boobs like me, you find outo that when you lie down, your boob slides into your armpit a little and there's skin on skin... but most normal sized boob gals get it just under boob, again skin on skin.  Theres a couple more things... keeping pure aloe in the fridge... using Calendula OINTMENT (not the cream or anything else, the annoying ointment is the one that works).  Drinking water... and cutting yourself a break, recognising and accepting that you need help, even though its "just" radiation.  Check out this thread-

    If I knew then what I know now

    Hang in there CrazyCat... RADs sucks... but it does end.  Oh I see you live in one of my fave places- AR is God's Country... so beautiful, I love it!

    lisa-e- OK so you see there is the NoCal meetup info and I got it wrong- Nov 8 not 5...

     Juli- I am jealous!

    Allie- I just dont know if I can possibly qualify as a sweetie pie happy face... :P

    OK that catches me up for now...

    except this... so I had just written a friend about how happy I was and enjoying my life and stuff and then i changed clothes and saw a red spot on my good boob.  So I did this whole mind bending thing... is it just a red spot or is it cancer?  Do I rush off to the mammo doc to see if its IBC?  Looks like a pimple kind of irritation.  Do i go to BC org and ask what the criteria is for going to the boob doc?  Search the web?  take a pic of it and send it to my ONC?  You know the drill... I decided that if its a pimple, it will go away in a couple days, if its cancer, it wont.  IBC moves fast, but 3 days?  Of course just in the moment that I was saying everything was great, this pops up.  Nothing compared to the scares or worse that I know gals have had here.  I think its a pimple.  If its still here next week, then I will go see a doc.  It's also my period, due tomorrow, starting today, sorta my new usual scene for the last year or so... second period on Tamox.  Not a single SE yet.

    I wonder how many posts happened while i was writing this...

    Love y'all 

  • Rachel_BC
    Rachel_BC Member Posts: 679
    edited October 2009

    kari- hugs for you and I am so sorry about your friend 

    :* 

  • pkb143
    pkb143 Member Posts: 69
    edited October 2009

    Rach, I know what you're saying about being TERRIFIED.  I also started reading Heidi's thread when she posted she had brain mets and remember her wondering not only how to tell her kids, but how to tell them she might LEAVE them. Heartbreaking.

    It's difficult, if not impossible, to NOT start obsessing about everything little nuiance our body throws out there. I've got a little of the same thing going on -- have a painful lymph node under my left arm (for God's sake, that's my GOOD side!). It's been painful and tender for a week but I don't want to seem like I'm obsessing now, so I'm still trying to decide if it's something to bother the Dr. about. UGH. Your red spot is probably just a pimple and my sore spot is probably something very innocent, BUT still....

    By the way, how's the cookie brigade going? shall we send you handmade cards to go with them?

    Geez, nobody wants to converge in Oklahoma? What's up with that? I'm jealous of y'all (typed with a huge Okie drawl there).

    **Kari, so sorry about the friend of a friend (pancreatic). My 'friend' is my former boss of about 20 years; he was diagnosed last fall and seems to be in a "good" period right now. He almost seems like his old self and we are hoping maybe all the doctors and stats were wrong about his prognosis. I just got that book yesterday and am finding it kind of hard to read. Perhaps if I had pancreatic and I was ready to try ANYTHING I would be more likely to muddle through it, but there's so much he nutritionally he's advocating. There are a lot of recipes, though!

  • LeggyJ
    LeggyJ Member Posts: 195
    edited October 2009

    lise-e I PM'ed you!!!  Hey I'm really sorry I took so long to get approval for our visit, but with HR, you can't book a visit too soon, and they don't always approve it quickly.  Last Friday, they called me, and OK'd it, but we can't do lunch there, too busy, so we'll have lunch at Rutherford Grill, in Rutherford at noon, on Nov. 8th, and then go to Neverland.  Work has been really busy, and I can't wait to just relax.  We start to slow down after Halloween, so I'll be taking some time off soon.  My Mom has knee surgery, again, on Friday.  I'll take the day off and take her to hospital. She had a knee replacement last year, when I was doing chemo.  so at least this time, I'll be able to help her.  The surgery didn't take, so now they have to go back in and drill into the bone.

    Kari, my Mom's friend, a lady who was 95yrs. old and looked 70, passed away last Wed. of pancreatic cancer, and she went quickly as well. They had the funeral today. She was a WAVE in WW11, so they had 8 Navy soldiers give her a salute.  My Mom said over 200 people were there at the church.  She was a really nice lady, who also survived BC 20years ago.

    HHHEEEEYYYY  RAACCCHHHHEEELL, I love your stories about your son, he's one lucky boy!  Secret Garden, was my favorite book as a child.

  • my560sel
    my560sel Member Posts: 399
    edited October 2009

    Thanks for your input - I"m going to make an app't to see my ONC because the headaches are really getting bad. They started in the front and now my whole head hurts. Maybe I need a "Tamoxication" for a few weeks to get back in sync. My hormones must be all messed up - well, I guess that's what you want if you're on Tamox. Hopefully my ONC will say it's OK to get off it for a while and then I'm keeping my fingers crossed that when I get back on this train that the headaches will stay away. You know, I was doing so well and then WHAM ! I really think the bitchiness is coming from the headaches. It's not fun not feeling well up in your head 24/7.....

    Ok, going to get some rest...the cat is actually talking to me to feed him. You should hear him, he's cursing up a storm in his own language!

    Terri

  • Rachel_BC
    Rachel_BC Member Posts: 679
    edited October 2009

    PattyB part deux- gosh you always make me feel better :) Thank you.  OK so about the cookies... I didn't want to dominate the thread with a bunch of off topic stuff, but since ya asked... it ROCKS.  On the one hand, I had a really bad couple days when the original cookies for kids cancer people refused my order and then posted to the mommy group we're in that they needed volunteers to bake (just not me or my volunteers evidently) and how they have Martha Stewart and a bunch of press ... like... were they afraid we'd steal their press?  did someone "advise" them that it would be un-PC to be baking for the troops?  but mostly it was breaking my heart that I couldn't give the money to them to help fight kid's cancer, instead was going to have to buy from bakery.  Worse, in the same post where they asked for volunteers and people to buy cookies (and they are only baking 30K cookies, my order was for 15K, so why why WHY were they turning me down???? And their baking date is right in line with my timeline, and when I saw the actual prices and weight, i could calculate the extra postage for sending on Dec 4 instead of Nov 13 was only $50, so the cookies would still be fresh, even if we had to freeze them after baking... ) they also mentioned this same mommy who was turning me away, her 5 yr old son's brain cancer had spread to his lungs.  I mean... that was just all hell incarnate.  I want to HELP!  OK, they wont let me, so I will just do what I can. 

    So... back to the bakery and the kids in MN and cards for the troops.  The good news is that all these otehr people Get It.  The bakery is famous, last year I tried to buy Christmas cookies and the line was ridiculously long, I mean like 3 hours or more.  I am asking them to make my order at the same time as the holiday season is approaching, they are already at top capacity, but they are doing it - with gusto. They are amazing.  Its about 1000 lbs of cookies, broken down into 5 lb boxes, with 6 5lb boxes going into a carton, we estimate 33 cartons of approx 35 lbs each (cookies, boxes, cards, and baggies).  They will bake, pack, freeze and shrink wrap each box, until packing into the cartons and shipping.  Just so happens they are on the same street, about 3 blocks, from the post office, and the post office manager knows me from past shipments for the troops and firefighters.  So... the manager said she'd get a truck to pick up the 33 cartons and shlep them to the post office.  (Oh and it's really only 32 full cartons, the 33rd was partial, but the bakery said they are filling that last carton on their own dime)  I also figured that the troops wont have any thing to mete out the cookies on their end, so one of my contacts asked if I could also send the baggies... a little easier for me to shop here than them in Iraq or Afghanistan... and the bakery gal- she's French even though the bakery is Italian, and its so cute the way she says Oh we have to get zee best cookieez for zee troops!... she has a 5 yr old and has to get her snack bags for school and helped me find some fab cheap ziplock type bags at K mart, so that's done too.  I have to prep the customs forms but I can do that online, and its only 33. So that brings us back to the cards and the Cookiecart.org kids in MN.  Such a nice calm woman at Cookiecart, she went through so many of my gyrations, first I asked her to bake the cookies, then I realized that was not going to work and asked her to do just the cards and she was trying to find a printer and trying to calculate how many cards a kid could actually write- without it becoming impersonal.  And we have to get the cards back in time to put them in the boxes before they are shrink wrapped, zee nice French lady at zee bakery wants the cards by Nov 14 for a November 30 ship date...  Just to have them ready because we are mommies and we like to have everything ready, you know how that is... So yesterday I printed off my printer about 400 cards- they are just on regular printer paper (100% recycled yeah!) and have this image:

    and next to that, this message:

    To: Beloved Warrior

    We love you, we miss you and we support you every moment of every day.  Thank you for your amazing service.  Come home safe and soon!

    Love,

    Rachel and the FDNY Firefighters 

    (an email contact to reach the troops)

    (our FDNY firehouse web site)

    Fold in half and voilà, its a lightweight card so the troops know who its from and how to reach the firefighters, and plenty of room inside for the kids to write their own messages.

    I put the kid on my back in his jammies at 8pm, when I had printed all I could- about 400 because my printer kept going wacko, I can't be sure- and walked across the street to Fedex.  Turns out it would be like $70 to send it over night and less than $30 for 2 days, so I took the 2 days.  The card will be in MN tomorrow.  Meg, if you want, you can go there and join the kids writing cards.  One of the things I told the cookiecart people was to aim for 343 cards... because we lost 343 FDNY firefighters that day... and for me, I can't get a grip on the numbers.  When I sent t shirts, it weighed a ton to wheel the cartons containing 343 t shirts the 3 blocks to the post office, and the whole time I was thinking if this is what just the t shirts of those men feels like, that gives me somewhere to start to understand how many we lost that day.   It's therapeutic for me to do the 343 cards or patches or whatever each year.  I tried to learn each firefighter's name and something about them, but you see how much has happened in the last 8 years... so much to do.  OK so it's not important that they actually succeed in writing 343 cards, just maybe it would be something for them to notice how hard it is, how many that is.  

    But the cards are terribly important.

    I got an email from one of the soldiers one year, he said that they are very happy when they get big corporate gifts or organization gifts but to get a gift from a PERSON with a name who actually gives a shit about them (OK he didn't say shit, that's me) really meant something special.  To top it off of course is that its coming from the FDNY firefighters- and it is, really.  Yes, I am doing it for them, but that's because I can.  I check with them constantly, and I can tell you honestly and show you proof that hearing from the troops that they got the message is one thing that stops every FDNY firefighter right in their tracks.  That makes them smile.  

    So all that brings me to this- YES PLEASE WRITE CARDS FOR US!!!!!  Anyone who wants to write cards, please PM me and I will send you a pdf of the card, you can print it out on your own printer and write as many personal notes as you can.  Then I ask you to get them back to me by November 14 and I will give them to the bakery to pack in the boxes.  Yeah, the soldiers will love the cookies no doubt about that, but the CARDS from REAL PEOPLE who care about them, that's what's going to make their hearts feel good, at Christmas, far from family, in the deserts, at war.  And they will know they are coming at Thanksgiving, the anticipation is half the fun.  Something to look forward to.  Oh and take pictures if you can writing the cards, I will email them, any time they see people care, every day, it helps.

    Now about Oklahoma... YES, I want to meet up in OK.  When 9/11 happened I was in touch still with some car group friends who are in OK, who I had reached otu to after the Murrah building bombing.  Great friends.  After 9/11 these were really the only people who understood how I felt in the days after 9/11, a great comfort to me, and we continue to be there for each other.  And... the people in OK happened to send a special firetruck to "my" firehouse after 9/11.  Lemme see if I can find a pic.  And one of my first and best contacts in Iraq is from OK, the unit is there, and I have an invite to come visit the base.  These were the 343 soldiers lined up at Baghdad Airport in 2004 wearing their soldier uniforms and stripping them off to reveal their FDNY t shirts.  This is Oklahoma!  And as a Frank Lloyd Wright scholar, I keep trying to get to OK to stay in the Price Tower, there's actually 3 FLLW sites in OK I need to visit for my studies.  So... don't be dissing OK to ME babe!  Not to mention one of my fave BC.org gals is an Okie.

  • Rachel_BC
    Rachel_BC Member Posts: 679
    edited October 2009

    Leggy I am so going nuts trying to figure out this secret location!!!! So cool :)  I am  going to put you on my son's monthly update list and send you the 2 last months and this month- I think you will get a kick out of it... if not, lemme know and I will take you off the list and/or not send, depending when you catch me...thank you for the kind words :)

    on pancreatic cancer, I have one pal in California who is managing to beat it for 10 years at least.  its a nasty nasty nasty thing.  SFC SFC AUGH. 

  • BooBee
    BooBee Member Posts: 288
    edited October 2009

    Just checking in.  We should be getting DH's BRCA test results in next week.  Seems so odd to me that I have cancer but the primary risk factor for my children may come from my husband. 

    Crap Rachel.......1,015 posts.  That's some love you're giving out.

    Hope all is well. 

    Renee

  • kfinnigan
    kfinnigan Member Posts: 490
    edited October 2009

    Rachel, I love you!  You always put a big smile on my face!!  I will PM you for the card pdf...

    What makes you think you blew the interview by the way??

    Geez, little miss sweetie pie happy face cried 2 times this morning at work! ARRGH!!  My supervisor, who is going through 'the change'...she has to stop by my office on her way to our Sacramento office...anyway, she is always whispering and I CAN'T friggin hear her!  She knows my hearing isn't the greatest at 'whispering' levels too...so she says something and I caught one word and I said 'repeat that I didn't hear you'...so she says it again, and I caught 2 words...anyway, back and forth...and she finally YELLS 'a key'...I took such offense to that...my mother was hard of hearing and had hearing aids and my dad used to yell at her cause she couldn't friggin hear him!  I would get so pissed off over that...Anyway, she walks away and comes back and says 'oh I found the key'...well I wouldn't look at her, such stared at my computer while typing and said 'that's good'...and she kept staring at me and then said 'sorry I yelled at you, are you ok?'  Oh of course I started to cry like an idiot, I don't know what the heck happened.  I was in such a great mood, anyway, she came over and blah blah blah....we worked it all out and laughed and stuff.  My mom died a few years ago and maybe it just brought back memories of her, I don't know...BUT my supervisor is like freakin Jekyll and Hyde, everyone says it...she's either in a good mood or a bad mood and I am sick of her crap!!  Big sigh....then I went over to one of the other gals and she was telling me her daughter (30 yrs) had some cancerous stuff removed a year ago from her cervix and she they found cancerous stuff again!  So she started crying and then I started crying....oh dear...

    All is good now, I read all the posts and am smiling again.  I have acupuncture on my lunch hour today.  Last visit I felt stoned, high, drunk afterwards...wonder what will happen today!! 

    OK treated me well when I lived there for 5 years!  And my parents had retired in the Ozarks of Arkansas.  It was so pretty there.  But they moved back to Calif after 10 years there since they missed all their kids.

    Renee, wishing for the best from the BCRA testing.

    Love ya girls!!  back to work...thanks for letting me vent!! 

  • cd1234
    cd1234 Member Posts: 40
    edited October 2009

    I am reading another good book right now. It fits in nicely with the PH Miracle. It is called The Complete Cancer Cleanse. I am off caffeine, alcohol, meat, dairy and sugar. People ask me all the time what is left...I tell them my life.I read Heidi-Ho once, before she died. I won't let myself go to the Stage IV threads...it is too sad. Today is the first big snow storm in Denver, and school is cancelled. My son and the neighbor boy are driving me crazy. Must remember sweety pie happy face!!!

  • cparandjuk
    cparandjuk Member Posts: 15
    edited October 2009

    Hello all!  My onc is prescribing tamox for me as well. December 1 sounds good to me as well.  i would love to continue to compare notes as well venture on this journey!