Bottle o Tamoxifen
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My holistic doc actually told me to take SloMag which is magnesium chloride and i buy it at Walmart. I've been taking it for the last couple of years. About 6 months ago I added magnesium glycinate, which helped with hot flashes, and split between the two. Then about a month ago I just went with the mag glycinate. I don't seem to be as "regular" so I have added back the SloMag. I take 2 of those in the am which is about 150mg and 1 mag glycinate in the pm which is 200mg. This way I hope to get the benefit of both the laxative effect from chloride and relaxation/hot flash reduction from glycinate.
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I was surprised that my MO told me she thought my period would come back. I am closing in on 53 and haven't had when since chemo started. She also told me I would likely have discharge from the Tamoxifen but I haven't really noticed it.
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Hi Sloan - good you went for a second opinion. I have no idea what those numbers mean so can't comment but understand you being nervous. I think if your MO was concerned he wouldn't be canceling scans.
I would not have been comfortable on 40 mg of tamoxifen with the rest of the world (that's how I would have felt!) was on 20 mg. Why the switch to the new drug? My MO said 2 years on tamoxifen and then I will switch. Once I am officially through menopause I guess.
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ABreastO: I did have to change from Prozac to Effexor. Luckily, it was very smooth (I was terrified) and the Effexor has really been fantastic at handling hot flashes!!!
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Lovingisliving,
I too had my pharmacy switch my tamox. Even though both bottles said TEVA, the pill size and number printed on the pill were different. I called a different pharmacy, gave them the number printed on the pill that I wanted, and they got it for me. At drugs.com you can enter the printed pill number and it will give you the manufactureer *and* the list of inactive ingredients. I was surprised that the two TEVA pills with different nubers had very different filler ingredients.
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Good Luck New girl so glad you decided to take it!
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Has anyone had a bloody nose while on Tam? I don't see it listed as an SE. It's probably the dry winter air that caused it.
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I had a couple of crusty noses about a month ago and realized my furnace humidifier was turned off. Turned it back on and no problems since.
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Rough couple of days. Yesterday I forgot my midday dose of gabapentin so had a rough night and today I forgot all my morning meds (have gabapentin with me) so no morning Tamoxifen et al. Arghhh had to set another phone reminder.
Scottie
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i just refilled my third prescription of tomoxifen. I get a 90 day supply each time so I've been on tomoxifen since Sept 2015. This time I got 3 blue bottles and the mfg was mylan. I gave it right back to them and asked why it changed from teva and they said that's what they were supplied with. They took back the mylan and special ordered teva which is what I was on. I would have been fine with mylan likely but why risk changing brands. Going forward I'll call in the renewal and request the brand too .
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Lala1- Thanks for the thoughts on Deep Blue. The grape seed (not grapefruit seed) is a small amount, and my onco said to go ahead and take it. He doesn't think the pain is from Tamoxifen, but said to go ahead and stop taking it for 2 weeks to see if pain subsides. Two days without Tamoxifen and no change so far. He said if there was no change after 2 weeks I should see my primary care Dr. and get a workup done for arthritis. The side of my calf muscle seems like a strange place for arthritis, but I will follow directions and see what happens
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ScottieMom11 - How much Gabapentin do you take? I've had bad pains in my legs since my re-excision infection and was started on Gabapentin. I still have the pain but the burning is gone. It is so frustrating as no one can figure out what is wrong so I ended up at a rheumatologist who said it is Myofacial Pain Syndrome caused by stress or trauma to my body - why would a breast infection cause leg pain and swollen node in groin? - who knows! Anyway, he wanted me up to 300mg 3x/day - no way! I was on 200mg 3x/day and when I increased the evening dose, I had such weird things happen. Forgot what I was saying mid-sentence, got lost in a town I've lived in my whole life, was just plain confused so I went back to 200mg 3x/day. I have since slowly titrated back to the 300 at night so I take 200 at 5am, 200 at noon, and 300 at 7pm - What is your experience? Is it helping? I've been good about using the Turmeric now too so hope that will help. I take my Tamox at 5pm before dinner so helps me remember (and I have signs all over the house;-) - kitchen medicine cabinet, bathroom mirror - hey, whatever works, right?
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Live: YOu were VERY smart to give it back and make them give you the original. Once you take it, you are stuck taking it for the whole time.
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Hello All
i have been having night sweats/hot flash flushes , enough that i wake up wet. so i have a magic bag filled with wheat the kind you microwave for a hot compress. but i have been keeping mine in the freezer, i get it when im hot and take it to bed with me. it really helps me get back to sleep.
Hugs
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That is such a great idea!!! Thanks for sharing that.
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Thanks for all the encouragement getting me to start taking my tamoxifen. 5 days counting and I have had no side effects. Not going to be alarmed if a few show up but considering how terrified I was to take the first pill, I am relieved nothing has happened. Saw a new BS yesterday who I wished I had seen four years ago when I first started treatment. First doctor to take my concerns and fears seriously and not dismiss me. Still waiting on surgery for phase 2 but at least I started my Tamoxifen. Thanks again yall.
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Thank you Springtime for sharing your info! I really appreciate it.
The night before I experienced a new hot flash. Felt like someone was standing at the foot of my bed with a flame thrower. Got no sleep! I grabbed our second fan and put it on my side of the bed and I slept much better last night! No additional SE's other than that.
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I just started Gabapentin last week. Started with 100 mg at night and then today I started a morning dose too. Plan to work up to three times a day and then increase to 200 mg the same way and eventually hope to get up to 300 mg. I think it's making a difference in my pain and I can't tell yet if it's helping hot flashes
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I started Tamoxifen in July last year and so far have taken three different brands of it. I haven't noticed any differences between the brands, so it is possible they won't bother you.
My hot flashes start on my back. It literally feels like I'm leaning against a really hot heating pad and then radiates from there. It's the strangest thing. At first I kept finding myself leaning forward as if to get away from the heating pad until I realized there was nothing there.
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Thanks for all the info. I'm miserable with this Mylan generic. So many hot flashes. Next refill (maybe I'll try to get it early) I'm going to request the old manufacturer or call around to see who uses Watson or maybe Teva.
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Momoftwins. . .sent you a PM.
I have been on Tamoxifen for 14 months. I have only had the Watson brand so I can't say if my SEs would be different on another. The gabapentin really helps.
Scottie
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Hey, I have a question for everyone. We all talk about hot flashes but I wonder how they compare. For instance, I talked to my non BC cousin who complains about hot flashes, but she gets a couple of them maybe two days a week. That got me to thinking we may not all be comparing apples to apples. For instance, I think I probably have 6-12 of them a day every day (including nighttime that I'm aware of).
How about you? I'm curious to know if mine are 'mild' or not and how they compare to everyone else on Tamoxifen.
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ORgal- I was having about 50 hot flashes per day. I felt like I was going insane. I went for 6 Acupuncture treatments which greatly reduced my #'s. I'm guessing I'm having 10-20 per day now. Huge improvement and I can live wit that. I'm getting used to them.
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hmm I never keep track how often or how intense... maybe i should start doing it, but i don't want to give them too much attention!
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I would say I get about 10-15 a day too. The worst is at night. I have a little fan by my bed for when it "strikes". I would get maybe one or two a week before starting tamoxifen.
DeeRatz, I might look into acupuncture. Where are the needles placed for hot flashes? I think it's covered by my insurance too!
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LovingisLiving- I had needles right from the top of my head down to my feet. They were in my arms, hands, top of my head, between my eyes, in my ears and around my belly button, elbows and legs. I didn't count how many but there were lots. It really helped me
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I have about 5-8 a day. They seem a bit milder lately.
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DeeRatz, wow, 50 a day! I think that could make a person go crazy. So glad you found something that has helped.
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I started Tamoxifen on February 8th. I also started Lupron injections on February 5th (just received my 2nd Lupron injection yesterday). Since I started them so close together, I have no clue what is giving me which SE. But.....
So far (a month in), I get chills. I am still waiting on the hot flashes. I have no idea what to expect with a hot flash. I am pre-menopausal. I also have a lack of appetite, get out of breathe easy with stairs or anything more strenuous than regular ol' walking. I have joint/muscle/bone pain. But, I did notice the last few days (before I just got this 2nd Lupron injection) that I was walking normally again (I was kind of wobbling at some points) with barely any pain. So, maybe the joint/muscle/bone pain is from the Lupron or the combo of the two and lessened when the injection was wearing off.
Questions:
How long after your 1st dose did you experience hot flashes?
Did (or have you ever) experienced chills/cold flashes? <-- the nurse I saw yesterday pretty much told me it is impossible to be having chills - that the meds give you hot flashes. As if I am making it up that I get the chills. Grrr!
Some of you have mentioned you have gained weight or Tamoxifen. Did this happen over a long period of time or short period of time?
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ORgal. . . I probably have 10-20 a day. Mine are hot dry flushes. . .I feel like I'm in a desert sauna. They often come on right after I wake up freezing. Drinking cold or ice water helps. Also peppermint and icebreakers stop the reaction. The literally start behind my neck and spread down my body if I don't stop them. I have a tower fan that blows directly on me at night.
If I miss a dose of gabapentin, eat a heavy dinner that's hard to digest or eat spicy food, I have a miserable night of cycling back and forth between freezing and burning up.
ayr1016. . .if you have questions about lupron let me know. I did two rounds of 3-4 months each with a break in the summer because the HFs got so bad. Ultimately that's why I stopped it, but everyone has a different expeirince. As for freezing. . .tell the nurse she's nuts. Lots of us have freezing chills.
Scottie
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