Bottle o Tamoxifen
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oy! My usually very normal skin (not oily, not dry) is now dry 2 months into starting Tamoxifen. What do you all use for moisturizers and lotions? I have an over active sense of smell, so I need unscented.
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So glad it has been mentioned to stop Tamoxifen before surgery. This is valuable info for me since I started doing the Tam. before surgery. I will hope that my surgeon tells me this, but glad I read about it on here!
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I am still struggling with dryness on my body but I can manage my facial skin now. One thing that has really helped is using the OCM (Oil Cleansing Method) instead of soap. I use a combo of olive oil and castor oil. You can google for details. Toleriane from La Roche-Posay is a very gentle, non-drying cleanser if you want something you can wash off easily.The other thing I use is either Meadowfoam oil or coconut oil to moisturize. If only I could put that stuff inside my eye sockets... I have started using the lowest percentage Retin-A 2x a week and am trying to work my way up. When my skin gets really nasty and rough, I use my Clarisonic and then put Vaseline over the oil. Oh, and I ordered a humidifier for my bedroom.
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Toleriane from La Roche-Posay I'll second the recommend for this brand... i use the moisturizer.... it's dear $$$$ but very clean in regard to Carcinogens, and scent free....
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Thank you for all of the info! I got a leg cramp last night that brought me to tears! Getting magnesium and tumeric today and tossing the Benadryl. I'm a little confused about the difference between mag malate, oxide and citrate.
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OneBadBoob---Magnesium glycinate will help with muscle and joint pain. Magnesium chloride will help with regularity. They both have very good bioavailability. Those are the two I take. I don't know what all the rest will do (although I should Google it just so I'll know for future use
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I second the recommendation for mag glycinate (or malate) for muscle cramps!
Question: constipation? Discuss. I'm taking a lot of magnesium and a probiotic, and drinking at least two quarts of water a day...
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KateB79--Not all magnesium is for constipation. That's why I take 2 different kinds...one for joint pain and one for constipation.
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Thank you for the Toleriane from La Roche-Posay and other moisturizing suggestions. I'm checking them out.
Constipation: ugh! I have this terribly right now. I started eating prunes this morning and took 1 Colace (my dr office suggested this) last night and 1 this morning. Hoping that will help. Might try magnesium.
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OK, day 6... need some thoughts here... since day one, violent nausea, extreme fatigue, and really bad diarrhea... lasts for about 6 hours!!!! I'm trying to eat, drink lots (ginger ale right now) and rest. This unbelievable though!!! It feels like week two of a chemo cycle. Anyone else have bad side effects??? MO says, take Zofran for the nausea, Immodium for the diarrhea, and Ativan for helping with sleep... Ugh! I don't want to take all of this other stuff just to take this drug...
Help!
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hi Jerseygirl, I was one of the ones that had horrible SEs from Tamixifen. For the initial nausea I took the Zofran. It lasted a few weeks then went away. When are you taking your meds? I found that mid day worked the best to combat nausea and fati. Morning dose did not work for me. I took Avitan as needed for the first 4 months and now only take it rarely. As the melatonin seems to have kicked in and helps.
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ladyb... thanks for the response... I've been taking it late morning... MO says I should try after dinner so that I'll possibly sleep through the bad side effects... Going to try that tonight. Feel tired, but so much better today, of course, haven't taken it yet...
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Jersey - my onco has me taking 1/2 morning and 1/2 evening. It helped but still have plenty of s/e's from Tamoxifen.
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On the magnesium discussion - just checked my bottle that I take for regularity and it says magnesium oxide. It seems to work 250 mg every night and occasionally need to take another midday. Does magnesium chloride work better?
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I mix Keihls Creme de Corps with coconut oil and use it all over my body.
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Blownaway, I take 500 mg of magnesium oxide and it has worked wonders for both the leg cramps and regularity. Even though I recently stopped tamoxifen (was on it almost three years) because of other SEs, I'm continuing with the magnesium. I tried stopping magnesium when I stopped tamoxifen and the constipation came back.
~ Amy
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Eating more potassium is also supposed to be helpful for leg cramps. When you get a leg cramp, bring your toe in to your body and do not stretch it out. I can stop it instantly.
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Jersey. . .I did not have the nausea much when I started but did end up with terrible digestive problems. . one extreme to the other. That's why MO referred me to the Gastroenterologist. He put me on two meds to help the symptoms. It does seem like I'm on too many meds just for the Tamoxifen SEs, however, I have to take it.
Scottie
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Well... last night was somewhat defining for this Tamoxifen journey... and it's only been a week... I was taking it late morning and within a couple of hours got hit with extreme fatigue, violent diarrhea, and nausea, like a chemo train was hitting me... Friday, I thought I'd make it to do errands and wound up pulling over it hit me so badly... Got in touch with the onc fellow on call and was told to take it at night to maybe sleep through the SEs... Take the Ativan, Zofran and immodium to ward off SEs... Wound up on the floor of the bathroom within 2 hours of taking it, throwing up and fatigued almost to the point of not being able to move... onc fellow said if it was the same or worse to stop taking and call MO on Monday... So frustrating... I feel I should have followed my instincts on this and instead let everyone bully me into it, knowing I have bad SEs for nearly everything they've given me so far... The Herceptin SEs were tolerable compared to this...
Sorry, thanks for being out here and listening...
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Definitely listening sympathetically! Sounds like you do need to stop, especially while you're on Herceptin.
(Heck, I'll go public with this: I don't react strongly to most medications, and I'm on a tamox. vacation after having been on it for five months. Because of fatigue and nausea which developed after several weeks. All standard disclaimers apply--you and I have different diagnoses, different course of treatment.)
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Aw, JerseyGirl. . . I'm so sorry. I would definitely not take it tonight; have a heart-to-heart with your MO first. Those kinds of SEs are the pits. Sending hugs.
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JerseyGirl, that sounds just horrid, and I'm so sorry to hear you're having such a rough time! Has your doctor ruled out some sort of flu bug? Hope you feel better very soon
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Well, didn't take it last night and feel really good. A bit of fatigue, but I think that's from what meds were doing to my body and wearing me out... Definitely was the meds and not a bug... Husband and kids were sufficiently freaked out and scared by it, too. So I've decided I'm not going to take it, at least until Herceptin is done, and try to get my estradiol # down naturally during that time. Then we'll see. I can take an AI if my estradiol # comes down...
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I expect the fatigue would take a bit to lift. (I'm just grateful my MO did not want me dealing with two treatments--tamoxifen+whatever--at the same time so he could tell which was what SE.)
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For those of you taking melatonin, how much are you taking?
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20 mg (per naturopathic doc with agreement from MO).
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Wow, I am taking 3mg. I thought the most you were supposed to take was 5?
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A definitive level has not yet been determined.
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I'm taking 3mg of melatonin, too.
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I was taking 10 mg melatonin with benedryl nightly but it stopped working so quit. Now Ive learned that benedryl and tamoxifen dont mix. My onco knew i was taking it and never said a word.
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