Bottle o Tamoxifen
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My sleep mask is satin on one side and kind of fuzzy plush fabric on the other. I had to cut about 2 inches off the strap and re sew it back together to make it tight enough to stay on all night. Got it at Walmart (I think).
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notdone. . .no matter what each of us has gone through we all have rough patches. Hugs to you. I'm on Gabapentin for continued nerve pain from my surgeries and it helps with the HFs from Tamox. I was miserable when I was also on monthly lupron shots last year. I had to stop those b/c I couldn't sleep and started having severe gastro trouble. Ask your MO about something to help you sleep at night. I have a fantastic MO. I take 5mg of melatonin on week nights when getting up early for work.
Turmeric daily helps with the HFs although I still need to clear it with MO next month. Mag Citrate helps with the muscle aches as does my regular walking, hiking and dreadmill workouts.
Scottie
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I haven't had great luck finding good sleep masks. I use the ones you get from the airlines from when my husband travels overseas but he rarely goes anymore and I am on the last one. For me, it HAS to be black.
For dry feet, try rubbing Aquaphor on them and putting socks on until they dry out. I have that problem with my heels a lot. I also was going without shoes around the house and I started wearing indoor shoes because going barefoot is hard on your heels.
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As for masks, I found a contoured one like this is best - it doesn't touch my eye lids, so when my eyes are closed I don't realize it is on.
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I am so grateful for this thread. There is a treasure of information and I want to thank everyone for sharing.
I started tamoxifen a week ago after chemo stopped working. I really, really, really need this pill to do the trick. I've got a 3 cm mass in my lung that everyone suspects may be LC as it looks so much different than the BC masses. If the tamoxifen does not shrink it, I'm looking at a lung biopsy which I am dreading.
Thanks to all who share their experiences and knowledge.
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Noni, I'm with you! I am done with radiation next Tuesday! I get my last boost and I start tamoxifen right after. I haven't picked up the prescription yet because I'm dreading the thought of taking it but I know that it's necessary! I'm grateful too that everyone has shared their stories!!!
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Noni: I hope it works for you!
Jojo: Thanks for the recommendation. I ordered one already.
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jojo. . .thanks for the link, I have it saved and will probably order it for when we travel. I have only a cheap mask.
Noni. . .hope it works for you. Hugs.
Scottie
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Contoured mask for the win. I've experimented with all kinds of masks, and the contoured one is the best.
Re: eczema on legs . . . I have it too! It never occurred to me that the tamoxifen could be causing it.
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Well that was fast. Picked up my first repeat on my script today. 90 days down, 1735 to go
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Hi Jumpship I have been on my tamoxifen for 5 months and have
The same dull aches and problems with sleep. I am six months post radiation and have lymphedema and pains in my left breast too. You are not alone. I do some times take Advil and that helps with pain. I also find walking helps a lot for exercise. I sometimes feel like the tin man needing oil. But once I start it gets easier and takes aches away.. I was told also to swim. It helps. Some days are harder than others but I try to stay positive and keep fighting strong!!! I hope you find some of these little things help you too.
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Jumpship--Ask your doc if you can try turmeric and ginger. My 70something year old dad agreed to try them after he saw my success. He hasn't been able to golf or hunt for the last couple of years due to knee pain. He also said he barely sleeps and just roams the house at night because movement is the only thing that helps. He's had injections which helped for a few months. I talked to him recently and he literally said "Oh my god!" when I asked how they were working. (My dad never gets surprised at anything. He's a retired doctor and thinks supplements are hocus pocus.) He said he played 5 rounds of golf in one week and few weeks ago. Turmeric and ginger are both anti inflammatories and research shows they are very helpful for arthritis which may be why they help my Tamoxifen joint pain.
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I had terrible knee joint pain that started all of a sudden. I then started taking glucosamine (3 a day) and that was the only thing that helped. I tried weaning off and they hurt again so kept it up. Then, on advice from several on here I started the ginger and turmeric. I think it's really helping, and I'm now weaning down to 1 a day of the glucosamine and hoping to stop taking it soon.
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ORgal---Glad to hear the turmeric and ginger are helping. Please keep us updated because I have been recommending this stuff to everyone and I want to make sure it really is working. It worked like a champ for me but I like to hear how it helps others.
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What daily dose of glucosamine are people taking?
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Following the glucosamine discussion.
Also: has anyone else had menstrual cramps without menstruating? I swear this new brand (Mylan) is causing a lot more SEs than the Teva did. . . Back pain, cramps, inveterate and unforgiving night sweats. . . .
I'm done complaining now. I plan to ask for Teva next time.
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I also have Mylan, but I might be too old for cramps... I am, however, getting night sweats like crazy.
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For leg and joint pain I take mag citate. Dh takes glucosamine. I am also on turmeric which helps the HFs.
Scottie
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update re the eyes:
I had a check up with the opthamologist following chemo as my eyes were pretty irritated. She didn't say too much three months ago and suggested Blinks or some other preservative free drops, omega three supplements and hot compresses. She asked me to research restasis but said it's pretty pricey and not covered by insurance. I was told today that the cornea are irritated and that I should We the drops at least daily and the omega 3. Now I already have eggs a lot which have omega 3 but does anyone have any recommendations for an O.t.c. supplement0 -
Molliefish, my eyes got very dry and I had issues with blurry vision. I tried otc rewetting drops for a few months and nothing was helping. Finally I gave in and had my ophthalmologist prescribe me the Restasis. I've been taking it for a little over a month and my eyes are already feeling better.
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Molliefish, I'm a big fan of the Metagenics brand. I've taken a lot of different kinds of fish oil over the years, and this one 1) doesn't break out my skin, 2) doesn't cause fish burps, and 3) has a good amount of EPA/DHA.
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Funny enough, I get my fish oil from Sam's Club. My MO said to always use one that has the highest amount of Omega 3 (DHA+EPA) you can find. The one at Sam's has 1400mg of fish oil and 900mg of that is Omega 3. He said shoot for at least 800mg and 1000mg would be even better. I find the Sam's one easy to take with no fishy burps.
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Thanks all, I should have put this in the August Chemo thread as the dryness is a result of the chemo they think, not the tamoxifen... off to the fish oil store :-)
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Hi there. Are any of you post menopausal? I am on an anastrozole break and MO mentioned switching me to Tamoxifen if my SE's resolve on the break. I am trying to figure out what I feel comfortable doing.
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Hi Molly, I'm post menopausal, but I'm on tamoxifen because of osteoporosis. My oncologist said they are pretty much the same in benefit starting out (2 years Tamoxifen, then switch, or 5 years and then switch) but AI is preferred because of less serious long term side effects.
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Hi all, I just completed radiation o Tuesday and have to start Tamoxifen. I'm thinking of delaying for 2 weeks just so that I'm not so tired and to give myself a break. I'm still hesitant about the SE of Tamoxifen from reading all of the posts. Any suggestions? Thanks
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Hi LynnBM -
First of all Congratulations on completing Radiation!
Secondly, I waited to start Tamoxifen too. My onc said that it was ok for me to wait a bit because more important for me to stay on the Tamoxifen long term rather than starting right away. I am 7 weeks out of Radiation and just started it this week. I haven't had any SE yet. You should ask your onc about waiting.
Hope that helps.
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I finished radiation the day before Thanksgiving and waited until Jan 1 to start Tamoxifen. So far the only SE's I have are hot flashes, which I was already having and now I am having a muscle pain in my right bicep when I move it a certain way. Since I never had anything like that before, I am attributing it to Tamoxifen.
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I took my Tamoxifen the very day I got it. I would do Anything I could do to prevent my cancer from coming back. Tamoxifen side effects are minor compared to the Shit show that surgery and chemo were. I NEVER want to deal with that again. If my little white pill is my saving grace I will gladly take it. Sure I have some side effects, but they are way better than having the big C rear its ugly head again. The longer I take it the better I feel. Don't be scared, have an open mind and just roll with the hot flashes. Sure they are brutal, but it reminds me that the Tamoxifen is working. If I was totally unaffected, I would wonder if it was being effective.
Good luck, You got this
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Hi. I've been on tamoxifen for about three months and was rolling along pretty well. About a week ago I started having pelvic pressure/cramping/burning discomfort. I had a transvaginal ultrasound and found out (as I expected) that I was the winner of the side effects from tamoxifen of increased lining of the uterus and 3 cysts on my ovaries. Two MOs and my gynecologist all agree to get another Ultrasound in 6 weeks. They say this is all "normal" on tamoxifen No one seems concerned and are particularly nonchalant about the discomfort. Anyone else dealing with this
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