Bottle o Tamoxifen
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I noticed a lot more gunk in my gonch too. And pee dribble. This is all so appealing.
I have a small home business making and selling washable, fabric feminine pads and one of the things I make is called a wedgie. It is smooth cotton on one side, flannel on the other, quilted with a layer of batting in the middle. I wear these instead of panty liners. The batting seems to hold a little bit of air which makes me feel more comfortable than a gummy pair of panties stuck to me. They also help contains TINY amounts of bladder leaks. I have been contacted about pads for heavy bladder leaks and I do not suggest any of my products as suitable for heavy bladder leaking.
If you have any sewing skills at all it is a no brainer to make a few fabric liners to use in your panties. So much more comfortable than paper or plastic products! I'm giving away a trade secret here, but I TAPE mine in place with two short pieces of medical tape, one at each side of crotch, wrap around to underside of panty. Unlike other pad makers who are all about wings and snaps, I say no way to that, too bulky! So I use my own adhesive in the form of medical tape. Simply wash the fabric wedgie (pantyliner) by hand, hang to dry, you're good to go. I do not get irritated and raw like I do with store panty liners.
Anyone with basic sewing skills can accomplish this. But for those who don't have the interest or time, this is a side business of mine. But the thrust of this post is that ANYONE can make their own. Honest! You can do it!
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Almost 2months on tamoxifen and the discharge has lessened for me. Hopefully it stays that way. My period in Oct was uber heavy the first 2 days..so not like me, then 3day..*poof*..down to a slight stain for another 3 days. No idea if thats the way it will stay or if my periods will eventually stop. I'm guessing it takes a few weeks to months to see if there are side effects and hopefully they subside during treatment for us.
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Tamoxifen stopped my periods dead in their tracks. I was having regular periods. Boom. Over. Next!
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I had a whitish vaginal discharge for the first year and a half or so. Now at 2 years it seems to have mostly stopped.
Also It took Tamoxifen only 2 months to stop my periods ,though I had 1 single solitary period after 1 year (they checked my uterus lining with a hysteroscopy to check it was normal, which it was). I was already perimenapausal and 49 years old at the time so I was not surprised.
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chemo stopped my periods in February and they have not started again. I did spot a very little bit after starting tamoxifen but it only lasted about 1 day
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Yes! My neck and shoulders are so very tight. I've a headache for over 2 weeks. My onco wants me to get a brain MRI to rule out any cancer spread because I also have weakness in my hands and my oncotype dx score was so high. I really think the headaches are from tight muscles but she wants to make sure it hasn't spread. I still have TEs, and my PS said I can't have an MRI since TEs have metal. I think I'll take this time to get a deep tissue massage to see if that helps with the headaches and possibly the shoulder pain. I see my PS on Tuesday and will ask about PT.
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Mexicoheather - so excited to hear about your great results with the pelvic floor PT! I never even knew they existed until recently. One came to talk to our ABC (After Breast Cancer) group at the YMCA. Amazing what they can do! I will be making my appt
. My MO wants me to have my ovaries removed so I can switch to AI's. Not sure what I will do. I am not havning really bad SE on tamoxifen, so sorta scared to switch - I have talked with several ladies who have issues on the AI"s. Maui - Jen - I think the tamoxifen can cause HA's. I have been having more as well, but when I took a break from the Tamoxifen - completely went away. Do you have a LE therapist? Mine has helped so much in teachng excercises to keep things from getting so tight. She also suggested a deep tissue massage/ I would ask to take a little break from it and see what happens before I had an MRI. I know they have to watch every little sneeze though.
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Should pain is common in mastectomy patients. It's call frozen shoulder. I had it and I am in PT for it now. It is making a huge improvement after only 3 weeks.
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I have a question. Is anyone taking a daily aspirin due to the risk of blood clotting on Tamoxifen? I know I am not but it seems like a good idea?
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Trvler---I'm on a baby aspirin to keep from getting clots. I've never had one but my MO started me on it the day I started Tamoxifen. He originally had me do daily but I kept getting bad bruising (even getting one by resting my chin in my hand!) so he's cut me back to 2 a week. He feels this does just as much good as daily.
Also, my shoulder pain is actually on my opposite side, the one that I didn't have a mastectomy on. I'm really starting to wonder is it's my purse and/or gym bag. Both of which I keep way too much s**t in.....
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Tryler I'm to start low dose Asa with Tamoxifen. I had a blood clot around my PICC line when I was having chemo so I figure I'm prone to them
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I'm taking daily aspirin. What we used to call "baby" aspirin.
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Hi All,
This is my first post here. I will be starting tamoxifen on Tuesday November the 14th. Monday I am having my port removed so my MO wants me to wait until Tuesday to start.
Long story but even though my information shows triple negative my tumor actually came back as having two types of cancer. The majority of it was made up of triple negative cells but a very small area was made up of estrogen positive cells. My BS said they see that from time to time and call it heterogeneous (or something like that). My original biopsy came back as 30% ER+ but when I had my Oncotype done it came back Triple Negative with a score of 58. The breast center retested my tumor and thus the reason they found out my tumor was actually made up mostly of triple negative cells.
So my treatment to this point has been hitting my body like my cancer was triple negative. Now that this treatment is complete they want me to try tamoxifen. I am premenopausal, but they don't feel the side effects of an AI would be worth the very small percentage that it would help the small percentage of estrogen that made up my tumor. My MO feels that if I do ok SE wise with tamoxifen that I should give it a try as an added layer of protection. So that is what I am doing, giving it a try and if the SE's are too bad will discontinue it. Unfortunately they say there isn't a ton of research on how much it will help my type of cancer but also want to try and hopefully it will keep any estrogen cancer cells though small % from coming back.
Has anyone else experienced this? I'm just wondering if it's going to be worth taking tamoxifen or not. Part of me wants to do whatever it takes to prevent it from coming back, but even my MO can't say whether or not tamoxifen will do that. She just says that her recommendation is to try it and I can't handle the SE's then discontinue. Ugh-this has been the only part of my plan that I haven't been 100% sure about.
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Hi, I started Tamoxifen 10 days ago and I have been having nausea. I take tamoxifen in the morning along with prilosec and vitamin D3. Does the nausea go away after awhile or should I do something different like take the tamoxifen in the evening. Any suggestions would help. It feels like I am having morning sickness which would suck to have for 5 years
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Anna, I take mine at night and have not noticed nausea. Maybe I sleep through it (although I don’t sleep very well these days). Maybe it’s the combination that is upsetting your stomach? Might be worth a try to take it at night.
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My oncologist did not suggest it, but I take a baby one every other day.
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Anna, I am finding that some of the side effects are easing off after a while. The leg cramps at night have pretty much disappeared, thankfully. Other side effects, well those are getting worse. Let's face it. To take a pill that blocks our body from getting the needed female hormones is going to have some effects! I take my half a pill every morning with coffee. Probably not the best idea.
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AnnainMontana--I had off an on nausea for about a year after starting Tamoxifen. Like morning sickness was also how I described it! It wasn't until I started taking a really good, refrigerated probiotic from The Vitamin Shoppe that I got rid of it.
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Annainmontana I take my Tamoxifen at night. I haven’t had any nausea. I also take 2 Tums at night (my MO suggested that for the calcium) and that may be one reason I don’t get nauseous. Also, make sure you are drinking a lot of water. Staying hydrated is key for keeping the leg cramps at bay. Also, taking it at night gives the added benefit of being well hydrated from the day rather than missing that over night and taking it in the morning. I’ve been on mine about 5 weeks now and I’m doing ok so far
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I agree about staying hydrated to avoid cramps.
I have to say, I am quite please that my cramps have virtually almost completely stopped and my PT has increased my mobility a lot. I was all but about to stop taking Tamoxifen. Still working on sleep but I think the hot flashes are noticeably fewer and less severe when I workout.
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Trvler the sleeplessness is getting to me. I sleep for a few hours then wake up. Sometimes for no reason, other times I’m all hot and sweaty. I’m up already tonight. I really could use a GOOD night of sleep for once.
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Hi, does anyone know if Tamoxifen cause bruising? Maybe its the low dose aspirin I was put on same time Tamoxifen. I am bruising like crazy. My tummy even bruises from my pants button when I travel. My arms and legs are full of bruises.
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It's the aspirin most likely. I asked the other day if people were taking aspirin with Tamoxifen and those who said yes said bruising was a side effect.
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Hi evreyone...I do believe Tamoxifen can lower your platelets which would cause bruising. I would check with your doc. Good luck and keep us posted.
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Anna - I take my Tamox in the mornings. I was nauseous for about 2 weeks and then it got better. I don't notice it at all anymore. I have enough sleepign issues already so I didnt want to risk intensified hot flashes at night so I take it in teh mornigns.
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Need a little help. ONC wanted me to do an AI but I went with Tamoxifen. I have read that the TEVA generic tends to have fewer side effects, but was told it has been discontinued. What is the next best option and where are you getting it filled? I live in NC. Thank you.
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CCNC I’m on Tamoxifen too. Don’t know anything about TEVA but would be interested as well. I’m in NC also.
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A little update. I had my follow up fr my second endometrial biopsy today. Again there was not enough tissue harvested for a suitable sample. What was examined was normal with no signs of any disease. But I've been referred to my Gyne's Chief of staff fr yet another consult/biopsy/d'n C. What a pain in the uterus. Sometime I wish I'd never said anything. But then I sometimes wish I'd never told anyone about my lump. Do you ever wonder if you'd not disturbed it the lump would have just 'existed' ??0
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Molly, the thought that the lump might have just existed is a wonderful thought. However chances are it would have grown, gone into the lymph nodes metastasized and eventually kill you. You are blessed that it was found at a very early stage. Hope you are doing well. Love, Jean
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