Can we have a forum for "older" people with bc?

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  • camillegal
    camillegal Posts: 15,710
    edited June 2014

    Mea culpa, I've been saying this to often n lately.  I'm so sorry I mean to get here and I really have been busy, this is one of my favs--I actually eliminated some, cuz right now I can't keep up with much--my job has been crazy--who knew it would be this busy, not me for sure. I've been going to Drs. they call and tell me they wnt to see me, I asked if I could email a picture, but they always say no. and now she wants more tests when I finish up with my urologist which will be soon I hope--I get my peectomy next Wed. (u all know I know that's not the name of it, but Chevy thinks it is) that tiny little camera going up my uretha nd I always start singing an Aretha Franklin song, can't help it. My Dr. last week gave me more meds and my sister gets so mad at me cuz I don't know what all my meds are for--she's just jealous cuz I take more than she does. She only takes like 10 a day and I take about 18 a day and she's WTF is going on with u. Well when they figure it out I'll tell her. School is out and Joey is around me more and I love that--he brings me coffee he makes every morning and we talk and when he's with his friends I talk to him differently--I know better. LOL OK enuff about my screwy life.

    Sandra Congratulations how wonderful

    I have not read all of the pages, just kind of skimmed so I hope I'm not missing anything I should b addressing.

    Chevy I told you u u'r mind wonders and u do strange things like write posts where no one knows u, u have proven my point of everything I've ever said to you. Thank you, now everyone knows I'm right.

    Carole u must be on 'r way for the summer with u'r DH, u 2 have such a great time. And u are so creative in the kitchen too----too being the operative word for other rooms.

    Jackie I hope u'r doing well.

    I truly wish everyone feels decent and can enjoy some nice days for summer.


     

  • sandra4611
    sandra4611 Posts: 1,750
    edited June 2014

    Thank you everyone for your kind comments. Last night as we were driving home from our "date" on the Riverwalk (it was Little Rhein Steakhouse, Mema4, just down from the Arneson River Theater) we were discussing fate. How in the heck did we know back then when we were babies that we had found "the one?" With little life experience did we just get lucky? I had seen him numerous times but was not interested in a clean cut Georgia Tech fraternity guy...after all, I was a singer in a band and FAR too sophisticated for someone who thought being "wild" in January of 1969 was not wearing sox. He, being a 21 year old guy who was busy sowing his wild oats, wouldn't take no for an answer. A month later, after a casual evening, we kissed good night and the world stopped turning for both of us. He describes it the same way I do. That first kiss was magical. Sixteen months later we were married. Fate? Luck?  

  • illinoislady
    illinoislady Posts: 46,506
    edited June 2014

    Hmmm, fate or luck.  I don't believe in either.  But then many people don't believe in the things I do.  I actually believe we are fortunate enough to have angels/guides/helpers/heavenly caretakers, or whatever you might care to call the sometimes very still small voice inside that whispers help and direction to us.  Could those whispers be about a person who becomes our world -- and of course it could.  We, I so believe are here on Earth to develop and grow our souls and whomever, or whatever will aid us in doing so is open to help from the cadre provided.  Nothing is too small or large as subject matter for seeing that we get where we need to go. 

    We were not "dumped" here to make it as best we can --- rhyme and reason to it all, and so that we don't struggle endlessly mired in some spot we cannot extricate our being from, is the  little voice that guides us when we choose to hear.  You did not need Sandra the lessons gleaned from choosing a mate not suited to you..........so you listened to the feeling of comfortable and right -- when it came and have enjoyed the bounty of it all.  Good for you and good for him. 

    Blessings

    Jackie

  • camillegal
    camillegal Posts: 15,710
    edited June 2014

    Oh how I enjoy reading what Jackie always says and her beliefs are so full of wonder and really makes u think. U are so kindhearted Jackie I think u'r soul has found the peace we all look for.

    Sandra I love u'r story about u and u'r husband and how u r still so happy. You don't find that a lot, but I noticed there are more here than u would think and that is an accomplishment in life alone.

  • mema4
    mema4 Posts: 484
    edited June 2014

    Sandra, what a great place to eat. I used to work for Harcourt in SA and that is where we would take clients. You are so blessed to meet someone that "stops the world" for you. I've not had that, well maybe for a short time. Glad to see you are still enjoying it all.

    Chevy, I used to be lostboob, changed it for sas and a few others. I did lose my boobs but I tend to use humor to deal with such negative situations so I have to reel myself in at times or listen to others.

    Yesterday, I had injections in between the neck vertebra 4 & 5, the deep kind. They were so nice to prop my chest just right, tore up egg crate stuffing, turned things every which way and put a special face holder in the hole for my face so while my neck was exposed I was quite comfortable. They had a cute little slide show with music that I could look at but I didn't care. I only felt a prick when they started numbing but I didn't feel anything else. IV was in my right and they left my left arm alone. It was even marked to do so. I told them I could not feel the margarita yet and I think I was telling them I still couldn't feel it when I woke up trying to drink cranberry juice. Happy Happy Happy! Neck pain and frozen shoulders appear to be gone. Will be watching waiting closely over the next 2 weeks. I've had this horrible neck pain for many years and maybe these injections will relieve the inflammation for healing to take place. Three injections on the right which is worse for me, and 2 on my left so I'm wondering if that helps with my shoulder pain during therapy.

    I wonder if I posted here about this already? My memory sucks. 2nd week on Arimidex and I'm already cranky. I need a nap.

  • Chevyboy
    Chevyboy Posts: 10,258
    edited June 2014

    Okay, Mema!  Hah!  I thought I was losing my mind!  I don't change nothin'!  Otherwise I surely would forget what I did!  Mema is okay, but what does it mean?   Just don't change it again, or I will be lost for good....  Like Cammi...

    So you were drinking cranberry juice?  SURE you were.... well maybe with vodka in it too.   Did you get cortisone shots or something like that?  I'm so glad it is WORKing! 

    And don't worry about posting something already.... I can't seem to remember what I am doing, or where I am posting!   It's just usual behavior for me...image

    And so Cammi pipes in with "Mea culpa!"  Whatever that means!   Yes, our Cammi has a phone job.... It entails answering those 1-900 numbers, for a certain amount a minute....  So she talks to them, and I can't remember what it is called!  Oh well, YES I CAN, but I won't say it here....   But she makes money doing this..... whatever......

    Oh God I can't believe they are going to insert a Polaroid camera up your wazoo!    I would have to be put in a deep sleep!  I mean deeper than when they did my hip!   But I NEEDED one, when they put that catheter in....  WHAT are they THINKING!  That is just not normal pain for any folk!    So yours gets a camera?  Mine never did.... 

    I would love for Joey to make my coffee too!  DH gets mine already, and all I have to do is push a button!  57 years gals!  I know..... I am so very fortunate..... but then so is HE!  image

    Oh!  We were married in 1957!   And we had a '57 Chevy!  AND a dog named Chevy.....

    All this talk means nothing.....  I guess.....

    I know Cammi!  That was so funny!  But I didn't delete it...   And no-one has posted since.... Ha, ha!  I was even partially intelligent! 

    Sandra, I just read your post again.... talking about your DH!  Wasn't it FUN in those days?  I mean when you didn't have hardly any money, but it didn't matter?  And then being married, and it was like playing house!  No worries, no problems.... just you and him... 

    So we have lived our wonderful lives....  A few bumps.... well, for ME anyway.... Ha!   But it's all been worth it.... just having each other.... 

  • Chevyboy
    Chevyboy Posts: 10,258
    edited June 2014

    image

  • illinoislady
    illinoislady Posts: 46,506
    edited June 2014

    Chevy....that is so, so pretty.

    Jackie

  • camillegal
    camillegal Posts: 15,710
    edited June 2014

    Oh Jeeze Chevy I just stepped into a pile of chit can u get any more mushy? I'm glad u'r so happy but come on some of us didn't find our prince charming and hell we didn't even find anyone with charm--so enough already Miss happy pants. And yes those 900--numbers do make some extra money and I'm glad I thought of it haHA

    Lostboob I didn't know that was u--Mema--OK --Nowwhat exactly did u get done? I don't get it but whatever it was I'm so glad it's working. Is it a permanent fix or what. It sounds much more complicated than just cortisone shots, did they do some kind of lazer thing?

    Yes Miss Chevy My uretha is going to be on camera so give me a little R E S P E C T, I will be awake so there will  be action. Of course I'll be singing that. Like everyone always has I'm sure.

  • Chevyboy
    Chevyboy Posts: 10,258
    edited June 2014

    Okay, you wild woman you....  Here ya' go....

    http://www.youtube.com/watch?v=cYbs_O_iMfU

    I've never known anyone who had that um..... "procedure" done!  Is that part of your JOB or something?    Or does that "procedure" have anything to do with your general "stuff" that isn't working so well?    I think I'm just sorry, and worried of what they are going to do to you.... or are planning.... 

    We need a "Live-Feed" as to what they are doing....  Tell them THAT, and see how fast they kick you off that table!   Is this like a colonoscopy?   Only taking a different route?  Ask them that.    Tell them to take pictures, so we can post them....Snooze

    You SEE how much I know!   And is this Wednesday?  So I have to worry up until THEN? 

    Thank you Jackie.... I felt like you when I posted it! xoxoxoxo

  • illinoislady
    illinoislady Posts: 46,506
    edited June 2014

    Glad you are ok Cam.  I worry when I don't see you here.  I was actually worried a little about you and Chevy too.  You were just off working, arranging tests, seeing Dr.'s and doing a whole lot of other fun things.  You and Chevy sure know how to liven things up around the place......you make dust bunnies giggle I bet. 

    Stay well ---

    Blessings

    Jackie

  • camillegal
    camillegal Posts: 15,710
    edited June 2014

    Jackie than you and u are so sweet.

    OK Chevy if I get any pictures like the ones where u get for a colonoscopy some how they will be printed here just for u to look at.. And no one else has to look at them cuz it's probably disgusting, but since you enjoy that of disgust I will be more than happy to accommodate you. 

  • camillegal
    camillegal Posts: 15,710
    edited June 2014

    image
     Oh OH that thing is small, WTF camera is going in there?

  • wren44
    wren44 Posts: 8,075
    edited June 2014

    My friend just had the test where you swallow the camera and it sends photos to a transmitter you wear. She said it was about the size of a large calcium pill. I would think yours would be much smaller than that.

  • joan811
    joan811 Posts: 1,982
    edited June 2014

    OK I'm confused...Mema is LB?
    Carole, sorry to hear about your skin issue...timing not great but you should be fine.  And all that rain...is that typical in spring?  Must be steamy!

    I went to a family wedding Friday night, and there was my 48 year old niece in a wheel chair.   I asked what happened and she just had a BMX fewer than 2 weeks ago.  She had pillows under her arm and was having difficulty using her arms and walking.  But she stayed for the entire wedding.  Does not take pain pills, just Advil.  i could not imagine that I would have been able to do any more than attend the ceremony, if that.  i hope she isn't paying for it today.  The main thing is, why didn't we hear from any family members about her dx and surgery...Dh was visibly upset that we didn't know.  She has a questionable sentinal node so at her young age maybe she will have chemo.  She did not go to a cancer center and that makes me nervous - she is the type who does not want to know anything and just does what the doc says.  I am 180 degrees from that...I had my surgeon appointment before I even got the US biopsy report.  I had already read everything.  I picked up my own slides and read all reports before I ever saw a doc.  It takes all kinds, I guess! 

    Sandra, when my DH was in the AF national guard, we used to go to the AMSUS conference in SA frequently.  We would walk the river walk for hours and sample food along the way.  I remember that restaurant but cannot remember what i had there...maybe just a drink.  Happy Anniversary!  What a great love story.

    Wishing all those dads out there a happy Father's Day. 

  • Chevyboy
    Chevyboy Posts: 10,258
    edited June 2014

    On man Cammi, I don't know what hardly any of those parts are!  Did you draw that picture yourself?  I have just never seen that stuff, from that angle I guess!

    And what do they think they will see?  Or is this just some sort of exploratory exam that I never want to do?  Just drink lots before you go...  preferably alcoholic beverages.

    I'll bet you can watch what that camera does, while they are exploratively looking around?   Just like an ultra-sound?  It probably beeps too, when it sees something!  Reminds me of letting the Road-runner loose up there...

    I'll bet we scared everybody off, here..... 

    Joan.... Wow!  That really is strange.... I mean living in the same town and all?

    Maybe she just is the type that would rather not even THINK about it, much less say anything to Family?  I can't believe her Parents didn't SAY anything...  Someone must have TOLD her to have the BMX...  Maybe she didn't have a "choice" in the matter?  

    But her condition, I don't know!  Is that normal?   She had a "questionable" node?  So that must mean her nodes were not clear.  You being through all that, would KNOW what she isn't saying.  And I guess that is her choice. 

    All you can do is shake your head, and say, something like "I know..." or "Well I wish you the best."

    Evidently she and  her family is really trying to keep all this a secret.  Are they ALL like that?  Were they around when you had YOUR surgery?   So in other words, I guess you can't say anything, unless she or someone else asks you what you would do....  Sounds like a lot more they aren't telling you, and don't want to.

  • illinoislady
    illinoislady Posts: 46,506
    edited June 2014

    The further you distance yourself from your
    expectations, the more exhilarating your life will become.  Though a
    situation in which you find yourself may not correspond to your initial wants,
    needs, or goals, ask yourself how you can make the most of it and then do your
    best to adapt.  Your life's journey will likely take many unpredicted and
    astonishing twists because you are willing to release your expectations.

    Madisyn Taylor

  • SallyS70
    SallyS70 Posts: 816
    edited June 2014

    Jackie, letting go of expectations as mentioned in your daily quote has really been a help for me.  I read that many years ago and have used it, but today I needed a reminder .  Thank you.

  • carolehalston
    carolehalston Posts: 9,016
    edited June 2014

    Sandra, what a perfect anniversary celebration.  Congratulations to you and your thoughtful dh.  The flowers are beautiful.

    Chevy and Cami, thank you both for checking in.  We worry about you when we don't hear from you.  Cami, good luck with that test.  It does sound similar to a colonoscopy with a different entry. 

    Two years ago when dh and I were ready to embark on our summer getaway, I parked my car under a shed at my mother's house so it would be there for my sister to take my mother places.  That very night a tree fell on the shed during dead calm weather.  Well, the car monster has struck again.  Last night dh and I got into the car, which was parked in the carport, to drive about a block and a half to a neighbor's house to go out to dinner with the neighbors.  DH backed out, forgetting about the camper parked near the house, and backed INTO THE CAMPER!!!  I was SO upset!  The rear end of the car is badly damaged.  Fortunately the camper wasn't badly damaged.

    So tomorrow morning I have to report the accident and arrange repairs with the same body shop we used before.  The neighbors offered to return the car to our carport when it is repaired.  What a stupid accident! 

    My mother and I are going to lunch today.  I'd better get ready and go.  More later.

  • SallyS70
    SallyS70 Posts: 816
    edited June 2014

    Carole, sorry about your accident.  It sounds like you and DH were not hurt ... right?  

  • SallyS70
    SallyS70 Posts: 816
    edited June 2014

    Sandra, belated Happy Anniversary!  Thanks for a glimpse of the River Walk.  I have fond memories of a convention in SA and the River Walk.  I hear it is really beautiful at Christmas with tons of little lights.

  • illinoislady
    illinoislady Posts: 46,506
    edited June 2014

    Carole --- if it helps....I did almost the same thing not long ago.  Forget a heavy construction flat-bed trailer had been backed into an area that they should not have been...............where I feed my feral cats.  When I went to leave ( since nothing is EVER there ) I just whammed right into the thing with my back bumper. 

    Fortunately, it hit in just the right area that the damage would have to be absolutely known about to be sure it was there.....but we sure know it.  I felt pretty stupid to say the least.  Very aggravated with myself.  Dh was 'kind' about it all, but I'm still amazed that I could forget something that big was there in such an extremely short time.  Sure would come in handy for some of those new cars that warn you something is behind you.  I'd just have to hope the warning was soon enough to help me correct the error of my ways.

    Jackie

  • wren44
    wren44 Posts: 8,075
    edited June 2014

    Could be worse. I worked with someone who backed her Prius into a police car. Not only did it damage her car but she also got a ticket.

  • mommarch
    mommarch Posts: 534
    edited June 2014

    Chevy, everything is OK.

    DGD left yesterday to spend the week at her brothers house, she seemed a little scared to leave us.  She wanted to know if we would be ok while she is gone.

    Actually nothing going on for a change.  Went to the Community church in the resort where we live.  The Pastor is a friend of my DH.  It was OK, I just need more structure, being raised Lutheran, (ELCA)  I guess we will go there a couple of times a month and then go to the church we belong to in town a couple times also.  That way we can connect with more people.

    Well it is teasing us here with thunder.

    Have a good evening

  • mema4
    mema4 Posts: 484
    edited June 2014

    Hey ladies, hope all is having a slow and relaxing Sunday.

    I wanted to clarify for some of you little curious kitties that yes, my "name" was lostboob when I first got on BCO.  I thought it was cute but it was pointed out to me that maybe it wasn't. So, being the little pleaser I am, I changed it to mema4 because my grandkids call me mema and I have 4 of them. Long story on that mema name but I always wanted grandchildren and hoped I'd be called mema!

    I had neck pain for many years, probably left over from a horse throw or even a car wreck or who knows what. Just decided to try and do something about it now. I was always needing a massage or a heating pad. Having BC seemed to be making it worse. So, a head and neck doctor did a series of deep vertebrae cortisteroid injections to get the inflammation down so that my PT for my BC would be more efficient. This wasn't the regular in the neck shot so they gave me enough happy medicine by IV to relax me which I call the margarita kind and I really like. It was over too fast, no pain, lala land. I just sobered up and started drinking cranberry juice while talking away. My neck is feeling better and I go to PT tomorrow so we will see if it helps loosen me up and if it lasts.

    I didn't ask my MO if I could do this. I needed it done and this doctor was aware of my BC, etc. Sometimes I think you have to step out there and get some things done that will help you whether they like it or not.

    image

    MY NECK BEFORE

  • sandra4611
    sandra4611 Posts: 1,750
    edited June 2014

    Ha ha! Great post. So glad you got some relief with those injections. I would have been a blubbering mass of nerves but it sounds like you sailed right through it.

    Mommarch, so sweet of your granddaughter to worry about you while she's gone. Poor kid has been through so much.

    Sally, yes the Riverwalk is gorgeous during the holidays. Even though we've lived here 28 years, we still take a boat ride in December. It's so magical.

    image

    Joan, what a surprise to find out your relative had BC and no one told you. I'm a little surprised that she would show up in a wheelchair at the two week mark.

    Jackie, beautiful and thoughtful quote today. Thank you.

    Chevy and Cammi...you two should get a comedy act together and go on the road!


     

  • Miminiemi
    Miminiemi Posts: 260
    edited June 2014

    Sandra - what a wonderful story and anniversary celebration.  I'm here at the lake surrounded by grandkids and my own kids.  Beach, golf cart rides and grilled dinners just fine!

  • termite
    termite Posts: 238
    edited June 2014

    Hi Ladies,

    Hope everyone had a great weekend.I have been working longer hours at work since we have gotten more kids dueato another center closing. Out of 5 new kids in our class only a few listen to us. Most of them think they can just go and do whatever they want and tell us they do not want to clean up the messes they make (these are 4 years old) Wow! It has been a long week. On top of that they have put either myself or the co-teacher that works with me into other classrooms and have given us a new teacher to us but from the other center to help us. No help most of the time since the kids walk all over them.

    Sandra--Belated Happy Anniversary. Congratulations on 44 years. Those were nice pictures and your DH sounds like a great guy. My mom loved the River Walk. My sister (that passed away in July) would take her each time she went to San Antonio visiting them

    Cammi--good luck on your tests.

    Mema---hope the shots work for you and glad you are feeling ok

    Miminiemi--sounds like a great weekend

    Mommarch---I am happy for you having your GD with you. She really cares about you and your DH since she is worried about you while she is gone

    Have a great week


     

  • illinoislady
    illinoislady Posts: 46,506
    edited June 2014

    Are you present in this moment, right here, right now?  Or are you remembering what you didn't do yesterday, thinking about what you have to do tomorrow, regretting what you did last week.  If you are in any of these places, you are not her...e, right now in the fullness of this moment.  The richness of the present is here.  The fullness of now is present.  If you are not here now, it means you could be missing the love, joy, peace and brand-new ideas that are here right now.  Why not take a moment to gather yourself, to pull yourself together, to collect all of your thoughts and feelings in this time and place?    -Iyanla Vanzant


  • Teacher64
    Teacher64 Posts: 402
    edited June 2014

    termite - those kids sound like my grandchildren at their house, but not mine! Neither parent likes to say no because it makes their kids unhappy! Yesterday while visiting here one slammed the door and was told not to do that. She stood there and did it again. I marched her over to a chair for a time out while my DIL got teary-eyed and said they just don't mind. She said they got color changes every day at school the last month. I asked what consequence they had at home for that and she started to cry that it was enough to get a color change. I handed her a tissue and said it obviously wasn't or the behavior at school would have changed.  Then I really put my foot in it again and said unless they had had consequences at home, nothing would change at home or school and life will be a nightmare. Usually I keep my mouth shut, but from the get go let them know things were different at our house. We love our grandchildren too much to let them be hellions, so they usually follow directions at our house.

    I taught too many kids that had no rules at home and thought they didn't have to follow procedures in my classroom. I always let them know rules the first week. I would always have a student (high school) say their parents were "old" and were their friends and ask why I didn't want to be their friend. I'd let them know my friends were even older and that I would be friendly, but not their friend. They would eventually realize being respectful gained them respect in return. 

    Mema - love the picture. I got shots like that in my shoulder after it froze. I fell off a ladder and messed up my shoulder while washing windows-all but the last window were clean and sparkly! The shots bought me time to heal a little and to make decisions.