Can we have a forum for "older" people with bc?

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  • gardengumby
    gardengumby Posts: 4,860
    edited August 2014

    Chevy, I had those allergy shots for awhile, but they could never get me past the first bottle of stuff.  Finally I gave it up because I was sick so much of the time.  My husband and I would go get the shots - then go to a movie, because we'd be in such terrible moods that we didn't want to try to talk to teach other - we knew we'd just fight.  Then within 24 hours I'd be sick.  I'd be too sick to go to work for a day or two, then just felt kinda crappy for a couple days.  Just as I was feeling good again, it was time to get another shot.  I kept it up as long as I could - I think it was for about a year, but maybe it was only six months.  I know it FELT like forever!!  Finally I just gave it up and decided to simply avoid the stuff I had the worst allergies to.  There were a few things that on a scale of 1 to 10 I was way off the chart.....  The allergy clinic folks said they had never seen people who had allergies as bad as my husband and me.  Mine were worst for animals - especially horses and cats, hubby was worst for molds and dust mites.  But we both reacted to so many plants and animals and household things, that the allergy clinic joked that they were going to order us bubbles.

  • anneb1149
    anneb1149 Posts: 821
    edited August 2014

    Puffin- glad your team was quick to respond and help you. My chemo was always a full day experience. First, the drive was an hour or more depending on traffic, then I did labs, waited an hour, saw my Onc, then finally to the chemo center. The wait there, not counting the actual waiting room was at least 45 min, sometimes double that for the drugs to come from the pharmacy, then the infusion itself was 2 1/2 hrs. Then another hour or more to get home. I was not told to suck on ice at all, but it was suggested that I use Biotene mouthwash each day. I did, and never had a mouth sore. At the very least, you are closer to the finish line than you were yesterday. 

    Chevy-all that you said is true. Good part is that we have known not only Doug, but his whole family for many years, and in fact can see right thru his games. They have been together pretty much since Tracy was 15, so his behavior is nothing new. 

    Right now, he denies any responsibilities for the breakup, and is just waiting for her to get over her bad mood. He is my BFF thinking I will encourage Tracy to give it one more try. He is Eeyore (Winnie the Pooh's sad donkey)around Tracy " I just don't understand why you are so mad at me" , "I've already missed so much of Dougies life" "poor me", "woe is me", etc, etc. 

    Thing is, Tracy isn't really mad at him at all. She is just done and wants him out. She is frustrated that he is still here, but I don't think there is anything he could say or do at this point that would change her mind. She has always said since they separated almost 10 years ago that she would never get back with him. Unfortunately, because he was in the military, and away, she tried to keep him involved in their sons life as much as possible- which meant nightly phone calls that turned into more than just Dougie saying good night to daddy

    Daddy wanted details of Dougies day, that as a toddler, Dougie couldn't give, so Tracy did. Then conversations grew to talking about their jobs, etc. when Doug came home on leave, he was granted unlimited visitation with Dougie, because all thought that was critical for both of them. 

    Somehow a friendship formed again, but Tracy never waivered from her position that she would not get into a relationship with him again. He did a real good job of destroying both her self-esteem and her finances the first go round. . Then he came home and she was grief-stricken over her Dad's death, and alone here in Dad's house day after day ( I had gone to -Atlanta ). Slowly he stayed longer and longer until all his stuff was here and he took over as "man of the house" 

    Other than when he was in the military, he has been in construction since he was 14. So he did pretty good as man of the house- making minor repairs, taking over the yard work, changing lightbulbs, etc. Tracy says all was great for a few months. She even thought maybe he had grown up finally. But the constant emotional abuse started again. He actually tells her that she didn't really think that, she just thinks she thought it, which dumbfounds her. 

    My eyes were opened, cause Doug can be very personable when he wants, on our trip to Ga for the 4th of July. We were almost at my older daughters house when a driver tried to cut Doug off. He pulled a gun out of the glove compartment! With his 11year old son in the car! When i mentioned that last Sun, his response was "but the guy was trying to cut me off" as if pulling the gun made perfect sense. He also had 2 what I would describe as manic episodes while we were there. 

    He just denies whatever he can't justify, and justifies everything else in his mind. And anyone that doesn't agree is just plain stupid. 

    I have been trying to convince him that he needs to rent a place, not buy one, at this time. He could be in a place next weekend. He is insisting on buying, I personally think it is because it takes longer. His only income is from the VA  and SS and that has not been settled yet. He just brushes off my logic and does what he wants. 

     I see my MO  here in Fl, just a routine visit this afternoon. And my newly engaged son has invited me out to dinner sun night. That should be fun. On the down side, my oldest son heads back home to So. Carolina today. Camp is over for the year. I will miss his calm, easy-going manner. Although I will talk to him more now - he calls me at least 3-4 days a week on his way home from work. 

    Enjoy you weekend 

    Anne

  • Chevyboy
    Chevyboy Posts: 10,258
    edited August 2014

    Ah geez Anne..... You are stuck with that guy forever!  Your DD doesn't want him, so I don't see why he wants to stay around ANYone!  What does she have to do?  He will not stop until she gives in..... And you guys are his link to her.

    If it were me .... not to mention my DH, he would be GONE from our lives.  He is your friend, but I would not let him near my house....  He scares me, and I don't even know the guy!   You know his folks....  I get that you have known him for all his life, but that doesn't mean you are indebted to him for the rest of his life..... that you are responsible for him in any way.  

    His own Parents can take that on again...... you don't have to....   

    Going to Dinner with your Dear Son sounds fun.... what does HE say about  your problems with Doug!    Maybe listen to what he says.... I'll bet he has your back, if you want to put distance between yourself & Doug......  

    I would just say no..... No to everything he asks of you....  And I REALLY wouldn't help him financially at all.... what he does, is only his business.....  He sounds like a 10 year old, asking you for your advice, and help....   that is what HIS Parents are for.....   

  • Chevyboy
    Chevyboy Posts: 10,258
    edited August 2014

    I MEANT to say, we went to Sprouts, and I found this box called Healthy Bones Plus..... The gal talked about how more women take them, instead of the regular over the counter, or prescription pills for bone loss....   They are by BioSil....A box has 2 bottles.... one is  Bone Collagenizer Matrix.... the other is Bone Mineralizer Matrix... The Mineralizer you take 6 a day.  the Collagenizer you take 2 once a day.

    She said I could bring them back if I wanted to.... but I'll try this one box.... Have any of you tried these?

  • illinoislady
    illinoislady Posts: 46,506
    edited August 2014

    This is a dilemma Anne.  I can see though what you are up too.  If you could get Doug to see he'd do better renting - not only could he get out faster, his chances of being successful are better -- even more so since the outcome of V.A. and social security is something of a hang up right now and maybe a bit on the shaky side. 

    It really does sound like somewhere along the way most of whatever sense of responsibility that he might have had has flown the coop.  Sounds like it was never very high but now he is not even trying.  He needs some real counseling ( no stigma attached ) to help him "discover" that he is not being responsible and to hopefully give him some desire to repair that.  You just gotta' want too.

    Well, on the road to the rec center to walk.  See you all later.

    Blessings

    Jackie


     

  • anneb1149
    anneb1149 Posts: 821
    edited August 2014

    Chevy and Jackie- thanks for the supporting words

    Doug's dad is a loser and always has been. He lives with Doug's brother ( in the garage) and smokes pot all day. He is about the worst possible role model or advisor for Doug. His mom is a great friend, but when the 3 kids were growing up, she went from guy to guy,  from apartment to apartment. When we met her she was with the same guy for many years. It was a stable relationship until after 20 years, he didn't want her anymore. With Dougies birth, then other grandchildren, her focus changed from party girl to grandma. In the 4 years since the breakup, she has lived in at least 3 places, now she is living with Doug's sister and family. She has a good job in a law firm, but no clue how to help her children grow up and be responsible. In fact, the first time Doug & Tracy broke up, 10 years ago, she admitted herself to the psych ward for 72 hrs. So not much support there.

    My DH would have had him gone last weekend. All the siblings want him gone too. Tracy's drinking complicates things, but Doug has his own reality and sees things his way only. He is in counseling thru the VA for PTSD now, but when they tried counseling 10 years ago, the counselor said it was a waste of money, because Doug wasn't hearing a word she was saying, he was too busy telling her what Tracy was thinking, even when it was not anywhere close to what she was saying.

    He also told the counselor that she was too dependent on us, and that none of us liked him. The counselor asked if the FIL that "hated" him so much was the same man he said took him on a cruise- just the two of them. And was the BIL that hated him the one who played golf with him on a regular basis? 

    Tim could easily physically force Doug out. We are all trying to avoid that, because Doug's mood swings are extreme and we are afraid of the violence that could occur. 

    So we are (I am) showing some support by house hunting with him, offering sound advice re renting ( not that he is listening) and trying to get him out peacefully and quickly. I think his game is to wait till Rob and I leave, then Tracy will give in. Rob left today - camp is over. I am not leaving until he has something definite set up- whether a rental or a sale. And I am getting itchy to get back to Georgia.

    Anne

  • Chevyboy
    Chevyboy Posts: 10,258
    edited August 2014

    Ah man Anne!   Everyone else has told you the same thing....  It's just that he is holding on to you guys.... his only tie to Tracy.

    SHE should make it definate that she is out of his life, except for their Son, and he could get visitation, but sounds like he doesn't even do THAT one worth a Tinker's darn!  

    He either gets his own place soon, or your Husband should do whatever it takes to keep him away....  A restraining order would be the next step... 

    Yes, he IS dangerous....  Sounds like his family is worse off than him....  they are all losers, and users.

    Just don't let him drag you guys down with him!  I think a LOT of your Daughter's problems ARE because of him!

    If he were out of ALL of your lives, I think SHE would be happier, and healthier!  He isn't your problem anymore....

    He also has a split-personality....  and I think you see this....  He will use you guys to get what he wants..... but it really isn't your problem..... not any more....

    I'm surprised that their Son is doing alright!  It's a wonder that the courts aren't involved.......   

    I used to have a neighbor....  Tracy....  She was divorced, and lived there with her little  Grand-daughter "little" Tracy....  Her Daughter lived there also, and sold drugs through the bedroom window!  HER Husband, (Little Tracy's Dad) was in Prison.  

    We because such good friends with that little 5 year old....!  We loved her!  She would always come  over, with her hair freshly washed, and she would come in, and would LOVE to play her games on my computer!  We gave her popsickles, and cookies, and baggies to take home with her!

    She would help me pull weeds from my garden, and I would pay her....  she was my shadow...

    Tracy's Son did an accidental overdose....  He died.... then Tracy sort of lost it!  She thought his Estate would give her money, so she stopped making payments on the house.  But the FATHER of her Son, got in on it.... and she got nothing....  

    Then she left one day, took little Tracy to HER Mother's and went to a motel, and killed herself with an overdose.

    I just sobbed!  And I never got to see little Tracy again!  The  OTHER Daughter of Tracy came by one time, and I talked to little Tracy & her Brother Walker, and she gave me the phone number, but their life was just GONE!  It has been over 10 years....  I never knew little Tracy's last name, nor anything about her worthless Mom and Dad....

    I just hope and pray that maybe some Halloween, or when she gets older, she will come by....  my heart would just drop.....

  • camillegal
    camillegal Posts: 15,710
    edited August 2014

    OMG so much trouble--Chevy tht is such a sad story for that little child---I hoe that "Tracey is doing good now.

    Anne u'r's is unending, I think everyone knows he needs to get out, but how do u do it with his crzy moods and antics. I really wish I had a magical answer cuz just telling him doesn't work and for hime to buy a house now sounds silly, he should just get an apartment with visitation and that's it If he could only start his own life, but he seems determined to stay in all of yours. And I know u lost u'r DH or all of this might be easier for all of u.  But I think u have to tread litely in a way. I'm sorry I'm not much help.

  • blondiex46
    blondiex46 Posts: 2,726
    edited August 2014


    Puffin, my regiment of taxotere was about 5 hours, from the time they hooked me up til they took it out with the premeds and the tax, which ran for a couple of hours....Hang in there, I could never sleep when I was there, watched tv and talked to people oh yea, we take food, the ones of us thatt were on chemo and or family members so we eat also. Have they told you how many rounds you are getting or how long you are going to b on it for? When I was on chemo it was for the rest of my life, no ending, as long as it was working....and it didn't get any worse, but it didn't get any better, with them....

     

  • camillegal
    camillegal Posts: 15,710
    edited August 2014

    Blondie I think of u so often--I'm always praying u doing better.

  • puffin2014
    puffin2014 Posts: 979
    edited August 2014

    Blondie: I only have 2 more chemo's left, so very doable. I can't imagine having chemo for the rest of my life, you're one strong woman! Way to fight!

  • Chevyboy
    Chevyboy Posts: 10,258
    edited August 2014

    Yes Cammi, I KNOW! Little Tracy's Mom
    was in jail, her Dad in Prison, so I just didn't want to ask about "stuff" very
    much. Her little Brother "Walker" was just as darling, but HE lived with his
    Great Grand-mother...

    But I love to think and talk about her.... I just KNOW
    she will come back someday.

    And when she does, I'll show her that I "saved" her
    "games" she used to play......!

    She'll PROBABLY maybe come by when she is driving......
    unless they took her out of State....

    Morning Blondie~ You know, it's YOU guys who give ME so
    much encouragement, to know that I can tackle anything that comes along!

    And OH! Before I forget... Theresa's Daughter in Law,
    Nina... the one that her Son Danny met online, and married, has always stayed
    close to Theresa. Dan had the heart-transplant, which went miraculously, and
    then lymphoma.... But the treatments for that were too much for his heart....
    So they lost HIM, but gained sweet Nina! She has ALways helped out those old
    folks...

    But about a year ago, she started feeling "funny.".....
    She has brain cancer.... but she started some sort of chemo...

    So her Brother from out of town, moved in with her....
    lock stock and barrel.... He was going to help take care of her..... Everyone
    was happy!

    Her prognosis didn't sound good, but like I told Theresa,
    "no, you just can't ever count anybody out! There are sooooo many
    treatments out there now, and you can't go through life thinking, OKAY, I know
    my end is drawing near.... You have to start each day, thinking you can go on
    forever! That you can SHOW them... that you have the strength to stare down
    anything that comes your way! And NObody tells you when your time is
    up!

    SHE HAD ANOTHER MRI, AND THE TUMOR IS
    SHRINKING!!!!!!!!!

    So NOW her Brother is upset! He was planning on keeping
    her house after she kicked the bucket, and it all would be his! That worthless
    piece of junk!

    I would kick his a$$ out so fast, he would be left out on
    the curb with only his socks!

    She can't drive, ("yet!) and he would take her to her
    appointments, shop, and bring her over for family gatherings, AND she helped
    Theresa pack a lot of her "stuff!' I kept asking how she was.... and Theresa
    was always sad, but NO MORE!

    So if we kick her Brother out of her life, others can
    take that rat's place! I am sooooo happy! She said they fight all the
    time.... But Nina always was a pistol, so I just KNOW if she can beat THIS, she
    can kick her Brother out!

    I was sitting on the floor when Theresa told me, and we
    both yelled and laughed!!! I told her I just KNEW it! And it's because of you
    gals! You go through this everyday! Some days are good, and some are just
    awful, but like Jackie says," You just give yourself 10 minutes to get through
    it... Then when you see you made it, give yourself 10 more!"

    That can be for anything..... So THANK you Cammi and
    Blondie, Jackie and all you gals going, and have gone through Chemo.... YOU are our
    inspiration!

    And look at Jackie NOW! She made LOTS of "10 minutes!"
    There IS always hope!

    My youngest Daughter gave me Martine
    McBride's CD with this song....

    "I'm Gonna Love You Through It".....

    For all my friends......

    https://www.youtube.com/watch?v=ZYNOXRifXKQ

  • illinoislady
    illinoislady Posts: 46,506
    edited August 2014

    Through humor, you
    can soften some
    of the worst blows that life delivers.
    And once you find laughter,
    no matter how painful your situation might be,
    you can survive it.

    - Bill Cosby

  • illinoislady
    illinoislady Posts: 46,506
    edited August 2014

    Wow !!!  What a great link Chevy !!!!!  Brought a few tears to my eyes as it has been awhile.  I finished all my treatment in 2008.  It has been a great 6 yrs. and I'm looking for a whole, whole lot more. 

    Now you know there is a BUT.  But, there was a moment in time when I was full of doubt and huge anxiety.  During a very tough time ( the one and only time my immune system went down ) with a bout of esophageal thrush --- I wondered if what I was going through was worth it. 

    Here I am so YES, YES. YES, a thousand times, but it was the dark night of my soul just then.  I got down enough to forget that almost everything you will encounter has some sort of fix.  My despair took over for a day or two and I was ready to throw in the towel.  Then when I got in for treatment the picture started to change drastically.  And once again --- I looked forward to what tuned out to be not such a bad life story after all.

    That song just reminded me instantly of 2008 and made me grateful all over again.  We are afraid, but we go out and slay dragons, because our loved ones are cheering and we need to just keep on slaying dragons and in saving ourselves with the help of our medical team, we continue to save those who love and need and want us. 

    Life is a very, very beautiful and tender thing. Being here is such a reminder of how many great women there are and how fantastic it is to visit with each of you every day.  I'm sure I am stronger because you are there. 

    Blondie, Kaara, Sally, Sandra, Chevy, Anne, Puffin, Wren, Cammie, Carole, Rita MomMom and anyone I may have missed, I'm so glad you are in my life.

    Have a great Saturday.

    Blessings

    Jackie

  • camillegal
    camillegal Posts: 15,710
    edited August 2014

    Jackie how sweet and yes I am glad everyone here is in my life---who could I complain to like this and who would laugh t the same stupid things and today Chevy was way to nice for sarcasm. But it did make me think about the one day when after 2 yrs of chemo and surgeries my Dr. was reading my report from tests and instead of talking to me she opened the door and left the room and I heard her yell in the chemo room we did it, we actually did it, I didn't know if I'd see this day and I didn't have a clue what she was talking about, all the nurses came in and were hugging me and my Dr. came back and was hugging me and I'm like WTF--And she said u kicked cancers ass and we gave u everything we could but u'r attitude carried it thru. Which at the time I said cuz I'm a sarcastic bitch???  I guess so, then of course she gave me the news of all my SE's that would probably happen and told me she had to see me every three months from then on and my new Dr. is following her lead and that's why I get so many scans and tests it was like Holy chit--and I know that why she called after I came to this Dr. cuz she said she missed me and kept up with how I was doing. Cuz I surprised the BS and her--thank God, but I really didn't worry I think that was it and so did she. And I had so much love around me--(especially Joey) that I just wanted to see him a lot and I did all the time and he made me happy. Didn't mean to be so graphic but it was along haul and because of my drs. they were not giving up and I didn't either only cuz I didn't know any better. That's why stupid really worked in my favor.I know I complain a lot about how I feel and I don't like to but I don't have a lot of good days but it's expected but they are not all bad either and I don't get down in the dumps, it means more showers for me then and I'm just to lazy. OK my soap box is over. And even tho I wasn't on BCO then I came later I have so many wonderful people in my life it's great.

  • SallyS70
    SallyS70 Posts: 816
    edited August 2014

    I am grateful that I have all of you in my life.  Thank you for your time.  You all enrich my life with a very special connection.

  • Chevyboy
    Chevyboy Posts: 10,258
    edited August 2014

    Aaaaaaaaaaaah!  You gals are just too sweet!  Cammi, that's the first time you talked about all this.....  I commend you my little friend.....  So does that mean we can't be silly with each other anymore?  That we can't pole-dance and act like we really know what we are talking about?    And talk dirty on the phone, and drink whiskey and smoke pot?

    I mean we could START all that.....

    You gals DID beat that dragon!   We could always meet another one, even a fire-breathing one, but now we know what to DO!    I'll remember you two....  and yes, it IS/was your attitude....  Same with me and my hip....  I thought OHGOODGODALMIGHTY, I CAN'T MOVE!!!!!!!  I never dreamed this would happen!

    But just give ME a few months, and I bit the bullet, and showed all THEM I could not only walk, but tap-dance!   I still want to run in the rain with my Daughter, and someday I will!

  • Chevyboy
    Chevyboy Posts: 10,258
    edited August 2014

    Oh hey Sally!  You are very special!  You KNOW that, don't you?

  • SallyS70
    SallyS70 Posts: 816
    edited August 2014

    Thanks Chevy.

  • blondiex46
    blondiex46 Posts: 2,726
    edited August 2014

     
    You people are wo unbelievabley loving and caring and it is a privledge to know you all if only vertually...To be honest I don't think about dying often, not scared, am looking forward to seeing people on the other side but am sad about leaving the people I love, most of all Andrew who is my grandson, 8 and I adore him....I am worried about the twins and know I will never see them get married or have children and that again makes me sad....I am trying to make memories... I told the kids that for my birthday I wanted to have dinner with just the 5 of them, no kids or spouses, just them....You know every year for every birthday, christmas, and other holidays I wonder if it will b my last one, especially now, not wanting to die near or around thanksgiving or christmas (not that I am) so if I have to go back onto chemo to pass that I will, but don't want to ruin the holidays for my kids and grandchildren. I feel really good and I know that isn't going to last once it starts moving, but for right now I am good....MO did say that if I wanted to do radiation on the lump on my leg and my arm if we do a bone scan and it proves to be tumors, to take away the pain, the one on my leg doesn't hurt, my arm it doesn't, thank goodness for the oxys....Can't tell wether the breathing is getting better with the predasone or not...it is keeping me up though, went to sleep last night about 2 and got up today at 3pm, but when I go out it takes me a day to recuperate...I even did 2 loads of wash today, which hasn't been done in like 6 - 8 months, so proud of myself...

    Anyway I treasure every single one of you, thank you for not judging my decision to do what I feel is right for me....

    Love

    Sandy aka blondie

  • Timbuktu
    Timbuktu Posts: 1,423
    edited August 2014

    Sandra!  you brought back such memories!  I remember going into the first day of fifth grade and all of the girls seemed to be named Cheryl or Sherry.  I remember thinking I would never remember who was who.  What happened to all of them?  I don't know anyone named Cheryl today.  

    I was at the opposite end of development though.  I think I was a B cup in sixth grade and so embarrassed I wore a bulky sweater every day for two weeks.  Oh the pain of adolescence!

  • puffin2014
    puffin2014 Posts: 979
    edited August 2014

    Looks like I'm going to have to file an appeal for my rotator cuff
    shoulder physical therapy. I was 5 weeks post op when diagnosed with my
    breast cancer so the surgery set back my recovery, then the chemo set
    back my recovery. So I've used up my 30 allowed visits and don't have my
    full range of motion back. Therapist sent in a request for once a week
    for another month and it was denied.

  • Chevyboy
    Chevyboy Posts: 10,258
    edited August 2014

    AndTylerToo!!!!! See? She said Timbuktu, so I just said that!

    I'll bet you meant to post somewhere else, but we found
    you here, so we'll tell Sandra whenever we see her.... whoever she is....Ha!

    I didn't like grade-school either.... You were like my
    friend Anna! She was the only one around who had boobs!

    I didn't get them until I was probably 15.... or so. And
    then it was just one, for the longest time! Now try covering THAT up! Anyway,
    maybe you will find us again, and hang out with us too?

    Blondielittledickens! We just love you, and are right
    beside you with all this stuff going on.... Yes.... I remember when my
    Grandson's were 8... They just put all their love and trust with you, because
    that's how they were made, and he is "part" of you.

    I just know your kids will understand everything about you
    wanting to spend your Birthday with only them.... Okay, but then what about
    NEXT year.... Tell them if they behave, they can maybe bring their spouses.....
    Ha!

    I just love that your attitude embraces everything that
    you are going through... It's like Okay, things are not what I would LIKE them
    to be, but I have to get this laundry done, so I have to take care of
    it.....

    And your thought is, okay.... CHEMO.... when it hurts bad
    enough, I'll go DO it.... but I have to rake the leaves
    first.

    Nope.... we don't judge you..... I just want to be like
    you when things aren't looking as good as I wanted them to be...... You are in
    charge of your whole life, no matter if it is 1 or 20 more years.... like we all
    are.

    My Husband is going through this somber stuff, like when
    we talk about getting a newer area rug for the living room, he says..... "Well,
    we just have to wait and see if we are still HERE!"

    So I get on my little high horse and yell, "What do you
    MEAN, if we are still HERE? You don't even have a COLD to worry about you are
    talking about not even BEING here!!!!!!!!

    So I AM sympathetic, like when he is hurting, or
    something, but NOT when WE get to get up every morning and face another
    beautiful day, with no worries!!!!

    It's just hard trying to be the HAPPY one, with someone
    who frets over a hang-nail!

    And we treasure YOU little Blondie.... every minute we get
    to spend with you....

    Now go iron those clothes.......

  • Chevyboy
    Chevyboy Posts: 10,258
    edited August 2014

    image

  • anneb1149
    anneb1149 Posts: 821
    edited August 2014

    Happy Sunday everyone

    Sandy, this is ptobably the one place you can be 100% you and find no judgement, only support. I remember that when my Dad asked my Mom what she wanted for their 40th wedding anniversary, the only thing she wanted was for all four children to be with them. I was the tough one because the others were reasonably close. I had to fly from Fl to NY and my husband insisted we couldn't afford it. My Dad finally called and said he could not change my Moms mind, so he paid my airfare.  There was no amt of money he could have spent on anything else that would have pleased her more. 

     I had a really bad night last night and only slept for 2-3 hours total. I still have not found a comfortable bra. I was at the MO's office Fri and went to their boutique. I got what I thought I needed- a sports bra with pockets for the foobs. Felt great at first, by by bedtime I had 2 spots on my chest, same spot on each side, that hurt somewhat constantly and HURT to touch. By the time I got up yesterday, it hurt to move and I went back to my sports bra underneath with the mastectomy bra on top. About 4 pm I ended up taking 1/2  a Percocet. Took another 1/4 at bedtime, but only slept till about one am. At 6am I took another 1/4 Percocet and 5mgs of Ambien. Slept for about 2hrs. I am exhausted but even more frustrated- I have bought probably 10-15 bras since surgery and still can't find a comfortable one. Really didn't expect this to be a problem. I have ordered yet another one that is more of a compression vest than a bra, but I need the compression on the chest under the arms. I know this is a minor issue compared to what others are going thru, but I am just so tired of being uncomfortable. 

    Well, that's enough whining, I am going to take a nap. 

    Enjoy your day...

    Anne

  • illinoislady
    illinoislady Posts: 46,506
    edited August 2014

    In our rough and rugged individualism, we think of gentleness as weakness, being soft and virtually spineless. Not so!  Gentleness includes such enviable qualities as having strength under control, being calm and peaceful when surrounded by a heated atmosphere, emitting a soothing effect on those who may be angry or otherwise beside themselves, and possessing tact and gracious courtesy that causes others to retain their self-esteem and dignity.  Instead of losing, the gentle gain.  Instead of being ripped off and taken advantage of, they come out ahead!

    Charles Swindoll

  • illinoislady
    illinoislady Posts: 46,506
    edited August 2014

    Oh how wonderful to come here.  Our sweet little Blondie.  I think most everyone here forgot HOW to make judgments long  time ago.  There are things we must make judgments on, but not our friends -- this boat just isn't big enough. 

    Anyway, I, like Chevy and many others here have only admiration for you, and how you are doing things.  Of course we pray you will feel as well as possible and hang in there for a long time.  It is hard leaving loved ones -- yet, I feel you know that we don't actually die as much as transition, where the worn out bodies we end up with here are not necessary. 

    I also feel when our love is really, really strong we can petition and intercede from where we will be, to assist our loved ones while they remain here.  Sort of and in a way, the best of both worlds.  I too, am not much afraid of death --- since it is only the death of an un-needed worn out shell that needs to be used while we are here. 

    It is a wonderful thing to feel peace and yet acknowledge what you will miss or feel sad about at the same time.  Hats off to you.....you are so balanced.

    Anne, you have a TRUE dilemma.  I have heard women talking about buying bras where you go to the store and there is a lady and that is all she does.  An expert on how to choose the right bra for yourself.  I hope you don't say that you have tried that and failed.  But, just saying that if you are around any of the more major stores....perhaps that could be an option to consider for yourself.  Expensive, probably, but no more so than buying a bunch of bras that don't work. Just a thought on my part.

    Chevy, you know you are pure love.  That's all I need to say about you and Cammie too. 

    Its going to be a good Sunday......would be a whole lot better if Carole would stick her head in and say hi.  I'm awfully concerned.

    Blessings

    Jackie

  • Chevyboy
    Chevyboy Posts: 10,258
    edited August 2014

    Oh Man!  I just watched the video of Tony Stewart hitting that guy on the dirt track....   He lost his life!  I just wanted to think that this was an awful accident, but it sure doesn't look like it....not after I watched the video....

    This guy should not be able to race again..... ever.

    Carole, are you guys watching the road-track race at Watkins Glen?    Tony sat this one out....  

  • carolehalston
    carolehalston Posts: 9,021
    edited August 2014

    Goodness, I'm sorry I worried everyone by not checking in for a few days.  But it's so touching for you to be worried about me.

    I'm doing ok.  The dizziness is better.  I'm pretty sure it's related to sinus. 

    Today I loaded up the laundry and went to town to the nice Laundromat I use.  I went BY MYSELF!  I enjoy dh's company but we have a little too much togetherness during the summer.

    Yes, Chevy, we are watching NASCAR this afternoon.  That was an awful situation with Tony.  Imagine how he must feel, killing another driver. 

    Cammi, that is a wonderful story about your dr.'s reaction to the success of your chemo treatment.  But TWO YEARS of chemo.  What an ordeal.  And you still go through a lot with the tests and scans and apptments.  You must be a great example to Joey and the rest of your family.

    Blondie, I found your honest post very moving.  I admire you for being a strong woman.

    Hi to everyone.  Hope you're all having a good Sunday.


     

  • anneb1149
    anneb1149 Posts: 821
    edited August 2014

    Jackie

    Yes, I have been to two breast cancer specialty shops. No, make that 3- the one in the hospital where I had the surgery, one where I was sent to get the compression garments for my LE, then this week to the boutique at the MO's office. Plus I have bought a bunch at regular stores 

    I think the problem goes back to right after surgery. I heard them say that I could start to wear the post mastectomy bra as soon as I wanted. I did not hear them say I needed to wear it every day, so I didn't really even start to wear it regularly until after radiation. 

    I have "pockets" under each arm that probably would have disappeared had I worn the support bra daily. But, because I didn't they are still there. They need more support than a normal bra, and I found wearing a sports bra, then the post mastectomy bra over it worked. But, I am in So. Fl. in Aug. and it is too hot to wear two bras every day. I thought the one I got Fri was a combination of the two, but wearing it just for a few hours has me in pain for two days. I don't know if I twisted my body into a bad position while watching TV, making part of the bra dig in somehow or if it is the bra itself. 

    I just know that there is the exact same pain in the exact same spot on both sides,  although the left side is more painful to the touch, and I am very sore when I try to move around. 

    I hadn't taken a Percocet in over a month and even then , 1/4 or 1/2 would fix me up. Between 4pm yesterday and this morning, I have taken a whole one, broken into 3 different times.

    I would appreciate any suggestions or advice on how to deal with this. I have mentioned it to my MO in Atlanta,the MO here, the LE therapists, here and in Ga,  2 primary care Drs and even the BS back in April. They all say that's too bad, but offer no help or advice. 

    I am looking forward to getting back to Ga, to my regular Drs, but am waiting on making plane reservations until Doug either is out, or has gotten a house and everything is done except for the actual closing.  I have no doubt that if I left tmrw, he would cancel the offer he made on a house Fri, give Tracy some complicated version of how it fell through and stay here indefinitely.  Thank goodness I feel this is a physical problem that will be taken are of, and not worried that it could be a recurrence of BC. 

    I did get a good two hour nap, and am looking forward to dinner with the newly engaged couple.

    Anne