Can we have a forum for "older" people with bc?
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Morning all
Sandy - the sad part is that while everyone else in the world, including her mom and brothers can see that she is controlling and obsessive, she does not see it. It's really a sad situation because she gets so hurt when Rob points out how ridiculous her comments are, like "why did you pick that glass to use?" and " Did you put Lu in her bed?" When He now responds with " it was the first glass I saw" and "no, I put Lu on the roof for the night", she gets really hurt and angry that he is so mean to her. She does not see her questioning as over the top aNd makes no effort to change. When I suggest something for him to try, he says he has already tried it. I suggested, for example, that when she asks an unnecessary question, or starts telling him how to do something he does every day, thAt maybe he could come up with some sort of hand gesture that would be a signal for her that she is going overboard. Tried it- she just starts questioning him about why he using the signal, she was only saying, or asking or telling him whatever. Why is that a problem? she wants to know.He has probably changed as many diapers as she has, he has bathed Lu as often as her, yet she still has to "remind" him how to do it correctly. Each and every time. She also does not see how much like her father she is, and gets highly offended when someone tells her that. Rob is not perfect by any means, but he is not the village idiot either,which is how she makes him feel. She is heading back to their home in S Carolina this week and he will not see the girls for six weeks. ThAts Another big issue for them. He earns as much doing the summer camp as he does teaching school each year. It wasn't a problem before they had kids, in fact, I think they both liked the break. Now that they have kids, he wants to move back to Fl, so he doesn't have to be away from the kids all summer. Lu is Daddy's Little girl and she misses him terribly. He does not like living so far away from family, and there is nothing keeping them there. They moved there because Anna worked in the mortgage business and Charlotte is, or was, the epicenter for that. After working at 2 companies in the office, and trying to work from home for a few, she couldn't make it work, so she has become a personal trainer, which is far from being a profitable career, so she has been a stay-at-home mom since before Lu was born. Rob also wants to move back because he has serious sinus problem issues that the Dr has told him can only be helped by moving south. Anna absolutely refuses to come back to So Fl, so Rob has agreed to somewhere near the Orlando area- anywhere really where he can go home, if not every night, at least each weekend during the summer. She says they moved constantly while she was growing up to places around he world, and she doesn't want to put her girls thru that. Rob says one move, possibly two before either child is in school is not the same thing. Constant tension.
Anyway, you all have better things to do than listen to my problems so I am going to close and do something useful, like read a book. Talk to you all later
Anne
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I'm a coloring addict. There are hundreds of free tutorials on You Tube. Here are some:
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Personal trainer? Oy vey. I’m sure that most are normal, rational people, but it’s an occupation defined by telling others how to live their lives and the degree of obedience directly increases success. I proffer two examples: Susan Powter and Jillian Michaels, both of whom had long-term eating disorders (anorexia, bulimia, compulsive exercise) and hid them from the public for years. And eating disorders are characterized by an extreme need for control one’s own environment--and personal trainers have the opportunity and incentive to control the behavior of others.
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Sandra- thanks for he coloring sites. I was searching "how to color" and getting nowhere. Just looking at your first suggestion, I realized I need to look for coloring techniques.
Anne
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One does not need to fast for days and meditate for hours
at a time to experience the sense of sublime mystery
which constantly envelops us.All one need do is to
notice intelligently, if even for a brief moment, a blossoming
tree, a forest flooded with autumn colors, an infant smiling.
Simon Greenberg0 -
Can life get any better? Happy Independance Day
Anne
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AWE --- what a perfect picture and Happy 4th. to you and everyone.Jackie
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Anne, ove all the red white and blue. Babies are just adorable.
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awwww....
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Lucky Lady!
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Watch your thoughts, for they become words.
Watch your words, for they become actions.
Watch your actions, for they become habits.
Watch your habits, for they become character.
Watch your character, for it becomes your destiny.
- Anonymous0 -
Love is the ultimate meaning of everything around us.
Love is not a mere sentiment.
Love is the ultimate truth at the heart of creation.
- Rabindranath Tagore0 -
Good morning! I shared these on another thread also. Last night was my second photography class (I got tired of always shooting pics in auto mode!) so thought I'd share here also. First we went to a culvert in a park to take some silhouettes. I should have used a different aperture, but still had fun. Then we went back to the art museum to practice still lives. The idea was to use refracted color to split the colors through water. I love that even the stem of the center glass is reversed. Fun to just forget about bc for a while! Dara
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Dara, those are pretty neat. I can also sort of feel how good it would feel to get the results you have which sure look good to me. Keep up the good work.
Jackie
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Prayer is a kind of calling home every day. And there can come to you a serenity, a feeling of at-homeness in God's universe, a peace that the world can neither give nor disturb, a fresh courage, a new insight, a holy boldness that you'll never, never get any other way. -Earl G. Hunt, Jr.
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MORNNG ALL
Dara, Those pictures are great. If you can do this well at your second class, I can't wait to see your pictures going forward.
I am fine- really missing Lucia- they went home Tues. Anna's mom is with them for a week or two, then she said she will call me if she "needs" me. I hope she realizes that if she calls, I am not paying triple the normal price to get there the next day. If she hadn't said it the way she did, I would probably have been on my way to Nancy so I would only be 3 hrs away if she called.
It is time to put Lu's toys away till next year. We are still waiting for our back yard to be re-sodded. The sprinkler guy was finally able to finish fixing them last night. He was doing it as a side job for our yard guy, and could only come in the evenings, and it has rained just about every day at that time. Will be glad to finally finish that.
Talk to you all later
Anne
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Four score and seven years ago our fathers brought forth on this continent,
a new nation, conceived in liberty, and dedicated to the proposition that
all men are created equal. . . . That this nation, under God, shall have a new
birth of freedom--and that government of the people, by the people,
and for the people, shall not perish from the earth.
Abraham Lincoln
November 19, 18630 -
I've been on anastrozole since Nov of 2014, had my 2 year followup dexascan and today got my results back: hip and spine are stable, non dominate arm significantly worse. MO wants me to start on the Prolia injections.
I really don't like the sounds of the side effects of the Prolia, especially since my spine and hip are stable. Have to admit I haven't been doing much with the arm exercises, wonder if I can get by without the injections if I do better with the arm weight machines
Anyone getting the Prolia injections and how are they going for you?
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The Prolia SEs are milder than those with Zometa infusions.
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Puffin- had my first Prolia injection yesterday. I brought home the paperwork that was in the box with the pre-loaded shot. Long reads. I agree, there are some uncomfortable sounding side effects and a few that are really worry some - most of which I knew about in advance. Since chemo threw me into full osteoperosis of the femoral neck, I don't feel like I have many choices. The thought of a broken hip & a nursing home recovery are both things I want to avoid.
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Minustwo, If my hip and spine hadn't been stable I wouldn't be questioning the Prolia. My MO's nurse called me back and said the doctor is OK with me not starting Prolia right now, keep eating my calcium foods and taking my Vit D. I've been so focused on getting in my 10,000 steps for my legs and hips I got lazy about doing my arm work outs. Definitely need to get back to those arm machines.
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Puffin, not a bad call. It isn’t a broken arm that puts someone into a nursing home and a downward spiral towards the Reaper. As long as your hips, thighbones and spine are okay, I wouldn’t risk the SE’s, however rare, of ONJ, myeloid dysplasias and horizontal femur fractures (all except the myeloid stuff being commoner with infused bisphosphonates like Zometa or Reclast than with injected biologics like Prolia). I’d get DexaScans as often as insurance would pay for them. though (usually biennially).
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Puffin - good for you. I've put it off as long as I can but haven't been able to increase the numbers in my hip even with supplements of 1500 mg of calcium and 4000 mg of Vit D per day for the last several years. Hope you're successful.
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Today we learned that Mike's relapsed MDS has quickly progressed to Acute Myeloid Leukemia and things are about as bad as they can be. We will meet with the doctor Monday to find out if he qualifies for a clinical trial at MD Anderson in Houston. If so, we'll go right away. There is no time to wait. The cancer has blocked much of the production of red blood cells, white blood cells, and platelets so that's why his numbers are dropping. They can't really go a whole lot lower. He had to have a platelet transfusion today.
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Sandra - you will both be in my thoughts & prayers. I hope Mike is able to qualify the trial at MDA.
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Sandra, prayers tonight for Mike and you, and for as long as it takes to turn the corner back to strength
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The Tao Te Ching says, When I let go of what I am, I become what
I might be. When I let go of what I have, I receive what I need.
Have you ever struggled to find work or love, only to find them
after you have given up? This is the paradox of letting go.
Let go, in order to achieve. Letting go is God's law.
Mary Manin Morrissey0 -
Sandra, I'm echoing the thoughts of everyone in holding you and Mike in thought and prayer and praying for comfort in any way that can be given as you begin this big hurdle.
Jackie
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Sandra, thoughts and prayers sent your way.
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Sandra, keeping you and Mike in my prayers.
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