natural girls
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Seaotter I am literally stuffing myself with walnuts right now....can't cram enough in
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lol painterly - Organic walnuts are to die for!!!!
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Dear painterly and seaotter,
I had no idea that lavender was high in estrogen, and I just sent a few links to my daughters and my friend. Do you think that burning the oil is also harmful? My daughter in Texas had been using/burning oils for many years, and until last year when she developed vertigo, she was never ill.
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Nan - I don't have a clue about burning lavender oil. Is your daughters vertigo due to an inner ear problem?
Patty
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seaotter,
Just as with my vertigo, the crystals had dropped. Even though we both went to "specialists", there is very little known about vertigo, and the only thing that helped me and her was to go to a vestibular rehabilitaion specialist. Such a simple solution to a very debilitating problem, and no drugs involved. The specialist that I went to in Pittsburgh, (referred to lovingly as the "dizzy doctor"), instructed me to never take the meclizine, as it is worthless, adds to the problem, and yet almost all ENT's/PCP's prescribe this. Stress seems to exacerbate the condition. I have had tinnitus for years, even before the first bout of vertigo.
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Oh Nan, I am so sorry, that sounds maddening
Patty
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seaotter,
Not as maddening as having your grandson dx with leukemia at age 3...(he is now 22)
, or your daughter dx with TNBC at age 45. This "problem" I can deal with. 0 -
painterly...glad you caught that on lavender...didn't want to have to be the one to burst your bubble.
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Thanks for the reminder that I need to get back on walnuts. I have forgotten them lately.
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I'm only taking 300mg of magnesium....should I be taking more?
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THANK YOU SO MUCH, GIRLS!!!!!!!!!
The surgery itself went just fine, but the needle loc was just as much torture as I remembered it. Oh well. I asked the techs if they would mind singing while the needles were going in, so they did... at the top of their lungs. Fun times in Mammo 2!! But worse, there were two tiny new spots of DCIS on the mammo... all together it was probably an inch wide including all the calcifications areas, but gee, that does not make me happy. If that appeared over just six months, what will happen over the NEXT six months/six years/sixty years?!!
I'm sure it's because there were cancer cells remaining, which of course gave a foothold for them to multiply... just REALLY REALLY REALLY praying he was able to get clear margins so I don't run that risk again and so that I don't have to get a mastectomy (which would be a "must" if this failed).
I really need to get back on everything... start taking laetrile (apricot seeds) again, be faithful about Iodoral and FOCC instead of missing days here and there, START EXERCISING again, cut back on the animal products (even though they're grass-fed now, they've consisted of too high a portion of my diet), and somehow, some way find a way not to be stressed out so much. *sigh*
And, for now, no more wine... oh, and I had started back on a cup of coffee a day WITH a teaspoon of organic sugar. Welp, NO MORE to that either!!
I forgot to ask the staff when it's safe to start consuming things that act as a blood thinner. Does anybody know?
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I'm halfway thru chemo (3 of 6) and find that I only want to eat carbs. I've gained about three pounds in 8 weeks so far and hate it. I did start a garden and now go out and munch on fresh spinach, parsley and snow peas a couple of times a day. It's been really hard to exercise because I'm so tired, but when I'm at work I walk for ten minutes when I can and ignore my tired legs. So far my chemo isn't working so I think they're going to recommend stopping it and having the surgery and I'm okay with that. I just need to get my system healthy before surgery.
I don't understand why my oncologist is so ambivalent when it comes to healthy eating and exercise ... it's a no brainer that it contributes to health. I'm going to try to exercise on my infusion date and three days after. So far my WBC has been good but I take Neulasta too. Any advice would be appreciated on exercising, just walking? I'm 60, I work part time, was going to school full time and bowl two nights a week. Thanks for everyone on this list!
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While I was going through treatment I kept up my walking most days, did light weights and continued with my yoga.
You might want to either talk to the oncology nurses and ask if they have any exercise recommendations or know of any exercise classes that cater to people going through cancer treatment. Perhaps a personal trainer if you can afford one.
I found that I really had to stop and listen to my body. Even if I felt draggy I would try and do something - walk, light weights or yoga and if after 5 to 10 minutes I still felt draggy then I would pack it in for the day.
It is so important to get some exercise as often as you can and at the same time listening to your body so that you do not tire yourself out to much and do more harm than good. A fine balancing act.
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Kumanaka
About this time last year I was almost through my chemo (I delayed the last one because I had a golf tournament).
Anyway, I found IV day and the following 3 days that I was on a high (like a drug addict) and so I used this energy to do a lot of exercises before I crashed around day 4. (the crash lasted until day 10 and then I was back playing golf).
I danced to a fast paced CD for one hour each day and also did floor exercises - sit ups and stretches. I also got busy with the spring cleaning i.e. window washing etc.
Hope this helps.
PS I find music really lifts the spirits even though I was tired I found the music got me going. (But when the crash came I was really dizzy and didn't do much until I felt better.)
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Hi lovely ladies!!!!! I miss you all!!! I have been so silly busy, my mum arrives from London today she is staying for her birthday, I can't wait to see her!!! I will check in again soon, just know that I think of you all the time!
L
ox
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So good to see your post, Fairy! I was worried that one of those mother-of-the-brides had done something awful to you.
Have a nice visit with mom!
Beth
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How exciting Fairy!!! Have fun with your Mum!
Really miss hearing all your great advice, research and comments.
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Fairy: have a wondeful time with your mum.
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Fairy, have a GREAT time with your mum!!
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Hi Ladies...I am about to start taking iodine and have a few questions for those who are taking it. I have been taking DIM for 1 1/2 years with no real change in my estrogen ratio, despite increasing the dose and changing brands, so my integrative doctor wants me to start iodine to see if this will budge my stubborn estrogen metabolism. I mentioned iodine to him a while ago but he wasn't very familiar with it (he also wasn't familiar with myomin but after some research said I could try that instead of DIM). Well, he has another patient like me who he started on iodine and it has helped her so I am off to the compounding pharmacy to get what I need. For those on iodine, have you found that it helped bring your ratio into the good range? I did join the yahoo iodine group but wanted to run this by you ladies first. Is there anything I should be taking with the iodine to help it...ATP cofactor or magnesium? I hate to add more supplements to those I already take but if it helps my breasts I'll do it. I'd like to get started on it soon as my most recent MRI showed a 4 mm mass in my previous BC breast...turned out to be a complex cyst. I'm hoping the iodine helps resolve the cyst or at least prevent it's growth and the growth of anything else. Let me know your thoughts.
Thanks!
Li
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Li, hopefully the resident iodine experts will weigh in, but I was taking 50mg of Iodoral for three months then dropped to 12.5mg/day. Now, I've just had three new little spots of DCIS (I hope that's all it is) show up, so I'm back up to 50mg/day. I hope iodine helps your cyst resolve!
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Great... just got my path report back from Wednesday's re-excision... all six margins were "uninvolved by DCIS," BUT, the distance from the closest margin for one of them was less than 1mm... I am sick to my stomach because I know he's going to make me have a mastectomy because of that......
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Julia, honey, why should you get a mastectomy? Why can't they just do another re-excision? Also, bear in mind he can't MAKE you do anything. You tell him you want a re-excision. Period.
oxoxo
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Hi, anom (anon?)!!! He told me right before surgery that if he wasn't able to get it all this time then I'd have to do mx... I am kicking myself for not saying "Then you make sure you get it all! Go as wide as you need to!!" With this reexcision, I had resigned myself to it being almost like a partial mx, in that I'd need reconstruction. Well, looking at my breast after surgery, it looks just the same... not caved-in-looking at all... so I'm kind of mad that he didn't take more. Ugh.
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Julia, I think some surgeons are afraid of disappointing the patient by taking too much so they UNDERCUT rather than taking a wide excision. You may need a new surgeon if he insists on an arbitrary mastectomy. It is ridiculous to have a mast because he was off by so little.
At least he knows exactly how much more tissue has to come out.
Let us know.
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Thanks, and yep, you're right! I had written something about possibly finding a new surgeon depending on this outcome but erased it before posting... thing is, I LIKE this surgeon, he has been fantastic and totally willing to work with my non-standard-of-care wishes, but I don't want to push my luck with that if he decides that the only thing left for him to do for me is a mx.
That said, I'd rather have a nipple-sparing mastectomy than rads, I think... if I had to choose.
I've been thinking more about that .1mm margin and now I'm wondering if maybe that was the margin at the nipple. All the other margins were so much wider. It seemed weird that he would be "THAT" close on one side but not the others.
But, if there just was only so far he could go (e.g. it was right up against the nipple), then maybe that's why there was such a slim margin there. Who knows... that's just speculation until I find out more.
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I'm having a hard time finding an answer to this, and hope some of you can help me out?
I started out being diagnosed with fibrocystic changes in March after finding a lump. They're bad ... 3 - 5 in each side and BIG. The resulting mammo and u/s found some suspicious things and 3 biopsies later ... ADH. (Thank God for "just" ADH!)
So, Monday I started taking a D3 supplement based on what I'm reading. But, I was wondering about Dong Quai for the cysts, but I'm not sure with ADH I need to be taking that? I'm an admitted caffeine addict and really am trying to find another way around these cysts without further increasing my bc risks.
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Chevfan, you will want to read the iodine threads... in a word, iodine is what you want... and try to cut out that caffeine too!
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Julia,
That's what my surgeon said. I told him point blank to just go ahead and shoot me now. LOL! He didn't laugh as hard as I did.
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crunchy- I just sent you a personal message.
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