Just Diagnosed- Get Prepared
Comments
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Original poster. Whoo hoo, left a note and forgot to hit post YEAH, I forgot the procedure.
Hope folks that have posted here have had good outcomes. I do know some have not. My heart is with them.
BUT anyone coming here start out with hope, prayer and love. Trust in God. Love a lot. Hug a lot. Pray a lot. Laugh as you can. Seek happiness in small moments and large moments. Savor them all.Fear is your enemy. Tell it to f off. Grab every moment.
If you are new, go back to page one. That's where the organizing stuff is that will help you get through this quagmire. Proud of myself I didn't swear.
BUT MAYBE, I CAN leave you a thought that will help. It was a sorority pledge song in 1971, that is very &^$#@%&
It's done to an old camp song. Used it my entire life. Not much in these last years i.e. going home after a 14 hour shifts or a bleeping cancer diagnosis, or two or three on different body parts. BUT still walking and talking.
"Shit Damn Hell, Son of a Bastard, Bitch , Rape, Screw, Fuck you, and you can got Hell too. "
Humming it works wonders too, when in areas where you are seriously pissed. Like being told you have cancer.
I don't care if it's politically incorrect, it works well with being pissed off with anything,
No agenda, just a very nice screaming thing. It's like taking a dose of Valium. Go a few rounds and it's quite better than Ativan.
God bless and Keep you in the hollow of his hand.
Dx in 2008, made it to 2026, have had weird stuff every single year since. Faith and prayer and sticking to following up all problems either proactively or regimentally.0 -
Bump plus. Always set yourselves up to get your labs before the docs. That can be done by using Quest Labs. They have the most efficient system. Plus you can see trends by hitting the 'overtime tab'. One of the problems with the medical system is our care is fracrtured into body parts. If a lab doesn't fit a [particular body part we are referred off. Then the total picture gets blurred..
My experience with Quest labs is I have been able to track things for years. Even when changing insurances, by demanding the use of Quest you don't lose data and trends.
If you are totally clued into your dx, you have to be clued into your labs, all of them, from each practioner. If you request QUEST. You get that——all in one place. You can view for years. You can see trends. You can see things practioners ignore b/c it's not in their perview. Kept myself alive b/c of this, my twin is dead b/c she didn't understand the system. Sucks.0 -
OH well, this thread is useless. Tried to pull up the original list of suggestions which were >20 or so . Nothing They were very particle things . To keep you sane and solvent. Apparently the new system—did what 86'd them. A-z suggestion from me with TWO people going through cancer at the same time. Practical advice—GONE, AND everyone suggestions from the years that I was here. GONE.
SO, so, what has BCO put it it;s place: Serious question
When developing a system, check to see what is working, Methinks Ya'll seriously messed up a very good system0
