Chemotherapy for Stage IV
Comments
-
Marybe: Sleep well. You are in my thoughts and prayers.
0 -
Marybe - I am so sorry to hear your markers have gone up again, you have been through so much. I thought about you all night long and of course you have been added to my prayer list. I know it can be hard to stay positive sometimes, but I know you are trying to do just that. Hugs and prayers coming your way.
0 -
All of the chemo's have not worked for me with this reoccurrence. They have tried xeloda abraxane,and navelbine. I've whipped through them. Onc said it's like my cancer just spits them out. I started halovan last Tuesday. I guess it is the last one for them to try. My onc said that I am in much better shape than most women as far as SE's from previous chemo's because I went through all of those others in about 8 weeks. Like bone marrow, nueropathy etc. My last MRI showed cancer cell activity in my spinal fluid but no tumors there All of the tumors are in my secondary mammary gland, clavicle and under my arm pit, sternum, skin mets. They said I may have only a few weeks possibly a couple of months if this chemotherapy doesn't work.
0 -
Laurajane, Oh no, don't let them tell you that crap about only having a couple of months if this doesn't work. There is only one God and he isn't posing at an oncologist. How do you feel? I put a lot of faith in how I feel. Nothing has worked for me in the past two years either....my markers usually indicate if it is working or not....for the last two years they have done nothing, but go up.....however, my onco will not make a call just on them so we have to wait to see the scan results. So I am staying on Xeloda until he tells me to stop it. I have been thinking all sorts of things like since none of these treatments have worked since I quit the abraxane in July of 2009 (yes, I quit and maybe that was a stupid move, but I felt like shit and it was not a good quality of life even if it was working), that would be aromasin (for the 2nd time...worked well the lst go round) , megace, navelbine, gemzar, halaven and now Xeloda.(did cytoxin, methotrexate and that did not work, but that was awhile back) ...if they did not work, does that mean I would have been just as well off to not have even done them? Or did they do a little something? Could I maybe just not do anything for awhile and have them do some really extensive testing on me to find out just why my tumors are not responding? All I know for sure is that I feel good.....better than I have for a long time.....so what's up with that?
Where do you live? Do you think your onco is doing all he can? Have you been to any of the big research hospitals like MDA or Slone? How is your immune system? The only reason I ask this is because I very seldom seem to get anything....like the others in my office will all have a cold or the flu and I don't get it....when I was on vacation I was exposed to Scarlet fever and MRSA at my cousin's home and I caught neither, thank God. So why is this? And why am I so resistant to all these treatments and why do I not get the SEs with them? I think they should be finding out what is different in my body.
I remember when I was lst Stage lV and I read about it and really thought I was going to die soon....then I saw one doc who told me given all my tumors and the locations, maybe a year....I went to another onco and that was 13 yrs ago. So I do not think they should tell us things like how long we have.....sure I want some notice, but why walk around with that big cloud over you if you are feeling good and still able to do things and have to have something like that in the back of your mind casting a shadow over the life you are still living? I believe in modern medicine and do not go along with some of the alternative idea and therapies, but when I get to the point where there is nothing else to do I may change my mind on that. I will probably have to at some point go back to chemo that makes me feel like shit IF it is going to work, but I am not ready for that yet.....I have things to do, places to go, people to see. One thing I have not lost and do not want to lose because then I know it won't be long, is HOPE. We have to hang on to that and doctors in spite of their training do not know everything. Each time I start a new treatment the onco tells me Now you aren't going to be able to work on this one,...or they will give me anti-nausea meds and I say I won't need them and they say Oh yes you will...and then I don't and I AM still able to work....so they don't know. We all respond differently.....unfortunately it sounds as if you and I aren't responding at all. Don't give up.....hang in there with me. There has to be something out there that will work. In the meantime, enjoy doing things while you are able. I am going to the best bakery in town this AM and meeting a friend for coffee and some sort of decadent pastry. Marybe
0 -
Oh Mary! I am praying for you. This roller coaster has so many ups and downs!! Keep the faith girl!!h It's not over until the fat lady sings, and I don't know any fat ladies, and neither do you!!!0
-
Laurajane: I hope you take to heart what Marybe has to say. She is definitely an inspiration to all of us! I don't pretend to walk in your shoes; we all have our own to walk in but, please know that you are not alone and there are many of us out there that hold you in our thoughts and prayers. Oh yeah, that thing called hope...it's a wonderful thing. Treso
0 -
I am seeing the onc on tuesday of this week... I had cat scan with contrast done last week as insurance would not pay for a second PET scan in 3 months. Have been on Femara for 3months and already she wants to check it .. she originally said it would take 3-5 months to show if it is working and now she said that newest studies say to check it sooner. My onc also said fasodlex(?) if this didn't work but now she is saying possible chemo if not working ??? I dont get it as this is my first shot at hormone therapy and i am double positive and her2nu negative///
I have had some pain since beginning in my bone mets but no much .. however I began thisconth the generic femera and my joint pain has all but gon e, and I do not feel so exhausted... am afraid that the generic is not working !!!!! always afraid it is so hard to feel like I am dying and no one around seems to understand cause right now I look good work full time and collapseon the weekend
some encouraging words of wisdom would help.. please
0 -
Hi there,
after being on the antihormonal thread for a long while, I´m now joining you in this one because I´ve been started on chemo, carboplatin/taxol, as I had a strong bout of ascites in my belly! Ultrasound showed tumor growth, they called it "tumor lawn" on my bladder and uterus (plus about everywhere, I gather, only it couldn´t be seen on the U/S). By the way the CT on the next day didn´t show anything of all this, this is sneaky lobular spreading everywhere in thin layers, as expected....
The first round of chemo was terrible because on top I had to do antibiotics, two of them, for infection of ascites fluid, and managed to get really sick with all this. However, my belly now feels brilliant, better than for the whole last year.I´m almost beginning to believe that I might get away with three rounds of chemo, as my onc suggested.
Anybody else here´s had carboplatin/taxol, what´s your experience?
0 -
laurajane: Oh, no, no baby! As is said so often on these boards, nobody has a time stamp on the bottom of their foot. I'm with Marybe - if you feel well and are up and at 'em, don't let one oncologist tell you how it's going to be! I know you must feel low, but I might check with another oncologist for an opinion. There are women on this site who have marched on with tons of SE, tons of mets in lots of places, and are living it up big time, sometimes for many years. Keep on truck'n, I say, and very best of luck. Sue
0 -
Susaloh, I have had the same turn of events. This journey is such an adventure - Marybe...your post spoke volumns. lauriejean - no one has an expiration date and any onc that says so...run - in the other direction and get a second opinion. reesie...things have been pretty good for you lately...lets keep the trend going! rosie06ct - its working - generic or not, its working. Bone mets is a funny critter - it hurts after the biopsy. Treso...our gal of HOPE!
I go for round 3 of Abraxane/Avastin on Tthursday. The second time was a bit easier - but I had the port put in on the 6th so I went down a bit. Scan on Monday - apparently, we will be doing them after two chemo's to see what the heck is going on, susaloh - what scan schedule to they have you on? I think you are behind me - I had my first treatment on Oct 2nd, the second one on the 23rd and the next one on the 13th. So, heads up...I will keep you posted how things go for me.
Hugs to all
LowRider
0 -
Hi Lowrider,
I used to read your postings but hadn´t realised that you had moved on to chemo, too! It really sounds quite similar to my story. So they did test on the cells found in your abdomen and got TN and you´re probably off the antihormonals now, at least as long as you´re on chemo? In my case it´s very obvious that the AI has an effect on my - very small - bone mets and the equally small lung mets disappeared ever since I was started on Faslodex 20 months ago. So it seems reasonable to me to stick to the AI even during chemo. The abdominal mets just seem to be so much more advanced than the rest. I haven´t had my test results yet, don´t even want to know, really.
I didn´t quite get your schedule - do you really mean 2 Oct. or Sept. because the 23 Oct. wouldn´t come before the 13 th, would it? I had my first round on 22th September and will have my second one on Thursday 13th, like you. Funny thing we will be sitting in those recliners thousands and thousands of miles apart getting the same stuff, more or less...
As to scans, I never had a proper schedule, there have always been rising tumor markers or other symptoms which made them do scans. I´ve had 5 or 6 CTs since February last year, so it´s been every four or five months on average. I wish you lots of luck, surely those two chemos have blasted those mutants away!!
hugs to you too!
0 -
Hope I'm writing in the right place but this Thursday I start on CMF, anyone out there been on the same?
0 -
Lowrider: Im on Av/Ab too, finished my third cycle (3 weeks on, 1 week off), I get Av/Ab the first week, only Ab the 2nd week, both again the third week, and then on my chemo free week, I get my Xgeva. My insurance will only pay for scans every 6 mos (unless documented by something clinical), so I'm up for my first scans on this stuff the week of the 17th. I am excited and scared; like all of us... is it working or not?!?! I'm only a mild ER+, the rest negative. This is my fourth chemo since December when my cancer recurred, so it's very scary. I don't have a lot of options like some of you do being HER-, PR-
Louise: ? what is CMF? I'm not familiar...
0 -
CMF is a combined chemotherapy. It's made up of cyclophosphamide, methotrexate and 5 fluorouracil (5FU). It must have a different brand name in Europe as not many people replied the last time I posted a question. My onc says that at the moment he plans to give me 6 cycles with a scan in the middle. Even if it works fabulously I will get no more than 8 which is something to do with how it compromises the bone marrow. One of those situations when I want to ask a question but don't in case I get an answer I can't deal with! I've been on 10 cycles of vinorelbine which is the same as navelbine. Unfortunately this stopped working after cycle 6 we think.
0 -
Rosie06ct: Hey! We're neighbors (kind of). I'm in Hyde Park, New York. I have read all of your posts and we parallel quite a bit. I was diagnosed with ILC in 6/08 (with 5/15 positive lymph nodes) and am ER+/PR+?HER2-. I did the standare chemo routine but had a reoccurence to my bones in 8/10. I was on tamoxifen until then. I did Faslodex for about six months. At first, my onc was going to do chemo and then wanted to try the Faslodex and save the chemo for later. This is where we differ; a lesion showed up on my liver in 4/11 (very small). Looking back, I wish I had just done the chemo from the beginning. I don't know (and never will) if it would have changed the outcome. I try not to have regrets in my life (they're exhausting!) so, I have to try to move forward from those thoughts. Sometimes, it's hard. But...what I did do was an aggressive treatment for the liver mets (maybe to make up for not doing chemo the first time around, who knows?!). I'm doing two chemos instead of one that my onc said he would normally do. I had a great PET scan in 6/11 (liver mets couldn't be seen and bone mets to most places - there were many - gone and the ones on my spine in 3 places had reduced by 1/2). I had another PET at the beginning of September which was stable. I was not, however, ready to stop chemo. My onc agreed to let me do one more round (3 cycles of 2 weeks on and 2 weeks off). Someone on this board recently said that chemo is not the enemy, cancer is. I found that to be so true and feel like chemo is my friend in this fight, a close one. I know that everyone is different and responds differently to the chemos and I have been one of the lucky ones so far in that I have tolerated all of the chemos I have done fairly well. I have many S/Es but I am able to not let them get me down (I have had my share of days in bed - I'm not wonder woman!) and I won't let this cancer get me down. It's definately a new normal but, I live my life as I always have and just incorporate treatments into this new life. I never wanted to be part of this club but finding this support here has made a world of difference. This club, I like an awful lot. These women are a god-send.
As far as working, I, too, have to work to keep my insurance. I have been able to take MLAs during chemo treatments. I have STD and LTD and, my first time out, had to apply for Social Security as part of my LTD plan requirements. I was awarded SS, received it in 2009, went back to work and then was offered Medicare in 2010 (didn't take as I wanted my work insurance). So, that wasn't 2 years. I'm not sure what your situation is. I also am able to keep my regular insurance (at the rate as if I was working) while my work is holding a job for up to 1 year.
I know you said that you feel as if you are dying. I just can't think that way. Maybe it's too soon after your diagnosis. I know I was devastated after mine and it took me a while to get my head wrapped arount it. So, instead of dying, I'm living. I hold out on a lot of hope. There have been new developments in treatment even since I was first diagnosed. I plan on sticking around to see many more.
I don't know if my words are "encouraging words of wisdom" but, I hope you don't feel alone when you're here. You're not. We're all here for you.
Treso
0 -
DITTO what Treso said !!! Good stuff girl.
LouisBogle: Ireland?? me name is O'Briant, lass! LOL What part of Ireland?
Navelbine only worked about 2 1/2 cycles on me too
I don't know if that triple combo is used in the US: Anyone heard of it or been on it? I know a lot of us have taken oral 5FU (Xeloda) and sometimes with another one (I was on Xeloda and Gemcetibine (Gemzar). I know about the C and the M, and they are all very hard on bones. I wish you luck and will keep you in my prayers!0 -
Hi there! My mother was recently diagnoised with Stage 4 breast cancer and it has spread to her liver and bones. Her doc. is recommending chemo. I don't know the drugs. She wants to get a second opinion at Mayo but can't get in for a month. We're at a standstill and not sure what to do. It's already been a month since she was diagnoised and I'm afraid of waiting for another month to begin treatment. However, we live in a very small town in North Dakota and not sure who "good" our doctors are here.
What do you all think? Should we wait or just begin treatment here?0 -
Thanks Texas Karen, you must have Irish cousins with a name like O'Brian! I'm from Dublin. Is Xeloda the one that causes problemsvwith the hands and feet? Sounds like I'm getting a lot of drugs, gulp I'm nervous about Thursday! Thanks for that x Louise
0 -
Thanks to TexasKaren, I now know that CMF in Ireland is also known as cytoxan, Xeloda and methotrexate. I'm having these intravenously in a 3 week cycle. Does that sound like a lot of chemo? I've planned a long day trip to London in early November with a pal of mine. It's to a Christmas fair that I've always wanted to go to and I'm just hoping that I will be up to it? I know the shopping buzz can conquer most things but still a bit worried...! I'm also hopeful that if this combo is really toxic it might just kick this cancer to touch.
Anyone have hair issues with any/all of these drugs? My little girl is 8 and making her first holy communion in May of next year. It's a really big thing in Ireland and everyone gets dressed up, am I going to be bald or balding do you think?0 -
@,Marybe: You are so positive and inspriartional. You are my ROCKSTAR!!!!! I think your positive attitude has kept you here for 13 years after they told you that you had one year!!!
@Sueop - my maryland sister: You are also always so positive to those on the board-- THANK YOU!! Are you doing the Race for the Cure at Hunt Valley? if so, maybe we can meet up there!!
0 -
Hey dellmonica - my Maryland sister! Not doing the Race, but am indeed going to the conference at Johns Hopkins at the end of October. Are you going to be there? Many of us from this board will be and are going to try to get together. It would be great to meet you too, hon. Sue
0 -
Hey LouiseBogle - I can only answer for the xeloda part, but hair loss is not considered a side effect - praise the lord for small favors! Some folks experience a little bit of thinning (I did) but a good haircut can take care of that. Best of luck, my sister - hope the chemo kicks the monster to the curb! Sue
0 -
susaloh
Yes I got my dates goofy. I will have my third treatment tomorrow. I had my port put in last Thursday and my first CT Scan was on Monday. I will have 2 treatments and then a scan. Tomorrow I will meet with the onc and go over where we are. Depending on the CT scan, we can plan the next test. If there is still fluid in the abdominal cavity - and I feel as though there is - I would like a draw and test of that. If the acites are less in number but more visable, I would like to get a needle aspiration biopsy. Following the protocol for the things we have found on the 'I am a Puzzle' thread, it indicates to surgically remove the remaining acites but it seems they must be large enough and the little ones have to be gone. If this is followed, this can be totally erradicated and never come back - continued treatment with Avastin, Xegeva and since it is likely the estrogen/progestogen will revert back to positive and I can return to Faslodex for the bone mets. Not looking forward to the spinal biopsy but if it reads positive, I will handle it.
This is the first of the theories and the simplest to determine. It may require another 2 chemo sessions and another CT scan but I see no reason we can't go ahead and test the abdominal fluid and possibly biopsy one of the acities.
Well, sue...see you at chemo tomorrow (weired)!
Hugs
LowRider
0 -
cjacoso - don't wait. Your mom can always get the other opinion in a month.
dellmonica - GREAT NEWS!
I have not posted in awhile. Did my last Carbo/Taxo chemo w/Herceptin on 9-6. Stayed on weekly Herceptin. Got scans on the 19th/20th, results on the 27th. NO SIGN OF METS on spine, ribs, nodes, except for one node on left side. NO SIGN of tumors in either breast. Onco says I'm in remission and no more chemo, will retest at end of the year. Will stay on Herceptin every 3 wks, w/xgeva every 6 weeks and Aromasin daily. Now not talking surgery or radiation. Scared me, so went to Cancer Treatment Centers of America on Oct 3. What a great place!. They totally agreed with what my team in Vegas has done and is doing now. Agrees with not taking the breasts. Says because of my mets, it's out there, in my body, so taking the breasts is like trying to close the barn doors after the horse has escaped. Made sense and am now more relaxed.
For those of you with the 'cardboard' taste se...the nutritionist at CTCA said to gargle with the baking soda/salt water about 5 mins before eating and it will help stimulate the taste buds.
Marybe, Laurajane, Texas Karen - don't give up, keep fighting, get 2nd opinions, I will keep blasting positive thoughts and prayers your way!
Susaloh - SE's on Carbo/Taxoteri much like all that we've read on this site. It is cumulative. 1st round only few days, then up to 10 days by my 6th and last one. Also had the Neulasta (every 3 wks) and Xgeva once a month. The bone/body aches and diarrhea stayed with me the longest. Had about 1 good week a month toward the end, and like some others on this site, is when I'd get the most done around the house etc.
The neuropathy has never been bad with me...I read early in my treatment to take L-Glutamine(sp) to help counteract it and I took it daily.
Another tip from the Naturapathic doc at CTCA in AZ...for night sweats and hot flashes, take 400 iu Vit E and 400 mg Magnesium/Oxide. It has to have the oxide. Give it about 3-4 weeks and should see marked improvement. He also gave me prescription strength COenzimeQ10 to keep my heart strong. If you dont know, HERCEPTIN is very toxic to the heart, as are other meds. Also gave me prescription for 20mg Melatonin. It strengthens immune system, fights cancer, and promotes sleep. Been on all this a week now, and have had better sleep. Still waiting for change in night sweats...LOL.
Heidihill and Treso - Thank you for the info on the nails. I did not lose them this time, the bruising and tenderness went away. My onco recommended TeaTree Oil. If they get bad again I'll try it, but I think my OPI Nail Envy has been a nail saver.
I feel blest to have made these strides...am working on surpassing MARYBE's record....You are our inspiration!!! I believe we can all do it too!!
0 -
thanks MemaSue for the information about the neuropathy: I am going to try the L-Glutamine also. -- I can not wait to hear those words !! NO MORE chemo!!
0 -
Today I saw my doctor about the PET CT Scan results. He said I had great response to the chemotherapy protocal. Even though there is "NO EVIDENCE OF DISEASE" -NED, He recommended that I stay on the protocal. oh well!!
He said I should complete 2-3 more cycles since the chemo has been tolerable. I will have another PET CT scan after that and decide again how to proceed at that time. I so badly want to be done with this, but Dr K had a great point. I am in a good place as the treatment has work and we are not sitting here discussing that it did NOT work and trying to determine what the next treatment will be.
I am so VERY THANKFUL for what I do have. I have a great PET CT SCAN results!!!! I think I can live with that and continue with the chemo!! LOL!!
Live is good and I am so ready to EAT some great food at the Taste of Georgetown this Saturday. I know I am so blessed as I continue to be able to enjoy food and not get sick!!! The chemo wrecks havock on my stomach, but I never get sick and throw up -- so I have not lost any weight, ~~~DAMN DAMN DAMN ~~~ however I can eat various foods and it settles the stomach. weird -- just freaking weird!!! My doctor in the office told me that he is one the few doctors that is NOT concerned about me gaining weight while on chemo -- go figure!! Now I will have EXTRA weight to drop!! oh well!!
I contunue to be Livin' and Lovin' and Smilin'!! Peace and Blessings!!!
0 -
So very, very happy for you! NED - that's what we wanna hear! I am hoping to meet that elusive gentleman someday myself. Meanwhile enjoy Georgetown, chow down on some good food and save weight loss for another day - Sue
0 -
Hi Lowrider,
good to hear from you. I like your theory. I don´t think, in my case surgery will ever lead to anything. The tumor cells responsible for the liquid production, i.e. the ascites, don´t form proper tumors but just cover everything with kind of a veil, the "tumor lawn". If left to grow, the layers will of course get thicker, but still how will you operate? Scrape them off, kind of? On the other hand, if treated early, the cell layers are nicely accessible for chemo, so I have to trust on that.
How was your chemo yesterday? Mine took a total of 9 hours with all the medications and water and Zometa and chemos etc. I reacted quite strongly to the taxcol even when still at 20 seconds per drop! Some kind of strange feeling on my lungs and my heart, like a pressure. So they let the taxol run for 5 hours! Got a bit frantic staring at the drip, but the last two hours where nice, I was alone with one nurse, who stayed to look after me, and we had a very good chat!
Mema Sue,
I am still hoping that I will really just need the three rounds of Carbo/Taxol to avoid the cumulative fatigue that you describe (though one good week toward the end of treatment sounds still quite doable!)
But I know that three rounds is very unusual, most people get six. On the other hand I can tell by my very low weight and very flat tummy that at least at this moment the ascites is completely gone, and this after just the first round. So I will be waiting for my markers and then decide if I hand them in already to my onco, perhaps to have an early scan. However, I expect, they will want to schedule the scan for after the third round, makes sense, I guess. I wonder whether to ask for a different type of scan, because the CT this time never showed any of the new growth we could both clearly see on the Ultrasound, but on the CT just what had been visible for months. They always say, they don´t want to see too much so as not to react too soon, but in this case, to know whether it´s gone or still there might make the big difference as to more chemo or not. I am quite confident, because by now I am pretty good at making them listen to my theories and ideas (as I was so often right, they probably have to admit). I gave them the idea to have me stick to Femara while doing chemo, which is very unusual, but it makes sense in my case, and I´m very relieved they listened. The good thing is, I have absolutely no side effects now of the Femara, can´t even feel my joints, but maybe the chemo cortison has taken care of any light inflammation there migt have been. But I am still having my estrogen checked because of these strange peaks of estrogen in my ovary free body....
But now to you! I am so impressed with your fantastic chemo results. Brilliant!! In remission, no more chemo, what else do you want to hear! And you can even keep your breasts! No surgery, no radiation - you keep all these weapons for if ever anything comes back, very good feeling, is´nt it?! But it won´t for a very long time! Especially the Herceptin, in some people it´s a wonder drug, they stay in remission for years and years! Met a woman who had had liver, lungs and bone mets and every thing was quiet under Herceptin for how many years, don´t remember, but she just had her 76 Herceptin treatment!
Thank you very much for the tips from your naturapath. Especially the one for the taste buds! Only with some of them I wonder: If they help against the side effects, i.e. the gluconamide (?) against the neuropathy in your fingers, that means they must be impairing the effect of chemo on those cells. So how can I be sure the medicine doesn´t equally impair the effectiveness of the chemo agents in those places where they should do their job? After all, these medications work systemically, too, don´t they? So I have a tendency of letting the chemo just simply do it´s job and endure the side effects, what do you think?
DellMonica,
Congratulations, wow!!! Eat as much as you can and enjoy it!! I envy you for that alone already!
Love Susaloh
0 -
Susaloh
Thanks for your cheers! It'll be good if you only have to do 3 carbo/taxo treatments, but yes, most of the time it is 6. I pray you fair well with whatever treatment your onco suggests.
I should qualify, the Naturapathic doc checks my OTC vitamins against the treatment meds I'm on. I was taking 2 other vitamins that he told me to stop because they would interfer with my cancer fighting meds. I've been warned to make sure I'm seeking a REAL, Licensed, naturapath, as many purport to be and are not. For instance, Nevada does not recongnize or license them. However, there is a website where they can be found. The L-Glutamine offers support to your muscles and I learned about it early in my treatment from a cancer survivor. She lost much in way of muscle function because she had NOT been told about the L-Glutamine. I did check with my onco before using it and was given the go ahead. So please do check before taking ANY supplements. But I personally believe that supplements, Approved by your med team, can add to the effects of your treatment. And like you, and how strong you are with listening to your body, ie making them keep you on Femera(sp), your decisions will be based on your mind and body.
Another tip I got, from the nutritionist, that I forgot to share. Anyone having that terrible dry mouth? Try Xylimelts. The nutritionist said to have your pharmacy order them if they don't carry it. They are small and stick to the inside of your check, no choking risk should you fall asleep. And I love em. Even my husband, who suffers from chronic nasal congestion, causing him to sleep w/his mouth open often, says they make a difference. They are made by ORAHEALTH. They stimulate saliva, coat and moisturize the mouth. Check it out.
Glad to hear about the herceptin and hope I can keep this beast in check for years to come too.
DELLMONICA - NO weight gain? What's with that...LOL. I put on 20 lbs since May. And that's even tho I was too sick and nothing was tasting good so often during treatment!! Thought for sure I'd lose weight...NOT! They say a combination of the steriods and now that I'm off them, the Herceptin will be my nemisis. But hey, I'm not going to sweat it, I'm out walking and riding my bike, it'll come off eventually. ENJOY Georgetown...Yummy!!
0 -
Oh Rosie I understand the feeling of "passing" for normal yet having this most serious condition. When we lose hair the attention goes off the charts. We are easily recognizable as a cancer PT. But with hair, we can look normal. Breast cancer pts don't get thin like pancreatic and others.
Glad your bone pain is tolerable. Hope you can take some time off if needed. You know about family medical leave.? With cancer you take whatever time you need to get better get treatments etc. Best, kathy0
