Chemotherapy for Stage IV
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Laurie, My son only lives about 10 minutes from us. They have to go to the hospital about 5:30 in the morning. I think I'll wait til 9 ish. Not sure how long it will take as this is her second baby. I'll be there with the camera. They always like to make sure I'm around because I take all the pictures .... although it looks like I'm never there because I'm never in the pictures. I always tell young people to make sure they have someone else take the camera once in a while. It looks like my husband raised our kids alone! LOL! I think the baby's name will be Emily Addison but DIL said that wasn't set in stone. I like the name a lot!
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Glenna,
My prayers and thoughts are with you and your family tomorrow. What an exciting day it wil be..love the name:)
Thanks Laurie for asking how I'm doing..I've been okay accept just trying to get the pain figured out. Love the new hat..my daughter bought me some outrageous hats I put one on today before we left for therapy it was pink with glittery sparkles..totally over the top..lol I made my hubby smile so hard when I came out in it..he was shocked but loved it! May just have to look for more crazy hats. lOL
I hope everyone has a good day
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Hi Sue,
My mom is going through the Chemo's every week.
Her hemoglobin fall down to 10.8 now in last 5 weeks. The doc is saying he will do the scan in mid Feb (after 3 more chemo). But he is happy with the progress of my mom. He is saying she is responding well to chemo. Thanks...Laurie -
This is the best place I have found. The members of the group are so nice and feels like family.
The only thing you have to do is keep fighting, think positive. We all pray for each others. Hope to see things improving for everyone.
God bless all.
Hansraj
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News about Avastin: Hope for early BC, pre-surgery even!!... and I still say the jury is not in yet on advanced disease! Keep those studies coming!!!
http://news.yahoo.com/studies-avastin-may-fight-early-breast-cancers-220211392.html
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Good news to share .... Granddaughter Emily Addison made her entrance this morning at 9:11 a.m. She weighed 7 lbs 12 ounces and was 19 1/2 inches. Lots of black hair and very beautiful, of course. My son and DIL are very happy and 4 year old "big" sister Ella was not jealous .... today! LOL! Glenna
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Great news Glenna and so glad to hear everything went well.
Another grandaughter for you to spoil
Laurie x
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Congratulations, Glenna....bet she is beautiful.
I sat next to one of my BC treatment room buddies yesterday and she has been on the same treatment successfully for over 4 yrs.....herceptin, faslodex, gemzar and navelbine. I think there was someone questioning hormonal with herceptin on one of the threads so am going to have to go look and see where that was.....it has been effective for this woman and she really does not feel bad at all other than some bouts with tiredness and think we all get those. Couldnt possibly be that we might be getting older, could it? Nah, never.
Karen I know many people swear by avastin, but I hated it......did not like being constantly clogged up, the stuff that came out of my nose or the nose bleeds, but there again we all certainly are different. Whoever would have thought I would actually like Adrimycin, but I do. I have a local friend who had to fight for authorization to get avastin, but her onco got it for her and she is happy with it.
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Congrats Glenna! Hope you get to love her up a lot! I'm 4 hours from my two grand daughters, and really hate that.
I don't care what they say, avastin should be an option for us. Yea, I hated "booger nose" too....LOL
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Off Herceptin and on to Tykerb/Xeloda. First time I have had a scan not go in a positive way. Existing mets now active. I barely got to know the Stable boy and now he left me. He was probably unsure what to get me for my first year cancerversary...
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Glenna.....Congrats....I am so happy for u....Love her name too. !
Hans - I am glad to hear that your moms onco thinks she is doing well, don't kno what to think bout falling Hemoglobin....many of my blood work numbers went WAY down, but none except for Platelets, did my onco get concerned. I will keep u n ur mom in my prayers as always!
LilyLady -DAMN it....what is going on...what mets are now active? I'll have a talk w/ Stable Boy...see what we can do...in meantime....keep us posted and I am prayin for u goil!!
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Lily - don't ans that...u'll b repeating urself. I read it...I am SO SORRY. But, that said...I can't help but be positive....LET'S HIT THAT CANCERVERSARY...and MANY MORE!!! Sending u ALL the positive thoughts and prayers I can....DON'T GIVE UP!
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Lilylady
That boy is so fickle. Hoping the new combo gets you NED instead - sure he wouldn't miss your cancerversary...
(((Hugs)))
Laurie x
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Hi Lilylady - Sorry for the change, but wanted you to know that I think xeloda & tykerb are great drugs for we HERsies. I've been doing really well on them (good results, minimal SEs) and I'll bet that you will too. Good luck, and I'll be thinking of you - SUE
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Marybe--so glad to hear your good news!
Glenna--Congratulations! Enjoy your new grandchild, I'm sure she's a cutie!
LilyLady--Darn,stupid cancer...I'm sorry it's rearing it's ugly head. Prayers are heading your way,hon.
I had my 3rd treatment of the Faslodex/Zometa combo yesterday. My onco has added a med that lessened my side effects. I feel much, much better after the Zometa, now. It'll be a couple more months before I'll get scans to see if these drugs are working for me. I'm hoping and praying they are doing the job of killing cancer.
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Hi friends, Sorry I haven't been on much lately. Lent my ipad to son and DIL so they would have it at the hospital. DIl goes hom tomorrow so I will be getting it back. Emily is beautifull, of course, and I have enjoyed my visits with her. This weekend is our visitation weekend with 7 year old grandson, Thomas, so totally switching gears. Lots of Uno so far and tomorrow will be taking him to the skate park. CT Scan is scheduled for Tuesday but haven't had time to give it a thought. Lilylady, sorry your scaj didn't go as you had hoped. You are in my prayers. Aerial, praying that you get great results from your new combination So glad your SE's are bearable. Hansrad, best of wishes to your mom on her treatment. Kimber, go with the crazy hats. I had such fun with them. My school gave me a tea party when I retired in June and everyone gave me hats .... I've had a ball wearing different hats everuday. Some were totally "NOT ME" but I loved wearing them. Ya just gotta go with the flow! My hair has come back but I still like wearing hats. Everyone have a great weekend. Blessings, Glenna
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Sorry I haven't been around trying to get used to new meds. Good thing is I'm sleepy..I never normally sleep but have been sleeping the last few days. Woohoo! Let's hope it lasts for a while. I have chemo on Monday and they are going to do a brain MRI the facial numbness is getting worse..so better to be safe. It is four hours after chemo..so those poor techs better be ready by that time I'm so Barfy from chemo..lol should make for an interesting day!
Glenna congrats on the new grand baby that is so amazing. What a blessing! I hope your son and DIL are doing good enjoy:) remember no cheating at UNO ..lol I hope you have a special weekend with your family!
Marybe congrats on your tm going down..I really hope this continues..you desrve it!!
Thank you Karen fr your thoughts on the numbness .
Aerial glad your premeds are helping..woohoo..nothing worse than feeling yucky after a treatment.
Lilylady I'm so sorry to hear that you had to change things. You and all the ladies will be in my prayers.
Laurie how are you doing Hun? Did you get the answers you were looking for last week from the onc? I hope you did and feel more at peace!
Well ladies I'm so sorry if I missed any other news..but I pray for you all daily! I hope each and everyone of you have a great weekend. Enjoy life!
Hugs Kimber0 -
Hey Kimber - thanks, and right back at you. I'll take every prayer and blessing that comes to me through the kindness of others. Go AirForce! Best, SUE
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Hi Vinney,
My wife Andrea was just diagnosed with stage lV, spread to spine. We also want to know what the prognosis is for treatment and success at halting the cancer growth. She was just diagnosed at the
hospital in Burlington Vermont. We are going to the Dana Farber Cancer Institute in Boston Mass. this week for more scans and another diagnosis and treatment plan.
I will keep in touch with you and update you on her progress.
Try to be positive.
Michael
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Hi ladies..I was supposed to have my third round of FEC today but onc cancelled it till tomorrow. I need a brain MRI today and she said she was concerned after she saw me and didn't want me to have treatment till she knew for sure what the MRI showed in case she needed me to have surgery or not she said..okay I wasn't freaked out by the numbness and blurred vision till I left her office. Do any og you that have had brain mets think that is possible? I know there is always a chance but it just seemed like neuropathy to me. Leaving in a few minutes to go have scans. Just freaked out by my oncologist and her colleague.
Hi sue..I hope you are doing okay!
Thanks everyone..I will let you know the results tomorrow..I've never wished so hard to be able to have chemo!0 -
Hi Kimber
Sorry you are stuck in limbo. Have everything crossed for good scan results tomorrow and will be checking back to hear.
big hugs
Laurie x
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Kimber, Anything is possible, but it could be something totally unrelated like a detatched retina or an inner ear infection, lots of things. Chemo affects my vision.....one day my glasses are fine, then the next week I need a new RX. I remember when my onco sent me for a MRI of my brain when I complained about my memory being so bad and that was the last thing I wanted......it's scary to even think about it so try to stay positive and hopefully you will get a good report. Your onco is just trying to cover all the bases and is at least staying on top of things and listened to you......would be worse if she said Oh, it's probably nothing and didn't even check. Lots of prayers are going up for you.
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KIMBER,
Just want you to feel all the hugs from your bc sisters ... we are wrapping you in love and praying for good results!
Blessings, Glenna0 -
Thank you all for the good thoughts and prayers! I'm in chemo as we speak..woohoo! I've never been so happy to have chemo! They called around 3 to let me know that the preliminary results of the MRI were in and it looks normal. To head in to have chemo. It is one of the first times I've cried since my diagnosis..I'm so sorry to my dear sisters that have brain mets. Still no idea what is causing numbness..dr said we could order an emg to check the nerves. My chemo nurses are thinking it is the aloxi it has the SE of facial numbness. Stil concerned but glad it isn't a new met. Feel yucky but wanted to tell all you sweet ladies that are praying. We have at least another hour here and then the drive home. Once again thank you all and I will see you in a couple days once the SE wear off.
Hugs
Kimber0 -
Great news Kimber - just thought I'd check in before I head off to bed (1am and can't sleep) and so glad I did!
Hope the SE's aren't too bad for you.
Laurie x
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Yeah, Kimber! So happy for your results and glad you were able to get chemo! Will now pray for minimal SE's!
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Kimber,
Relieved for you that you got chemo and that you got all that fear out in a good weeping!
I have a brain scan booked for tomorrow and it's all I can think about - I ought to worry about what is happening all over my body (you know, every ache and pain that comes makes you wonder) but my brain is who I am and I'm terrified that the WBR didn't do its work.
Seeing your positive result has cheered me up and taken away some of my dread.
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Thank you Laurie , Glenna, and Barbara I got to close the cancer center last night. All was going good chatting with the nurses had just finished my f5u, and red devil pushes. So I used the washroom and we started the cytoxin. I was munching on chez mix slowly and went to swallow ..my throat had closed off. Started hitting the table to get my hubby's attention. He yelled to the nurse who's back was turned.
We got chex out..but my whole mouth was swelling. So they started more dex and did pepcid. Dr worried about benadryl with my heart..I get sever palpitations and have had several heart surgeries. So I now have four nurses staring at me and the on call oncologist. I just wanted to die! It didn't work so we went on to benadryl and they gave me some Ativan in the end. Finally got most of the swelling gone they were torn about keeping me but I asked could I please go home. I hate staying over nite and promised we would call or go to ER if it got worst. I only got half of my cytoxin. They aren't sure if it was that or the aloxi it can cause facial swelling that gets worse with each dose. Not sure but it scared my hubby and me.
Even with the Ativan been flying all morning from the double dose of dex. Thank you again for all your well wishes on the brain MRI..yesterday was filled with lots of ups and downs but I'd like to focus on the positive..good MRI and the reaction got fixed.
Just curious tho I know you said Laurie that you had to stop your FEC..would you be willing to share why? Just
Barbara you will be in my prayers..I'm so sorry you had to do the WBR..I pray your scan today is great! Hopefully we can start a trend!
Glenna how is that new grand baby..we need some gushing grandma stories..I bet she is adorable.
Well my dear sisters I'm praying for you all that are in treatment..that it goes well!
Kimber0 -
Hey Kimber - what a fighter! Hoping that all is well this morning, and so glad that the MRI was a good one. Thinking of you - Go AirForce!
And Barbara, sending you as many good vibes as I've got. Good luck tomorrow - SUE
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Wow Kimber - as if the anxiety about your scan wasn't enough. Have you always been an awkward patient LOL! That wasn't your first lot of that chemo was it? I know one of the chemo nurses said to me that it's oftten the third or fourth dose that can set off a reaction.
With regard to my FEC, my first onc (boo, hiss, villan) had planned to give me 3 and then move onto TAX x3, whereas the one I saw for the second opinion (yaay! good guy) who is now my onc had recommended EC x6 with a scan in the middle (wanted to keep the big guns in reserve). As it all turned out, I had progression in my liver after the FEC so went onto TAX anyway.
What have they said about the next chemo? Do they / you want to try it again?
Hope today is a little oasis of calm for you...
Laurie x
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Kimber, OMG that must've scared the daylights out of you (where in the world did that expression come from?) You had quite a day yesterday. Gladl they let you come home. Better to be high on decadron at home than stuck in a hospital! The granddaughter is a beautiful baby. She has lots of dark hair and dark blue eyes. I went for a visit yesterday and held her for a while. What a delicious feeling ... holding a squirmy little newborn! I had a CT scan yesterday and meet with the ONC today before a scheduled chemo. I guess the chemo I get depends on the scan results. Just a tad nervous!
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