Chemotherapy for Stage IV

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Comments

  • GatorGal
    GatorGal Member Posts: 750
    edited March 2012

    Oh, crap, Karen. Yes it is scary stuff. Glad you're in the hospital where they can care for you. Hugs and prayers your way! Glenna

  • hansrajd
    hansrajd Member Posts: 6
    edited March 2012

    Hi All,
    Its been long time I gave any update about my Mom, I logged in but could not update anything. Sorry...
    My mom completed her 12th chemo successfully (she was having every week) on 25th Feb. Now the doctor has asked to wait for 2 weeks and they are going to do the blood work and see how things are going. She is doing good so far other than the regular weakness after the chemo.

    I am not sure what will happen after that, they might go for the full scene to see how the cancer spared is doing. Keeping my fingers crossed and waiting for the 12th March 2012 blood test. I will post the information as soon as its available.
    Thanks and best wishes to all of you fighting through this. Keep fighting, keep motivating!!
    Regards
    Hansraj

  • dvillarr
    dvillarr Member Posts: 9
    edited March 2012

    Thanks for all the info I really do appreciate it.  Wink  We are slowly taking her off the Decadron and she seems to be responding well and moving her legs.  I think now its becoming more mental and overcoming her fears of falling.  

     Now have another problem.  Mom has low a low platelet count.  Her white-blood counts are ok,(could be better) her Hemoglobin is good but her platelets have gone south, which in turn has delayed chemo.  Onc said that they cannot continue chemo until her platelets are above 100.  He did OK the herceptin so at least we got that going but the chemo has been delayed for a week. Anyone here with the same problem?  What can we do to help mom with her platelet count?  Advice?  

     Everyone here has been great!  Much appreciation!

    Thanks,

     Diego 

  • dvillarr
    dvillarr Member Posts: 9
    edited March 2012
    Karen, Im soo sorry to hear about what's going.  Ill be praying for you! Hope it gets better!Frown
  • hydeskate
    hydeskate Member Posts: 45
    edited March 2012

    dvillarr, I remember my mom would have low platelet count and they would give her transfusions and sometimes a shot of something if I am not mistaken.

  • gonegirl
    gonegirl Member Posts: 1,022
    edited March 2012

    Hey, all:  I'm in the middle of chemo for liver mets.  A group called METAvivor that funds research in metastatic cancer is trying to win money to help them fund more research. If you go to this link, you can vote from them. Help them fund research.

    http://www.wix.com/metavivor/vote 

  • Unknown
    edited March 2012

    Gritgirl,   What chemo are you getting?   I am hoping Adriamycin is working on my liver mets, numbers are coming way down compared to what they were, but I never know anything for sure until we do scans.   I will go check out the link.    Marybe

  • alesta29
    alesta29 Member Posts: 240
    edited March 2012

    Thanks Susan, I'll check it out. 

    Hey Karen and Kimber - haven't heard from the two K's in a few days. How you both doing?

    Laurie x 

  • MemaSue56
    MemaSue56 Member Posts: 2,061
    edited March 2012

    Hans - Thanks for the update.  Sounds like your mom is doing a bit better...will pray that the tests come back good.

    dv - I had my platelets go way down.  They had me do blood work everyday, thankfully they started to go back up on their own.  Did the bloodwork 3 days in a row.  If they hadn't have gone up on their own I would have had to do the transfusion.  Just taking a short break from the chemo can help with the platelets.  Will keep her in my prayers.

    Grit - thanks for that info, will check out the website.

    Marybe - are your scans scheduled soon?  Keep us posted...so nice to hear good news once in a while.

    HUGZ!

  • usafmom
    usafmom Member Posts: 100
    edited March 2012

    Hi all,

    Just a quick note as I'm not doing so great. I've been in and out of the hospital the last ten days. I'm not sure what I last posted kind of foggy headed..so pls forgive me if some of this is old news. I've been having intestinal bleeding that is being affected by me being on lovenox. Then got the news I have C Diff ..I had an upper respiratory in fection that put me back in the hospital. I'm sorry I didn't mean to worry anyone..I have a ton of PMs but pls forgive me I don't have the strength to answer everyone separately right now. They ve lowered my chemo to such a low point I don't even know if it will do anything but I had to beg them to give it to me on Monday. I really wish you all the best and thank you all for caring so much. I will try to post more often. Love Kimber

  • alesta29
    alesta29 Member Posts: 240
    edited March 2012

    Hi Kimber

    Thanks for letting us know how you are and sorry to hear it's not better. You know how we all worry!

    Hoping you're out of the hospital and you're getting the dreaded c.diff sorted out. Little bit of chemo is better than no chemo and should keep you ticking over 'til you're a bit stronger.

    Don't feel like you gotta post. I'd checked you out on the 'last seen' bit , saw that you'd been lurking so figured you were tired. Looking after you is number one priority.

    Big hugs

    Lx 

  • Unknown
    edited March 2012

    Oh, Kimber, this just sucks, but it is good to see you are posting.  I had C-diff one time and it was really tough to get rid of so the sooner they get on that the better.  Take good care of yourself and do what they tell you to do.  Maybe once they get you off the lovenox and onto warfarin or coumadin, the bleeding will correct itself.  Sending hugs your way and prayers up.    Marybe 

  • GatorGal
    GatorGal Member Posts: 750
    edited March 2012

    Kimber,

    So good to see your avatar this morning. Yes, lots of us have been worried about you. I wish you weren't having to go through c.diff on top of everything else. Your #1 priority is taking care of you and getting your strength back so don't worry about responding to PM's. If we click on the blue usafmom we can see when you were last on BCO so you can read without feeling that you have to write. I hope you have plenty of help at home to help take care of YOU .... Blessings, Glenna

  • sueopp
    sueopp Member Posts: 238
    edited March 2012

    Dear Kimber - so very glad to see your post.  I have been watching and worrying.  So very sorry about the infection and etc., but hang tough, my girl, you've got what it takes.  Take care of you, and hope you can feel the love and care coming at you from all of us.  Go AirForce!   Love,  SUE

  • reesie
    reesie Member Posts: 413
    edited March 2012

    Kimber, so sorry about the setbacks. I hope they are able to get you stable so you can start kicking cancer but again.



    Like Marybe said, your health comes first post when you're up to it.

  • MemaSue56
    MemaSue56 Member Posts: 2,061
    edited March 2012

    Kimber - please don't worry about answering the PM's and posting.  We are so glad you gave us an update and all the love and prayers are storming your way.  You just take care of yourself and get back to us ONLY when you feel you can.  In the meantime I hope you feel the warmth of all our love!

    Sue

  • K-Lo
    K-Lo Member Posts: 826
    edited March 2012

    Wish you felt better, hon. Hope the next few days turn upwards. How are you getting comfort ..... any massage or music ....do the kids read to you so you can close your eyes? Warm hugs to you and family

  • TexasKaren
    TexasKaren Member Posts: 151
    edited March 2012

    I'm ouy of the hospital... another 7 days.  I've spent 14 of the last 21 days in there.  NOT GOING BACK!!  Kimbre, I'm so sorry for your complications... sounds like me.  Cancer isn't going to kill me, all this other crap is!!  I can't type much because my face/sinuses/eyes are still very swollen and I have terrible double/triple/wavy vision, but as this decreases, hop to get back on with everyone.  I lost 3 units of blook... I never knew you could have nosebleeds like that.  Same with Kiber; on Lovenox for my clotted pic line but made my recent sinus surgery have massive bleeds in two days.  sheesh.  If it weren't for bad luck, I'd have no luck at all.  LOL  No pic or port now, but a gyn-onc friend of mine is looking to maybe put in another intrajugular line after some ulstrrasound studies of my veins in neck and arm.  HUGS to all... I'll read and catch up later.

  • Unknown
    edited March 2012

    Karen and Kimber,  Saying prayers and hugs to both of you.   My port runs into my jugular and I know I am very fortunate that it still works since it's been 13 yrs for it. 

  • TexasKaren
    TexasKaren Member Posts: 151
    edited March 2012

    wow... that's great news Mary... I was afraid I was running out of options for a port.  Thanks, I'm encouraged now :)

  • GatorGal
    GatorGal Member Posts: 750
    edited March 2012

    Karen, So glad to hear from you and that you are out of the hospital. Take care of Karen!!

  • MemaSue56
    MemaSue56 Member Posts: 2,061
    edited March 2012

    Karen - This is the pits, but there always seems to be an alternative...if not, some kind of hope.  Hang in there.....you are in all our thoughts and prayers!

    Sue

  • alesta29
    alesta29 Member Posts: 240
    edited March 2012

    Hey Karen

    Welcome back to the land of the living - sounds like you've been to hell and back. Hope you are on the mend soon.

    Laurie x 

  • usafmom
    usafmom Member Posts: 100
    edited March 2012

    Hi all, I'm in getting chemo this morning. Karen I'm sorry to hear all the problems you are having. I hope they can get another port placed soon. Im slowly feeling a bit more human. Still bleeding but I'm learning how to get it under control. I only spent two days this week in the hospital. I'm thrilled to be home more often. I just sleep often I'm so tired all the time.



    Well I just wanted to wish you all the best. I may not be around as much but I pray for you all continually.



    Hugs Kimber

  • alesta29
    alesta29 Member Posts: 240
    edited March 2012

    Good to hear you could get it this week Kimber.

    Thinking about you lots too!

    Lx

  • TexasKaren
    TexasKaren Member Posts: 151
    edited March 2012

    Kimber:  Glad you are doing better... you were so on my mind too!  I get chemo again tomorrow too.  I dont know that this one is working;skin mets are still growing and spreading, but we'll give it one more cycle.  Hope you can stay out of the hospital totally soon!

  • Rob
    Rob Member Posts: 5
    edited March 2012

    well guess I am part of this group.  Was dx with stage 4 bc met to the lungs. Thought I had pnemonia but it 's not that. Maybe a little pnurmonia but mostly cancer. Now. i just get to sit in icu due to low oxygen levels to get to  friday's chemos.

    Take Care

    Robin "rob"

  • banjobanjo
    banjobanjo Member Posts: 187
    edited March 2012

    Hi Kimber,

    Glad you're feeling somewhat better - hope they can get you sorted out so that you improve even more.  We want you Home, Home, Home! 

  • GatorGal
    GatorGal Member Posts: 750
    edited March 2012

    Karen and Kimber - Thinking of you both and praying things are going well! Karen, hoping this round of chemo does you some good!

    @Robin, Sure hate to have to welcome you to the stage IV thread. Hope you get to have your chemo on Friday. I have mets to the lung, too, since 2008. On gemzar now as a maintenance chemo. Latest scans show NED. Yeah! What kind of chemo will you be on?

    And the rest of you uplifting wonderful BCO friends - hope you're all enjoying the spring like weather we're having on the east coast. It was so nice I cleaned and organized my entire garage today. Just didn't want to be inside. Gotta take the good days when we can!

  • TexasKaren
    TexasKaren Member Posts: 151
    edited March 2012

    Well, good news and bad (of course...LOL)  Doc visit today, we decided that the first round of carboplatin/camptosar did NOTHING... skin mets growing like fire again.  So, gonna switch to Ixempra on Thursday.

    Eye is swelling fast; almost have no vision (typing is real fun..feel like I'm hunting and pecking again, please forgive any typos I don't catch).  The cancer in the sinuses is putting great pressure on the eye, even my pupil is starting to distort.  The eye does not have cancer; it's behind the eye in the sinus cavities. SO... they are going to start radiation in back of the eye tomorrow.  I had no idea you could radiate that close to the eye, but they can, and feel like it will reduce the mass and fix my eye.  Wonders of medicine.

    MRI on my neck again Thurs too...cancer and degenreative disk disease has made the pain almost intolerable this last week.  I can honestly say that I reached a level "9" for the first time; and my poor DH actually saw me crying in agony (I'm very strong, and I don't cry very often at all except at sappy movies and commercials....LOL)  So, switched me to MS contin because the Hydrocodone was not handling it, and will have radiation on the neck too.... probably with a great case of esophogitis, but if this pain can be fixed, I'll drink liquids and have a sore throat for it.

    Bad part.....since I can't see to drive, my Dh has to take off work (but they are totally understanding and supportive) to go to Abilene (50 miles) every day..... I feel like I'm really stresing him out...he's working on his masters degree in psycyhology during the evenings, as well as working all day as a procesw control analyst that keeps a multi-million dollar wall board plant running.   Please pray for him!  I try to spoil him as much as possible.. :)   They said maybe in a week I might see some definite improvement in vision and could then drive myself.

    I swear...we go through these roller coasters.  We go up and down, for awhile all is fine and we're doing good, and then, wham, all is falling around our ears.  BUT that is when our God is faithful and we can let him carry us for awhile.   Blessings to all, and I pray for each of you daily