Calling all triple negative breast cancer patients in the UK
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Hello josephine_
I have read your post many times over and it is difficult to know what to say, except that all my heartfelt best wishes go out to you at this very challenging time for you. I do admire the fact that you went to work after your CT and bone scan results. You must be a very strong and determined person to be able to find the energy to carry on with your work despite all the pain. I sincerely hope that some progress can be made and something can be done to alleviate the pain. Your brain must be in complete turmoil with all that is happening.I can understand that you and your oncologist made the decision to stop the Avastin, since it looks as though it only works in combination with Taxol and you have already had months of this. Is there anything else that can be done in the way of other drugs? Is the drug Xeloda (capecitabine) of any use to you or the drug Abraxane (denusumab)? I understand that Abraxane has some success. My understanding is that it is like Taxol but that it is solvent-free.
There is no need to apologise for anything, Josephine. I am sure that all of us on this thread can understand what you are going through and that we could all at some point be in the same position.
Please stay with us on this thread as we have got to know you and have appreciated your very valuable posts. Remember, I started this thread for us women in the UK nearly a year ago, as I thought we were in the dark ages with reference to triple negative. I hope that all of us have helped to bring it out of those dark ages. I shall do all I can to get any information that may help you and I know what an informed and strong person you are. Keep looking on the positive side.
I hope that any of you who think they can offer information to Josephine will post.
You are in all of our thoughts, Josephine.
Sylvia.
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Hello BernieEllen
I hope you enjoyed the barbecue that your husband arranged. I also hope that you have now told him about the rash and lumps. It is always better to share anything that is happening to you. I was glad to read that you intend to go to the hospital and to sort it out for peace of mind.Here in the UK it is a bank holiday weekend, so Exmouth is very busy as it will be the last public holiday before Christmas. It looks as though it might be a nice day, so my husband and I hope to go for a walk on the seafront this afternoon.
Sylvia.
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Hello bak94
I was wondering if you have any idea what other drugs may be available to help Josephine. The ones that keep getting mentioned on various threads are Avastin, Xeloda and Abraxane. Do you know of any others?I hope you are having a good weekend.
Sylvia.
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Hello suze35
I hope all is well with you and that you are weathering hurricane Irene.Sylvia
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Hello everyone
I felt that we may all have needed some words of encouragement. On another thread I have just read about someone who was diagnosed with TNBC eleven years ago and is still surviving. We have to hang on to information like that. I also read about someone with TNBC who has been metastatic for eight years.There still seems to be a lot of young women being newly diagnosed with TNBC in the US. I still think more effort should be put in by the experts into finding what the causes are and how to prevent them.
I know that we have to be careful about what we are reading on some sites on the internet, but I have just been reading one that appears reliable, and is a question and answer one. I read that the most encouraging treatment for TN metastatic breast cancer is the PARP inhibitor iniparib. It is on the breastcancer.org site.
http://www.breastcancer.org/news_research/ask_expert/12_2010/#q21
All for now.
Sylvia.
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I wanted to add a bit more news about PARP inhibitors. Apparently, there are still no available PARP inhibitors and the experts are waiting for data from a large randomised trial, phase 3 of BSI-201. I think this must be the iniparib drug for TN metastatic BC, but I am not sure.
I have just found other PARP inhibitors mentioned that are new to me. One is the PARP inhibitor veliparib, used with a chemotherapy agent called Temodar (temozolomide), in trials has shown significant responses in metastatic patients with BRCA mutations.
There is also the oral PARP inhibitor olaparib with weekly Taxol (paclitaxel) chemotherapy, presumably being used in trials. This is also for patients with BRCA mutations.
If these PARP inhibitors are so promising they need to be hurried along.
I do not know whether private patients are getting these.
Sylvia.
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Dear Sylvia and other friends on this thread
Thank you for your concern. This time around I am less anxious not doubt due to the wonderful opiates that in adddition to keeping my bone pain in check, have very effective anti-anxiety modulation. It really is a massive help not to fell that terrible anxiety that I had first time around and wondering when my brain and body will have accepted the latest blow. It also enables me to focus on interesting aspects of my work. I may have mentioned that I am a research scientist that I 'run' a large group of researchers, whose work, efforts, trial and tribulations just keep me going............
The plan is to do an MRI scan to assess which of the bone lesions can be zapped by radiation, There is very good evidence that this helps with pain. What I do not know is the chemo plan, which as you mention Sylvia may well include the platinum drugs. I have an appontment within a week with probably the best expert on TNBC in the country, Meanwhile we had a nice weekend away in Yorkshire with my relatives whilst one of my children was getting very wet at the Reading Festival. Despite recent developments life is good, and I absolutely believe that I am going to beat this
J
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Hi Sylvie, thanks for that. BBQ was brilliant, jsut what i needed to pick me up again. Spoke to DH and hospital first thing. Warm hugs to you all.
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Hello Josephine
Thank you for your post. I was so glad to know that you have good opiates for bone pain and that they are very effective in helping with anxiety. Feelings of anxiety are awful and if they can be checked that is so much the better. I think a lot of us know the anxiety of just being diagnosed with BC and so we can appreciate the increased levels that come with the more challenging times.It is good that you can focus on your work as a research scientist which must be really interesting and help you to put breast cancer out of your mind, even if it is just for a little while.
Do you know when you will have your MRI scan? I do hope that radiation can help and that it will help with the pain. I hope there is a good chemotherapy plan that can be offered to you and that it will help. I hope all goes well with your appointment with the TNBC expert. I am sure all of us will be interested in knowing what he/she has to say.
I was glad to know that you have had a nice weekend away in Yorkshire with your relatives. I love parts of Yorkshire, especially the north around York, Knaresborough, Harrogate, Ripon, Thirsk, North Allerton, Wetherby, etc. I was glad to know that you are managing to enjoy life despite recent developments. Living your life as normally as possible must be the best thing to do. All our best wishes are coming your way.
Sylvia.
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Hello BernieEllen
I was so glad to know that you enjoyed your barbecue and that it has made you feel so much better. I am convinced that the way to get through all this breast cancer treatment is to look after yourself but to live life as normally as possible in between the treatments. I am sure you will find that you can do this more and more once you have got through radiotherapy, had your scans, and then settle down to regular check-ups. I find that I can switch off a lot of the time, but get anxious as a check-up date draws near. I have a check-up with the breast cancer consultant surgeon on September 30th and I can feel a little worry creeping in, even after more than six years since diagnosis. My check-up with my oncologist has already been arranged for April 2012! I keep wondering whether I shall be discharged and whether I shall feel relieved or anxious.I hope all goes well this coming week.
Sylvia.
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Hello TEK2009 and everyone else
I was wondering how you are getting on and whether the carboplatin is working for you. We would all love to hear from you.I hope all of you are making the most of the last of the summer days. How are you, Karen3? I suppose you will be getting ready for starting the new school term and seeing your son off to university.
How are you Maria_Malta? Have you had your nice holiday with your husband? When does your new school term begin?
To our American ladies, I hope all is well with you. You are certainly getting your dose of bad weather in certain parts, what with hurricane Irene, an earthquake, and some blistering heat. We hope to hear from you soon.
Sylvia.
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Just had my 2nd Carbo on Tuesday so am still feeling rough, actually think it is the pain more than chemo. Anyway thanks to all, have a few things first, BernieEllen do get the rash checked mine was mets, although not sure the difference it made them actually telling me, I had a sixth sense, really hope yours is nothing, but as Sylvia said peace of mind is important. Fingers crossed.
Sylvia its not raining anymore am in France, finally some good weather. Hoorah I needed that. Although could do without the cheese and cakes.... oops!
Josephine/Bak/Suze35
Can you tell me why your respective oncs chose this drug for you? It sounds like if might be a good one for me to try? Hope it keeps working for you all.
Thanks T
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Josephine - my thoughts are with you. You have such strong conviction that you will beat this - and you know what? I believe you can! All we hear are the horrible stats for Stage IV, but the truth is, even a percentage of them beat this. So keep that faith!!!
TEK - My doctor feels that Avastin is a good choice for me because my pathology revealed tumors that were aggressively building a blood supply. Avastin is a drug that can inhibit this action, "starving" the cancer, and enhancing the effectiveness of chemotherapy. In some cases, women can be "super responders" and only need Avastin to stay stable or NED. My doctor has one patient who has been on Avastin only for over 24 months, TN Stage IV, and is still NED. Being in the UK, Avastin is still available for Stage IV women, so I would ask your doctor if you are a good candidate. It can come with some serious side effects - and that is something to consider - but most women handle it well and see some response. It is worth a try, at the very least! I am thinking about you, and sending positive thoughts that you find the drug that works best.
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Hello Tek 2009,
I was so glad to hear from you.I was sorry to read that you are feeling rough after your second carboplatin treatment, but hang in there. We are all sending encouragement and support your way.
I am sure that it is doing you a lot of good being in France and can understand how hard it is to resist all that cheese and those delicious French cakes.
Sylvia.
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Hello everyone
I saw an article in one of the newspapers this week about a scanner breakthrough in breast cancer. It was about a new scanner that has been developed that is supposed to be more effective than mammograms. The machine in question uses infra-red beams and heat to find tumours without using radiation.In a trial it has been 92% effective, compared to 80% effective in mammograms now being used. The trial included more than 2,500 women. More trials are to come next year.
It is claimed this new technology makes it easier to detect tumours in younger women.
There is growing pressure in the UK to screen women under fifty, because breast cancer is on the increase and x-ray mammography is said to be less effective with younger women.
This new device is set win EU approval by the New Year. With this new device, you get a result on a screen and do not have to peer at x-ray films.
I was wondering whether any of you know anything about this new technique and whether it is already perhaps in use in the US.
I would welcome any comments. My own opinion is that it would be good if we could get away from squeezing breasts into uncomfortable positions and than sending radiation through them.
I think it is of great concern that breast cancer among young women is on the rise and I think every effort should be made to find out why and prevent it happening. Cancer is supposed to be a disease of old age, so we are told.
Sylvia
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Hi everyone, good news at the hospital, yesterday. All going well. Waiting now for the date to start rads.
Lots of love
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Hello BernieEllen
I was really glad to know that all is well. Let us all know when you get a date for your radiotherapy.
Sylvia
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Yay Bernie Ellen, so happy to hear.
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Hello suze35
I have been thinking of you today and hoping that all has gone well with your MRI scan.Hello christina1961
Hope all is going well with your radiotherapy.
Hello mccrimmon324
Hope all is going well with your chemotherapy and that it is not taking too big a toll on you. It will not be long before it is all over.
Hello bak94
Hope you are making good progress with your treatment.
Hello everyone
I hope you are all having positive thoughts. I have been reading some sad posts on Calling all TNs and I feel profoundly for those going through some really challenging times. Our best wishes go to all of them. Keep looking on the bright side and remember that more and more people are surviving cancer and living with it as a chronic disease. Science marches on.
Best wishes to you all.
Sylvia.
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Thanks Sylvie, all the good wishes and support have really helped me. Going for my markers on the 16th should know more then.
Went back to work yesterday, really enjoyed myself. DH is off to work tomorrow, he'll be gone for four weeks. I think he needs the rest after the last few weeks.
Everyone have a great weekend
lots of love, Bernie
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Hello BernieEllen
Thank you for your post. Thank you for letting us know about the markers on September 16th. That is nothing to worry about. If the procedure is like mine, you will be put on a replica of the radiotherapy machine and there will be measuring and marking to map out the exact places for the radiotherapy treatment. The actual treatment should not be long after that. It would be interesting to have your account of your treatment for the information for newly-diagnosed patients.
I was glad to know that you have returned to work and that you enjoyed yourself. I hope your work is not too stressful and always remember not to overdo things.
I hope everything will be fine while your husband is away working and that you have people to keep up the support.
Best wishes.
Sylvia
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Hello everyone
In nine days time this thread will have been going for a year. It has meant a lot of hard work and giving up a lot of free time, so I really hope that it has helped a lot of people. I do hope that it has helped newly-diagnosed patients to come to terms with dealing with their breast cancer, be it TNBC or other types. I do hope that the information has helped to prepare the newly-diagnosed with their life as they deal with cancer treatment, chemotherapy, surgery, radiotherapy, all kinds of scans, blood tests and, if hormonal, Tamoxifen with all its side effects. I do hope that it has helped all of you to understand the importance of doing your own monthly breast examinations and going to see your GP if you can feel or see anything that strikes you as abnormal with your breasts. If the GP gives you bad news, it is important to get quick referrals to a consultant at a hospital and from there to go through all the procedures necessary. It is important to try not to be afraid. I had real fear of hospitals, but a friend pointed out that the hospital staff were there to help me not to hurt me.
Cancer treatment can be got through and there are many of us to prove that this is true. Chemotherapy, surgery and radiotherapy can all be survived. There is a life after cancer treatment, just as there was before treatment.
For all of you newly-diagnosed, do not be afraid to post and express whatever your feel you need to express. If it is important to you it is important to us.
For all of you at various stages in your treatment, it is important to post to help and support the newly-diagnosed. It is important to post and express your own feelings on your treatment.
I hope you will all help to keep this thread going. Threads, such as this, can reach out to a lot of people. They can be used in addition to local support groups, especially by those of you who prefer a degree of anonymity.
Best wishes to all of you.
Sylvia.
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Hello Sylvia and co,
Have been checking in to threads and reading, but rarely posting except for playing games, which I find soothing in a mindless sort of way. Haven't said much on any threads as I've been feeling sick and tired of feeling sick and tired, but also there are a number of you who have more to battle against right now, and I felt I didn't really have the right to complain!
Anyway, the side effects of my last chemo (3 weeks ago) are gradually passing although my feet are still a bit numb form the Taxotere, and I still get quite tired, my knees ache and creak when I go upstairs in the evening, and when I walk uphill. The heat really doesn't help, and although I want to start walking every day to regain my fitness, it's just too hot to walk, and the humidity levels are really high (yesterday it was 90% humidity in the morning). I am swimming every other day though, and my strength does seem to be coming back. And my sense of taste is finally returning I'm glad to say! I'm eating as healthily as possible, have cut out sugar almost entirely, very little dairy, no white bread, pasta or rice, pastry, etc, and eat lots of veg. Almost no meat either. Have just finished reading Dr David Dervan-Schreiber's book (anti-cancer a new way of life) and found it very informative as well as very humane. One question is whether we should try and and not exaggerate the amount of fruit we eat, as it is full of sugar after all, even though it is fructose rather than sucrose. I'm still heavier than I've ever been however, but I think I'm carrying around a lot of fluid still, as my ankles are rather puffy, and I think my knees are too....I presume this is the after effects of steroids and chemo, maybe in combination with the heat?
Sylvia, haven't yet gone to Italy, but we are going on Monday and returning on Saturday. Very much looking forward to the break as I'm finding the waiting a bit tiresome...time seems to be passing very slowly right now until surgery (5 October). I just want it over with.. I start work on the 19th, which is good as it'll make time pass more quickly...
BernieEllen good to hear you're back at work, and for the rest, courage on your various journeys and although I don't write often, I'm sending you lots of good thoughts and positive energy!
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Sylvia - quick drive-by to say thank you so much for thinking of me. Coming up on the thread's anniversary, I believe it is safe to say you have truly made a difference in our lives - your hard work and constant concern are so commendable, and your quest for research has helped many women I'm sure! Have a great weekend!
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I totally agree! Your energy is amazing Sylvia, thankyou!
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Hello Maria_Malta
Thank you for your posts. I can understand that you have been checking the threads and reading but not posting. Sometimes it is relaxing to do this. I have noticed that the humour and games threads are very popular, and I can understand why. I have days when I feel like switching off. I think that, for me, the best tonic is a good dose of laughter and I like to find episodes of Not Going Out with Lee Mack and Tim Vine. They are extremely funny in a clever sort of way and they make me laugh until it hurts! I also like Miranda Hart in Miranda. She is seriously comical and used to be in Not Going Out. I hope there will be new series this autumn. I also find it relaxing to watch serious political and current affairs discussions and love Cross Talk and The Kaiser Report on RT. On Saturdays I watch Dateline London on the BBC News channel.If I want to forget all the problems of everyday life I love to listen to arias from Puccini operas. They seem to penetrate the depths of my being. I love to listen to the Three Tenors, Placido Domingo, Jose Carerras, and the one and only Luciano Pavarotti. I was so sad when he died, but his music lives on. I also love the music of John Denver.
I was sorry to read that you have been feeling sick and tired, but remember that you are only three weeks away from finishing chemotherapy. Your immune system will probably be somewhat weak. Give it time to recover.
I do not know what you will be able to do about the numbness in the feet. I also suffer from this. It came on after chemotherapy and it has not gone away for me. I had a podiatrist test my feet and she told me that I had peripheral neuropathy and that it would not go away. My GP told me the same. She in fact said that it might go away, should I have a hundred more years to live!!! I find that I can switch off about it but sometimes it irritates me. I find it helps to bathe my feet in warm salt water, dry them off, rub Scholls foot granules into them, dry them off and then to moisturise them with E45 cream or especially Atrixo hand cream for sore and rough hands.
I have no solution for knees that ache and creak, except to say that, if I have been standing and doing a lot of gardening in our grounds, I sometimes rub in a little Voltarol cream.
The heat and humidity will not help. I find I like the shade more than anything else and find that heat makes my face quite red. This blushing is something that started almost immediately with chemotherapy and it was more often on the right side of my face and my breast cancer was in my right breast. I think that you are doing marvellous to be swimming every other day. I do not know how to swim, but I do remember being told that swimming was very good therapy after breast cancer surgery.
I was glad to read that your strength and sense of taste is slowly coming back. I was also glad to know that you have read Dr David Servan-Schreiber's book, Anti-cancer, a New Way of Life. I think everyone diagnosed with cancer or striving to prevent it should read it. The way we eat is something we can control. Even if we go astray with our diet from time to time, we can soon get back on track.
Your mention about fruit is very interesting. It is quite true that we should not eat it in excessive amounts. It does contain natural sugar but the body absorbs this in a slower way than refined sugar. I try not to eat a lot of it in one go. I emphasise raspberries, blueberries, strawberries and blackberries as the most important and try to have a mixture at breakfast time. In the evening I usually have some tangerines with an apple or a pear. I try to get a good mixture of fruit during the week and have some pomegranate seeds, red or black grapes, melon, peaches, plums etc. during the week. It appears that vegetables are the most important and I try to integrate as many as possible into my evening meal as possible.
I hope you manage to get rid of the fluid (oedema) in your body. You are right, it is probably a combination of treatment and heat. I know I get puffy feet and ankles if it is very hot.
I do hope you will have a lovely time in Italy and I shall be thinking of you on Monday. I know that waiting around is very tiring and we have to do a lot of this during the long weeks of cancer treatment. It is not that long to October 5th. I too am playing the waiting game, as I wait for September 30th with my breast cancer consultant surgeon for my check up.
I hope everything will be fine when you go back to work on September 19th. Make sure you do not overdo it, as teaching can be very stressful. I read recently that teachers are in the high risk category for cancer.
I have just seem that Dr David Servan-Schreiber's book last book is listed as number one on the non-fiction best sellers in a French language magazine that I bought recently. The French title is "On peut se dire au revoir plusieurs fois" (In English this literally means "One say can say goodbye several times"). I do not suppose it will be long before it comes out in English.
Best wishes, Maria.
Sylvia
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Hello Suze35
Thank you for your post and for your kind words about the thread. I am so glad that you have found this thread helpful.I have been reading some of the posts on the TNS and I have to say that I am full of admiration for you American women. You really have so much get up and go. Despite all the challenges you are having to face at such young ages you can still have a life and get so much fun out of it. I have been having quite a chuckle with the posts on shoes and retail therapy. Although older than most of you, I look and feel very young and listening to all of you is great therapy for me.
I have been very interested in the posts about dogs and their ability to sniff out cancers. I think that it is quite a serious theory. It was in one of our newspapers this past week and I think the idea is being taken seriously. We have to remember that dogs have a heightened sense of smell and it is quite possible that they can smell something on our bodies. I remember reading that cancer tumours do smell and that, if they start to fungate, they have quite a strong smell. I also remember reading that cancer patients can have a sweet smell on their breath.
I was so glad to know, Suze, that you have been having some fun.
Have a happy Labour Day weekend, Suze. Also, happy weekend to bak94, christina1961, mccrimmon324 (Heather) and all you very courageous and supportive women in the US and Canada.
Best wishes
Sylvia.0 -
Hello everyone
I have been reviewing the thread to see which parts of breast cancer treatment have not been dealt with in detail. I noticed that we have not written much about clinical trials, so thought I would do that to start off the week.Most major breast units carry out research to find better ways to treat breast cancer. I am sure we all realise that, so far, none of the available treatments results in a cure for all patients. I wonder whether we can say that any of the available treatments results in a permanent cure for any patients, since we all know that cancer can come back at any time.
Clinical trials are a way of investigating new drugs. Before a trial begins a lot of background work is carried out to see whether new treatments might be better than the standard treatment. Usually, with these trials, patients and doctors do not know who is getting the new drug or the old drug. A patient cannot choose which drug they will receive. This is all done at random through a computer. At the conclusion of the trial it is possible to ascertain whether a new drug is better than the standard one.
It will not always be the case that the new drug being tested is better than the standard one. Before a trial is allowed, it has to be approved by an ethics committee. Patients will also need to sign a consent form, saying that they know what the trial is about.
Clinical trials are carried out in phases.
Phase 1 is carried out on a small number of healthy volunteers, about ten, to work out whether the drug is safe.
Phase 2 is carried out to see if a new drug works in a small number of patients with the condition. The number of patients involved is about 100 to 200 and they are monitored to see what side effects they may have, mild or severe.
I do not know how long patients in phase 2 trials are monitored. Perhaps someone can answer this.
Phase 3 is carried out on a large number of patients, about 1000 to 3000. My information is they take the drug for about six months and are medically supervised. These phase 3 trials are usually carried out in a hospital or clinic setting, and do not necessarily take place in the same countries.
If there are satisfactory results from these trials, they will have to be given to the licensing authorities and also any other relevant authorities. A decision will then be taken whether to grant a licence or not.
I suppose that, in the UK, one of these authorities will be NICE.
Phase 4. If the new drug is given a licence, it will still continue to be tested and many thousands of patients help to continue the research and to help doctors. Doctors will be looking to see how a new drug affects a patient in every-day situations. Rare side effects will obviously only be discovered when a drug becomes widely prescribed.
It is important to remember that, even if you have signed a consent form for a trial, you are free to withdraw at any time. You do not have to give a reason.
That is all for today.
I would like to send special thoughts to TEK2009 and Josephine. I hope all is as well as can be expected and that their pain is under control. We have not heard from Karen3 and Gillyone in a while, so I would just like to send our best wishes. If I remember correctly, they are both teachers and are probably getting ready for the new school term.
Best wishes to all.
Sylvia.
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Hello Mccrimmon324,
I was sorry to read that you have not been feeling at all well after your fifth chemotherapy.They do say that for some women it gets worse as the treatment continues. Keep telling yourself that the ordeal is coming to an end very soon. Remember that your immune system will be very weak. Take care, rest and get plenty of fluids,mostly water.
Best wishes, Sylvia.
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Hello everyone
I have been doing a lot of thinking about this thread and wondering where to take it. I have just gone back to page one and have gone through all the postings to page 18. I have also looked at my own posting when I first started the thread to read over my stated purpose in starting it. It was to open up triple negative breast cancer to women in the UK diagnosed with it, and to inform and support them. Lately, I have noticed that there are very few posts, especially from the Brits for whom the thread was initially started. I need to know whether you wish the thread to continue and, if so, whether you are going to post.Looking back at the first few pages, I noticed that the women who posted and motivated me to continue, have not posted in a while. Naturally, I feel disappointed and I also wonder what has happened to you all and whether you are all fine and getting on with your lives.
I am thinking particularly of FreddieDLH, who was the first person to post after I started the thread. I am also thinking of spammy61 and Jinglebell, who posted enthusiastically in the beginning and encouraged me to continue. What has happened to you? Others that I wonder about are micheyd, who was quite distressed about beginning chemo, tibet, hymil, alif (Alison), penelopeP, eskimo53 (Carole), ElaineD, jenn-UK, debbyanzalo, janjaker31, and veejark, who posted about his wife. I am sure we would all like to know what has happened to all of you.
Looking back through all the pages of the thread, I would like to say thank you to Karen3, TEK2009 and Josephine for their valuable input to this thread.
As for the rest of the people, non-Brits, who have posted, I was wondering what has happened to Brena, chilimac (Tonya) who posted in on behalf of her two sisters, Natalie and Karin. I do hope you are all well. I also hope all is well with your mother, Suelynn.
Last, but not least, I would like to thank five other American ladies for their important contributions to this thread. They are bak94, suze35, mccrimmon324, christina1961 and Gillyone (British by birth).
It goes without saying that I give enormous thanks to two other women not from the UK who have made important contributions to this thread. They are Maria_Malta and BernieEllen.
I do hope that I have not missed anyone out.
Please let me know where you think this thread should be going. It has passed through my mind that many newly diagnosed women, who have three negative, or practically negative, receptors, may not necessarily be being informed that they are triple negative. They may be being told that they have negative receptors but the term triple negative may not be being used as such.
Does anyone know if there are any other threads like this one, originating in the UK?
I look forward to reading your comments.
Best wishes
Sylvia.0
