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Calling all triple negative breast cancer patients in the UK

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Comments

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello Helen,

    Thank you for your post. I was glad to read that your wound is still healing.

    I do hope that you will get some news from the trial doctors. We all know how frustrating waiting is.

    I do hope everything goes well this week and you will have a good idea of where you are heading.

    I was glad to know that you have been able to have some enjoyment while you are waiting for all this to settle down. Please keep in touch and let us know how things go this week.

    You have been through so much and I do hope that this week will bring good news and that everything will turn out fine.

    Love.

    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello Sarah,

    I am sure that we all remember you and how you were posting on behalf of your mother. Flora was posting at the same time for her mother and still pops in.

    it is good to know that your mother is progressing well.

    I was interested to know that your mother is still on her mistletoe treatment (Iscador). Is she taking oral Iscador? I seem to remember that she was. It I remember correctly you got in touch with the people who had taken over the practice that the herbalist Gerald Green started and with whom I had received treatment. I actually got my Iscador from Dr Elizabeth Thompson, who used to be at the Royal Bristol Homoeopathic Hospital and with whom I stayed for five years from diagnosis. She is now in private practice. However, I started off with Gerald Green and I had two anti-cancer treatments through him, wormwood (Artemisinin) and astragalus. When I decided to go through with orthodox treatment I then stayed with the homoeopathic consultant for five years.

    I am so glad to know that your mum is doing well with the Iscador and thank you very much for your kind words about all that.

    How is your dad doing? I am sure you are taking good care of him.

    I consider you one of our group and I am sure I speak for all of us when I say you are welcome here whenever you have the time.

    Love.

    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello Jags,

    Thank you for your post and for your kind words.

    I have been only too happy to help anyone going through the shock of a cancer diagnosis and the journey they have to make.

    I can hardly believe that 14 years have gone by since I got that diagnosis. I do remember how frightening it was, how reluctant I was to have treatment and how alternative and complementary helped me through the long months before I made up my mind to accept orthodox treatment and started on those long months of chemotherapy, before surgery and then radiotherapy.

    I just want to tell people not to be afraid and that they can get through all this.

    I do not envy you with your renovations!

    Take care.

    Love.

    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello Dragonfly,

    Thank you for your post. I see that you are a fellow Brit and I do hope that we shall be able to help you in some way and give you some comfort.

    I have read your details and understand that you have two breast tumours in the same breast, and that one which is oestrogen positive is actually beneath the breast. Is it also Progesterone positive?

    I was interested to know that the smaller one is triple negative. I was also interested to know that you have two different kinds of breast cancer, ILC and IDC.

    I see that you are having targeted therapy for the bigger oestrogen positive one and that you are taking anastrozole (Arimidex), which is a common drug, and that you are taking it with ribociclib (Kisqali). I can understand that you are being treated for the larger hormonal one with targeted medication.

    I am not a doctor, and we cannot give advice, but I do find it strange that you have not had surgery. When I was first diagnosed the first port of call was with the breast cancer consultant surgeon, who did the fine needle aspiration, organised a mammogram, biopsy etc. and told me that I would need a mastectomy. It was then that I saw the oncologist who said they would do six months of chemotherapy to shrink a very large tumour, then do the surgery and finish with radiotherapy.

    If that were me I would want to meet with the breast cancer consultant surgeon and would want assurance that a mastectomy surgery could be done. Triple negative tumours are often large at the onset or can grow pretty quickly so I would want the surgery to be rid of it if possible.

    I hope this helps but ultimately you will need to make the decision.

    As for mistletoe therapy, my understanding is that it is used in Germany as an anti-cancer treatment. I took oral mistletoe (Iscador) for five years when I was diagnosed, but I took it along with the orthodox treatment of chemotherapy, surgery and radiotherapy. My breast cancer was IDC and triple negative.

    I do hope this helps. Let us know how you get on when you see your breast cancer consultant surgeon. If necessary get a second opinion.

    Which hospital are you at?

    Wishing you all the very best.

    Sylvia

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello everyone,

    I am posting to say that I found an interesting article in the Saturday/Sunday edition of the i paper. It was on pages 26 &27 and was under Health and entitled American revolution in the NHS – British cancer patients treated in Florida are bringing US hospitality to the UK's first proton beam clinic – by Paul Gallagher. It is good news to know that the first proton beam therapy centre is now open at The Christie NHS Foundation Trust in Withington Manchester, and was opened last December.

    The long article is well worth reading and there is a picture of the first patient being treated.

    The other centre will be opened next year at University College London Hospitals with treatment to begin in the summer.

    In the article, it says 'Until recently, NHS patients with inoperable tumours had to be referred to hospitals in countries such as the US and the Czech Republic for the treatment'.

    Apparently the experience of patients sent to the US have played a central role in designing the UK model. Patients had said that they liked the centre in America because a patient did not feel like they were in a hospital.

    Please try to read this article and inform yourself.

    Best wishes to all.

    Sylvia xxxx

  • maryna8
    maryna8 Member Posts: 1,832

    HI, Adagio

    Good to hear from you! I suppose that by now you have had your mammogram, and soon you will see your doctor to talk about all results of DEXA scan and blood tests. Always a slightly anxious time, no matter how good we feel.

    I am always very interested in your husband's progress, since his injury was so similar to the one my brother incurred. In September it will be the 1-year mark for my brother, he is almost completely restored to normal, except he says his legs go weak after exercise, and he has a lot of wrist pain. He has finally resumed playing golf, something he always enjoyed and is good at doing. I hope your husband's progress continues well, and he will be back to normal, it is a slow recovery.

    I was interested to read about your Starve Cancer experiences, I would also have a hard time taking massive amounts of supplements. I take quite a few, but it is often haphazard. There is a lot of info out there now about fasting, and intermittent fasting, and such. I do like the idea of doing one's eating in a compressed time and I find that it is the way I eat naturally; that works pretty well for me, unless I am traveling and then everything is out the window.

    Thank you for your interest in my shoulder recovery, it is a tedious process, and so far this spring into summer I have devoted most of my time to going to therapy for my shoulder, doing exercises at home, and trying to figure out how to do things with my left arm and/or trying not to be bothered at all the things that are not getting done. But I am feeling stronger, and I have more range of motion. This is not without some pain, but that is not as bad either. In an odd way, I feel as if my arm is once again attached at my shoulder, whereas before it felt as if it was just hanging there barely hooked on.

    We are getting lots of rain, more than normal for this time of year. Everyone likes occasional rain, but we are way above average. It is so green that it looks as I imagine Ireland does, though I have only seen pictures. Although we have more trees, I think.

    I like to picture you in your Vancouver garden, harvesting vegetables. We saw huge fields in California full of strawberries and artichokes. my sis-in-law and I are country girls, we very much admired the soil in the fields, rich and black and not a rock in sight. I hope your garden has soil like that!

    Talk to you again later, be well

    Love, Mary



  • SusieW5
    SusieW5 Member Posts: 345

    Hello Sylvia,

    I was listening to a programme on Radio 4 just a couple of weeks ago, and unfortunately can't remember which programme it was, but what I took away of the use of Proton beams in the US is that a machine costs £250 million and there is pressure on oncologists to prescribe the therapy to recoup the outlay, regardless of whether it's the right therapy for the patient.

    Hopefully, this won't happen in the NHS.

    Susie

  • rosiecat
    rosiecat Member Posts: 1,192

    Hello Sylvia,

    I'm afraid I'm falling behind on almost everything this week, so apologies for my late response.

    It's good to see so many posts on the thread. I always wonder how people are getting on, especially when they haven't posted for a while. I think about Marias and hope that she's been offered treatment.

    I completely agree with you about the benefits of a Mediterranean diet. It's so easy to organise too. Most people would not be suffering from type 2 diabetes if they kept their intake of carbohydrates, sugar and saturated fat down. I do think that takeaways and microwave ready meals have become a huge problem in the UK. Far too many adults and even very young children are obese as a direct result of junk food. Watching already overweight children having fizzy drinks, crisps, Macdonald's burgers etc thrust into their hands by mum or dad is heartbreaking.

    Like you, I think that some GPs prescribe statins when cholesterol readings are within what was once considered a healthy range. Since his diabetes diagnosis, Michael has been given Atorvastatin 40mg yet his cholesterol reading is 5, which isn't at all bad for someone in their mid-sixties. My daughter has told him that if he needs statins at all, she would only want to prescribe 20mg.

    I see that Chris Woolams has included something about statins in his newsletter. It appears that statins could prevent cancerous cells spreading in some cancers, while in other cancers statins may help to supply blood to cancer cells. He also points out that more research is needed when it comes to prescribing the correct dosage of Tamoxifen. I think that in some instances, dosage may be higher than needed simply because doctors are so keen to keep ER+ cancers at bay. However, this does mean that some women may be suffering side effects needlessly.

    So, it does look as though either Johnson or Hunt will soon be installed as our next PM. It pains me to admit this, but I'm pinning my hopes on Hunt, despite the mess he made in Health. Like you, I've had quite enough of the privileged Eton/Oxbridge brigade running the country and never vote Conservative.

    Some heavy downpours here yesterday and early today, but warm enough for me to get the washing dry this afternoon. I do hope Exmouth has avoided the storms travelling across the country.

    Take good care of yourself and Raymond.

    Love,

    Gill X



  • SusieW5
    SusieW5 Member Posts: 345

    It bugs me when people justify their unhealthy diets by saying that dietary advice constantly changes so you might as well not bother. The benefits of the Mediterranean diet have been known for decades now and it's roughly what's suggested to stave off everything from heart disease to dementia, diabetes to cancer.

    As you say, Rosie, it's also easy to prepare.

    Susie

  • viewfinder
    viewfinder Member Posts: 201

    Hi all,

    Just want to stop in and say hello.

    I haven't participated much in the breastcancer.org forums very much except when I have a specific need. It's just so hard to keep up with all that is going on in my life. But I do realize many of you are going through so much and do pray for you. Hats off to Sylvia for so steadfastly encouraging and informing others.

    For example, I'm flying to Seattle in July and have posted questions as to whether or not I should get a compression sleeve and glove.

    I've also posted a bit in Steamroom for Anger. I just lost a friend to lung cancer, and a second one was put on home hospice a little over a week ago. Our church ladies take turns going over weekday mornings to be with our friend, and to give her husband some respite and so he can go food shopping.

    My sister is having a double mastectomy and oophorectomy the morning of July 8th. I'm arriving in Seattle on the 19th and staying for three weeks. My sister is fortunate to have a wonderful team of friends helping her through it all. I'm going after the surgery because due to my eyesight I don't drive at dusk or at night; oh, and because of the Seattle traffic and unfamiliar roads...I and won't be much help if she needs to go to the doctor, etc.

    My very best to you all!


  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello Susie,

    I was interested in what you said about that programme you listened to on Radio 4. I do listen to Radio 4 but I must have missed that one. I try to look out for Inside Health on Radio 4 and also like the Life Scientific. It is trying to fit all this in.

    It amazes me how much a proton beam machine costs and it is worrying if oncologists now start pushing the use to recoup the outlay.

    I wonder how the NHS will cope with the expense of it all.

    I was wondering whether proton beam therapy would be of any use to Dragonfly, who posted about having a tumour beneath the breast that her oncologist had said was inoperable. I do hope she gets back to us to let us know what happened.

    I do agree with you about the Mediterranean/Rainbow diet.

    Love.

    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello Gill,

    Thank you for your latest post. It looks as though we all have very busy lives. We are going to have to learn to slow down! I actually prefer to be very busy. Today I was up at 6 am and I have not stopped going for five hours. I have lost count of how many times I have been up and down the communal staircase. I never take the lift.

    I think we all agree about the benefits of the Mediterranean/Rainbow diet. My daily nutrition revolves around fruit and vegetables and they are always the bulk of my shopping. It seems that most of our chronic diseases are down mainly to lifestyle.

    As for statins, I just would not take them. The GPs say they are not only for lowering cholesterol but should be taken for treating heart disease, but I think they are over prescribed and have nasty side effects. I cannot see what is wrong with a cholesterol reading of 5 for Michael.

    I have just printed off the June 23rd newsletter from Chris Woollams, but I have not had time to read it properly yet. Glancing through it number 8 caught my attention. "How your till or credit card receipt could could link to dementia – thermal receipts are the problem and most of us touch those." I have ticked this part to read in more detail. Number 10 caught my attention as well - "Radiologists make errors – well, according to Google they do. Google now believes Artificial Intelligence is better than radiologists."

    Number 5 looks interesting as well - "Can statins really help fight cancer? - There is little doubt that high levels of saturated fat and triglyceride in your body spread cancer, but can stains really help you fight cancer?" I reserve judgement until I have read in more detail, but I tend to think statins are being pushed as one of those cure-alls.

    I do hope something happens so that we do not get either Boris Johnson or Jeremy Hunt as Prime Minister. I find them both useless. I did enjoy the use of the term applied to Boris Johnson that he is suffering from narcissistic disability. He is definitely in love with himself. I cannot see that he has any charisma and Jeremy Hunt is plain boring. We need a good clear out and I hope there is a vote of no confidence and we have a General Election, so that we can all have a say.

    It is strange weather here in Exmouth today. Early this morning it was hot and humid, but we now have a bit of a breeze but no sun.

    Love from Raymond and me to you and Michael.

    Do not forget to stop and smell the roses!

    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello viewfinder,

    Thank you for your post and for your kind words.

    You asked about whether you should wear a compression sleeve and glove when flying to Seattle. It might be prudent to do this because of the reduced cabin pressure that may make your arm vulnerable to lymphoedema. Others who fly more may be able to tell you of their experiences. I do not travel much at all these days and do not wear a compression sleeve at all to keep lymphoedema at bay. I do my exercises and keep my arms well moisturised as I was advised.

    There are so many people being diagnosed with different sorts of cancer that we are all bound to have family and friends who are affected. If I think of just the complex where I live, there are so many who have died of cancer.

    Please let us know how your sister gets on with a double mastectomy and an oophorectomy on July 8th. I am sure your sister will be in good hands with you and it is good that she has a wonderful team of friends helping her through all of this.

    Please keep in touch and let us know how everything is for both of you.

    Love.

    Sylvia xxxx

  • rosiecat
    rosiecat Member Posts: 1,192

    Hi Mary,

    You seem to have had a very enjoyable break. A temperature of 40.5 C in Phoenix, how do people cope? Anything much above 25 C and I start to wilt. Having said that, we could certainly do with some sunshine in Norfolk today.

    Michael's diabetes is likely to be inherited as both parents had it. Your friend's diabetes seems to have been due to a poor diet. Fizzy drinks are drenched in sugar and are so addictive. I can never understand why hospital vending machines are crammed with them - in the UK at least . Hope your friend's surgery goes well. I know several people who have had a lung removed due to cancer and they seem to have made a full recovery.

    Our Brexit problems rumble on as does the election of a new Prime Minister. Mary, don't even try to understand how British politics work. It used to seem relatively simple, but now anything (or anyone) can happen and somehow we manage to avoid catastrophe. We have no real leaders any more. All the wise old politicians with character and backbone have died off. I could respect them. Not that I always agreed with them by any means. I guess things always seem better when we look back over our shoulders at the past. Does this mean I'm getting old?

    Talking of shoulders, I'm glad that your range of movement has increased. Being away from the temptations of garden and farm probably helped.

    Hang on to that chilled out holiday glow.

    Love,

    Gill X

  • Worriedasworriedcanbe
    Worriedasworriedcanbe Member Posts: 11

    hello, I’ve been having problems with my left breast for a while now, I’ve made posts on here and after pushing for several months my GP has finally given me a private breast MRI referral, only problem is I’m now stuck on finding a place here in the UK that takes the referral (I’m self paying) if anyone knows somewhere it would be brilliant, message me please.hope everyone is well x

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello Worriedasworriedcanbe,

    Thank you for your post. I do remember that you posted on here and I was very surprised to learn that you have still not got to the bottom of the problems with your left breast.

    I am a bit puzzled by what you are saying about your GP having finally given you a private breast MRI referral. It seems to me that if the GP has given you a private MRI referral, then the GP must have referred you to someone somewhere. If the GP has not done this, surely he or she must know where you can get this referral done.

    Common sense seems to direct you to a private hospital such as the Nuffield or BUPA hospital.

    I hope this helps and that you will let us know how you get on. This has been going on for far too long.

    Best wishes.

    Sylvia

  • SusieW5
    SusieW5 Member Posts: 345

    5 used to be considered a perfectly acceptable level of cholesterol, then it was lowered to 4 in what seemed a random way. Just like a BP of 120/80 was the norm for as long as I can remember and now they mutter that it should be 110/70. And the medical profession wonders why their pronouncements are treated with scepticism.

    I have taken statins for years and have no side effects.


    Susie

  • Worriedasworriedcanbe
    Worriedasworriedcanbe Member Posts: 11

    thank you ever so much I’ll try those! And he didn’t specify as I was under the impression I could pick one myself I got it wrong :( I’ll call them tomorrow thanks again

  • rosiecat
    rosiecat Member Posts: 1,192

    Hi Susie,

    110/70 seems a bit low to me. I doubt if many people over forty would achieve a reading like that without help from BP meds. As for cholesterol levels, 5 seems quite reasonable for someone of Michael's age. Like you, I've been taking statins for many years with no side effects that I know of. I doubt that aiming for anything lower than 5 would have any tangible health benefits.

    Gill



  • rosiecat
    rosiecat Member Posts: 1,192

    Hello Sylvia,

    I've just read through your breast cancer story again. It's important for newly diagnosed women to know that in most instances, there is light at the end of the tunnel, even with large tumours and node involvement.

    I absolutely agree that you seem to have had the dream team looking after you - very coordinated treatment and care and an oncologist with the time to answer questions. I also noted that you were in hospital for five days after your mastectomy. I was in for 23 hours for my mastectomy and partial node clearance. How times change!

    I've read no.10 of Chris Woolams' newsletter regarding the greater accuracy of artificial intelligence in interpreting lung scans compared with radiologists. Less false positives or false negatives apparently. I Googled this and found there are quite a lot articles along the same lines. There is even a suggestion that radiologists might find themselves short of work or out of work in the future. My only experience of being seen by a radiolist was a very good one, despite her telling me that I had cancer. I could see the screen and I could see the cancer and I watched her measuring it from all angles. I remember her touching my arm and being very kind to me when she told me that it was definitely cancer. She did my core needle biopsy straight away and encouraged me to ask questions. She made a bad day seem so much better. I have to conclude that artificial intelligence combined with caring and capable radiologists is the way forward, but the NHS, always eager to save money, may think differently.

    I wish that this embarrassing PM contest would fall off the front pages.The UK is making a complete fool of itself. It's not very often that I feel sorry for the Queen, but I'd like to be a fly on the wall if she ever has to welcome Johnson to the Palace for the weekly briefing.

    The men from the roofing company have just reversed into the drive to take down the scaffolding. This means that we shall have sunshine flooding into the house for the weekend. We've needed the lights on during the day for the last few weeks. It also means that the cats will lose their adventure playground and that I shall have to learn to live without someone singing on the roof.

    Hope you and Raymond have a good weekend.

    Love,

    Gill X

  • SusieW5
    SusieW5 Member Posts: 345

    I was kept in hospital overnight after my lumpectomy but only because I live alone. Much shorter stays are now the norm. Obviously this is mainly to free up beds and save money but it has to be said that being in hospital is, in itself, bad for your health. Mind you, I was in for five days after my knee replacement in 2016 and was very comfy with a TV and my phone, Kindle and tablet, not ot mention visitors. In fact when the surgeon said I could leave after four days, I replied that I had paid for five and would stay another night, thanks very much. But that was a private hospital where I had my own room and someone answered my bell when I rang it to bring me pots of tea, proper cups and biscuits.


    Susie xx

  • rosiecat
    rosiecat Member Posts: 1,192

    When I had my few hours at Spire Hospital I was served with some really lovely food. Tea and biscuits or toast and marmite whenever I wanted it. Gorgeous breakfast and amazing lunch before I left. The best thing was that Michael could eat with me. It was like being in a restaurant together. He even had a glass of wine. I didn't want to leave, but felt really well and couldn't think of a plausible excuse for forking out for an extra day.

    Gill X


  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello Gill,

    Thank you for your latest post. I do agree that times have changed in the NHS and that because of cuts and over-population there is not the quality of care that I was lucky to have in 2005/6. I do think that my oncologist and breast cancer consultant surgeon were exceptional.

    The breast cancer consultant/surgeon could see how reluctant I was about orthodox treatment and willingly referred me at my request to the Royal Bristol Homoeopathic Hospital and said that not all of her patients at the RD&E were going through treatment.

    I have been reading some of Chris Woollams latest email. I read with interest the article entitled Is low dose tamoxifen the way forward in breast cancer? I would think that this would be of great interest to those women diagnosed with hormonal breast cancer. As for statins, and whether they can really increase cancer survival, I do not really know what to think. All I can say is that I would never take statins. I shall stick to eating a lot of fried tomatoes that contain lycopene and research shows that it is more effective than statins.

    I really do not know what to believe about artificial intelligence outperforming radiologists when it come to reading CT scans for early detection in lung cancer.

    I think I have become very weary of too much information.

    It seems that from the time we wake up until we finally get to sleep, we are bombarded with information of all sorts, not to mention advertisements pushing us to buy things we do not need. There is so much noise in our society as well.

    That is about all for today.

    Take care and enjoy the sunshine flooding into your house.

    Love.

    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943

    Hello adagio and 53Nancy,

    I am just popping in to wish you a Happy Canada Day for tomorrow. Enjoy your day.

    I am also popping in to wish Mary, Val, and other Americans on these threads a Happy July 4th. Have a good time.

    It would be nice if we could have an England day and a proper celebration. St George's Day on April 23rd gets little publicity but an England day might!

    Best wishes to everyone.

    Sylvia xxxx

  • helenlouise
    helenlouise Member Posts: 363
    Hi all, at last some good news: recent CT scans show no evidence of disease. MO did tailor that with - it’s still there just can’t see it on the CT which fits with positive margins from the pathology of the surgical biopsy. Regardless I am thrilled that no progression is evident.

    My chest wound is still healing and I now have a PICO dressing which is much less troublesome. Without measurable tumor trial is off the table. Hopefully as soon as I am healed we will be heading to japan for some fun! Next MO review in 2 months.

    Best wishes to Susie and others undergoing treatment and to those of you who are well please stay that way xx

    Congratulations Sylvia on your milestone! You are an inspiration.
  • SusieW5
    SusieW5 Member Posts: 345

    I finished treatment in October.

    Susie xx

  • maryna8
    maryna8 Member Posts: 1,832

    Hi, Sylvia

    I have lost another post, and I think I have figured out why it is happening. This post was one I wrote in stages, and then this morning I tried to send it and it disappeared. I think when I work on a post that way on this page, and try to send it, then it's lost. I need to finish a post in one go, and all would be well. I think.

    I mentioned Chris Woollams' in my missing post, I noticed that he says that the thermal receipts we are handed every time we shop are out to get us, and could give us alzheimer's and/or dementia. That is crazy, cashiers touch many of these things, and he advises them to wear gloves. My father's side of the family had a lot of people with Alzheimers, and they have been long gone, before the days of having credit card receipts. I am not going to worry too much about shopping receipts, I think. I sometimes worry about the genetic factor, but not too much, it is only another thing I have no control over.

    He also talks about the importance of diet, and of course recommends the Rainbow Diet. For me, I think it is the easiest way to eat, it becomes a habit like any other habit. It is also not overly limiting, I am not a vegan and do eat some meat and fish, but I have always liked vegetables, even all through childhood.

    There is a post about HPV being found in many cancers, including breast cancer. I don't know about you, but I never heard of HPV till 10 years ago or so. I think I am not going to worry too much about that one either, where was it years and years ago? Did it exist, I wonder, or is it a new development, like Lyme disease and Rocky Mountain spotted fever in ticks? There were many ticks when I was growing up, and I have had many on my body, but at one time they were only a nuisance. Now they can disable a person.

    To move on, I thank you for your explanation of UK politics, I think Gill is right and I will not try to understand it. Our USA politics is bad enough, the media here is only concerned with the next election, and how Trump will be defeated.

    We have our Independence Day this week, and I hope you have a great week and can manage to set up an England Day!

    Love, Mary

  • maryna8
    maryna8 Member Posts: 1,832

    Hi, Helenlouise

    Congratulations on your wonderful news, that is a great way to kick off your Japan trip , when your wound is healed. That settles your immediate future plans, it must be so nice to have a good report, and a decision in place.

    Keep up the good work! SmileThumbsUp

    Love, Mary


  • maryna8
    maryna8 Member Posts: 1,832

    Hi, Gill

    My holiday glow has been replaced by plain old sweat, it is hot around here; but I think it's hot in many places. This is my least favorite weather, I think I am going to check out water exercises at my gym. They didn't have much of a program or space but I think there have been improvements made, I can't walk outside in this weather.

    I think I will follow your advice and not try too hard to understand UK politics, you folks over there have a longer history than we do, and the royalty element added to all the rest makes it quite confusing. There seem to be a lot of parties in UK politics, although we also have many more parties than one would think, they just don't amount to enough votes to matter. Only once, in 1992, did the Independent Party rally enough votes to unwittingly help Democrat Bill Clinton unseat Republican President George H.W. Bush.

    Life goes on, and right now we are heading into a long holiday weekend starting Thursday, we celebrate our Independence Day and no work will happen again till Monday. I will go to my step-daughter's for a 4th of July party and fireworks, and after that, no plans.

    Have a good week and hope you and Michael are well, and he is coping well with his diagnosis. My friend who was diagnosed with cancer/diabetes did have a bad diet, she has made big changes and already has improvement in blood sugar levels. She is also taking insulin.

    Talk to you later, love

    Mary

  • maryna8
    maryna8 Member Posts: 1,832

    Hi Susie, and Gill

    Your stories of your hospital stays after mastectomy sound nice, and very different from mine. As I recall by the time I got to my room after surgery I had missed supper, and so had nothing but a yogurt of some kind. The post-op drugs they had given me kept me awake most of the night, and very early the next morning a therapist came in and held a piece of paper in front of my face and told me to do the exercises pictured on it when I went home. Next a tray of breakfast food came in, I was very hungry then and sat up and started to eat and shortly after a nurse brought in a wheelchair and said it was time to go. I was out the door and it was still early morning and I felt as if I had gotten the bum's rush out.

    Nothing like your tales of tea and crumpets, and buttery scones, I'm afraid.

    Love, Mary