Calling all triple negative breast cancer patients in the UK
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Hi everyone, congratulations on the good news from biopsies, tolerance to chemotherapies, and slow but effective recovery from operations.
here in Colombia, the figure of 43,000 infected and a little more than 1,300 deaths. Cali continues to be among the most infected cities in the country, as in some cities on the Atlantic coast of our country.
In Colombia the killings of social leaders continue but there is total impunity. There are not even investigations in this regard since they take place in various departments of the country.
I have been stable, but the xeloda has given small injuries to my feet and it hurts a bit to walk. my spirits a little low, lately I lose hope in the future and I think it does not make much sense in this life that I am living I try to generate new motivations and I envy the religious strength of some of you. Today I connected with a yoga teacher who lives in India in a conversation with several people so I have started doing breathing exercises and looking for a little calm for my mind and heart. My emotions lately with the running of the bulls have been quite low.
I live in a valley of Cauca between two mountain ranges, last week I helped my nephews to list and know the names of the volcanoes in Colombia, I was surprised to know that there are 18 volcanoes in the central mountain range. I live closer to the western mountain range.
Abrazos
Marias
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Hello, I am sending you photos of the western mountain range that I can see from my apartment.
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Hola Marias,
I am always so happy to see you posting on the thread and writing in such a meaningful way.
I shall answer your post in more detail later this morning.
Thank you very much for your beautiful photographs and thank you very much, also, for that link. I have just read the first lines and I shall read more later today. I still love to read Spanish aloud. It is such a beautiful language. I am interested in anything about human rights, los derechos humanos.
Talk to you later.
Abrazos
Sylvia xxxx
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Hello Marias,
I was glad to read that you are keeping stable. That is good news. What exactly has happened to your feet while you have been taking the drug Xeloda? What kind of small injuries do you have on your feet that makes them hurt when you walk? It is very common to get neuropathy in the feet from chemotherapy but this does not sound like neuropathy, not the kind I have from the docetaxel chemotherapy drug that I had. My neuropathy is a kind of stiffness and roughness on the soles of the feet. I have had my feet tested from time to time by a podiatrist prodding with a needle and there is no feeling. I have been told by the oncologist, GP and podiatrist that the feeling will not come back. I keep my feet well moisturised and from time to time soak them in warm water with Epsom salts.
I was sorry to read that you have been feeling low in spirit lately and that you have been losing hope in the future. I can understand this but you are strong and you will get through this. Try to concentrate on all the positive things in your life and the little things that can make you feel good. Try to live one day at a time and at the end of the day think of something that has made that day worthwhile.
You can find strength without religion. I am living proof of that. My strength is in my own strong mind. This does not mean that I do not have days when I feel low, but my inner voice pulls me out.
I do hope that you will benefit from connecting with a yoga teacher who lives in India. Deep breathing helps a lot. Tell yourself that you are going to be alright.
Thank you for all the information you give us about your country and your region.
I have to take a break now but I shall come back after I have read the contents of the link you posted and also to talk about the coronavirus. You seem to be doing much better in Colombia than we are in this country, especially in England.
Abrazos.
Sylvia xxxx
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Hola marias
Me alegró leer que te mantienes estable. Esas son buenas noticias. ¿Qué le ha pasado exactamente a sus pies mientras tomaba el medicamento Xeloda? ¿Qué tipo de lesiones pequeñas tienes en los pies que te duelen cuando caminas? Es muy común tener neuropatía en los pies debido a la quimioterapia, pero esto no suena como neuropatía, no del tipo que tengo del medicamento de quimioterapia con docetaxel que tenía. Mi neuropatía es un tipo de rigidez y aspereza en las plantas de los pies. De vez en cuando, un podólogo me pincha con una aguja y no siento nada. El oncólogo, el médico de cabecera y el podólogo me dijeron que la sensación no volverá. Mantengo mis pies bien humectados y de vez en cuando los remojo en agua tibia con sales de Epsom.
Lamenté leer que últimamente te has sentido deprimida y que has perdido la esperanza en el futuro. Puedo entender esto, pero eres fuerte y lo superarás. Intenta concentrarte en todas las cosas positivas de tu vida y las pequeñas cosas que pueden hacerte sentir bien. Trate de vivir un día a la vez y al final piense en algo que haya hecho que ese día valga la pena.
Puedes encontrar fuerza sin religión. Soy una prueba viviente de eso. Mi fuerza está en mi propia mente fuerte. Esto no significa que no tengo días en que me siento deprimida, pero mi voz interior me saca.
Espero que se beneficie de conectarse con un profesor de yoga que vive en la India. La respiración profunda ayuda mucho. Dígase a sí mismo que va a estar bien.
Gracias por toda la información que nos brinda sobre su país y su región.
Tengo que tomar un descanso ahora, pero volveré después de haber leído el contenido del enlace que publicaste y también para hablar sobre el coronavirus. Parece que te está yendo mucho mejor en Colombia que en este país, especialmente en Inglaterra.
Abrazos
Sylvia xxxx
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Hello all,
I am very happy to report I am too am done with Taxol. Scans are clear so YAY! No evidence of active disease. Another wonderful milestone. The plan is to continue with herceptin and perjeta indefinitely. So IV three weekly. It has been a good day.
I too look forward to the side effects diminishing. My main concern is neuropathy in both fingers and toes and I expect over the next while they will recover some.
We are slowly being released from lockdown here which is good. We too have protests stemming from the tragedy of Floyd in the USA. The public have been warned not to break the social distancing rules and I hope the situation stays in control. Very sad state of affairs around the world. I try not to be disheartened by all that is wrong. Winter is upon us so I will have to stay motivated to get out and about.
I hope this post finds each of you well and enjoying life. Too short to do otherwise. X0 -
Hola Marias,
I have just been reading all the information on the link that you posted for us. I read all of the interview that was on there with great concern. It must be so difficult living in a country where people are being killed, no questions asked. I could see the importance of those "lideres sociales" in the functioning of your country. There is so much human rights abuse around the world.
As for the coronavirus in the UK we have not done well at all. It seems to me that our government has done everything back to front and are now trying to do what they should have done in early March or before. We have about 50,000 deaths from the virus and 63,000 deaths if we count excess deaths for this time of year. The government did not prepare properly for a pandemic because it was too busy not putting money into anything. It was too busy having ten plus years of austerity. I do wonder where we are going but social distancing at two metres is making everything difficult.
The world is in such a mess.
That is all for now.
Abrazos.
Sylvia xxxx
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hello look this
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Hello Helenlouise,
Many thanks for your post. You must be very relieved to have finished with paclitaxel (Taxol) and I am very happy for you. It is good news that your scans are clear and that there is no evidence of active disease.
I do hope that everything will go well with the trastuzumab (Herceptin) and the pertuzumab(Perjeta). My information about trastuzumab is that it is produced synthetically, is similar to antibodies that occur naturally to fight infection, and it attacks cancer cells in a similar way. This drug blocks the HER2 protein on the cancer cells, destroying them. Trastuzumab may be given on its own or in combination with other treatments. It is given by intravenous infusion, either weekly or every three weeks. The other drug is also a monoclonal antibody anticancer drug and Perjeta is the brand name for it. Has your oncologist discussed any possible side effects with you? Will you have a long journey to the hospital to get your IV treatment?
I do understand your concern about neuropathy but there seem to be different degrees about it. I know that the taxane drugs are well known for causing it. I have had it in the feet for almost fifteen years now after three months of docetaxel (Taxotere). I do not have it in the hands. Most of the time it does not bother me. It is important to keep the skin well moisturised. If your oncologist has given you any advice about how to deal with it, I am sure it would be of interest to all of us.
Remember that we are all thinking of you and we are here to support you.
As for Covid19, we are having a very slow unlocking and some of it does not seem to make sense. We, too, have protests going on about BLM, but I think it is important to say that all lives matter. These are very worrying times and could soon go out of control. I do understand how you can get disheartened by all that is wrong and unjust in the world. I think we are in a real mess in the UK, especially in England.
I feel very concerned about what is happening with cancer patients in the UK, and probably elsewhere. Thousands of newly diagnosed patients are not getting referrals and are not getting treatment. Covid19 has taken over everything and the NHS is overwhelmed. I think it will take many years to get back to normal functioning in the hospitals and GP surgeries. There are millions on waiting lists for all kinds of surgery and treatment.
In addition, we have a ruined economy and unemployment rising massively. I think many businesses will not open when we do get back to normal.
It is strange to think of you going into winter when we are just going into summer. We have had lots of rain in the past few days and we really needed it.
When do people start getting flu injections in your country? The flu makes me think of Kath and I am wondering how she is getting on. We have not heard from her for a while.
My good friend here was finally able to get back home from Australia after ten weeks of a planned two weeks holiday!
That is all for now. Keep well and keep in touch.
Love.
Sylvia xxxx
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Hello Marias,
Thank you for posting the video. I have just looked at it and found it most interesting and full of common sense. That 1918 influenza pandemic was very frightening and there were a lot more deaths than we have had with the coronavirus.
Keep well, keep safe and keep in touch.
Abrazos.
Sylvia xxxx
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Hello everyone,
I just wanted to post a few lines to say hello to you all and in the hope that we can get our thread back on track and concentrate on triple negative breast cancer.
Hello to Mary, I do hope you are getting on well with your new puppy but please stay in touch with us.
Hello adagio, in Canada, I do hope you are enjoying your summer. We have had the desperately needed rain here in Exmouth and I feel so relieved about that.
Hello Kath in Australia, please pop in and let us know how you are and give us any new information you have about the coronavirus.
Hello Gill, I have missed you on the thread and think you are probably taking a rest. I do hope you and Michael are keeping well and safe.
Hello Jags56, in India, I hope you are keeping safe and well as well.
We must not forget 53Nancy out in Manitoba in Canada and hope she will pop in from time to time. I hope your husband is recovering well from heart surgery. Raymond is making steady progress but still has oedema in the leg where they took out a large vein to do the coronary artery bypass. Any tips on this would be welcome.
Greetings to pkville and many thanks for the photo of that beautiful flower.
Greetings to Hanieh in Iran. I do wonder how you are and where you are. I know there is a lot of turmoil in your country.
We have not forgotten you, Pam in California US and we hope all is well.
I do hope I have not forgotten anyone and many thanks to all of you who view but do not post. Do not be shy to come on board.
Have a good weekend, everyone.
Best wishes.
Sylvia xxxx
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Hi Sylvia,
I really like the way everyone on this thread is so inclusive, especially you!
My trip to the cancer hospital for treatment is all of 10 minutes! We are very lucky to have a state of the art facility in our town. It services a large region so is usually very busy. But not has busy as those located in the cities. When we visited the major Centre in Melbourne I was stunned by how many people were waiting to be seen. Makes you realize just how many people are afflicted by cancer.
The MO hasn’t given me any specific advice for neuropathy. So nothing to share. He was mainly concerned with it not progressing any further than it has. I think moisturizing is important, as you have suggested.
I don’t think many cancer patients have been delayed in Australia. I know many elective treatments / surgeries were delayed and some considered not urgent. Luckily our hospitals have not been overwhelmed by COVID patients.
Here they are protesting about all sorts of things spawn from the incident in America. I agree with you - all lives matter. I can’t believe people are willing to risk their health and that of others by gathering in large crowds. And then the factions from opposing sides wanting to confront each other. Madness.
We have had our flu shots. Mine a month or more ago. It’s incredible to think that one day we all might get a shot to combat COVID but I think that will be a long time to come. Then the process of manufacturing and distributing it will also take a long time.
Tomorrow a group of us get together for our 23rd international dinner. As of tomorrow we are allowed private gatherings of 20. We are only 8 and have been getting together since 2016. This time it is German and I have entree / starters so I’m making pretzels. Followed by some presswurst. It will be fun. I love cooking something new! And catching up with friends and sharing a meal is one of my life’s pleasures.
Best wishes to all.
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Hello Sylvia,
Sorry for the long delay in replying to your last post. I'm very busy at the moment preparing to reopen the archive. Michael and I are completely isolated in our office which is under the Cathedral and down winding stone steps. We've decided that all research, by anyone other than ourselves, will have to be postponed for the foreseeable future. Of course, this puts an extra strain on us as we'll have to spend more time looking out information for others. This will mean that I will need to keep my posts here fairly brief for the time being.
Cancer surgery in the UK is well behind schedule, which inevitably means that some urgent cases won't have been treated in time. Bowel cancer patients seem to have fared particularly badly and I've recently read of a man in his twenties being forced to wait - with disastrous results. His cancer was aggressive and has now spread out of control. We all know that breast cancer is the most common cancer and that most patients are over fifty. I think for these reasons, the impact of delays in breast surgery will be far greater than for other surgeries. We shall have to wait for the results of delayed surgery to show up in official statistics. Something else that concerns me, is how will patients be able to seek second opinions from better qualified, more experienced surgeons or oncologists? It's never wise to ask for a second opinion at the hospital where you are diagnosed. If your local hospital is inadequate, as mine was, will patients be allowed to travel to another hospital for treatment? I had to fight for treatment. I very much doubt if this would have been possible with today's pandemic precautions.
I hope both you and Raymond are coping, despite the crowds descending on your the beaches now that Summer is here.
Keep well.
Love,
Gill xxx
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Hello Marias,
So good to hear from you. From all that you say, I can absolutely understand why you're feeling so low. Cancer treatment is difficult at the best of times, but you are living in an extremely harsh political climate. The people who try to bring about change are very brave, knowing that eventually they will be silenced in the most brutal way. On top of this madness comes Covid-19. Under these circumstances anyone would begin to wonder what the point of life is. I'm glad you are seeking out ways of finding peace, yoga helps so many people to find the calm within themselves.
I enjoyed the influenza film. Poor Mr. Brown and poor Mr. Brown's colleagues.
Don't give up Marias. There's always someone here. When you don't post for a while, we all worry about you and care about what's happening to you.
With love, and of course, prayers,
Gill xxx
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Hi Helen,
Very glad that everything is going so well for you. Only a ten minute trip to hospital! Very impressed with that, and very useful if you're not feeling a 100%.
Completely agree about the madness of these huge crowds gathering together in the Black Lives Matter protests. Our infection rates here are only just levelling out, I think we can now expect a spike. We had a fairly small demonstration, in Norwich, it poured with rain which might have put some people off.
Hope you all enjoyed your international dinner and that you've now mastered the art of pretzel making.
Love,Gill x
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Hi Mary,
Interesting that testing is easily available in America. It's very difficult to get a test here, despite what the Government tells us. My daughter has been asking for an antibody test for months and finally had one last week. The antibody test requires taking blood from a vein - it's not a thumb prick - so a phlebotomist has to take it. Hers came back negative which means that being hands-on with her patients is still a risk.
Some people here are being very irresponsible, no social distancing, gathering in crowds without a mask. The George Floyd demonstrations have been a nightmare in terms of risk. I've been following the protests in America. The rioting and looting are appalling and completely destroy the message. It must be terrifying for people living near or trying to run a business near the riots.
So, I envy you having a dog and now I envy you being allowed to visit the hairdressers. Also, a massage and a pedicure, what luxury! As you know, my hair is very thin in places and where it isn't thin it's wild. Wild and a weird mixture of dark grey and snow white. Salons won't reopen until July and then the wait will be horrendous. Hairdressers will have to rearrange their salons so that chairs are 2M apart, people will have to wait outside until the hairdresser is ready, no customer is to be offered coffee and so on..... Hardly going to be a relaxing fun experience is it? I rely on my hairdresser to keep me up to speed with the gossip, but masks are to be worn, so that seems unlikely to happen.
Has your new best friend moved in yet? I'm sure you're going to love each other once he's learnt a few house rules. Definitely no chewing! Does he have a name?
Keep well.
Love,
Gill xxx
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Hola Marias
The view of the mountains from your apartments is very grand, a beautiful sight. How nice you helped your nephew, and you learned together about the many volcanoes.
I'm sorry about your foot problems, I have heard of this, there is a product called urea cream that helps with this condition. Perhaps you could ask your doctor about this. My husband also used this cream when he got blisters and peeling skin all over the bottom of his feet from one of his medications.
I wish I had more religious strength, I have faith in God, but not too much in men. The people who run the churches here on earth often disappoint me, and I get disheartened.
The Yoga teacher will help and the breathing control is a good thing to do. It really helps with the anxiety.
Talk to you later, Marias. Take care of yourself and I'm glad you have some family around to keep you company. This Covid19 is causing lots of loneliness everywhere.
Abrazos, Mary
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Hello Gill,
I just wanted to let you know that I have read your post with interest and that I shall answer in more detail when I
have more time,
I do share your concerns about cancer treatment and I am pretty fed up with this country.
Love,
Sylvia.
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Hello Gill,
I can understand how busy you and Michael must be. It seems as though we are all occupied with other matters at the moment and I find that the TNBC forum is very quiet. I am not sure how the others are doing as I have not had time to look at the Active Topics recently. As for the TNBC forum we may have exhausted all the information that we have and certainly with our thread we are not getting any new people. It could be that patients newly diagnosed with any kind of breast cancer may now have all the information they need and may feel confident enough to go through their treatment without support.
I do feel that the NHS is failing cancer patients and that the coronavirus has overwhelmed the system. I cannot see how the NHS will cope with the millions that are on waiting lists for all different kinds of treatment.
I did receive a new email from Chris Woollams that I have had a look at. The items that I found of interest and think might interest others are as follows:
How to live younger, longer – The secret of living younger. It did not surprise me to read that the answer is the Mediterranean/Rainbow diet.
Another item of interest is Top herbs and foods for gut health – 15 top herbs to treat gut issues.
Mentioned here are black walnuts, oregano oil, Pau d'arco, garlic, and Mimosa pudica.
Raw walnuts are very much a part of my diet but mention of black walnuts makes me wonder if that is to be taken literally.
I do use oregano in cooking but I have never had oregano oil. I do use frozen chopped garlic in cooking and I really like garlic stuffed olives, but they seem hard to obtain on my online grocery shopping. I do not know anything about Pau d'arco or Mimosa pudica but of course I do know about Mimosa shrubs.
Of interest to all of us would be the item about PARP inhibitors and the question what do PARP inhibitors actually do?
The section states PARP inhibitors are for people with breast cancer or ovarian cancer and a mutation.
PARP inhibitors and breast and ovarian cancer.
No survival decrease with mutations.
Gene mutations and increased risk.
Finally, I was interested in the section entitled You need and acid gut. Apparently lactic acid bacteria are an essential part of that and as we age, unless you take positive action these LABS decline dramatically and this can make you ill.
You need to have in your diet things such as lemons and limes, apple cider vinegar, and sauerkraut.
I was so glad not to have to do any watering today and Raymond and I managed to have a bit of a quiet afternoon. Raymond is still progressing 18 weeks post surgery but still has problems with oedema in the lower part of the leg and foot where the large saphenous vein was removed. It is most frustrating. Does anyone have any tips? He has gone back on some diuretics but is not happy about it because of side effects.
That is all for now. I noticed that Mary is not posting as much as she used to and was wondering how she is getting on with her new puppy. I am told by those who know about puppies that it takes a lot of time to train them.
Keep well, keep safe.
Love.
Sylvia xxxx
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Near to my home, the most poppies I've ever seen in one field.
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WOW!What glorious field of red poppies!!!
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Hello Gill,
Thank you for the photographs of the poppies. They are really lovely.
Take care.
Love.
Sylvia xxxx
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Hello Sylvia,
We've had several showers this week and like you, I'm very glad not to have to go around the garden hauling a hosepipe and watering can about.
I'm sorry that Raymond is still suffering with oedema in his leg and foot. It makes walking difficult and buying shoes very expensive if one foot needs a larger size. I had oedema in both legs and feet following my stay in hospital with sepsis and C.Difficile and was told to eat plenty of high protein foods. However, I was also told that it might never go, in which case, I'd have to learn to live with it. I do hope that Raymond will begin to see some improvement soon. The hot weather probably isn't helping. One of my feet still swells after exercise during the warmer months.
I'm afraid that I haven't caught up with Chris Woollams' latest newsletter yet. I did quickly browse through the topics on offer though and thought that keeping an acidic gut looked interesting. Ways of achieving this seem easy enough, but as ever, colitis is the stumbling block in my case.
I agree that less people are posting, but put that down to the vast number of cancer forums now available. Many people seem to prefer Facebook it seems. I notice other threads sometimes have new members who ask for advice /support, but wait a long time for a response other than that from the moderators. Someone on this thread will always respond very quickly to a new poster or anyone experiencing difficulties.
I wish I could say that hospitals are now offering patients all the information they need and answering questions honestly and truthfully. Sadly, I can't and from what cancer patients tell me, it's getting worse. Time is the main issue I think, but the sheer arrogance of a minority of breast surgeons is still a problem for some women. Unfortunately, in many hospitals, the senior breast surgeon frequently runs the entire breast cancer department. He/she wields a great deal of power - far too much. Women, already vulnerable and frightened are often intimidated. Though I doubt that would apply to either of us!!!
Enjoy your weekend. Best regards to Raymond.
Love,
Gill xxx
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Hello Gill,
It was nice to hear from you. The weather seems to be so up and down. It is supposed to rain overnight here but the long term forecast for the coming week is high temperatures going into the thirties. I do hope this does not happen in Exmouth. People keep telling me that Exmouth has its own weather patterns so it is hard to predict what will happen. The gardeners are due to cut the grass on Wednesday and the window cleaner is due on Monday. It usually rains after the window cleaner has been! These are all very good workers and I get on well with them.
I was very interested to know that you had had oedema in both legs and feet following your stay in hospital. You are right about high protein foods. My friend Janet who works at Barts Hospital told that as well, because you need to build up muscle that you lose during hospital stays. I have made sure that Raymond has plenty of protein but I have a feeling that the swelling is not going to go away. He is back on a diuretic for a week and then has to consult with the GP. I think he has had too many diuretics and they tend to make his blood pressure go very low because he has normal blood pressure unlike most of the patients having coronary bypass surgery. The diuretic is called Bumetanide, is powerful but it can cause potassium loss, so I am making sure he gets plenty of potassium rich foods, such as bananas and tomatoes. He does walk alright, it is standing and sitting that makes the foot and ankle swell and causes muscular pain in the hip. I do hope it will pass in time. I agree that hot weather makes your feet tend to swell.
Were you by any chance given the drug Lansoprazole when you were in hospital? It is given to stop acid and indigestion. Apparently, long term use of this increases the risk of salmonella and C.Difficile. It belongs to the group of drugs known as proton-pump inhibitors.
I think that there is a lot of information in Chris Woollams latest newsletter and it is probably easier to take it in in bits and pieces. I think it is important to read anything about keeping a healthy gut, as I think all our illnesses stem from that.
I think you are right about fewer people posting because there are so many cancer forums now. I do worry about misinformation that may be going around because of this. I think we always have to be careful about what we say. We can really only talk about our own experiences on a cancer journey, what helped us etc.
It is sad if hospitals are still not offering information and are not answering questions. I do remember back in 2005 that both my oncologist and breast cancer surgeon were surprised that I asked so many questions and that I wrote them down and sent them before my consultation. They did answer them but told me that most patients just wanted to get the treatment and did not ask many questions. I would have thought that it would have improved since 2005 and of course there is so much on the internet but you have to read with caution.
I think women have to stand up to hospital authority and always have to remember that it is their body and they make the decisions about what happens to them. As you say, the two of us are not afraid to stand up for ourselves and challenge what we are being told.
Raymond wants to say thank you for your kindness and concern about him and sends his best wishes to you and Michael.
I am waiting for the next utterances from Boris and co. I think it is going to be about changing the 2 metre social distancing to 1 metre. I think people are getting weary of all the messing about and the confusion since the four parts of the UK seem very disunited. My younger brother here is longing for a haircut so I told him that hairdressers were opening up in Northern Ireland (I think) so I said he could have a drive up to the ferry in Scotland and go across to Northern Ireland, get a haircut, have a nice day and come back!!
I do hope everyone in our group is coping well. As I said before, Mary is strangely quiet so I do wonder whether she is busy trying to control her new house guest!
I do not think the social distancing rule is being respected on the beach in Exmouth.
That is all for now. Take care.
Love.
Sylvia xxxx
I forgot to say that today, June 20th, marks fifteen years since I was diagnosed with what they called IDC with non-hormonal receptors. It was not relayed to me as triple negative breast cancer. I was told it was a poor prognosis because there was no post treatment drugs etc. after the standard surgery, chemotherapy and radiotherapy. I just ignored it, got on with the treatment, had homoeopathy and some alternative treatment and am still here to tell the tale!
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Hi Everyone, I usually just read your all's post love this thread. Sylvia, my husband used to lay in the bed and put his legs on the wall, like a L. And this helped his edema he did this every evening after his surgery, he had said he read somewhere that it helps take fluid off the legs, but he couldn't remember where he read. It did seem to help. Keep up the topics ladies,
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Hello Sylvia,
Many congratulations on fifteen years since diagnosis. I think it would be fair to bet that June 20th 2005 is still very fresh in your mind. Very encouraging for anyone newly diagnosed with triple negative.
I'll write back more fully later in the week.
Love,
Gill xxx
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Hello Gamb,
Really good to hear from someone new. As you already read the thread, you'll know that you don't need to come from the UK to post here. Everyone's welcome!
Gill x
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Sylvia congrats on 20 years, I am triple negative also, you are an inspiration.
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Hello all
Sylvia congratulations on your fifteen years. You give us much strength and hope to fight this disease.
I am fine here though the situation due to covit 19 is getting worse.The medical systems seem to be confused due to the political situation. All my appointment s have been cancelled. I feel sorry for those who are having their treatment done now. Some private hospitals are taking advantage of this situation.
Hope all is well. My wishes to all .
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