Calling all triple negative breast cancer patients in the UK
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Hello everyone
I just wanted to wish all the Brits posting or viewing this thread a very happy and relaxing late Summer Bank Holiday. I do hope you will all make the most of it as this is the last break until Christmas! The weather forecast is not good but the sun is shining in Exmouth at the moment. Can you believe that Christmas cards are already in the shops and the pubs and restaurants say book now for Christmas!!Special hellos to my fellow Brits, Dulcie, sam52, Iz_and_Lys_and_Mum, BuddhaWolf, Michael.
To those of you in Ireland, BernieEllen and linali, enjoy your weekend. I do not know whether it is a Bank Holiday.
To our American friends, Lint_Roller_Derby, FernMF, youngmommy, christina1961 and any others that I may have forgotten. I hope you are all well and making the most of the last weeks of summer.
To new posters, Kathy3883, Jen78. I hope you will continue to post.
Thinking of all of you and posting a few more exceptional photographs.
Best wishes
Sylvia0 -
Hi Sylvia, thanks for the good wishes. we had our Bank Holiday at the beginning of the month.
Hope everyone has a good weekend
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Sylvia
Thank you for your ability to articulate information for us on this thread. I often feel I have little to contribute so am a bit of a silent partner, but am present nonetheless. The reason for this is perhaps because I insisted-elected to have my 'non cancerous lump ' -as told by my med team- removed*, which was found to be 3X neg. I then made the DIFFICULT decision to have MX over lumpectomy & RADs in an attempt to avoid CHEMO. I have a complexity if health problems and feared that Cheno would be very very difficult for me.
So now I am shivering with relief as I hear you mention on pg 65 that Chemo can cause CA cells to grow?!? Please can you find the reference you quote as this is astonishing news. I must read this as it helps me to come to terms with the decision I made. Thank you muchly!
Enjoy the day...
*Pls read my profile for more info- but basically I was told it was unlikely I had cancer, as was too young for BC at 41. However KNEW I had cancer and therefore insisted the lump be removed; because of my insistence the tumour was 6mm, without clear margins. After my MX they found no further CA cells so due to the size of tumor no benefit from Chemo nor rads.0 -
Here are the latest photographs. Enjoy!
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A report: I went to work yesterday. Felt kind of "out-of-body" for most of the day, which wasn't necessarily bad. That horrible metallic taste in my mouth started around lunch, and my normal addicted to diet coke taste when haywire and I couldn't drink the diet coke. By end of work day, it was obvious I should have gone home earlier, it was all I could do to drive home. Everything hurt, visual blurriness. My sweeter-than-life hubby had dinner ready, and a pain pill . . and so the evening was just reacting to all the pain . . joints aching, metal mouth, nothing tasted right . . . BUT, slept relatively well with meds on board, and this morning feel near normal. I will have to get used to the accumulative effects of this chemo, I fear. Is that everyone else's experience? Once the steroid wears off, then the "symptoms" start? For how long?
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Hello Fern....not sure what you're being given right now, whether Cytoxan or Taxotere (or both?) but I found the horrible taste one of the worst things to deal with with both FEC (4 sessions) and Taxotere (another 4). The description of your side effects remind me vividly of how I felt with Taxotere. One consolation is that I never felt quite the same after each infusion and symptoms seemed to vary considerably. I remember very clearly tho' that my worst joint pain came after my 2nd Taxotere infusion, (so it won't necessarily be so bad next time) while the tiredness seemed to accumulate with every session, so by the end it was taking me about a week to get back to 'normal'. LIke you suggest, symptoms used to come on after the steroids wore off. Yes, my vision was affected as well and my eyes watered and got blurry. The good news is that here I am a year later and am pretty much back to normal, and the chemo did the work it was supposed to, so GOOD LUCK YOU WILL MANAGE THIS!!!! Just don't expect too much and take things day by day.
Hello Sylvia, yes, I spend as much time as I can reading, and read practically anything, depending on mood and place. However my favourite genres are any kind of travel writing, (people like Wilfred Thessiger, Colin Thurbron, Jan Morris, etc etc), spy thrillers like John le Carre's novels, 19th century novels especially Dickens, Jane Austin, George Elliot, obviously apart form contemporary novels ... have just started a novel called The Hakawati by a Lebanese writer called Rabih Alameddine, and I also enjoy writers from the Indian sub-continent... last year, as you can imagine, I was reading lots of books about cancer, and breast cancer in particular.
On Monday my daughter and her New Zealander boyfriend (actually fiance now as she just told us they're getting married next year!), are coming to Malta for 4 weeks from London where they've been living and working. They are stopping here before leaving Europe for Australia where they intend to settle. It's a long way, but in the present economic climate in Europe I think it's probably a very good move, and although far away, we now have the perfect excuse to visit!
Enjoyed the photos Sylvia...I'm going to be very busy while my daughter is here, so I might disappear again for a while...
I hope you all have a good weekend!
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FernMF - my "drowsy days" set in on day 3 and lasted a couple of days after that. Like you, I felt spacey and just generally out of it. I'd try to get up and do stuff around the house, but I would feel dizzy and lightheaded, so it was easier to give in and rest. My body needed it. It took a little longer to bounce back after each treatment - but it was never all that bad. I just felt like I needed to rest. Keep drinking water and try to eat regularly. More than anything, be patient with yourself. This will all be behind you sooner than you think.
Sylvia - thank you for the welcome. You've created a wonderful thread.0 -
Thanks Maria. I am experiencing bone pain in my knees today. I am receiving both cytoxan and taxotere.
Thanks Jen. I was worn out yesterday after working all day. Today I'm a bit bored and cant get comfy. But, this isn't all that horrible.0 -
Hello FernMF
I think most of us will probably remember the metallic taste in the mouth, but you can switch off and put up with it. It does affect your eating like and dislikes. I just vaguely remember the taste. I found that I used to enjoy very moist mashed potato quite a lot, something that I did not usually eat. It was easy to eat and filling. BernieEllen and Maria_Malta will probably remember I told them to eat mashed potatoes. During my first three months of treatment with EC I did not have the metallic taste. It came on when I started docetaxel (Taxotere). You can get through it.I think you are doing very well to be going to work through treatment. I do admire you for this because I think it is probably easier to deal with chemotherapy treatment if you are not working. Like this you can lie down to rest whenever you feel like it.
I feel that a lot of rest is essential when you are on chemotherapy.
I hope you are resting today and that you will gradually feel better as the week goes on.
Best wishes.
Sylvia x0 -
Hello Maria_Malta
I was interested to know all about what you like to read. Like you, I share a love of the classics, especially Dickens, Jane Austen and George Elliot. I also love the Bronte sisters and Wuthering Heights is one of my favourite novels. I remember devouring them all many years ago. I do like Dostoevsky and Tolstoy, especially the Brothers Karamazov, Crime and Punishment and Anna Karenina.Lately, I have been very busy, but am now trying to get back to regular reading. I have had a period of reading non-fiction but now want to get back to some fiction reading. I have just ordered the latest Martin Amis novel, Lionel Asbo. In Waterstones the other day I started reading the first page of a novel entitled A Death in the Family by a Norwegian writer and I thought the writing was exceptional so I have ordered that book as well. Our libraries are pretty impoverished in the UK and I rarely find anything I want.
Like you, I have read so many books about cancer and breast cancer and I find that there are not so many new books coming out now.
I was interested to know that you have a daughter who will be going off to live in Australia. She will be a long way from you but you can always visit. Today with e-mails and Skype it will be easy to keep in touch. I do hope you enjoy the four week visit of your daughter and her fiancé. They are probably doing the right thing. There does not seem to be much future for young people in Europe and the UK. I think the Western world has probably had its day, and the future lies in China and other Asia countries.
I was glad to know you enjoyed the photographs.
I understand that you will be busy with your daughter and wanting to make the most of her visit, so I shall understand if we do not hear from you in a while.
Wishing you all the very best.
Best wishes
Sylvia x0 -
Hello Jen78
Thank you for the kind words that you said about the thread. It makes all the hard work worthwhile and it is good to know that the thread is helping people. I feel that the women that have posted have contributed so much and given a lot of help, comfort and information. We shall have been going two years on September 12th and I feel it has all been worthwhile.You are providing great help to FernMF and I know it will be greatly appreciated.
Best wishes
Sylvia x0 -
Well, night 5 after round two and once again sleep is a problem, even with meds. I guess my normal sleep is 6-7 hours a night, have always had trouble getting to sleep, enjoyed staying in bed in the mornings . . . the past 5 nights I am up at 3 . . . some nights went back to bed, some for a moment . . . been up since about 4 today . . . with the naps in the day I think I'm sleeping too much? I welcome the fatigue if I could actually get some sleep. The metal mouth is gone, the knee pain was considerable yesterday, aleve seemed to help the most, and I took an extra claritin - I take those every day of my life for seasonal allergies (now it's beginning rag weed season). . . I do have THE MOST wonderful and supportive husband a gal could want . . he is not a problem in ANY way at all. Here's hoping that today will be better than yesterday - although, in all honesty, this is not horrible, and I am not greatly suffering - sounds like I am having a easy time compared to most. Thanks for listening.
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Hello everyone
At last I have got the basics of The Janette Collins Foundation set up and I need to add content. I wondered if anybody here would like to add their stories or experiences. If you would then you can email me at michael.collins@online.ie. You can choose to be identified or be anonymous.
Sylvia, you have some very good thoughts about nutrition and I wondered if you would consider writing a piece for the website?
Weather here in Killyleagh is very good so far, considering it is a bank holiday weekend.
Michael
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The first line in my previous post should have read "the basics of the Janette Collins Foundation website"
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Hello caroline71
I have been reading a lot of your posts on different threads and am so sorry to hear that you are having such a bad time. I can understand that you are feeling very panicky and I am sure lots of women feel the same when going through this treatment. There are so many women on the bc.org forum who can show you that you can get through this treatment and that it will come to an end. Like you, I was diagnosed with triple negative breast cancer, invasive ductal carcinoma, grade 3 and one node involvement. My tumour was 6+ cms. Like you, I had chemotherapy before surgery to try to shrink the tumour. I had three months of epirubicin (Ellence) with cyclophosphamide and then three months of docetaxel (Taxotere). I then had surgery, a mastectomy, and then radiotherapy.I am still alive and well after more than seven years, despite the fact that for triple negative breast cancer there is at present no treatment after the standard treatment.
Triple negative breast cancer (TNBC) often gets a bad write up, just because there is no treatment after the standard one as there is for hormonal breast cancer.
There is a risk of recurrence, a new primary or spread (metastases), with all breast cancer, regardless of their receptor status. You must not be frightened by TNBC.
You seem a bit confused about your treatment. Do you still have more chemotherapy to go through and what will you have? You need to have this clear in your mind.
As for the side effects that you are experiencing, they are very common, but they will pass. There is medication for pain. It is Neupogen and there is medication for sickness and nausea. You will feel very tired and you will need to rest. As for the neuropathy, my understanding is that there is no cure but it does improve and you can live with it.
It is up to you, but the two main threads devoted to TNBC are Calling all TNS and Calling all triple negative breast cancer patients in the UK (but this is not confined to the UK). I would suggest you go over to these where you will get a lot of support. I noticed that you have posted on threads, but not replied when people have responded to your questions.
We are all here to help you, to comfort you and to allay your fears.
With very warm thoughts.
Thinking of you
Sylvia0 -
Hello Michael
It was nice to hear from you and to know that you have now got the basics of The Janette Collins Foundation website set up and that you are now at the stage where you need to add content.I do hope that there will be people who will want to add their stories or experiences. I think people might want to be a bit vigilant with identifying themselves. I think we are all supposed to be anonymous on bc.org, so if you identify yourself on a website, you will have identified yourself on bc.org.
Thank you for asking me to write a piece for the website about nutrition. I feel flattered by this but I am not a qualified nutritionist, so I wonder whether I should be doing that.
On this thread we have had lots of discussions about nutrition and breast cancer, but we can only say what we are doing to have what we think is a healthy diet but we cannot give black and white advice about this to others. We can say only what we eat ourselves and why. I think everyone that reads this thread knows that I do not eat dairy products and why. You will all remember about IGF-1. You all know that I do not eat meat or poultry because of the growth hormones. I do not drink any alcohol because there are many views expressing a connection between this and breast cancer. I also think that it is an addictive drug that brings nothing to my diet, but that is my personal view. You all know that I have a diet based on fruit and vegetables, whole grain bread, nuts, seeds, pulses and beans. I eat fish and prawns, but even have doubts about whether they are beneficial to me because of the pollution in the seas. I drink unsweetened fresh soy milk enriched with calcium and eat pro-biotic soy yoghurt. I think that sugar encourages tumour growth and I try to steer clear of it. My big treat is 90% dark chocolate, which does not have much sugar in it.
Since I was diagnosed, you all know as well that I drink lots of green tea everyday and eat bitter apricot kernels.
I take a few vitamins and minerals. I take Solgar calcium tablets, known as Bone Support, magnesium citrate supplements and vitamin D supplements from Holland and Barrett. I take these because of osteoporosis caused by chemotherapy and perhaps from when I had an over-active parathyroid gland. I also take a multivitamin tablet and kelp tablets, again from Holland and Barrett.
I think that the two things that we can control with reference to breast cancer development are what we eat and what we do in the way of keeping active. I also think we should avoid stress, which is not always easy in life. As for our environment, which I think plays a part, it is not always that easy in our industrialised society.
Michael, if you think the above is useful, you can use it in a general way, as the PERSONAL OPINION of a breast cancer survivor and sign it as such.
The weather here in Exmouth today is not so great, but then it is a Bank Holiday! It is wet and windy. Yesterday was a fine day and I have never seen Exmouth seafront so busy. There is not a lot on the seafront but it is a nice long walk. There were long queues at all the ice cream stalls, the fish and chip shop and the fast food outlets - a healthy person's nightmare!!!
Are you feeling any better as time goes on? I do hope so.
Thinking of you and best wishes.
Sylvia0 -
Hi Sylvia! Thank you for the greetings! I am doing well and feel I have established my exercise routine at last! I have my oncologist check up today; they will draw blood for tumor markers so I'm always a little nervous for a few days afterward as he has told me he will call if anything looks suspicious.
Best,
Christina
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Hello cristina1961,
It was so nice to hear from you and I am really pleased that all is well with you.
I do hope all will be fine with your blood tests and I would be interested to know what the tumour markers are if you are given a number. It will be useful information for everyone. We do not get these thorough check ups here in the UK. At least I do not think so. I certainly have not had them. No one in my medical team has ever mentioned tumour markers to me.I have not been given any tumour marker blood tests at the hospital since I finished treatment.
We are told that we all have cancer in our bodies so I suppose a person will never get a score of zero. Everything in our body usually serves a purpose, so I wonder why cancer is there.
Do you ever hear from bak94 or mccrimmon324? I know that bak94 has been having trouble with lymphodema and is wearing sleeves. I do hope she has been taught about lymph massage. As for mccrimmon324, I know she has been busy with her move back home from Florida.
What weather problems you are having in the US. I have just been watching the news about the worst drought in 56 years and the storm hitting Florida. It makes our weather look 'ordinary'.
You are always in my thoughts.
Best wishes
Sylvia
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Good morning...
Sylvia i hope you and everyone posting here had a good Bank Holiday..
I hope you are well?
I have joined a group of ladies who have stage 4 lung mets like myself...
Today i will be seeing my surgeon..very late in the day...as i think i told you ..my mx was drained three times and was never quite right again..especially after surgeon 'pressed' hard on the mx to force the fluid out! Did he do this out of 'impatience' i do wonder..in stead of passing such a menial task to one of his nurses?
I have had my chemo and radiation delayed now for several weeks ..as when i went to be 'mapped' for radiation three staff came to look at the redness on my wound..all made some ahh and umms..then tatooed me! Well i nearly shot through the roof at the one close to the breast bone...and i immediately had a flare up on the wound...i rang my breast care team in another part of the hospital and was told i was 'off' their books now!
So i had to wait until my appointment with onc and rads..onc took one look and said NO chemo..same of rads! So my surgeon without seeing me was obviously told or asked to sort it..so he arranged a ultrasound possibly guided to remove any fluid..but the radioligist said it was solid and healing inside..and eat yogurt..silly me thought the surgeon would see me quickly instead of leaving me all BH..in pain and the wound site is almost black...and the tattoo area is SO itchy...
All these delays are not good for my lung mets..i am despondent!
I also wake every morning wondering why onc waited so long inbetween CT scans..i might have had a better chance if the lung mets had been caught earlier...
I cannot allow them to push me into treatment ..until the wound heals and i hear that can take some months!
Sorry for the huge moan...
Take care
Dulcie xxxx
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Dulcie
I am so sorry you are facing these setbacks and having such a dismal time - your medical team do not seem to be very compassionate and maybe not even very competent.I don't think the discovery of mets earlier would have made a difference; I have read time and again that this does not necessarily affect the outcome.However, of course you want to get started on a treatment plan and feel you are doing something to knock back the mets.
I think it is shocking that you have been treated in this way....how can the breast care team say you are 'off their books?' I am not surprised you are feeling despondent.I am glad you have found a group of ladies with the same diagnosis and that you are all able to support each other.
At which hospital are you being treated? I see you live in Cheshire and wondered whether you might be at Christies - though I thought they were one of the best.
I think you should ask to see the surgical team again and ask for something to alleviate the pain from your wound, and to expedite the healing.Why on earth were you told to eat yoghurt??
Please don't apologise for 'moaning'.......you have every right to feel down and we are all here to listen and support you.
I do hope that you are able to get something sorted out very soon and relieve the pain.
Take care
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Hello Dulcie
Thank you for your post. I am so sorry that you are going through all of this and I cannot believe the way you have been treated. Like Sam52, I am appalled by the way you have been treated by your medical team and I do think they have been very negligent.I do wonder what went on with your mastectomy surgery that you had so many problems with fluid. After a mastectomy you usually have two drains put in and the fluid has usually run its course after about five days. I do not understand this business of pressing the part of your body where you had the mastectomy. I must admit I have never heard of this, but if other people on the thread have been through this, please let us know. It all sounds very primitive.
I am not surprised that you have had your chemotherapy and radiotherapy delayed for several weeks. You need to be as strong as you can for chemotherapy and you cannot have radiotherapy until your mastectomy site is completely healed and the skin is normal. I feel that you should not have had any problems with redness etc. after your mastectomy. I can speak only from personal experience. After my mastectomy, I had no pain, drains were completely clear in five days, and my scar over my breast and under the arm was very neat and very clean. I had a dressing put on it by a nurse the day I left hospital. It was waterproof so I could shower. I left hospital on a Monday morning, saw my breast cancer surgeon on the Friday and the dressing was removed. Everything was clean and healed very quickly ready for my radiotherapy about five weeks later. I think something has gone very wrong in your treatment.
By the time you went for your mapping out in preparation for your radiotherapy, you should have been completely healed and there should have been no pain at all when you had the mapping out. Your breast cancer surgeon and medical team should not have sent you off to the radiotherapy department before your mastectomy wound was completely healed and you were free of pain.
I cannot understand what the breast care surgeon and his team meant by saying you were off their books now. When you are being treated for breast cancer, and have gone through standard treatment, you stay with the hospital for quite some years having physical check ups, alternating between your breast cancer consultant surgeon and your oncologist. You start off going every three months, alternating with the oncologist and the breast cancer consultant surgeon. After a couple of years that goes to every six months. During treatment and for some time afterwards, you should also be in the care of a breast cancer nurse whom you can phone if you have problems or questions. I also wrote to my oncologist and breast cancer consultant surgeon if I had anything I wanted to know. They always responded to my letters. I am still having check ups every six months. I have a check up in October with my breast cancer surgeon or her clinical assistant, and in April 2013 with my oncologist. I also have regular mammograms every two years.
I am so glad that I have had an all women team at the RD&E Hospital in Exeter. I do not think I could have done this with a male team. I am very strong minded and would have asked for the females.
Am I right in thinking that the fluid has now gone? Like sam52, I wonder why you were told to eat yoghurt. I would have thought dairy products were the last thing you should be eating, given all that we know about them. I know that the probiotics in yoghurt are recommended when taking antibiotics to help alleviate the stomach problems caused by antibiotics.
I do hope that you had better and more compassionate care yesterday when you went to the hospital. I do hope that after today you will make good progress and your mastectomy site will heal so that you can have radiotherapy. I hope you will soon be strong enough to start the chemotherapy.
I can understand that you are feeling despondent and that you are concerned about all the delay with the treatment for lung mets. I think that your lung mets should have been picked up and dealt with much sooner. Everything seems to have been too slow.
Try to be strong and optimistic. What has happened has happened and cannot be undone. Look forward and hope that the treatment will be effective.
I was wondering whether you have lodged a complaint with PALS about your treatment. I do not know how effective they are but it might be worth a try.
I was glad to know that you have found a support group of ladies with lung mets. Is that a local group or on bc.org? Please stay with us as well, Dulcie, as we are your friends and we will support you. We are all aware that any of us can find ourselves one day, with a new primary, recurrence or metastases. None of us can be complacent.
Is there any news about you OH?
Thinking of you.
Sylvia xx0 -
Hello sam52
I read your post to Dulcie and share your sentiments about the way she has been treated. I do feel that it has all been negligent. It has certainly been lacking in compassion.I was interested to read that you said you have read that the discovery of mets earlier does not make any difference to the outcome. I was wondering why this is. If you discover small nodules and start radiotherapy straight away, is this not better? You know I always value your opinion.
Like you, I wondered about the yoghurt!!! I do not take any notice of hospital nutritionists. Recently, my cousin, who has been in hospital with a diabetic ulcer on the foot that does not heal, was told by the 'nutritionist' that fish and chips was healthy, so he is now eating it all the time!! I told him take away the batter and the chips and you might have a healthy option!
I hope you are making the most of your last days of freedom. Here in Exmouth it is a really miserable day and the rain is absolutely pouring down.
I see Olympics fever is back on the airwaves. I think I had better hide for the next eleven days. When is the country going to calm down, when are the politicians going to sort out the mess we are in? I heard on the radio today that the wealth of this country is several times the national debt. If there were any ethics and morals, the rich of this country could pay off the deficit and still have plenty left, but it is the least well off that are paying the price for the greedy banksters and their likes. Perhaps we should put up signs saying "Your Country Needs your Dosh". We put similar signs up when we were looking for cannon fodder.
I do hope all is well with you and your family. We are not so bad, but yesterday in our local Tesco, while we were at the checkout, Raymond got mown down from behind, by an elderly lady 'driving' a Tesco motorised scooter. It was very frightening. He has the bruises to show for it. The poor lady was bemused by it all.
Best wishes.
Sylvia xx0 -
Thank you Sylvia and Sam52 for your advice and thoughts..
I think Sam52 is right in saying that the CT scan ..if done sooner ..would not have made any difference..i believe it can cost £22.000 to have one met zapped and that would take time fighting to get the cyberknife.. i have read that some ladies are only getting 6 monthly scans?
Yesterday i saw the surgeon and he is perplexed! Although he kept us waiting ..he was very kind to me and softer...( but he knows now that i am a stage 4) he poked and prodded it and agreed that some of the skin was a different texture..and it was explained that he had pressed on it ..to try and get the chest wall to stick a bit and stop the fluid coming into that space?!!! He didn't agree with ultrasound doc about no fluid..but said nothing else either!
He decided that it is not in my interest to have any radiation..and he drew a huge ink mark outside of the wound site..and maybe see me on Thurday when i go for my prothesis (sp)..i wonder if he thinks it's MRSA? He kept asking me how i was feeling..which is hard to say as i feel generally worn out...no temp though.
The surgeon reckons i should go ahead with chemo...even with this wound as it is!! Just an update..thank you both for listening..
Dulcie xxxx
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Hello Dulcie
It is unbelievable that cancer treatment costs so much and that to have one met zapped it costs £22,000. Someone must be making a lot of money out of all of this. Again, it is alright if you are wealthy and can pay for your treatment, but unfair to those who cannot pay. With these kind of costs for treatment, it makes me think of what Professor Karol Sikora said, which was that no health care system could afford the cost of the treatments because they are so high that they would deprive all the other illnesses of funds. I still think the answer to all of this lies in prevention and not in expensive treatment that does not bring a definite cure.Because of the cost, a patient will always have doubt in their mind about whether they are not getting treatment on the grounds of cost and not because it will not be effective.
Do you know why your surgeon is perplexed? A perplexed surgeon is not of much use to a patient!
I was glad to know that he showed a bit more kindness and softness. How old is he by the way?
Why do you think he drew a huge ink mark outside of the wound site? Did you ask him why he was doing it? If he thought you might have contracted MRSA, surely all he had to do or get done was a mouth swab and get it analysed.
I think I would have got exasperated about being asked how I was feeling. How does he think you are feeling with all this going on? Of course, you are feeling worn out. Getting through breast cancer is difficult when it is straightforward and you have had so many setbacks. If I were in your position I would do everything to build up my strength, help my immune system through good nutrition and rest. I think I would be drinking plenty of decaffeinated green tea.
I was surprised that it is your surgeon who is telling you what to do about radiotherapy and chemotherapy. Surely, that should be coming from your oncologist? It looks as though this is a no-win situation. You need the chemotherapy to start working on the lung mets but you also need to be strong in order to endure it.
Thinking of you.
Sylvia xx0 -
Hello Everyone,
I was just looking back at the first page of the thread when I started all of this and wondered what would happen. I started reading some of the first posts that encouraged me to go on and wondered how those women were doing now.
Hello Freddie DHL, the first person to post. Hello Jinglebell(Mary) up there in Scotland,hymil,Spammy61 (Pam), micheyd,Karen in Leeds. You are all from the UK and on the first page.
I would love to hear from you and to know that you are all well.
Thank you for your encouragement.
Best Wishes,
Sylvia.
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Hello everyone
Here are a few more photographs for you to enjoy.
Best wishes
Sylvia
Enjoy!
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Popping in to wish you all a good weekend...hope you are getting over last chemo session Fern, and thinking of you Dulcie...keep us informed of what's going on with you.
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Good afternoon everyone
I have finally gotten a working website for the Janette Collins Foundation. It is all very rudimentary at the moment but please take a look and make any comments you wish. www,janettecollinsfoundation.org.
I have spent most of the week trying to learn how to use the site maker software. There are lots of instructions out there but as usual they all miss some vital piece of information that I then have to hunt around for on the web or else work it out for myself.
Have a restful and peaceful weekend. Writing that reminds me of a sign outside some Alms Houses in Brentwood Essex. It says "Peace and Grace be in this place". I always think that is a fantastic sign to have outside a home.
Michael
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Hi Michael, I cannot get onto the site
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Hi, does it give any error message?
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