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Comments

  • Dulcie
    Dulcie Member Posts: 58

    Hello mumtobe ..Sylvia and other ladies..

    I am sorry i that i have not been here lately..i am not too well ..but determined to get to the Marsden next Monday!

    I have just put the dogs steriod eye drops in MY eyes by mistake..but i haven't barked yet!! instead of my own..

    I will be going to the doctors this afternoon as i am not too well...i went to the chemo ward on Sunday evening and because my temp had dropped down..(they only had to wait 10 mins for it to go up) there are certain tests they dont run.. 'blood cultures' i dont know if this is to do with money! So now they are expecting me to wait for a couple of days..to see if it creeps up close to 38 degrees! Surely most people would go and get antibiotics now and stop it progressing...am i missing something here i wonder...i finish chemo today with little se's..but am entering the 'danger' week when you can pick up anything!!

    Sylvia i saw a lady with a masectomy in the chemo ward and i had a look at it as i have not seen a 'real' one before...it was perfect..the skin was white and the wound all healed..i asked a nurse to look at mine as i seem to have been dropped now i am going to the Marsden..she took me into of all places....the toilet...kept a straight face....and said it was healing well...she didn't have a clue what she was looking at!!

    I hope you are well Sylvia and all the ladies here ..i have not read the past posts..only mumtobe's..

    Mumtobe i am so pleased that you have your surgery over with now xx and the sheer joy that awaits you and your husband is nearly here...i am thinking of you ..x

    Dulcie xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943
    Hello Mumtobe


    I was so glad to know that you are doing well and keeping well nourished.

    It is good news that your wound has never been sore and that you are no longer taking any pain medication. You are bound to have a bit of discomfort in the arm as the numbness wears off, but not having numbness is a good sign. Just keep up the exercises, but do them gently.

    I am glad that you have your mum and husband to take good care of you. Support from family and friends is very important. You have to be careful about not picking up an infection as this will put back your recovery. I am sure that your family will be careful about this and not come near if they have colds, flu etc. You need time to recover from your surgery.

    Waiting for the pathology report is always an anxious time, but you have not been given any reason to think it will not be good. Be positive. We shall all be thinking of you on the 11th when you get your results. It will be interesting to know how much detail you are given about the path report and whether you are given a copy. I was not given a copy back in 2005 in what I call the dark ages of TNBC. I also wonder whether today patients are given too many details, in technical language, and this makes them frightened and anxious.

    I can understand how excited you and your husband must be about the birth of your new baby. It is not long to go now, and I am sure all of us on the thread are waiting for this event. You are right to put aside thoughts of cancer and concentrate on the joyful occasion of the birth of the baby.

    Keep well and take care.

    Fond thoughts.
    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943
    Hello christina1961


    It is always so nice to hear from you and I am sure Mumtobe will be glad to have your support and words of encouragement. You have given her good information about starting physical therapy as soon as possible.

    I am not sure where Lindsay is at the moment. We did have one post from her from the US during her holiday and I know she will be back posting as soon as she can.

    I was very interested in your mention of Minnie Pearl, as it is a name that is very familiar to me. I did not know that her real name was Sarah Cannon.

    I do remember that you participated in an eribulin trial but did not know about the Sarah Cannon Center.

    Wishing you all the best.
    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943
    Hello FernMF


    I am posting to say thank you for your post and to let you know that we shall all be thinking of you today. You have nearly finished the most difficult part of treatment and you will begin to pick up. It remains to be seen whether the oncologist will decide that you need to complete a course of radiotherapy to round off your treatment. Let us know what is decided and whether you are offered post-treatment scans.

    Thinking of you and wishing you well.
    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943
    Hello BernieEllen


    Thank you for making us all laugh yet again. We definitely all need that. We have Dulcie, FernMF, and Mumtobe who are making their way through this cancer treatment and need all the support, comfort and encouragement that we can offer. It is also very important to help them to try to switch off the treatment and to try to have normal days in which they can laugh and try to enjoy themselves.

    How are you getting on? I hope all is well.

    Best wishes
    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943
    Hello Dulcie


    Thank you for your post. It is even more appreciated when we know that you are not too well. I was so glad to know that you will be at the Marsden on Monday October 8th. We shall all be thinking of you and hope you get wonderful treatment.

    Despite all you are going through it is good to know that you can keep a sense of humour. I am sure we are all glad to know that the dog's steroids have not made you bark! Do you think the steroids are the same as for us humans? Have you been looking for the dog food yet???!!!

    I hope your doctor will be able to help you this afternoon.

    I was sorry to know that you had had to go to the chemo ward because you had a temperature. I would think that a lot of what is happening, or not happening in the NHS is due to lack of funds or funds not being distributed where they are most needed. We get so little monitoring compared to our American friends who have insurance. There are lots of things I would like to have done, especially blood tests for cancer markers, but, as far as I know, they are not done here routinely. Apparently, the normal tumour cancer markers are 38. If anyone in the UK gets these done, please let us know. I would also like to know my IGF1 levels and homocysteine levels, but I doubt if these are offered either in the UK under the NHS.

    I was interested to know that you had been able to see another person's mastectomy. The way you describe it is how it should be. Everything should look clean and white, from my own experience, and it should happen quite quickly. Do you think the nurse who looked at yours should have said something other than what she did say?

    I am fine, Dulcie, and thank you for asking with everything you are going through. I have just been feeling quite tired lately.

    How is your OH doing?

    Fond thoughts
    Sylvia xxxx

  • FernMF
    FernMF Member Posts: 274

    ROUND 4 DONE - did a little mental happy dance on my way out that door - having a good day (all those steroids) . . .  the weather here today was/is beautiful . . . a bit of yard work . . . not bad.

    The oncologist said that we will follow with appts every three months with blood work - the blood work determines scans, etc.  That will go on for 2 years.  I asked about the TN connection to ovarian cancer and the BRC marker . . they did NOT do that test on my blood/tissue because I had no family history.  I asked in light of the connection between ovarian cancer and TN, that maybe we SHOULD do that test . . . also, since I had no family history, I AM MAKING FAMILY history for my sisters and daughter . . DUH!!!  He seemed open to that, and I will ask him again.  Of course it is an expensive test and the insurance company would have to approve it . . I don't think that will be a problem, they have been very good so far on this journey.  After two years, then it'll be 6 month appts until 5 years.  FUN FUN.

  • Mumtobe
    Mumtobe Member Posts: 82

    Hi Dulcie, Sylvia & Christina,

    Thanks so much for your good wishes. We are doing really well and are trying to keep as positive as possible for news on the 11th!

    Christina my range of motion is beginning to come to me. I am raising my arm over my head now since yesterday but it's quite sore and I wouldn't say my arm is able to go completely straight up but am making good progress thank God. I am anxious to do this right because I want to be able to get into the right position for rads. If I don't do this right the last laugh is on me so I might ask to see my physio to get that added help.

    Syliva, I have a question in relation to Soya Milk.....the only soya milk my husband said he can pick up is UHT. Is there a fresh milk version of soya?

    Dulcie, thanks so much for your kind words and thoughts. Will keep you posted on baby's progress. Have another scan on Thursday. My obstetrician is very positive about baby and delivery and he's a notoriously fantastic doctor so I have huge trust in him.

    Hope everyone is having a good week xx

  • BernieEllen
    BernieEllen Member Posts: 2,285
    Smallpox virus may help treat deadly form of breast cancer
    • Virus that helped eradicate smallpox used against type of breast cancer resistant to current treatments
    • It destroyed 90 per cent of cancer cells in lab tests
    By CLAIRE BATES
    PUBLISHED: 10:03 GMT, 2 October 2012 | UPDATED: 16:04 GMT, 2 October 2012
    A relative of the small pox virus may be an effective weapon against one of the deadliest forms of breast cancer, researchers say.
    Laboratory tests showed that more than 90 per cent of triple negative breast cancer (TNBC) cells treated with the vaccinia virus were destroyed within four days.
    In mice with the disease, one strain of the virus cleared away 60 per cent of tumours while the extent of those left was dramatically reduced.
    Vaccinia virus is best known as the basis of the vaccine that eradicated smallpox. Although closely related to the variola virus that causes smallpox, it is generally harmless to humans.
    TBNC is difficult to treat because it lacks three types of molecular 'receptor' that can be targeted by existing hormonal and antibody treatments.
    The disease mostly occurs in younger women and is responsible for 10% to 20 per cent of all breast cancer cases. TBNC tends to be aggressive and often recurs after chemotherapy.
    The virus targets a signalling protein tumours use to promote the formation of blood vessels that support their growth.
    TBNC has high levels of the protein, known as vascular endothelial growth factor (VEGF).
    Lead researcher Dr Sepideh Gholami, from Stanford University in California, US, said: 'The reason we used the vaccinia virus is that it is a member of the small pox family, and, as we know, small pox vaccine has been given to millions of people to eradicate small pox. So we thought it would be safer and more promising in terms of a clinical trial and actual application.'
    The findings were presented today at the American College of Surgeons' Annual Clinical Congress in Chicago.
    Exposing mice with TNBC tumours to the virus led to "extensive destruction" of the cancer over a period of three weeks, said the scientists.
    'Based upon pathology, we could see that at least 60 per cent of the tumours were completely regressed and the other 40 per cent had very little areas of tumour cells present with a lot of necrosis (die off), which is a sign that the tumour was responding to therapy,' said Dr Gholami.
    As well as infecting and breaking down cancer cells, the virus also blocked the growth of tumour blood vessels.
    Ultrasound imaging revealed a 'significant reduction' in blood flow to tumours. The network of blood vessels supplying tumours with nutrients and oxygen shrank to half its normal size in treated animals.
    The next step will be to design a clinical trial and assess the safety of the virus in patients, Dr Gholami added.
    Baroness Delyth Morgan, chief executive of the Breast Cancer Campaign charity, said: 'This is one example of a new type of therapy using viruses to attack cancer cells. The research is currently at an early stage in mice so the findings should be treated with cautious optimism.'
  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943
    Hello FernMF


    Congratulations on completing your fourth and final round of chemotherapy. You will now be able to start putting all this behind you and putting breast cancer in a smaller corner of your life.

    It looks as though your oncologist has decided that you do not need radiotherapy.

    It also looks as though you will now be having the same three-monthly check ups that we have over here in the UK when treatment ends, except that I do not think we have any bloods tests with these check ups, at least this has been my own experience. I did ask my oncologist about blood check ups and she said they were only good for that particular day. I must admit I have never understood what that meant. The physical check up is also only good for that day! I would love to have regular blood check ups especially to look for cancer markers. I understand the normal level for cancer markers is 38. It would be useful, when you have your check ups, if you could let us know exactly what they are looking for in the blood. Will you alternate between your oncologist and your breast cancer surgeon, which is what I have been doing? The two years for the three-monthly check ups is what I had here, and since then it has been every six months.

    I think that all of us with TNBC should definitely be tested for ovarian cancer, but I cannot see it happening here in the UK. Everything is about saving money and getting the very basic treatment. It does not really save money and is short sighted. It is cheaper to prevent than to cure!!! Let us know how you get on with obtaining a blood test for ovarian cancer. I think it is awful that everything depends on money.

    I hope this first week after your last chemotherapy will not be too difficult for you.

    Thinking of you.
    Sylvia xxxx

  • FernMF
    FernMF Member Posts: 274

    Thanks Sylvia . . . when I had my March ob/gyn appt., besides finding the BC, my pap smear came back "questionable" - repeat in 6 months . . . I will be making that appointment here in the next 4 weeks or so - had it scheduled for today but the oncologist said to wait until the chemo drugs are out of my system 4-6 weeks . . . My next appt with oncologist and surgeon are both the first week in November - then I guess the 3-month regimen starts with the oncologist - can't remember with the surgeon how often/if I have to go back there.  I also have to throw in there the repeat pap smear, an eye specialist, my 9-month cardiologist appt in december . . . YUCK - I used to be so healthy I didn't see doctors except one every couple of years for a poison ivy outbreak - -

    I'm having a good day today so far - that's because of these steroids, I'm sure.

    THANKS

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943
    Hello Mumtobe


    We are all glad to know that you are doing so well. Keep working gently on raising your arms and gradually you will be able to lift the side where you had surgery straight up. I am sure you will be alright when it comes to radiotherapy. They do everything to make you comfortable.

    You asked about soya milk. The only one that I buy is UNSWEETENED, CALCIUM ENRICHED, FRESH SOY MILK in Tescos. You will find it in the fresh milk aisle. You can also find it in Sainsbury stores. There is nothing wrong with the UHT soy milk, but I find I like the taste of the fresh. It is important to have calcium enriched (and not calcium carbonate) for your bones and to have unsweetened because remember that sugar products are said to encourage tumour growth. I must admit that I am not impressed with the Alpro products and sweetened soy milk tastes awful to me.

    Best wishes
    Sylvia xxxx

  • Dulcie
    Dulcie Member Posts: 58

    Hi ladies thank you for replying to me ..x

    I have started to have a problem with my Femur in my left leg..i didn't even know it WAS called a Femur until i saw the xray form..duh  what am i like? So off to get it xrayed tomorrow..i realise if it gets worse it will incapacitate me no end..plus it is a real worry to me!

    I seem to be falling apart ...a least i now have my 'paws' on some strong antibiotics..i just hope they dont interfere with my 'tests'? My DN called today and she thinks my wound looks very painful  which it is! My painkillers don't seem to be touching it...i don't take them very often though! Actually it looks as though it may burst at any time...yuk!

    Mumtobe i am really looking forward to hearing all about your baby xx

    Sylvia i hope you are less tired today?

    Dulcie xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943
    Hello BernieEllen


    Thank you for posting the information about using the small pox virus to treat breast cancer that appeared in the Daily Mail on October 2nd. For those interested in this article the link is:

    http://www.dailymail.co.uk/health/article-2211631/Smallpox-virus-help-treat-deadly-form-breast-cancer.html

    It made very interesting reading and let us hope further research will have a successful outcome. The trouble is everything is so slow. It goes from lab tests, to tests on mice, to organising all sorts of trials and then coming to some conclusions.

    I hope you are having a good week.

    Best wishes
    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943
    Hello FernMF


    Thank you for your post. I do hope everything will go well with your PAP test. I think it is wise to wait until you are over the last round of chemotherapy. It looks as though you are going to be quite busy with medical appointments over the next weeks. Be sure to let us know how you get on when you see your oncologist and surgeon in November.

    I hope all will go well with your eye specialist and your cardiologist appointments in December.

    Look forward to having all that behind you and starting the New Year with a clean slate.

    I was glad to know that all is going well today and hope it will continue.

    Best wishes
    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943
    Hello Dulcie


    Thank you for your post. I feel so sorry to hear all that you are going through. It seems to be one problem after another. I do hope it helps to know that I really care about you and everything that has happened and I am sure that I speak for everyone on this thread.

    I do hope that you will have good news about the femur bone in your left leg when you have an X-ray tomorrow. Have you been given any idea of what it might be? Try not to worry and deal with it as best you can. Whatever happens, you must get to the Marsden on October 8th.

    I do hope the strong antibiotics will help. What exactly are they? It is always helpful to have a name, either the brand name or the generic, so that we can look them up and find out all the details about them. Are they antibiotics to heal the wound that you still have on your mastectomy side. If you have an infection there, I would not think that painkillers would be of much help. What painkillers are you taking?

    It seems that doctors dish out these things without taking into account what effect these have on a patient when mixed together.

    Please post as often as you like if it helps to take your mind off everything that is being thrown at you.

    Thinking of you and willing to help as much as I can.

    I have been to Holland and Barrett today and bought some Vogel echinacea tincture. I always find it energises me. I am also taking some B vitamins (the whole complex) as it is supposed to be good for fatigue.

    I am touched that you can ask after me when you have so many problems of your own.

    Best wishes
    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943
    Hello everyone


    I have been trying to read through all the CANCERactive information and shall be doing some postings over the next few days.

    One page that caught my attention was on the Junk Science page, entitled Junk Science? Number 36: Bully Boy Skeptics show their true colours again with WDDTY.

    The WDDTY stands for What Doctors Don't Tell You.

    What Doctors Don't Tell You has just launched a 100-page glossy version in UK stores - and already it's being targeted by the bully boys who want the title banned.

    I went to W H Smith and bought this first edition of the magazine for October and it is a truly informative and powerful magazine. I have been reading it for a long time this afternoon. I am sure that all of you who want to be informed will want to read this. Remember what we said last year about knowledge is power and this magazine will empower you.

    You can also find this magazine in Sainsburys and Waitrose.

    http://www.wddty.com/

    Some of the articles in the magazine that I found of particular interest are:

    Painkillers that become killers.

    Does regular cancer screening SAVE lives?

    How to prevent cervical cancer.

    D is for Diabetes - The sunshine supervit.

    Super spices.

    How I avoided a hysterectomy with diet.

    Boost your immune system with diet.

    Asthma: the painkiller connection.

    Bonehead - How depression could be a trigger for osteoporosis.

    It's not age, it's the drugs (prescription drugs are a major cause of the common problems we usually put down to ageing).

    I do hope some of you will take the trouble to read this magazine. It is the best £3.95 I have spent this week!

    Best wishes to all of you.
    Sylvia

  • Dulcie
    Dulcie Member Posts: 58

    Hello again Sylvia thank you for your lovely kind words!

    I am on antibiotics for swollen glands and feeling 'shivery' my temp is up and down by the minute...so instead of waiting to possibly go neutropenic..and that would stop my visit to London ..i have a strong 250mg 4 times a day Eurthyromicin to take from my GP ..i cannot have penicillin..i just hope it makes me feel a little better...

    Dulcie xxxx

  • BuddhaWolf
    BuddhaWolf Member Posts: 62

    Hello ladies,

    I just wanted to say hello as I've been a bit of a 'silent partner' in the forum of late.   I do check in once and a while to see how you are getting on...And get a lot of joy from the photos shared here too!

    My uni -Anatomical TE's settled down, and am awaiting a date for the swap over & augmentation. And Ive been getting on & pushing myself out of my comfort zone to enjoy life in between recon surgeries. For example, yesterday, I photographed my first ever fund-raising fashion shoot for Breast Cancer Care (held in the London, UK, 22 women & 2 men whom have / had BC catwalk modelling - all of whom were truly inspiring - I shed tears with each snap it took!) Did anyone here get to attend yesterday? It was amazing!

    A week ago, I sat in the green rice terraces of Bali,pinching myself, as it's a place I never thought I'd see! And even learnt to dive in Bali too  - no easy feat considering I'm very scared of deep water and can barely swim. Result: I passed my PADI Open Water Divers course 3 months post-op- and now am a qualified diver! The underwater sights were amazing- well worth overcoming my fears, to feel truly ALIVE. I share these things not to 'blow my own trumpet' . I just hope to encourage other women to achieve their own personal victories, knowing fully well that at times, getting out of bed, making that first meal for yourself,  getting dressed independently - all these can be those great achievements made on our BC journey. Having Triple Neg. breast cancer made me a very very scared woman; day by day I feel less scared and more myself.

    Anyway, I just wanted to wish you ALL the best with your recovery, surgeries, decision-making, and lives.

     Warmly, Buddha Wolf

     

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943
    Hello Dulcie


    I am just popping in to say that I do hope the antibiotics do their work and that you will soon be feeling better. Only three more days to go and you will be at the Royal Marsden. Try to relax as much as you can over the next three days and do things that make you happy.

    Wishing you all the very best.
    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943
    Hello BuddhaWolf


    Thank you for your post and the photograph. It sounds as though you are having some very good experiences lately and that you are getting a lot of enjoyment out of them. The fashion shoot for Breast Cancer Care sounded very interesting and your experiences with deep sea diving awe-inspiring.

    It makes life in Exmouth seem very ordinary.

    Best wishes
    Sylvia xx

  • BuddhaWolf
    BuddhaWolf Member Posts: 62

    Good evening Sylvia

    Thanks for your kind words... encouraging others through sharing this post is my aim. And by the way, the beauty off Exmouth is very attractive down here in London I can assure you!

    Warmly, Buddhawolf

     PS Happy 2nd anniversary! Thanks for your dilegence
    and support <3

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943
    Hello BuddhaWolf


    Thank you for your post. You are doing a very worthwhile thing by encouraging others to get out there and do things. What we do not want when we are going through breast cancer treatment is to become so obsessed with it all that it begins to possess us and define us. I think it is therapeutic to try to be as normal as possible and to make the most of every day.

    Thank you for your kind words about Exmouth.

    Best wishes
    Sylvia xx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943
    Hello chatterbox2


    We have not heard from you in a while and I was wondering how you are. Have you managed to get the Janette Foundation going now?

    We hope you are keeping well.

    Best wishes
    Sylvia

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943
    Hello sam52


    I thought you would like to know that in the new magazine What Doctors Don't Tell You, first issue out in October 2012, I saw a mention about a connection between parathyroid hormone and diabetes 2. I have not had time to research it as yet, but wondered if you have any information?

    I hope all is well with you and that your term is going well.

    Love
    Sylvia xxxx

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943
    Hello beachmd


    Thank you for your PM. It is very difficult for me to say why I think that so far I have been able to remain in the clear after a diagnosis of TNBC I June 2005. Success is an unusual word to use with reference to breast cancer, as no one can really steer themselves to stay in the clear after a diagnosis. Why some of us have a quick recurrence, a new primary or metastases, is a bit of a mystery. It is also a bit of a mystery why some of us have years of being in the clear and then have the cancer strike again. I know there are women who remain in the clear for many more years than my own seven years and a bit, and then have it return. I know of cases where it has returned after twenty years or more.

    In my own case I know that I have tried to live as normally as possible and have never taken it for granted that my breast cancer journey was over. I am very careful about eating healthily, keeping active and trying to avoid feelings of stress and anxiety. As far as eating goes, I do not eat meat, poultry or dairy products, because of growth hormones in them. I base my diet on plenty of fruit and vegetables, organic where possible, fish, some cold water prawns, nuts, grains, seeds, pulses and wholegrain bread. I do not drink any alcohol.

    I do a lot of gardening and keep my brain active.

    I drink plenty of green tea, eat bitter apricot kernels, which are supposed to be anti-cancer. I drink fresh unsweetened soy milk and take a few vitamin and mineral supplements. I eat a few organic eggs and have plenty of mushrooms in my diet, especially shiitake mushrooms.

    I do think chemotherapy was relatively easy for me, compared to what I read about what other women go through.

    I still feel fine, but like everyone I should imagine, I do have underlying fears of the cancer coming back. Most of the time these fears are not in my mind, but they do come around at check up times.

    I saw from one of your posts that you are newly diagnosed with TNBC. I am sorry to hear that, but be reassured and just make sure you get on with your treatment. You have a small tumour, and that is probably why a lumpectomy has been suggested. You should ask what your grade is. A lot of TNBC tumours are grade 3 and considered aggressive. Here in the UK when a lumpectomy is done, a second one will be done if there are not clear margins. After two attempts and if the consultant is not satisfied, you will be offered a mastectomy. This will be your personal choice. All our cases of breast cancer are individual and depending on the size of the tumour, stage, grade and whether there is lymph-node involvement or not, your medical team will make their decisions.

    Do not be afraid of chemotherapy or radiotherapy. You can get through these treatments.

    Please feel free to post on this thread if you want to. Everybody from whatever country is welcome. I hope this helps you.

    Best wishes
    Sylvia

  • sylviaexmouthuk
    sylviaexmouthuk Member Posts: 7,943
    Hello everyone


    I hope the weekend has turned out to be nice one for all of you.

    To Dulcie. We shall all be thinking of you tomorrow and hoping all goes well for you.

    To FernMF. I hope you are slowly recovering from your last chemotherapy session. You could have some words of encouragement for the newly diagnosed beachmd.

    To Mumtobe. We are all thinking of you and hope you are continuing to make progress after surgery.

    To linali. I would love to know whether you are back home and how the trip went.

    To BernieEllen. How are you doing? If you have any jokes or any artistic designs or photographs, please post them.

    To any newly diagnosed patients, please post and ask for any help if you need it. A breast cancer journey should not be one you do alone.

    If you are going through treatment at the moment, it is useful for us to know what details you are being given, whether you are automatically getting a copy of your pathology report, what kind of scans you are having, because there are quite a few you might be offered, and how you are being treated and whether you feel satisfied.

    Best wishes to everybody.
    Sylvia

  • BernieEllen
    BernieEllen Member Posts: 2,285
    A rather drunk man was walking along the street one day. He was staggering quite a bit and made two nuns that were approaching him, very nervous. The two nuns split apart and one walked to the man's left and one walked to the man's right.
    After the nuns were past the man, he turned around and said, "Now how in the hell did she do that?"
  • beachmd
    beachmd Member Posts: 4

    With so many drugs for chemo is there some that are easier to take that could be asked for if all do the same thing. It just seems like some people have no trouble when taking chemo. Also is it usually a couple of days a week for months or what is the length. Sorry if these are dumb question. Also should I meet with med onc before I need the chemo to make sure I feel comfortable. Thanks.

  • FernMF
    FernMF Member Posts: 274

    Beachmd:  I had taxotere and cytoxin . . . there was a third drug in the "typical" regimen for TN, started with an Arth . . . but oncologist said "no" to that one in my case because of its negative effects on heart muscle (I have a heart thing already) . . . SO - just the two drugs . . . administered 4 times, 21 days apart.  I also rec'd a Neulasta shot (white blood cell booster) the day after treatment.  My side effects (from what I've read on this site) seem to have been minimal . . . I am one week out from my LAST treatment and rejoicing that it is over.  Minimal side effects for me included:  hair loss (day 15 - and "other hair loss" too - not just on top of your head); metal mouth/acid reflux/taste bud changes; acute aggitation from the steroid the first round, then those were changed and decreased - to a much better level, but still sleeplessness, and aggitation, couldn't get "comfortable; long muscle aches (mostly quads); fatigue.  Prilosec helped immensely with the metal mouth/acid reflux.  Xanax helped with the aggitation/restlessness.  I used pain pills and sleeping pills and Melatonin to aid in sleeping (still doing that, although I plan on weaning off . . hopefully).  I added a Magnesium supplement for the toe cramps I had in round 3.  Overall, a bad experience, but MUCH LESS than others . . and I worked the two weeks in-between the chemo rounds.  I'm walking, but MUCH LESS than when I started (3 miles/day) . . hope to get that back by end of month.  I've gained about 5 pounds . . hope to get started on losing that.