GRRRRRRRRR I HATE LE..........
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Got re-wrapped today by a new therapist. I then went to the gym. It was my first time ever doing cardio with the wrap on. I still have it on ... which makes a couple of hours which is a whole lot longer than the first time. I'm not nauseous this time either. I wrapped myself for the first time last night. I'm thankful I was in a good mood or I would have thrown bandages like I've heard some of my other sisters doing.
It took three goes to get something resembling what it was supposed to look like on my fingers. My arm ... not so much. 
I think I was so exhausted and so overwhelmed from the fingers and hand ... it was more than I could take. lol. I can see, though, that eventually I'm going to get this. And I think the wrapping is really going to help me. Thank you all for your support.
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If I have breast LE, and they decided to do a biopsy... do I need to do anything to keep the LE at bay?
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My arm looks like the Hindenburg airship! It's almost like those grotesque pictures we've all Googled. Walking around with semi-treated LE REALLY sucks! MLD, fist-pumping is not working.
I need my garments, I need my LET, I need to vent!!!!
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Dawne-Hope, I'm just thrilled with your news!
What a lot of trial and error--major trial, lots of errors--to finally get some help. Hope it just keeps on getting better! And yeah, you'll get it down, just takes practice.
Gma, can't wait til you have confirmation that all's well. In the event of a biopsy, ask the doctor about a possible prophylactic antibiotic to ward off any chance of infection. Otherwise be aware and get help immediately if you develop any problems--or even any questions about a possible problem. (See the LE Emergencies page at StepUp-SpeakOut for what to watch for). Looking forward to good news!
Nibbana, when can you see your therapist? Give her a call today, yes? Bummer!
Be well!
Binney0 -
Dawne-Hope, I think it took hours the first time I wrapped and I just couldn't get it right...Now it literally takes 10 minutes. Practice sure makes a difference.
I had wraps that were too tight make me nauseated. Bad sign. Glad this is working out.
Kira
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GMA-
I have lympho in my boobie and back area, Binney advised me to take antibiotics before my recent biopsy but my surgeon and the doc at the biopsy center both said it was not needed so I went in cold (it was an ultra sound guided biopsy)
have to say that I have been having some pain in my wrist arm since the biopsy, I only have swelling in the actual boobie and not in the arm
not sure if antibiotics or maybe some thing else would have helped
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Ultrasound tomorrow at 8:45 - I hate when the surgeon says he will call me with the results and if it is worrysome he will just take it out to make sure.... The last time he said that, I ended up with 2 surgeries.
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GMA, your surgeon is being cautious and doing all the right stuff. So hard to be waiting and worrying.
Hopes for the "all clear" this morning.
Kira
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Thinking of you this morning, Gma.
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Ultrasound done - RO came in, looked and my whole scar in the ultrasound, went back to the pea sized lump and said he has no clue what it is, it could be scar tissue but he has seen cancer in that form too. He is going to suggest an MRI. $$$$$$ No insurance at this point to speak of - used it up on the LE therapy.... 0
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GMAFoley, I've seen and heard of a lot of women who are covered under their state's insurance for breast cancer treatment, related to that 1998 law. I know they say "mastectomy", but a lumpectomy is a "segmental mastectomy" and qualifies.
http://www.dol.gov/ebsa/publications/whcra.html
Just being devil's advocate, why the MRI if the surgeon just wants to take it out?
And I'm so sorry they didn't end the worry for you this morning.
Hugs
Kira
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The RO at the center said "HE" couldn't do a biopsy because it didn't look totally like "my type of cancer". But I called the surgeon's office and gave him a heads-up, he can see the films before the report because they are linked together. He said he would take it out if it was "worrysome" - (his pet word). Now waiting for the surgeon to call me back
Edit: Thank you ladies - please keep opinions coming! I need help deciding what to do.
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Teka I have no clue - I do have the ultrasound pics from my cancer and today - its is more like a pea but it is not round its irregular whereas my cancer was more elongated and irregular... so I give the RO kudos for at least telling me the truth - that he has no clue.. just waiting for the surgeon to call me back - I know, I know - I shouldn't look at the pictures, but being and osteologist/archaeologist in my other profession, I am always interested in what things look like.
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Gma, an osteologist! You're not joking, right? How fascinating is that!
A mystery solver. Good for you for going for something so "out there" and interesting!Hang in there--you're going to have answers, and they'll be quick. I'm looking forward with you to only good news. (Whew!)
Big hugs,
Binney0 -
Yes, Binney, I'm not fooling but my osteology days are over - All the bone in Oregon is either under Mt. Mazama ash (Crater Lake was Mt Mazama) or the stuff above is off limits because it is Native American and they use their own people to identify it. And now with the start of LE I don't think I should be in the sun, in the middle of pastures digging 80cm shovel probes, 30 meters apart with killer bees and snakes running around..
- To get to the fun part, they make you do the labor too..0 -
wow, I made a trip form NJ to Oregon years ago to visit a pal and also to see Crater Lake
still have the photos
wanted to walk around the lake as it was July....snow still blocked the path but I totally recomend the trip
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Proudtospin: The actual ash spread miles away from Crater Lake - I live a long way from there in Roseburg and if you take the route to Crater Lake - you can see the layer of ash in the side of the mountains.
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Ok now the panic button has come on - The Radiologist today mentioned a breast MRI... They inject dye???? LE??? Will they argue to inject it in the right arm being the lump is in the right breast??? Or does it matter? I'm not a happy camper being I read that on BC.org
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I don't think it matter what arm they use to inject you with that dye. Wishing you the best!
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Carol,
Thank you for the information about the sleeve. I really appreciate you taking the time to list the measurements, etc. I'm glad it worked for you. The price seemed too good to be true, but I guess it's not always a "you get what you paid for." Thanks.
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Another Question - Sorry I'm bugging you ladies so much.. If we are having trouble diverting the fluid and my good arm is swollen, would it hurt to put a sleeve on that arm? My LE arm is doing great and my good arm is driving me crazy.
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GmaFoley, before you use compression on the good arm, can you get your LE therapist to check it out? Compression can cause problems if not well fitted, and it's not clear what is going on.
Some women do become bilateral, but they've usually had some surgery, radiation, or chemo on the "good" side to disrupt the lymphatics.
One woman who posts on this forum is bilateral with none of that, but she's a very unusual situation.
Kira
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Kira I did have a shoulder surgery and partial clavicle removal and my LE therapist and I have been talking about it.. He doesn't feel any adhesions on the shoulder scar.. He has said, for whatever reason, my axillary node on my good side seems to be toast so we will divert fluid down and we are doing MLD separate on both sides.. He is watching it, but of course, when it is driving me nuts, he is out of town... Edit This is another reason I am concerned about the dye injection for my Breast MRI.
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Still wondering why the MRI vs. removal, but typical radiologist--when in doubt, ask for another image.
I had three breast MRI's and they do start an IV for the dye. I used my "good" arm. It's just a little bit at the end, but I found, unfortunately, that the MRI tech was lousy at starting IV's so I demanded the CT tech, and the final one was easy, the first two involved multiple attempts--not good. The IV itself wasn't irritating, just the failed attempts.
Can your surgeon weigh in on whether the MRI will change his/her approach? No point in doing a test if the results won't impact clinical decision making.
The osteology sounds really interesting.
Kira
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Kira - I'm not sure why radiologist said what he did but will be talking to the surgeon after he looks at the pics.
The most noted osteology job I had was when a construction worker was tearing up a parking lot and found a disturbed burial ground..(lots of legal issues). We end up exhuming all the individuals (39) and identifying age, sex, disease, etc... I really miss that type of work, but because I only have a BA and not an MA, I'm not permittible, so I have to work under someone that is... Really cuts the jobs down..and I usually ended up being a "shovel bumm".. Not happening now
- still dealing with the change in job profession... 0 -
Surgery it is... no MRI we all agreed it is best to get it out of there...nervous and scared and what to do with the LE stuff but we will see... BTW, never told you all... I'm allergic to antibiotics.... 0
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Good Luck GMA
I too am allergic to lots of antibiotics. Penicillin, sulfur and now Cipro. Had the last allergic reaction with pre meds before my hysterectomy. I blame it on chemo changing my body. It doesn't leave much choices. Then there are like 12 other drugs I have had reactions to plus the lanolin. grrrr.
I have a question. I have a red spot on my LE arm that I am watching. It's been there at least two weeks. It started as a little red dot and now is about the size of the tip of my pinky. It is just below the crevice of my arm. Should I have it checked? Just let my LE PT look at it Monday and give her opinion or just keep watching it. It doesn't hurt, itch, raised or anything. I have wondered if maybe I have done something when putting on my sleeve or if it is irritating it.
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I should know the date some time today.. of course today is my 2 job day... hopefully they will leave me a msg..
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GmaFoley and KittyDog, I am allergic to all antibiotics as well Have been since after kids born 25 yrs ago prior to that just allergic to a few. Anyways that was influening in decission making of doing lump instead of mast. Just got back from seeing R.O after my rads. Not impressed with him. Anyhow asked if I had concerns My major one is that my breast is sore and swoller and he just brushed me off saying you mean heavy and hard well Duh! I meant sore and swollen. Anyhow make a long story short He said I do have fluid in my breast but he shrugged it off. I have a question can you have Lymphedema in the breast??? My boob ( or what,s left of it hahaha) went down a bit after a couple of weeks after surgery but it has swelled back up again. When I pressed on it lightly it left white imprints. Oh it is so nice to meet others who are allergic to all anti-biotics just don,t feel so alone any more hahaha. thanx for any info you can give me
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Hi Teka- Is that a symptom of truncal lymphedema?? I was just reading some lymphedema sites thinking maybee i am making a mountain out of a.... Actually thinking of stoping the rads cause he ( R.O ) seemed like he couldn,t be bothered he is getting ready for his vaca . and just dealing with the breast surgen. He brushed what little i had to say off. I also explained that i have nausia quite a bit. Just told me it wasn,t from the rads. Sorry just quietly venting and thinking outloud (in my head) hahaha
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