Talk with others about how to lower your risk of lymphedema and how to manage it if you've been diagnosed with this side effect of treatment.
The main Breastcancer.org site offers helpful information in the extensive Lymphedema section, including: Lymphedema Signs and Symptoms Reducing Risk of Lymphedema and Lymphedema Flare-Ups Lymphedema Treatments Finding a Lymphedema Therapist There are also great tips and practical advice on the following discussion board…
Hi. I have BCR lymphedema. It has been a long and difficult journey for me. I live in Tampa and have had limited success with treatment options and providers in this area. After being told by Moffitt there were no treatment options for me I went to Cleveland Clinic and met with Dr. Chen who recommended liposuction and…
I recently traveled to the University of Iowa to meet with Dr. Wei Chen a supermirosurgeon/plastic surgeon. I was referred to him by my PS. I had the Indocyanine Green Lymphography done and was amazed at what was seen both in my healthy arm and diseased arm. I was diagnosed under the Campisi Staging at Stage 2 as my LE is,…
Any input anyone on these treatments. Grateful for any info Good wishes to all Anna
Hi everyone. I was diagnosed with lymphedema I think in early 2011, so it’s been a while. I used to be on this board a lot back then. I’ve stayed active and used compression and not had much trouble with flares of swelling. My swelling never goes away completely, but it’s still soft and it’s honestly quite subtle to the…
Hi everyone. Haven't been here in a while. I've had lymphedema in many areas of my old body now for years and years (I won't say how many :) - I wear a lot of different compression garments depending on the severity on the day, sleeves, vests etc. My question is: does anyone else have quite severe burning pain in the upper…
I’ve move from PT for nerve impingement to lymphedema OT for breast and truncal lymphedema. My OT says she considers me Stage 0 lymphedema in my arm due to symptoms I have however I don’t have enough swelling yet in my arm. Yet. I’m in compression bras 23/7, have multiple pads to wear in bras for additional compression, do…
I’m starting PT after lumpectomy and radiation. I had cording, breast swelling and some pitting in my skin BEFORE radiation, and all of that has continued with increased nerve compression. I’m sure there is fibrosis occurring as well. I have no swelling in my arm yet. My PT has advised I wear a compression bra daily and…
Several years back, I was prescribed a Flexi-Touch pump. The garments I wore had velcro closures and I used the pump daily until the seams on the garments started getting holes in them probably from being pumped up daily for several years and they eventually wore out. I understand that now they have zippers instead of…
double mastectomy in May with expanders. Radiation finished in September. I have a lot of swelling on one side. I don’t usually wear a bra because my sports bras feel like they make the swelling worse by the end of the day. Any recommendations for a bra that also helps to drain lymph nodes and can help with breast swelling?
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