GRRRRRRRRR I HATE LE..........
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LOLOL
(Edit to add, LOL at your LOL and your little girl wondering if you'd gone berserk, not at the probing part.)
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so I am not the only one who has finger that refuse to type what I am trying to say. lol
Post earlier on FaceBook.... Ice Creaming in calling. Now it makes me wonder maybe my child is right and I do say some horrible mistakes all the time. If my fingers do it maybe I am saying them too. lol
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Kira, thank you for reposting that here. We all need to read it and reread it.
I have a relative in dh's family who would occasionally pull the "think positive thoughts". Drove me nuts. Then when I got the mets dx she said "I will think positive thoughts for you". Well, OK, that's better.
Ducky, c'mon here under the bed with us. We're eating brownies.
Leah
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So how did that get reposted? Deleted because saying it once was enough.
Leah
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Jo-5...........I 'm coming to dinner.........Worms sound good right how................
I'm sitting here at the computer with the "heels" that I'm taking to D.C. with me to my grandaughter's graduation, and then to dinner...............I'm making sure I can tolerate them for more then 20 minutes, cause if not..................hurting feet......and this LE arm, I might just rip off the arm, and beat the shit out of the 1st person that says (awwwww, how are you feeling), I'll just show them by whacking them with the stump................the only thing worse would be "rain", and I heard D.C.is getting that too.
Oh well, I have to put on my happy face, maybe I'll go in the bedroom, smile in the mirror, and see which face will impress the people who say (awwwwwwww how are you feeling). Should I practice how to say "fuc--ng lousy.............................Damn I'm nasty
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as the day goes by im in more and more pain.i never had this before and im scared.i looked in the mirror and it seems that the upper arm is a bit more swollen then it usually is.... and the side of the breast is reall sore...cant even put that harness on...if its ONLY edema can i put ice on it?I go to PT tomorrow and i dont want to take anything for pain...any suggestions??????0
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Granny, I feel so bad for you, I hope your pain goes away soon, as far as ice goes, maye you better be careful...............how about a better then cool wash cloth..........If you do choose the ice make sure you don't let it get too cold..........cover it with a towel first............
I'm sad fo you 0 -
There really is not much you can do. If it is LE, extreme cold and heat can both make it worse. I would take some motrin because the Dr. probing could have cause some normal inflammation. I hope somebody else chimes in soon...... maybe even a luke warm bath if nothing else but to calm you down...I always find a bath to make me feel better. I just make sure not to get it to hot now.
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No, no ice, elevate your arm. Drink lots of water and don't lift a finger if you can help it until you go to your appt. tomorrow.
Edit to add~is there any redness?
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thanks Sharon--does that mean off the puter?????guess so.huh?gonna drown my sorrows in a big glass of h2o....the gift that keeps on giving.
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Hey gals..........does water really help LE.........my daughter haunts the hell out of me telling me everything (other then the cancer) that happens to me is because I don't drink water.........my dizziness, my headaches, my body aches.........she never lets up.........Everytime I say I have something hurting she will say "are you drinking water" to the point where I want to squeeze her 42 year neck till her gorgeous eyes pop out..........I told her I was going to get a T-shirt for her that says "did you drink your water" but maybe she is right.,
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Granny, if your breast is really sore, it could be an infection, so it would be a very good idea to have it checked out--any redness, pain, fever--could be a skin infection.
IMO, this is LE--not edema.
And LE sets you up for infections
http://www.stepup-speakout.org/Emergencies_and_Medical_Care_lymphedema.htm
Kira
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duckyb1 - Water IS extremely important! Maybe you do need to listen to your daughter!
Most of us don't drink enough water which leads to dehydration, which causes dizziness, headaches, dry skin, constipation ... a whole slew of problems. Lymph fluid is made up of protein molecules and those protein molecules bond with the water molecules and it helps flush the lymph fluid out of our bodies. No soda, no caffeine, water. Sometimes I drink seltzer or perrier water or I'll flavor it with lemon or lime just to switch it up a bit. Drink up, sister!
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Grannydukes, check out the link Kira posted -- please! Can't be too careful with this stuff.
Sharon gave you great advice -- drink lots, elevate the arm, take it real easy with that whole side of your body, and do some deep abdominal breathing from time to time.
And for goodness sake keep us posted -- you've got us all worried!
Real gentle hugs,
Binney0 -
Kira-it was never sore before.just tender.And there is no redness and no fever.Im drinkin lots and lots of water and i have my arm elevated and actually i do feel better.IMO i think its from all that prodding he did yesterday plus went to a wake last nite and got lots and lots of hugggggggggggs never thinkin of protecting that side.im goin to the PT tomorrow and the onco on wed.if this thing does not get better trust me ill be hunting down every dr.i can find.thank you soooo much for all your help.hugggggggggggg to everyone K....PS im not wearing the harness either.just a sports bra.hope that will not do any more damage.GRRRRRRRRRRRRR
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I really like all you guys. Sorry so many are having trials. (((hugs))))
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Dawn-Hope........thanks for that info...........guess we can learn from our children.......of course I will make sure I don't tell her she was right.......that I do need all that water......thanks, hugs
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The water does help.
As for the large breast thing....they are right. We get a higher dose of radiation. Thats why I had lumpectomy with reduction...but they are still pretty darn big...just not freakishly huge.
I am beginning to think controlling the breast le is key to the arm le.
Oh and would my freakin' garments get here already????????
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Cookie, as a someone who works for a rad onc--technically you get the same dose, but it is delivered over a larger field--so you are getting more to the body.
I see a lot of breast LE show up in the large breasted women. As soon as I can see visible pores, I know it's coming...
There is a link to an good article on breast and trunk LE:
http://www.lymphoedema-uk.com/journal/0101_breasttrunk.pdf
Kira
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Do you do morning MLD before or after you shower? Anyone notice one being more effective than the other? KS1
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Duckyb1, I must be your long lost daughter! The joke with my kids and husband is that they could break a leg and I would prescribe water. But seriously, I think water is key. My father, brother and I all independently discovered that drinking copious amounts of water decreased the frequency of sinus, migraines, and cluster headaches. One thing I have noticed is that my body seems to have adjusted to my drinking lots of water. I'm not a happy camper on 8 glasses of water. KS1
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Hi Ladies,
Having a tough day with lots of LE discomfort and swelling after a really long day yesterday. I am a Doula (which is a professional labor support person) and had a 20 hour birth. I'm really worried that I am going to have to stop as birth is so unpredictable. Anyway, went to my MLD therapist and she actually seemed quite concerned and sent me home to wrap and rest. She (therapist) has acted as though my LE was pretty minor and has kind of made me feel like a whimp because I have pain associated with it. I'm sure she has seen much worse but this does hurt, my arm, back, side and ribs are driving me crazy! She has said things like, well with LE, there really isn't pain associated with it. You must have some hypersensitivity due to nerve damage! Anyway, today she seemed kind of different, since I have swelled up like a tick! Pretty damn frustrating!,,,,
Thinking of you all and hoping you don't have a SWELL day, but one of joy and laughter.0 -
Hello sistas...thanks everyone for your concern yesterday....i did what all of you told me...drank gallons of water,did not lift a finger to do anything,slept with my arm raised and woke up feeling like a new person...called the RO this morning and he said go to the therapy and make sure you have a long session....i feel fine.still drinking lots of water,had a great massage and wearing the harness again...now all i need is a new wardrobe to cover the harness.....gosh that should be my biggest problem.....God bless all of you.hugggggggggs K0
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Christine, I'm so sorry!
(Well, not sorry about the birth -- congrats on a long job well done, and I hope the babe is thriving!)The therapist makes me mad -- lucky for her we all live all over the world and aren't close enough to march on her office!
No pain indeed! No empathy, that's the problem.You must be so distressed over the possibility of having to give up your amazing calling -- please don't go there yet, as there's still plenty of hope that you can get on top of this and develop some coping strategies that will let you continue.
In the meantime, rest up, elevate, drink lots of water, take some deep breaths. A bit of self-MLD, gentle and slow.
And keep us posted. Thinking of you!
BinneyEdited to add: And brownies, of course
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Christine--the National Lymphedema Network issued a paper stating that LE causes pain:
http://www.lymphnet.org/pdfDocs/NLN_Washington_Post_Reply.pdf
I really hope this doesn't stop you from your work.
Kira
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IMO everything that has to do with bc HURTS.....did anyone ever have anything done pertaining to bc that didnt hurt?????just wondering and thinking out loud.
Prayin for you Christine....I too hope this doesnt stop you from your work.
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Thank you so much Binney, Kira and Grannydukes, I really appreciate the kind words. I hope it doesn't either, I have always been so grateful for loving what I do. I imagine some rest could really help. Brownies...that sounds great!
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Kira thank you for posting the letter... I just wish ms stout had lymphedema so she could tell herself that there is no pain associated with a flair. It's rare for me to have a pain free day.
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Ladies, have any of you ever used horse chestnut, my partner picked some up for me and I just wondered if you have any experience with it. It states it is for vein health but I think some of her research suggested it for the lymphatic system. It is a type of water pill I guess. Just wanted your opinions. Thank you!
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Christine5 - I've no idea about horse chestnut. If you don't get a response here you might want to ask your question on the 'natural girls' thread.
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